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Exile and Pride: Disability, Queerness, and Liberation


Eli Clare - 1999
    . . . Using the language of the elemental world, he delineates a complex human intersection and transmutes cruelty into its opposite—a potent, lifegiving remedy.”—Alison Bechdel, author of Fun HomeFirst published in 1999, Exile & Pride established Eli Clare as one of the leading writers on the intersections of queerness and disability. With this critical tenth-anniversary edition, the groundbreaking publication secures its position as essential to the history of queer and disability politics, and, through significant new material that boldly interrogates and advances the original text, to its future as well. Clare’s writing on his experiences as a genderqueer activist/writer with cerebral palsy permanently changed the landscape of disability politics and queer liberation, and yet Exile & Pride is much too great in scope to be defined by even these two issues. Instead it offers an intersectional framework for understanding how our bodies actually experience the politics of oppression, power, and resistance. At the heart of Clare’s exploration of environmental destruction, white working-class identity, queer community, disabled sexuality, childhood sexual abuse, coalition politics, and his own gender transition is a call for social justice movements that are truly accessible for everyone.Blending prose and theory, personal experience and political debate, anger and compassion, Exile & Pride provides a window into a world where our whole selves in all their complexity can be loved and accepted.An award-winning poet and essayist, Eli Clare is also the author of The Marrow’s Telling.

The Disability Studies Reader


Lennard J. Davis - 1997
    This volume represents a major advance in presenting the most important writings about disability with an emphasis on those writers working from a materialist and postmodernist perspective.Drawing together experts in cultural studies, literary criticism, sociology, biology, the visual arts, pedagogy and post-colonial studies, the collection provides a comprehensive approach to the issue of disability. Contributors include Erving Goffman, Susan Sontag, Michelle Fine and Susan Wendell.

Care Work: Dreaming Disability Justice


Leah Lakshmi Piepzna-Samarasinha - 2018
    Powerful and passionate, Care Work is a crucial and necessary call to arms.

Beauty is a Verb: The New Poetry of Disability


Jennifer Bartlett - 2011
    Crip Poetry. Disability Poetry. Poems with Disabilities. This is where poetry and disability intersect, overlap, collide and make peace."[BEAUTY IS A VERB] is going to be one of the defining collections of the 21st century...the discourse between ability, identity & poetry will never be the same." —Ron Silliman, author of In The American Tree"This powerful anthology succeeds at intimately showing...disability through the lenses of poetry. What emerges from the book as a whole is a stunningly diverse array of conceptions of self and other.”—Publishers Weekly, starred reviewFrom "Beauty and Variations" by Kenny Fries:How else can I quench this thirst? My lipstravel down your spine, drink the smoothnessof your skin. I am searching for the core:What is beautiful? Who decides? Can the lawsof nature be defied? Your body tells me: comeclose. But beauty distances even as it drawsme near. What does my body want from yours?My twisted legs around your neck. You bendme back. Even though you can't give the bonesat birth I wasn't given, I let you deep inside.You give me—what? Peeling back my skin, youexpose my missing bones. And my heart, longbefore you came, just as broken. I don't know whoto blame. So each night, naked on the bed, my bodydoesn't want repair, but longs for innocence. Ifinnocent, despite the flaws I wear, I am beautiful.Sheila Black is a poet and children's book writer. In 2012, Poet Laureate Philip Levine chose her as a recipient of the Witter Bynner Fellowship.Disability activist Jennifer Bartlett is a poet and critic with roots in the Language school.Michael Northen is a poet and the editor of Wordgathering: A Journal of Poetics and Disability.

Illness as Metaphor and AIDS and its Metaphors


Susan Sontag - 1989
    By demystifying the fantasies surrounding cancer, Sontag shows cancer for what it is--just a disease. Cancer, she argues, is not a curse, not a punishment, certainly not an embarrassment and, it is highly curable, if good treatment is followed.Almost a decade later, with the outbreak of a new, stigmatized disease replete with mystifications and punitive metaphors, Sontag wrote a sequel to Illness as Metaphor, extending the argument of the earlier book to the AIDS pandemic.These two essays now published together, Illness as Metaphor and AIDS and Its Metaphors, have been translated into many languages and continue to have an enormous influence on the thinking of medical professionals and, above all, on the lives of many thousands of patients and caregivers.

Animacies: Biopolitics, Racial Mattering, and Queer Affect


Mel Y. Chen - 2012
    Chen draws on recent debates about sexuality, race, and affect to examine how matter that is considered insensate, immobile, or deathly, animates cultural lives. Toward that end, Chen investigates the blurry division between the living and the dead, or that which is beyond the human or animal. Within the field of linguistics, animacy has been described variously as a quality of agency, awareness, mobility, sentience, or liveness. Chen turns to cognitive linguistics to stress how language habitually differentiates the animate and the inanimate. Expanding this construct, Chen argues that animacy undergirds much that is pressing and indeed volatile in contemporary culture, from animal rights debates to biosecurity concerns.Chen's book is the first to bring the concept of animacy together with queer of color scholarship, critical animal studies, and disability theory. Through analyses of dehumanizing insults, the meanings of queerness, animal protagonists in recent Asian/American art and film, the lead toy panic in 2007, and the social lives of environmental illness, Animacies illuminates a hierarchical politics infused by race, sexuality, and ability. In this groundbreaking book, Chen rethinks the criteria governing agency and receptivity, health and toxicity, productivity and stillness—and demonstrates how attention to the affective charge of matter challenges commonsense orderings of the world.Mel Y. Chen is Assistant Professor of Gender and Women's Studies at the University of California, Berkeley."Animacies is a book about 'reworldings,' as Mel Y. Chen traces the myriad ways that objects and affects move through and reshape zones of possibility for political transformation and queer resistance to neoliberal biopolitics. At the same time, Animacies itself generates such transformations: grounded in a generous, expansive understanding of queer of color and disability/crip critique, Chen's study reworlds or reorients disability studies, gender and sexuality studies, critical race theory, animal studies, affect studies, and linguistics. In all of these critical spaces, Animacies might be described as the breathtaking and revivifying book we have been waiting for."—Robert McRuer, author of Crip Theory: Cultural Signs of Queerness and Disability"This ambitious transdisciplinary analysis of the relations between humans, nonhuman animals, and matter charts a compelling and innovative rethinking of the biopolitics of 'animacy.' Mel Y. Chen animates animacy, a concept of sentience hierarchy derived in linguistics, to offer a far-ranging critique that implicates disability studies, queer of color critique, and postcolonial theory. The generative result is a timely and crucial intervention that foregrounds the oft-occluded import of race and sex in the rapidly growing fields of posthumanist theory, new materialisms, and animal studies."—Jasbir K. Puar, author of Terrorist Assemblages: Homonationalism in Queer Times

The Great Derangement: Climate Change and the Unthinkable


Amitav Ghosh - 2016
    How else to explain our imaginative failure in the face of global warming? In his first major book of nonfiction since In an Antique Land, Ghosh examines our inability—at the level of literature, history, and politics—to grasp the scale and violence of climate change.The extreme nature of today’s climate events, Ghosh asserts, make them peculiarly resistant to contemporary modes of thinking and imagining. This is particularly true of serious literary fiction: hundred-year storms and freakish tornadoes simply feel too improbable for the novel; they are automatically consigned to other genres. In the writing of history, too, the climate crisis has sometimes led to gross simplifications; Ghosh shows that the history of the carbon economy is a tangled global story with many contradictory and counterintuitive elements.Ghosh ends by suggesting that politics, much like literature, has become a matter of personal moral reckoning rather than an arena of collective action. But to limit fiction and politics to individual moral adventure comes at a great cost. The climate crisis asks us to imagine other forms of human existence—a task to which fiction, Ghosh argues, is the best suited of all cultural forms. His book serves as a great writer’s summons to confront the most urgent task of our time.

On Fairness


Sally McManus
    Why then do we have creeping inequality in the land of the fair go? The answer lies in stagnant wage rises, gender pay inequity, insecure work and the lack of real opportunities for all while corporations are still consuming large profits and executives claim record bonuses. Sally McManus confronts these truths every day. In On Fairness, she explores the true cost of social injustice and argues for advancing Australia fair.

Sitting Pretty: The View from My Ordinary Resilient Disabled Body


Rebekah Taussig - 2020
    None of this felt right; and as she got older, she longed for more stories that allowed disability to be complex and ordinary, uncomfortable and fine, painful and fulfilling.Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life.Disability affects all of us, directly or indirectly, at one point or another. By exploring this truth in poignant and lyrical essays, Taussig illustrates the need for more stories and more voices to understand the diversity of humanity. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write an entirely different story.

Being Heumann: An Unrepentant Memoir of a Disability Rights Activist


Judith Heumann - 2020
    From fighting to attend grade school after being described as a "fire hazard" to later winning a lawsuit against the New York City school system for denying her a teacher's license because of her paralysis, Judy's actions set a precedent that fundamentally improved rights for disabled people.As a young woman, Judy rolled her wheelchair through the doors of the US Department of Health, Education, and Welfare in San Francisco as a leader of the Section 504 Sit-In, the longest takeover of a governmental building in US history. Working with a community of over 150 disabled activists and allies, Judy successfully pressured the Carter administration to implement protections for disabled peoples' rights, sparking a national movement and leading to the creation of the Americans with Disabilities Act.Candid, intimate, and irreverent, Judy Heumann's memoir about resistance to exclusion invites readers to imagine and make real a world in which we all belong.

The Problem with Work: Feminism, Marxism, Antiwork Politics, and Postwork Imaginaries


Kathi Weeks - 2011
    While progressive political movements, including the Marxist and feminist movements, have fought for equal pay, better work conditions, and the recognition of unpaid work as a valued form of labor, even they have tended to accept work as a naturalized or inevitable activity. Weeks argues that in taking work as a given, we have “depoliticized” it, or removed it from the realm of political critique. Employment is now largely privatized, and work-based activism in the United States has atrophied. We have accepted waged work as the primary mechanism for income distribution, as an ethical obligation, and as a means of defining ourselves and others as social and political subjects. Taking up Marxist and feminist critiques, Weeks proposes a postwork society that would allow people to be productive and creative rather than relentlessly bound to the employment relation. Work, she contends, is a legitimate, even crucial, subject for political theory.

Disability Visibility: First-Person Stories from the Twenty-first Century


Alice WongChristie Thompson - 2020
    Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Now, just in time for the thirtieth anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.

The Politics of the Administrative Process


Donald F. Kettl - 2001
    Kettl and Fesler understand that the push and pull of political forces make the functions of bureaucracy ever more contentious, but no less crucial to governance.Based on reviewer feedback, and given advances in scholarship and in practice, the authors introduce the crucial topics of ethics, accountability, and leadership early on, utilizing these central ideas as touchstones throughout the book. While this text continues to focus on the core components of public administration--such as budgeting, personnel, and implementation--it's been thoroughly updated to cover recent developments, including administrative issues spotlighted during the 2008 presidential campaigns, the use of technology in government management, and the changing face of the federal workforce. Fully updated tables and figures feature a wealth of current data, and photos add visual context to the book's core concepts.What was an appendix showcasing fourteen case studies in the previous edition is now a set of fully-integrated case studies--one in each chapter--that challenges students to apply ideas and analysis as they go. Each case emphasizes the people on the front lines at the local, state, and federal levels with topics ranging from Taser use in law enforcement to the recent economic bailout. Useful discussion questions at the end of each case help shape student responses and in-class conversation.

Don't Call Me Inspirational: A Disabled Feminist Talks Back


Harilyn Rousso - 2013
    She addresses the often absurd and ignorant attitudes of strangers, friends, and family. Rousso also examines her own prejudice toward her disabled body, and portrays the healing effects of intimacy and creativity, as well as her involvement with the disability rights community. She intimately reveals herself with honesty and humor and measures her personal growth as she goes from "passing" to embracing and claiming her disability as a source of pride, positive identity, and rebellion. A collage of images about her life, rather than a formal portrait, Don't Call Me Inspirational celebrates Rousso's wise, witty, productive, outrageous life, disability and all.

Resistance and Hope: Essays by Disabled People


Alice Wong - 2018
    This is crip wisdom for the people. Edited by Alice Wong, founder of the Disability Visibility Project, Resistance and Hope will transform the way you think about activism, leadership and social justice. How do we fight back in an era of uncertainty, institutionalized cruelty, and widespread tolerance for ableism and hate? Written in 2017, the authors explore resistance, hope, self care, disability rights and justice, and the politics of Trump in a series of provocative, challenging essays. They bring the power of intersectional cross-platform organizing and the strength found through mutual accountability to words that will help you define the resistance you want to fight for, not just the harm you want to react against. Dare to dream bigger and create space for all with this visionary essay anthology from multiply marginalized disabled people redefining an inclusive climate of resistance. The time is NOW! "Get this book right now! Resistance and Hope is the disability justice Bible you've been waiting for. If you want to read a book chock full of disabled Black, brown, queer, trans genius, real talk and vision, this book will give you comrades reassurances that we are brilliant revolutionaries and a plethora of tools and visions for how we make the road by limping, crutching, rolling, signing and stimming. I am so grateful for Alice Wong for doing the cultural work of putting this together and for every single writer in this book." — Leah Piepzna-Samarasinha, performer, community organizer, and author of Care Work: Dreaming Disability Justice (Arsenal Pulp Press, October 1, 2018) “Until our movements are fully intersectional, we will not make the progress necessary to build the equitable society we all deserve. Resistance and Hope is a necessary manual for all of us as we learn how to build movements that are as inclusive as the world we hope to see.” — Brittany Packnett, activist, educator, writer, Co-Founder of Campaign Zero and Co-Host of Pod Save the People “Resistance and Hope: Essays by Disabled People is a timely and must-read collection of essays by some of the most cutting edge leaders in the Disability Rights Movement. If you are interested in learning more about disability rights and justice, activism, and current times we are living in today take the time to read and may these pieces evoke discussions in your communities as we fight for justice and equity.” — Judy Heumann, Disability Activist “It is so necessary for people who have been historically marginalized to tell their own stories. I am proud to know Alice Wong, who is someone dedicated to telling these stories with authenticity and integrity.” — Blair Imani, Author of Modern HERstory and Founder of Equality for HER ANTHOLOGY CONTRIBUTORS Lydia X. Z. Brown Anita Cameron Cyree Jarelle Johnson DJ Kuttin Kandi Mari Kurisato Talila A. Lewis Noemi Martinez Stacey Milbern Mia Mingus Lev Mirov Leroy Moore Shain M. Neumeier Naomi Ortiz Victoria Rodríguez-Roldán Vilissa K. Thompson Aleksei Valentín Maysoon Zayid Editorial Assistant: Robin M.