Best of
Disability

1999

Exile and Pride: Disability, Queerness, and Liberation


Eli Clare - 1999
    . . . Using the language of the elemental world, he delineates a complex human intersection and transmutes cruelty into its opposite—a potent, lifegiving remedy.”—Alison Bechdel, author of Fun HomeFirst published in 1999, Exile & Pride established Eli Clare as one of the leading writers on the intersections of queerness and disability. With this critical tenth-anniversary edition, the groundbreaking publication secures its position as essential to the history of queer and disability politics, and, through significant new material that boldly interrogates and advances the original text, to its future as well. Clare’s writing on his experiences as a genderqueer activist/writer with cerebral palsy permanently changed the landscape of disability politics and queer liberation, and yet Exile & Pride is much too great in scope to be defined by even these two issues. Instead it offers an intersectional framework for understanding how our bodies actually experience the politics of oppression, power, and resistance. At the heart of Clare’s exploration of environmental destruction, white working-class identity, queer community, disabled sexuality, childhood sexual abuse, coalition politics, and his own gender transition is a call for social justice movements that are truly accessible for everyone.Blending prose and theory, personal experience and political debate, anger and compassion, Exile & Pride provides a window into a world where our whole selves in all their complexity can be loved and accepted.An award-winning poet and essayist, Eli Clare is also the author of The Marrow’s Telling.

Love Is


Carolyn Brown - 1999
    After she goes through five caretakers in as many days, her father hires a Mr. Parker to take care of her and tells her that he will be the last. The sparks fly between Creole and Mr. Parker from the first minute they're in each other's company. During the five weeks they spend together, both of their hearts fail to get the message that they have been determined not to like each other.Then, Mr. Parker disappears on the very day that Creole gets her bandages removed and she finds her heart has been broken. But John Rollin Parker grew up with the headstrong Creole and he knows that she could never care about him, especially if Creole ever found out who he really was. Will he ever give in to his own heart and let her know?

Pain, Perplexity, and Promotion: A Prophetic Interpretation of the Book of Job


Bob Sorge - 1999
    The book of Job comes alive, portraying Job's spiritual journey as a template for those who are in God's refining fires in this hour. Let God lead you to higher heights than you ever imagined!

Seeing Beyond Depression


Jean Vanier - 1999
    We need help to recover from it, and a friend to walk with us through the difficult times. Jean Vanier, one of the great spiritual writers of our time, has written this simple and clear book about depression. The writing is inspirational and sympathetic as he explores how we can move beyond depression--out of the darkness into the light. In twelve simple but profound chapters, Vanier goes right to the heart of our hurt, clarifying our feelings and offering us hope. On the left-hand page is a succinct thought that is developed in detail on the right-hand page. Seeing Beyond Depression will appeal to: --anyone who has known depression --families and friends of depressed persons --spiritual seekers --fans of Jean Vanier

Handbook for Mortals: Guidance for People Facing Serious Illness


Joanne Lynn - 1999
    Written by Drs. Joanne Lynn and Joan Harrold and a variety of experts from nursing, hospice, counseling, and the arts, this book provides equal measures of practical information and gentle insight. Readers will learn what decisions they will need to face, where to look for help, how to ease pain and other symptoms, what to expect with specific diseases, and how the health-care system operates. Equally important to this practical information are the personal stories included here of how people have come to terms with dying, faced their fears, and made important choices.From down-to-earth advice on how to talk to your doctor to inspiring quotes from such writers as W. H. Auden, Jane Kenyon, and others, Handbook for Mortals encompasses the needs of both the body and the spirit in our final years.

Snow


Catherine Farnes - 1999
    Sixteen-year-old Stephanie, a visually impaired albino, gets help in adjusting to a new high school when she befriends several Christian kids, who point her toward a deep and satisfying relationship with God.

I'll Carry the Fork!: Recovering a Life After Brain Injury


Kara L. Swanson - 1999
    Kara Swanson's journey is one to learn from, to cheer and, even, to laugh with along the way. Her honesty and willingness to share her struggles and triumphs have been changing the lives of survivors and their loved ones for more than 20 years. This book has been named a suggested and must-read resource for survivors and professionals in every rehab and neurological field, and even in college TBI-related studies. It has been translated into Japanese and Kara has made her book available on Kindle and in an audio format. Her accompanying speeches and award-winning blog have circled the globe. This book enlightens with vital information from TBI professionals in medical, rehab and legal arenas. Kara's book is a wonderful inspiration and, with each edition, she has continued to mold it to help those in the TBI community. This new edition is brighter and cleaner. Kara has inserted more blank pages for notes and she has reduced the price so that more survivors can obtain all of the wonderful input from professionals throughout the book. The audio version of this book was completed by the author in order to offer a pace and cadence for those survivors struggling with audio processing speed and/or challenged by the written word.

Being Well When We're Ill: Wholeness and Hope in Spite of Infirmity


Marva J. Dawn - 1999
    She knows fromexperience how to nurture hope in spite of infirmity.Filled with insight and practical help, each chapter of Being WellWhen We're Ill focuses on one particular kind of struggle, suchas worry, guilt, the loss of meaning, or the loss of confidence andtrust that God is present and personally loving. Each chapterdetails one or more appropriate ''finds'' - spiritual resources, emotional supports, intellectual answers, or practical solutions - that enable a person with infirmities to persevere through themand to be well in spite of them.For each issue she explores, such as loss of dreams, loneliness, physical pain, depression, ingratitude, side effects and more, Dawnincludes discussions of biblical texts - not only texts that helplament losses but texts that bring wholeness. Readers will findthemselves companioned in their sufferings and encouraged withnew ways to surmount them.

Rolling Along with Goldilocks and the Three Bears


Cindy Meyers - 1999
    Here, baby bear uses a wheelchair, goes to physical therapy, and ultimately makes friends with Goldilocks.

Hydrocephalus: A Guide for Patients, Families & Friends: A Guide for Patients, Families & Fr


Chuck Toporek - 1999
    Hydrocephalus is now generally treated with surgical placement of a shunt system that drains excess fluid around the brain to another part of the body where it can be absorbed.As the child grows, shunt revision surgeries are often necessary. Adults with hydrocephalus can be prone to shunt failures or other changes that necessitate subsequent surgeries. Lifestyle choices or pregnancy can strongly impact fluid pressure and health.Authors Chuck Toporek and Kellie Robinson have lived with hydrocephalus for years and have interviewed neurosurgeons, patient advocates, and families living with the condition.Hydrocephalus: A Guide for Patients, Families & Friends informs patient and family so that you can:Select a skilled neurosurgeon Understand what treatments are being proposed Participate more fully in your care Know what you can expect during and after surgery Know symptoms needing attention Know where to turn for support Keep records helpful for future diagnostic or surgical work Families who read this book will encounter medical facts clearly explained, advice to ease their daily life, and tools for patient advocacy.

Rainbow Joe & Me


Maria Diaz Strom - 1999
    Sitting on the front stoop of her house, she tells her neighbor, Rainbow Joe, how she combines red and white to make fish, and red and blue to make monkeys. Rainbow Joe explains that even though he is blind he can imagine colors. Not only that, he can make them sing.Eloise's mother says the blind man is just dreaming. It isn't until Rainbow Joe takes out his saxophone and plays colors that Mama and Eloise can see them. Big red notes and little yellow notes begin to fly as music fills the sky.

Metamorphosis : The Fiber Art of Judith Scott


John M. MacGregor - 1999
    Her works, to us, appear to be works of Outsider Art sculpture, except that the notion of sculpture is far beyond her understanding. As well as being mentally disabled, Judith cannot hear or speak, and she hs little concept of language. There is no way of asking her what she is doing, yet her compulsive involvement with the shaping of forms in space seems to imply that at some level she knows. Does serious mental retardation invariably preclude the creation of true works of art? Is it plausible to imagine an artist of stature emerging in the context of massively impaired intellectual development? This lovely hardcover book is illustrated with beautiful color photographs by internationally renowned photographer Leon Borensztein.

Way to Go, Alex!


Robin Pulver - 1999
    But sometimes Carly wishes Alex were more like Annie's brother. The problem is that Alex's brain doesn't work right.One day Carly's mother tells her that Alex is going to compete in the Special Olympics. Carly works hard to get Alex ready for his events. Then the big day arrives and Carly cheers her brother on. But when it's time for the standing long jump, Alex turns to Carly for help. In the end, Carly gains a new understanding for and appreciation of her brother.

Minor Adjustment: The Story of Sarah - a Remarkable Child


Andy Merriman - 1999
    Yet this is the triumphant story of a family's responses to Sarah, their growing love, and their learned ability to cope with other people's dismay, pity, and bafflement.

Mending Bodies, Saving Souls: A History of Hospitals


Guenter B. Risse - 1999
    The story is told in a dozen episodes which illustrate hospitals in particular times and places, covering important themes and developments in the history of medicine and therapeutics, from ancient Greece to the era of AIDS. This book furnishes a unique insight into the world of meanings and emotions associated with hospital life and patienthood by including narratives by both patients and care givers. By conceiving of hospitals as houses of order capable of taming the chaos associated with suffering, illness, and death, we can better understand the significance of their ritualized routines and rules. From their beginnings, hospitals were places of spiritual and physical recovery. They should continue to respond to all human needs. As traditional testimonials to human empathy and benevolence, hospitals must endure as spaces of healing.

Bird and Other Writings on Epilepsy


Susan Hawthorne - 1999
    And I do that every day, often by myself.Thirteen-year-old Avis confronts the limitations imposed on her at school. She has epilepsy and some of the teachers want to stop her participating in the sport she loves most. Susan Hawthorne captures the voice and longings of a child at the edge of self-realisation. This collection draws on the experience of epilepsy mixed with imagination, mythic consciousness and an intense realisation of life.The language in my tongue dissolves all history. It dissolves all expectation of the future. The language in my tongue is a big red balloon.