You Don't Look Sick!: Living Well with Invisible Chronic Illness


Joy H. Selak - 2005
    This resource helps you focus on building a meaningful life that contains illness as opposed to a life of frustration and fear. Designed for patients in at all stages of the chronic illness journey, this book will also be illuminating for caregivers and loved ones.From the book: ""I've learned that having a chronic illness is not a prison sentence. It does not mean I must spend the rest of my life feeling depressed and angry, locked away from the world inside my little sick box. It does not mean that I am useless and no longer have any gifts to share, but it may mean that I must develop some new ones.""You Don't LOOK Sick! addresses practical aspects of chronic illness, such as: hiring a doctor managing chronic pain coping with grief and the loss of function winning battles with health and disability insurers countering the social bias against the chronically ill recognizing the limitations of chronics illness care and charting a path for changeIn You Don't LOOK Sick!: Living Well with Invisible Chronic Illness, you will find stories, dialogue, humor, examples, and analogy of the three stages to illustrate a challenging but navigable journey. You will also find suggested reading materials for learning to live well, medical Internet resources, illness-specific Web sites, names and addresses of national associations, and a bibliography of medical books by topic. The short chapters and straightforward language of the book will be helpful for readers who are weary and dispirited. From the authors: "I've learned that having a chronic illness is not a prison sentence. It does not mean I must spend the rest of my life feeling depressed and angry, locked away from the world inside my little sick box. It does not mean that I am useless and no longer have any gifts to share, but it may mean that I must develop some new ones."--Joy H. Selak"My goal is to work with patients so that, like world class athletes, they can perform at their peak capacity. My job is more than giving answers; I must educate, counsel and encourage patients to set goals and implement a personal care program as well as take appropriate medications."--Dr. Steven Overman The authors are experienced public speakers. If you wish to inquire about their availability to speak to patients or health care professionals, please contact Joy Selak by email at JoyWrites@austin.rr.com.

How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers


Toni Bernhard - 2010
    And it can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or disheartening life changes that come so close on the heels of a diagnosis of a chronic condition or even a life-threatening illness.The author, who became ill while a university law professor in the prime of her career, tells the reader how she got sick and, to her and her partner's bewilderment, stayed that way. Toni had been a longtime meditator, going on long meditation retreats and spending many hours rigorously practicing, but soon discovered that she simply could no longer engage in those difficult and taxing forms. She had to learn ways to make "being sick" the heart of her spiritual practice and, through truly learning how to be sick, she learned how, even with many physical and energetic limitations, to live a life of equanimity, compassion, and joy. Whether we ourselves are sick now or not, we can learn these vital arts of living well from How to Be Sick.

Life Disrupted: Getting Real about Chronic Illness in Your Twenties and Thirties


Laurie Edwards - 2008
    Because of medical advances in the treatment of serious childhood diseases, 600,000 chronically ill teens enter adulthood every year who decades ago would not have survived--they and people diagnosed in adulthood face the same challenges of college, career, and starting a family as others in their twenties and thirties, but with the added circumstance of having chronic illness.Life Disrupted is a personal and unflinching guide to living well with a chronic illness: managing your own health care without letting it take over your life, dealing with difficult doctors and frequent hospitalizations, having a productive and satisfying career that accommodates your health needs, and nurturing friendships and a loving, committed relationship regardless of recurring health problems. Laurie Edwards also addresses the particular needs of people who have more than one chronic illness or who are among the twenty-five million Americans with a rare disorder. She shares her own story and the experiences of others with chronic illness, as well as advice from life coaches, employment specialists, and health professionals.Reading Life Disrupted is like having a best friend and mentor who truly does know what you're going through.

Healing Back Pain: The Mind-Body Connection


John E. Sarno - 1991
    Sarno saved me from a life of pain.” — Howard Stern  The New York Times bestseller that has helped thousands leverage the mind-body connection to heal lower back pain and live pain free—without drugs, surgery, or physical therapy.  Offering a surprising, noninvasive solution to an epidemic of pain, Dr. John E. Sarno’s research on TMS (Tension Myoneural Syndrome) reveals that stress, anxiety and other psychological factors, not structural abnormalities, are the root cause of chronic pain. TMS develops as a result of repressed emotions which trigger tension in the body and deprive muscles and nerves of oxygen. The solution? Recognize the emotional roots of your TMS and sever the connection between mental and physical pain. With Dr. Sarno’s expert guidance you will learn:How the mind-body connection can permanently heal shoulder, neck, and lower back painHow accepting negative emotions like anger, anxiety, fear, or grief can reverse physical symptomsHow we condition ourselves to think back pain is inevitableWhy you should resume physical activity as soon as possibleSharing case histories and the results of his extensive, groundbreaking research, Dr. Sarno’s life-changing insights show readers how to banish back pain and reclaim their lives for good.

The Brain's Way of Healing: Remarkable Discoveries and Recoveries from the Frontiers of Neuroplasticity


Norman Doidge - 2015
    His revolutionary new book shows, for the first time, how the amazing process of neuroplastic healing really works. It describes natural, non-invasive avenues into the brain provided by the forms of energy around us—light, sound, vibration, movement—which pass through our senses and our bodies to awaken the brain’s own healing capacities without producing unpleasant side effects. Doidge explores cases where patients alleviated years of chronic pain or recovered from debilitating strokes or accidents; children on the autistic spectrum or with learning disorders normalizing; symptoms of multiple sclerosis, Parkinson’s disease, and cerebral palsy radically improved, and other near-miracle recoveries. And we learn how to vastly reduce the risk of dementia with simple approaches anyone can use. For centuries it was believed that the brain’s complexity prevented recovery from damage or disease. The Brain’s Way of Healing shows that this very sophistication is the source of a unique kind of healing. As he did so lucidly in The Brain That Changes Itself, Doidge uses stories to present cutting-edge science with practical real-world applications, and principles that everyone can apply to improve their brain’s performance and health.

Full Catastrophe Living: Using the Wisdom of Your Body and Mind to Face Stress, Pain, and Illness


Jon Kabat-Zinn - 1990
    (The somewhat confusing title is from a line in Zorba the Greek in which the title character refers to the ups and downs of family life as "the full catastrophe.") But this book is also a terrific introduction for anyone who has considered meditating but was afraid it would be too difficult or would include religious practices they found foreign. Kabat-Zinn focuses on "mindfulness," a concept that involves living in the moment, paying attention, and simply "being" rather than "doing." While you can practice anything "mindfully," from taking a walk to cleaning your house, Kabat-Zinn presents several meditation techniques that focus the attention most clearly, whether it's on a simple phrase, your breathing, or various parts of your body. The book goes into detail about how hospital patients have either improved their health or simply come to feel better despite their illness by using these techniques, but these meditations can help anyone deal with stress and gain a calmer outlook on life. "When we use the word healing to describe the experiences of people in the stress clinic, what we mean above all is that they are undergoing a profound transformation of view," Kabat-Zinn writes. "Out of this shift in perspective comes an ability to act with greater balance and inner security in the world." --Ben Kallenreissue 2005

Total Recovery: Solving the Mystery of Chronic Pain and Depression


Gary Kaplan - 2014
    But chronic pain has always been a mystery. It often returns at the slightest provocation, even when doctors can't find anything wrong. Oddly enough, whether the pain is physical or emotional, traumatic or slight, our brains register all pain as the same thing, and these signals can keep firing in the nervous system for months, even years.In Total Recovery, Dr. Gary Kaplan argues that we've been thinking about disease all wrong. Drawing on dramatic patient stories and cutting-edge research, the book reveals that chronic physical and emotional pain are two sides of the same coin. New discoveries show that disease is not the result of a single event but an accumulation of traumas. Every injury, every infection, every toxin, and every emotional blow generates the same reaction: inflammation, activated by tiny cells in the brain, called microglia. Turned on too often from too many assaults, it can have a devastating cumulative effect.Conventional treatment for these conditions is focused on symptoms, not causes, and can leave patients locked into a lifetime of pain and suffering. Dr. Kaplan's unified theory of chronic pain and depression helps us understand not only the cause of these conditions but also the issues we must address to create a pathway to healing. With this revolutionary new framework in place, we have been given the keys to recover.

Delivered from Distraction: Getting the Most out of Life with Attention Deficit Disorder


Edward M. Hallowell - 2004
    Widely recognized as the classic in the field, the book has sold more than a million copies. Now a second revolution is under way in the approach to ADD, and the news is great. Drug therapies, our understanding of the role of diet and exercise, even the way we define the disorder–all are changing radically. And doctors are realizing that millions of adults suffer from this condition, though the vast majority of them remain undiagnosed and untreated. In this new book, Drs. Edward M. Hallowell and John J. Ratey build on the breakthroughs of Driven to Distraction to offer a comprehensive and entirely up-to-date guide to living a successful life with ADD.As Hallowell and Ratey point out, “attention deficit disorder” is a highly misleading description of an intriguing kind of mind. Original, charismatic, energetic, often brilliant, people with ADD have extraordinary talents and gifts embedded in their highly charged but easily distracted minds. Tailored expressly to ADD learning styles and attention spans, Delivered from Distraction provides accessible, engaging discussions of every aspect of the condition, from diagnosis to finding the proper treatment regime. Inside you’ll discover• whether ADD runs in families• new diagnostic procedures, tests, and evaluations• the links between ADD and other conditions• how people with ADD can free up their inner talents and strengths• the new drugs and how they work, and why they’re not for everyone• exciting advances in nonpharmaceutical therapies, including changes in diet, exercise, and lifestyle• how to adapt the classic twelve-step program to treat ADD• sexual problems associated with ADD and how to resolve them• strategies for dealing with procrastination, clutter, and chronic forgetfulnessADD is a trait, a way of living in the world. It only becomes a disorder when it impairs your life. Featuring gripping profiles of patients with ADD who have triumphed, Delivered from Distraction is a wise, loving guide to releasing the positive energy that all people with ADD hold inside. If you have ADD or care about someone who does, this is the book you must read.From the Hardcover edition.

The Trigger Point Therapy Workbook: Your Self-Treatment Guide for Pain Relief


Clair Davies - 2001
    Trigger point therapy is one of the most intriguing and fastest-growing bodywork styles in the world. Medical doctors, chiropractors, and alternative health practitioners are all beginning to use this technique to relieve the pain of individuals suffering from undiagnosable soft tissue pain-a condition that studies have shown to be the cause of nearly 25 percent of all doctor visits. The technique involves applying a gentle, sweeping stroke to trigger points, places in muscle or connective tissue where a lack of oxygen causes swelling. These points are easily located by general readers and create pain throughout the body in predictable patterns characteristic to each muscle, producing discomfort ranging from mild to severe. The stimulation of the point causes an increase in the oxygen level in the area and often produces instant relief. The first edition of The Trigger Point Therapy Workbook has made a huge impact in the use of this dynamic technique. This is the first major revision of the overnight classic, a complete update that includes new information specifically for massage professionals as well as a detailed discussion of progressive muscle relaxation techniques that can reinforce the therapeutic power of trigger point work.

Cure: A Journey into the Science of Mind Over Body


Jo Marchant - 2016
    Recently, however, serious scientists from a range of fields have been uncovering evidence that our thoughts, emotions and beliefs can ease pain, heal wounds, fend off infection and heart disease and even slow the progression of AIDS and some cancers.In Cure, award-winning science writer Jo Marchant travels the world to meet the physicians, patients and researchers on the cutting edge of this new world of medicine. We learn how meditation protects against depression and dementia, how social connections increase life expectancy and how patients who feel cared for recover from surgery faster. We meet Iraq war veterans who are using a virtual arctic world to treat their burns and children whose ADHD is kept under control with half the normal dose of medication. We watch as a transplant patient uses the smell of lavender to calm his hostile immune system and an Olympic runner shaves vital seconds off his time through mind-power alone.Drawing on the very latest research, Marchant explores the vast potential of the mind's ability to heal, lays out its limitations and explains how we can make use of the findings in our own lives. With clarity and compassion, Cure points the way towards a system of medicine that treats us not simply as bodies but as human beings.

The Pain Chronicles: Cures, Myths, Mysteries, Prayers, Diaries, Brain Scans, Healing, and the Science of Suffering


Melanie Thernstrom - 2010
    Today as much as 10 percent of the population of the United States suffers from chronic pain. It is more widespread, misdiagnosed, and undertreated than any major disease. While recent research has shown that pain produces pathological changes to the brain and spinal cord, many doctors and patients still labor under misguided cultural notions and outdated scientific dogmas that prevent proper treatment, to devastating effect. In "The Pain Chronicles," a singular and deeply humane work, Melanie Thernstrom traces conceptions of pain throughout the ages--from ancient Babylonian pain-banishing spells to modern brain imaging--to reveal the elusive, mysterious nature of pain itself. Interweaving first-person reflections on her own battle with chronic pain, incisive reportage from leading-edge pain clinics and medical research, and insights from a wide range of disciplines--science, history, religion, philosophy, anthropology, literature, and art--Thernstrom shows that when dealing with pain we are neither as advanced as we imagine nor as helpless as we may fear. Both a personal meditation and an intellectual exploration, "The Pain Chronicles "illuminates and makes sense of the all-too-human experience of pain--and confronts with extraordinary grace and empathy its peculiar traits, its harrowing effects, and its various antidotes.

The 36-Hour Day: A Family Guide to Caring for People with Alzheimer Disease, Other Dementias, and Memory Loss in Later Life


Nancy L. Mace - 1981
    In addition to the practical and compassionate guidance that have made The 36-Hour Day invaluable to caregivers, the fourth edition is the only edition currently available that includes new information on medical research and the delivery of care.The new edition includes:-new information on diagnostic evaluation-resources for families and adult children who care for people with dementia-updated legal and financial information-the latest information on nursing homes and other communal living arrangements-new information on research, medications, and the biological causes and effects of dementiaAlso available in a large print editionPraise for The 36-Hour Day:

The Complete Guide to Asperger's Syndrome


Tony Attwood - 2006
    Now including a new introduction explaining the impact of DSM-5 on the diagnosis and approach to AS, it brings together a wealth of information on all aspects of the syndrome for children through to adults.Drawing on case studies and personal accounts from Attwood's extensive clinical experience, and from his correspondence with individuals with AS, this book is both authoritative and extremely accessible. Chapters examine:* causes and indications of the syndrome* the diagnosis and its effect on the individual* theory of mind * the perception of emotions in self and others* social interaction, including friendships* long-term relationships* teasing, bullying and mental health issues* the effect of AS on language and cognitive abilities, sensory sensitivity, movement and co-ordination skills* career development.There is also an invaluable frequently asked questions chapter and a section listing useful resources for anyone wishing to find further information on a particular aspect of AS, as well as literature and educational tools.Essential reading for families and individuals affected by AS as well as teachers, professionals and employers coming in contact with people with AS, this book should be on the bookshelf of anyone who needs to know or is interested in this complex condition.'I usually say to the child, "Congratulations, you have Asperger's syndrome", and explain that this means he or she is not mad, bad or defective, but has a different way of thinking.' - from The Complete Guide to Asperger's Syndrome.

Managing Pain Before It Manages You


Margaret A. Caudill - 1994
    Managing Pain Before It Manages You offers just that--a program to help you reduce your pain and learn coping skills to get your life back. Developed over the author’s many years of working with chronic pain sufferers, this program has been proven effective. Program participants report that they have been able to take control of their pain and cut their doctor visits by more than one third! Straightforward and compassionate, this hands-on guide provides detailed information plus step-by-step techniques, activities, and worksheets (perforated for easy removal and photocopying). Dr. Margaret Caudill helps you: *Understand the causes of chronic pain *Recognize what increases and decreases your pain symptoms *Reduce your pain and emotional distress *Learn effective problem solving *Make informed decisions about medications and nutritional therapies *Incorporate relaxation, meditation, and gentle exercise into your daily routine *Communicate effectively about your pain *Set realistic goals New to the Third Edition Thoroughly revised and updated, the third edition includes the latest information on medications and other clinically proven treatment strategies, expanded coverage of specific pain disorders, and a new appendix featuring Internet resources. Plus, readers can download free MP3 audio files of three of the guided relaxation exercises in the book (one hour total). Association for Behavioral and Cognitive Therapies (ABCT) Self-Help Book of Merit

POTS - Together We Stand: Riding the Waves of Dysautonomia


Jodi Epstein Rhum - 2011
    Initially conceptualized as a survival guide for children, teens, young adults and parents; it quickly transcended into this unprecedented, critical volume. This encompassing work responds to the many desperate and heartbreaking pleas of those affected by dysautonomia; included are clear explanations of medical information, evidenced-based research, best practices for clinical diagnoses and treatment options, alternative/complimentary medicine approaches, non-medical strategies, coping techniques, helpful tips, patient rights and options, and inspiring narrative accounts of people living with the syndrome around the globe. The book contributors and its readers join hand in hand to represent the POTS dysautonomia community's shared struggles and hopes, concerns and endeavors, unequivocally serving as a living testament that "Together We Stand." This is the 3rd Edition!