Book picks similar to
The Dysautonomia Project by Kelly Freeman
non-fiction
health
dysautonomia
nonfiction
POTS - Together We Stand: Riding the Waves of Dysautonomia
Jodi Epstein Rhum - 2011
Initially conceptualized as a survival guide for children, teens, young adults and parents; it quickly transcended into this unprecedented, critical volume. This encompassing work responds to the many desperate and heartbreaking pleas of those affected by dysautonomia; included are clear explanations of medical information, evidenced-based research, best practices for clinical diagnoses and treatment options, alternative/complimentary medicine approaches, non-medical strategies, coping techniques, helpful tips, patient rights and options, and inspiring narrative accounts of people living with the syndrome around the globe. The book contributors and its readers join hand in hand to represent the POTS dysautonomia community's shared struggles and hopes, concerns and endeavors, unequivocally serving as a living testament that "Together We Stand." This is the 3rd Edition!
Never Bet Against Occam: Mast Cell Activation Disease and the Modern Epidemics of Chronic Illness and Medical Complexity
Lawrence B. Afrin - 2016
Afrin started coming to understand that a newly recognized type of mast cell disease, now called mast cell activation syndrome (MCAS), was the underlying diagnosis in many patients he was seeing who were each suffering large assortments — quite different from one patient to the next — of chronic multisystem inflammatory illnesses of unclear cause. Dr. Afrin soon gained experience that MCAS is far more prevalent than the only mast cell disease previously known to medicine (the rare disease of mastocytosis) and that most MCAS patients, once accurately diagnosed, can eventually find significantly helpful medications targeted at the disease. The frequency and magnitude of the improvements Dr. Afrin has seen — even the relief that comes from finally having a unifying diagnosis other than "psychosomatism" — have spurred him to focus in this area, not only tending to the needs of his patients but also pursuing research to advance our understanding of the disease and helping to educate other professionals who in turn can help even more of the many people who have long been suffering not only the symptoms of the disease but also the natural concern of not understanding why one would be so "unlucky" to have acquired so many medical problems. As it turns out, such patients are not so unlucky and truly have just one root issue (and a very common one at that), which has the biological capability to develop, directly or indirectly, into most or all of their previously diagnosed problems. There is a great deal yet to learn about this, but even with just the present very limited understanding, the opportunity to diagnose and help patients with MCAS seems to be enormous and Dr. Afrin felt a description of the disease, written for the general public, might help lead some MCAS patients on a journey to diagnosis and improvement sooner rather than later. Dr. Afrin hopes this book will help people who might have, or do have, MCAS. A portion of the proceeds of purchases of this book will go to support research and education in this area.
Epidemiology for Public Health Practice
Robert H. Friis - 1996
With extensive treatment of the heart of epidemiology-from study designs to descriptive epidemiology to quantitative measures-this reader-friendly text is accessible and interesting to a wide range of beginning students in all health-related disciplines. A unique focus is given to real-world applications of epidemiology and the development of skills that students can apply in subsequent course work and in the field. The text is also accompanied by a complete package of instructor and student resources available through a companion Web site.
A Guide to Living with Ehlers-Danlos Syndrome (Hypermobility Type): Bending Without Breaking
Isobel Knight - 2011
The author, who has the condition, looks at how it affects children and adolescents and explores pain management, pregnancy, physical and psychological aspects, and how it widely affects dancers and other performance artists. New material includes:changes in terminologyinformation on how osteopathy and nutrition can helppsychological approaches beyond CBThow to deal with professionals what to expect from support groups and rehabilitation programmesThis new edition will be a must for anybody who suffers, or suspects they might be suffering from, Ehlers-Danlos Syndrome (Hypermobility Type) and provides everything needed to enjoy a fulfilling life with this complex condition. It will also be of interest to their families and friends, and professionals working with Hypermobility Type EDS.
Pumping Insulin: Everything You Need for Success with an Insulin Pump
John Walsh - 2000
Driven to Distraction: Recognizing and Coping with Attention Deficit Disorder from Childhood Through Adulthood
Edward M. Hallowell - 1992
Discusses the causes, symptoms, and treatment of attention-deficit Disorder (ADD).
Breast Cancer Husband: How to Help Your Wife (and Yourself) During Diagnosis, Treatment and Beyond
Marc Silver - 2004
He searched in vain for a book that would give him the information and advice he so desperately sought. Now this award-winning journalist has compiled just the kind of emotionally supportive and useful resource that he wished he had been able to consult-to give men the tools they need to help their wives, their families, and themselves through this scary, uncertain time.In his years as a consumer journalist and veteran of the News You Can Use staff at U.S. News & World Report, Marc Silver learned what kind of information and advice on medical crises readers found most valuable. He draws on that experience as he covers in depth all the issues couples coping with breast cancer will have to face during diagnosis, treatment, and beyond. Highlights include: - The shared experiences of other breast cancer husbands- Guidance from top cancer doctors in the country- Advice on when, how, and what to tell your young children- Tips on coping with radiation and chemotherapy - A candid discussion of sex and intimacy following breast cancer surgeryMore than 200,000 women are diagnosed with cancer each year in the United States. At last, with this book, the men who love them have a road map to help them through a difficult and unprecedented journey.
The Sociopath Next Door
Martha Stout - 2005
He’s a sociopath. And your boss, teacher, and colleague? They may be sociopaths too.We are accustomed to think of sociopaths as violent criminals, but in The Sociopath Next Door, Harvard psychologist Martha Stout reveals that a shocking 4 percent of ordinary people—one in twenty-five—has an often undetected mental disorder, the chief symptom of which is that that person possesses no conscience. He or she has no ability whatsoever to feel shame, guilt, or remorse. One in twenty-five everyday Americans, therefore, is secretly a sociopath. They could be your colleague, your neighbor, even family. And they can do literally anything at all and feel absolutely no guilt.
How do we recognize the remorseless? One of their chief characteristics is a kind of glow or charisma that makes sociopaths more charming or interesting than the other people around them. They’re more spontaneous, more intense, more complex, or even sexier than everyone else, making them tricky to identify and leaving us easily seduced. Fundamentally, sociopaths are different because they cannot love. Sociopaths learn early on to show sham emotion, but underneath they are indifferent to others’ suffering. They live to dominate and thrill to win. The fact is, we all almost certainly know at least one or more sociopaths already. Part of the urgency in reading The Sociopath Next Door is the moment when we suddenly recognize that someone we know—someone we worked for, or were involved with, or voted for—is a sociopath. But what do we do with that knowledge? To arm us against the sociopath, Dr. Stout teaches us to question authority, suspect flattery, and beware the pity play. Above all, she writes, when a sociopath is beckoning, do not join the game. It is the ruthless versus the rest of us, and The Sociopath Next Door will show you how to recognize and defeat the devil you know.
How to Be a Patient: The Essential Guide to Navigating the World of Modern Medicine
Sana Goldberg - 2019
From the routine to the unexpected, How to Be a Patient is your ultimate guide to better healthcare.Let’s face it: nobody likes going to the doctor. It can be uncomfortable, nerve wracking, expensive—and that’s just for routine care! When it’s an emergency—how do you choose between the ER, Urgent Care, or waiting-until-Monday? And for everything in between, how do you get an accurate diagnosis and timely treatment when something is off? In How to Be a Patient, registered nurse and outspoken public health advocate Sana Goldberg provides readers with an honest guide to the complicated and often-intimidating medical landscape.At once a quick-reference pocket guide and a lifelong framework for approaching your healthcare, this invaluable resource empowers readers to take charge of their wellbeing. It lifts the veil on a complicated, fractured system, giving patients the tools communicate with its players and sidestep its most vexing realities. Warm and trustworthy, Goldberg’s advice is as expert as it is easy-to-understand, as she calls on years of first-hand nursing experience to help readers confront challenges, take advantage of opportunities, and maximize insurance resources while fending off hidden fees that slip by unnoticed.From setting yourself up when all is well and making the most of routine appointments, to understanding hospital culture for a more positive experience, How to Be a Patient is relevant for readers at any age. With sections including When It’s An Emergency, When It’s Chronic, When You Have to Stand Up to Insurance, and When It’s Your Person, Goldberg ensures patients have what they need in their hands to feel informed and confident as they move through the world of modern medicine.Containing glossaries of medical jargon, lists of free, essential screenings and unnecessary medical tests, as well as helpful appendices to assist patients in tracking their family history, prescriptions, and more, How to Be a Patient is a must-have book for anyone invested in their long-term health.
Scattered Minds: The Origins and Healing of Attention Deficit Disorder
Gabor Maté - 1999
With wisdom gained through years of medical practice and research, Scattered Minds is a must-read for parents – and for anyone interested how experiences in infancy shape the biology and psychology of the human brain.Scattered Minds:- Demonstrates that ADD is not an inherited illness, but a reversible impairment and developmental delay- Explains that in ADD, circuits in the brain whose job is emotional self-regulation and attention control fail to develop in infancy – and why- Shows how ‘distractibility’ is the psychological product of life experience- Allows parents to understand what makes their ADD children tick, and adults with ADD to gain insights into their emotions and behaviours- Expresses optimism about neurological development even in adulthood- Presents a programme of how to promote this development in both children and adults
The Checklist Manifesto: How to Get Things Right
Atul Gawande - 2009
Longer training, ever more advanced technologies—neither seems to prevent grievous errors. But in a hopeful turn, acclaimed surgeon and writer Atul Gawande finds a remedy in the humblest and simplest of techniques: the checklist. First introduced decades ago by the U.S. Air Force, checklists have enabled pilots to fly aircraft of mind-boggling sophistication. Now innovative checklists are being adopted in hospitals around the world, helping doctors and nurses respond to everything from flu epidemics to avalanches. Even in the immensely complex world of surgery, a simple ninety-second variant has cut the rate of fatalities by more than a third.In riveting stories, Gawande takes us from Austria, where an emergency checklist saved a drowning victim who had spent half an hour underwater, to Michigan, where a cleanliness checklist in intensive care units virtually eliminated a type of deadly hospital infection. He explains how checklists actually work to prompt striking and immediate improvements. And he follows the checklist revolution into fields well beyond medicine, from disaster response to investment banking, skyscraper construction, and businesses of all kinds.An intellectual adventure in which lives are lost and saved and one simple idea makes a tremendous difference, The Checklist Manifesto is essential reading for anyone working to get things right.
The Anxiety and Phobia Workbook
Edmund J. Bourne - 1990
Packed with the most effective skills for assessing and treating anxiety, this workbook can be used alone or as a supplement to therapy to help you develop a full arsenal of skills for quieting worried thoughts and putting yourself back in control.This new edition has been thoroughly updated with the latest anxiety research and medications, and also includes new therapeutic techniques that have been proven effective for the treatment of anxiety and anxiety-related conditions. Each worksheet in this book will help you learn the skills you need to manage your anxiety and start living more freely than you ever thought possible. With this workbook, you'll learn a range of proven methods for overcoming anxiety, such as relaxation and breathing techniques, challenging negative self-talk and mistaken beliefs, and imagery and real-life desensitization. In addition, you will learn how to make lifestyle, nutrition, and exercise changes and cultivate skills for preventing and coping with and preventing panic attacks.
The Writers and Artists Guide to How to Write
Harry Bingham - 2012
How to plan, create and edit work that will sell. How to write a book that you'll be proud of- and which might yet launch you on a new career.Crammed with examples (positive and negative) from successful authors, this essential guide is for writers of every genre: fiction and narrative non-fiction, literary and commercial, adults and children. This guide tells you how to: - Understand your market - Plan your novel or memoir - Develop strong, empathetic characters - Structure and maintain a compelling plot - Ensure that your prose style is strong enough to carry your story - Polish your work until it shines
How Doctors Think
Jerome Groopman - 2007
In that short time, many doctors decide on the likely diagnosis and best treatment. Often, decisions made this way are correct, but at crucial moments they can also be wrong -- with catastrophic consequences. In this myth-shattering book, Jerome Groopman pinpoints the forces and thought processes behind the decisions doctors make. Groopman explores why doctors err and shows when and how they can -- with our help -- avoid snap judgments, embrace uncertainty, communicate effectively, and deploy other skills that can profoundly impact our health. This book is the first to describe in detail the warning signs of erroneous medical thinking and reveal how new technologies may actually hinder accurate diagnoses. How Doctors Think offers direct, intelligent questions patients can ask their doctors to help them get back on track.Groopman draws on a wealth of research, extensive interviews with some of the country’s best doctors, and his own experiences as a doctor and as a patient. He has learned many of the lessons in this book the hard way, from his own mistakes and from errors his doctors made in treating his own debilitating medical problems.How Doctors Think reveals a profound new view of twenty-first-century medical practice, giving doctors and patients the vital information they need to make better judgments together.
The Body Keeps the Score: Brain, Mind, and Body in the Healing of Trauma
Bessel van der Kolk - 2014
Veterans and their families deal with the painful aftermath of combat; one in five Americans has been molested; one in four grew up with alcoholics; one in three couples have engaged in physical violence. Such experiences inevitably leave traces on minds, emotions, and even on biology. Sadly, trauma sufferers frequently pass on their stress to their partners and children. Renowned trauma expert Bessel van der Kolk has spent over three decades working with survivors. In The Body Keeps the Score, he transforms our understanding of traumatic stress, revealing how it literally rearranges the brain’s wiring—specifically areas dedicated to pleasure, engagement, control, and trust. He shows how these areas can be reactivated through innovative treatments including neurofeedback, mindfulness techniques, play, yoga, and other therapies. Based on Dr. van der Kolk’s own research and that of other leading specialists, The Body Keeps the Score offers proven alternatives to drugs and talk therapy—and a way to reclaim lives.