We Danced: Our Story of Love and Dementia


Scott M. Rose - 2021
    It opens with snapshots of her troubled childhood and early adult life in two difficult marriages. It quickly transitions to our first meeting, friendship, and relationship - not without their own complications. Through those trials, she showed tremendous strength and heart. We eventually married and lived a love story that others marveled at for years. We travelled, went to concerts, built a home, and remained completely devoted. While still in her early sixties, she lost a piece of herself. Words became harder to find. Steps to perform the simplest tasks became impossible to follow. We knew something was wrong but had no idea the severity of her condition. Our world turned upside down.The latter half of the book chronicles in exacting detail her diagnosis and life with Frontotemporal Degeneration, a dementia known as FTD. I cared for her for the three and a half years of this disease. Her mental state deteriorated rapidly. I changed to a more flexible job to stay with her more during the day as she lost even the most basic functions of eating alone, toileting, or using a phone. We still created tender moments and danced but she was losing a tremendous amount of weight and required greater and greater care.Financials not allowing me to quit work, I succumbed to the recommendations of multiple professionals and made the painful decision to place her in memory care. I visited her every day, two to three times per day, and we made the best of a horrible situation. We still shared many tender moments during this last year, including the moment I held her hand as she passed. The story is told in a vulnerable and unfiltered manner. It collects writings from both husband and wife through journals, letters, and social media posts integrated into the main narrative. It captures our real-life, undying love story through this incurable disease

Raising A Thief


Paul Podolsky - 2020
    

Forgiving Troy: A True Story of Murder, Mental Illness and Recovery


Thom Bierdz - 2009
    He is a fan favorite and his book opens all of the doors and windows into his personal life of tragedy and redemption, the murder of his mother, familial mental illness, and Thom's now openly gay and proud lifestyle. Thom has forgiven his schizophrenic brother, Troy, who will spend the rest of his life in a Wisconsin state prison.

On Being Human: A Memoir of Waking Up, Living Real, and Listening Hard


Jennifer Pastiloff - 2019
     Centered around the touchstone stories Jen tells in her popular workshops, On Being Human is the story of how a starved person grew into the exuberant woman she was meant to be all along by battling the demons within and winning.Jen did not intend to become a yoga teacher, but when she was given the opportunity to host her own retreats, she left her thirteen-year waitressing job and said “yes,” despite crippling fears of her inexperience and her own potential. After years of feeling depressed, anxious, and hopeless, in a life that seemed to have no escape, she healed her own heart by caring for others. She has learned to fiercely listen despite being nearly deaf, to banish shame attached to a body mass index, and to rebuild a family after the debilitating loss of her father when she was eight. Through her journey, Jen conveys the experience most of us are missing in our lives: being heard and being told, “I got you.” Exuberant, triumphantly messy, and brave, On Being Human is a celebration of happiness and self-realization over darkness and doubt. Her complicated yet imperfectly perfect life path is an inspiration to live outside the box and to reject the all-too-common belief of “I am not enough.” Jen will help readers find, accept, and embrace their own vulnerability, bravery, and humanness.

Fuse


Hollay Ghadery - 2021
    Fuse has elements of memoir, but does not follow a traditional linear narrative. Rather, the book is a series of 13 meditations that probe different parts of Hollay’s fractured biracial experience, including eating and anxiety disorders, self-mutilation, sex, motherhood, and the simultaneous allure and rejection of aesthetic beauty. In Fuse, Hollay speaks to the struggle to construct a fluid identity in a world that wants to peg you down: what you are, and are not. While Hollay’s experiences are personal, the issues surrounding the bi-racial identity are wide-spread; the number of interracial marriages is increasing every year. A dialogue on the tensions surrounding the female bi-racial mind and body is long overdue.

Asperger Syndrome and Difficult Moments: Practical Solutions for Tantrums


Brenda Smith Myles - 1999
    The book discusses clearly and concisely how to deal with tantrums, meltdowns and difficult behaviour from children and young people with Asperger Syndrome, looking in particular at the role of antecedent behaviours, which signal the beginning of a meltdown, as identified through functional assessment. Topics covered include:* the characteristics of Asperger Syndrome and their impact on behaviour* stages of the meltdown cycle* the role of antecedent behaviours* functional assessment* strategies promoting social skills development, including self-awareness, self-calming and self-management* solutions for parents, including organization and support, and daily routines.The book's main focus is on the various stages of the meltdown cycle and functional analysis as a means of determining why behaviours occur. This is followed by a set of practical strategies that promote social skills development, including self-awareness, self-calming and self-management. The book concludes with a chapter written specifically for parents, which offers concrete and easy-to-follow steps for developing a home plan that addresses agreement on the causes of problem behaviours, family organization and support, the LASTING word and designing a daily routine. Accompanying the clear and user-friendly writing style are a number of helpful reporting forms and other instruments that may be used by schools and parents as they work to reduce or eliminate such behaviour in children and young people with Asperger Syndrome.

Autism and the God Connection: Redefining the Autistic Experience Through Extraordinary Accounts of Spiritual Giftedness


William Stillman - 2006
    Helping parents realize their child's unique spirit and reaffirm that every one of us is a blessing, this is an inspirational resource to discovering the intellect, beauty, and complexities of children with autism. Through countless interviews, William Stillman documents extraordinary examples of spiritual giftedness, and boldly challenges our traditionally held beliefs about people with disabilities. Readers will discover hope, comfort, inspiration, and love through these affirming anecdotes of ordinary families.

Bipolar Happens! 35 Tips and Tricks to Manage Bipolar Disorder


Julie A. Fast - 2011
    Written with a very funny and riveting honesty as only a person with the illness can do, Bipolar Happens! offers practical knowledge and deep insights into what it is like to live with bipolar disorder.Compelling, insightful and never afraid to tell the truth , many of Julie’s readers credit this book as being their personal catalyst for change. “When I read this book I actually felt that someone really understood me, and it made me feel hope for the first time since my diagnosis. I didn’t know what it meant to be psychotic or why I got overwhelmed a lot in crowds. I learned how to manage mania much better than in the past. And now I can see that I’m not the only one who wakes up with depression. Julie is funny and so willing to say what many people won’t. This book talks about the stuff we go through that never gets put into books. The book is like reading fables. It’s not overwhelming, but you really learn a lot.”

Cheer Up, Love: Adventures in Depression with the Crab of Hate


Susan Calman - 2016
    Her solo stand up show, Susan Calman is Convicted, was broadcast on BBC Radio 4 and dealt with subjects like the death penalty, appearance and depression. The reaction to the show she wrote about mental health was so positive that she wanted to expand on the show and write a more detailed account of surviving when you're the world's most negative person. The Crab of Hate is the personification of Calman's depression and her version of the notorious Black Dog. A constant companion in her life, the Crab has provided her with the best, and very worst of times. This is a very personal memoir of how, after many years and with a lot of help and talking, she has embraced her dark side and realised that she can be the most joyous sad person you'll ever meet.

Raising a Sensory Smart Child: The Definitive Handbook for Helping Your Child with Sensory Processing Issues


Lindsey Biel - 2009
    Sensory integration dysfunction, also known as sensory processing disorder, affects all kinds of children-from those with developmental delays, attention problems, or autism spectrum disorders, to those without any other issues. Coauthored by a pediatric occupational therapist and a parent of a child with sensory issues, this updated and expanded edition of Raising a Sensory Smart Child is comprehensive and more helpful than ever. Learn: *How the senses actually work and integrate with each other *How and where to get the very best professional help *"Sensory diet" activities that meet your child's needs--including new tips and ideas for kids, teens, adults, and families *Practical solutions for daily challenges-from brushing teeth to getting dressed to picky eating to family gatherings *Using "sensory smarts" to help children with developmental delays, learning, and attention problems *The special challenges of helping children with autism and sensory issues * Ways to advocate for your child at school and make schools "sensory smart" *How to empower your child and teen in the world *Complementary therapies, resources, and helpful web sites In all, the most comprehensive guide to sensory processing challenges is now more detailed and useful than ever. Loved and celebrated by parents, teachers, therapists, doctors and others, the new edition of Raising a Sensory Smart Child is a must-have volume for anyone who cares about a child with sensory issues. ***WINNER of the NAPPA GOLD AWARD and iPARENTING MEDIA AWARD***

The Secrets of Carriage H (Kindle Single)


Andrew Rosenheim - 2014
    It was the U.K.’s worst rail disaster in years. On the morning of October 5, 1999, two rush-hour commuter trains collided just outside London. Hundreds were feared dead. Though he was traveling in the front-most carriage, the novelist Andrew Rosenheim survived the crash. In “The Secrets of Carriage H,” Rosenheim recalls in heart-pounding detail the events of that day and opens up about the emotional rollercoaster that consumed him for months thereafter. Told with the rich textures of a novel and the bare heart of a memoir, “The Secrets of Carriage H” explores the unspoken consequences of survival and offers brutal, sometimes hilarious insight into the human condition. Andrew Rosenheim was born and raised in Chicago, but has lived in England for the last thirty-five years. He worked in publishing for many years at Oxford University Press and then as the Managing Director of Penguin Press. He is the author of seven novels, most recently Fear Itself and The Little Tokyo Informant. His writing has appeared in The Times, The New York Times, the Times Literary Supplement, and many other publications. Married, he lives with his wife and twin daughters near Oxford and is the editor of Kindle Singles in the U.K.Cover design by Evan Twohy.

Children with Emerald Eyes: Histories of Extraordinary Boys and Girls


Mira Rothenberg - 1960
    Winner of a Woman of the Year award from the New York City Chamber of Commerce and the National Organization for Mentally Ill Children, she eloquently recounts a lifetime of taking on seemingly hopeless cases and bringing these children, through painstaking therapy and love, back into the world. Unflinchingly honest, whether dealing with the raw pain of her patients' lives or with Rothenberg's own complex feelings for them, Children with Emerald Eyes explores the landscape of mental illness while never losing sight of the humanity within each patient.

Ido in Autismland: Climbing Out of Autism's Silent Prison


Ido Kedar - 2012
    In his pithy essays, author Ido Kedar, a brilliant sixteen year old with autism, challenges what he believes are misconceptions in many theories that dominate autism treatment today while he simultaneously chronicles his personal growth in his struggles to overcome his limitations.Ido spent the first half of his life locked internally, in silence, trapped in a remedial educational system that presumed he lacked the most basic comprehension, and unable to show the world that he understood everything. But at the age of seven, Ido was finally able to show that he had an intact mind and could understand. This led to the quest to find a system of communication that he could use despite his impaired motor control. Through the use of a letter board, and now an iPad, Ido has triumphed communicatively, enabling him to flourish in a regular high school in all general education classes.But Ido has a larger goal. He does not want to be seen as an isolated autistic exception with miraculously advanced cognitive and communication abilities. He wants people to see that thousands of other severely autistic individuals have the same capacity, but remain trapped and locked-in, as he was, unable to show their true capacities. These individuals desperately need new theories and new methods to help them break free too. Of importance to neuro-researchers, educators, psychologists, doctors, parents, friends, family and people with autism, Ido in Autismland will change our collective understanding of severe autism.PRAISE FOR Ido in Autismland "There are doubtless many Idos in this world, unable to speak, yet possessing good intellectual ability and, most certainly, a rich emotional life. And yet, precisely because they cannot communicate, nonverbal individuals with autism are nearly always consigned to the junk heap of mental deficiency, branded as incapable of understanding language or even having feelings... We need to help change things for this terribly neglected group... Reading Ido's book is a good beginning." - Portia Iversen, Co-founder, Cure Autism Now and the Autism Genetic Resource Exchange Gene Bank. Author of Strange Son"Ido is a brilliant communicator. His words bring us inside the world of autism. His gift of writing enlightens, inspires, educates. Every person who loves or works with someone with autism - educator, therapist, karent, grandparent, neighbor - should read Ido in Autismland." - Elaine Hall, Author of Now I See the Moon, co-author of Seven Keys to Unlock Autism. Featured in Autism: The Musical"Ido's book touches any heart, not only because it is well written, but because it reveals a mind that has learned how to speak to the world through spelling every word on a letter board and keyboard. His book is indeed a great gift to the world. Thank you, Ido." - Soma Mukhopadhyay, Executive Director of Education, HALO, Author of Understanding Autism through Rapid Prompting Method

My Alien Self: My Journey Back to Me


Amanda Green - 2012
    This is my life, my story; my journey back to me from depression, anxiety, panic attacks, OCD and Borderline Personality Disorder – mental illness which manifested during my life and came out ‘to it’s peak’ in my thirties.I was able to use my collection of mementos, photos, diaries, journals, letters, emails and text messages of my past to finally see who I had become, and more importantly with a combination of therapy, medication and my writing, how I became that alien self and how I found the real me.The editor (Debz Hobbs-Wyatt) adds…This is the journey of a normal working class girl, trapped in a roller coaster world of disorder and excitement, love and joy, depression and anger – and her fight against stigmaWhile My Alien Self would be inspiring for any sufferer, their families or medical teams in its honest insights into living with a mental illness, it also has universal appeal. For who, at times, has not felt their life spin into chaos and wondered what is normal? This story effectively and openly highlights just how fine the line is between what is normal, and what is ‘mental illness’ And everyone who reads it will be able to relate to it.Contains explicit language and sexual scenes

A Parent's Guide to High-Functioning Autism Spectrum Disorder: How to Meet the Challenges and Help Your Child Thrive


Sally Ozonoff - 2014
    Leading experts show how you can work with your child's unique impairments--and harness his or her capabilities. Vivid stories and real-world examples illustrate ways to help kids with ASD relate more comfortably to peers, learn the rules of appropriate behavior, and succeed in school. You'll learn how ASD is diagnosed and what treatments and educational supports really work. Updated with the latest research and resources, the second edition clearly explains the implications of the DSM-5 diagnostic changes.