How to Live Well with Chronic Pain and Illness: A Mindful Guide


Toni Bernhard - 2015
    Beloved author Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help readers make peace with a life turned upside down. In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness. Benefit from: • Mindfulness exercises to mitigate physical and emotional pain • Concrete advice for negotiating the everyday hurdles of medical appointments, household chores, and social obligations • Tools for navigating the strains illness can place on relationships Several chapters are directed toward family and friends of the chronically ill, helping them to understand what their loved one is going through and how they can help. Humorous and empathetic, Bernhard shares her own struggles and setbacks with unflinching honesty, offering invaluable support in the search to find peace and well-being.

POTS - Together We Stand: Riding the Waves of Dysautonomia


Jodi Epstein Rhum - 2011
    Initially conceptualized as a survival guide for children, teens, young adults and parents; it quickly transcended into this unprecedented, critical volume. This encompassing work responds to the many desperate and heartbreaking pleas of those affected by dysautonomia; included are clear explanations of medical information, evidenced-based research, best practices for clinical diagnoses and treatment options, alternative/complimentary medicine approaches, non-medical strategies, coping techniques, helpful tips, patient rights and options, and inspiring narrative accounts of people living with the syndrome around the globe. The book contributors and its readers join hand in hand to represent the POTS dysautonomia community's shared struggles and hopes, concerns and endeavors, unequivocally serving as a living testament that "Together We Stand." This is the 3rd Edition!

Invisible: How Young Women with Serious Health Issues Navigate Work, Relationships, and the Pressure to Seem Just Fine


Michele Lent Hirsch - 2018
    She did.Sophie navigates being the only black scientist in her lab while studying the very disease, HIV, that she hides from her coworkers.For Victoria, coming out as a transgender woman was less difficult than coming out as bipolar.Author Michele Lent Hirsch knew she couldn't be the only woman who's faced serious health issues at a young age, as well as the resulting effects on her career, her relationships, and her sense of self. What she found while researching Invisible was a surprisingly large and overlooked population with important stories to tell.Though young women with serious illness tend to be seen as outliers, young female patients are in fact the primary demographic for many illnesses. They are also one of the most ignored groups in our medical system--a system where young women, especially women of color and trans women, are invisible.And because of expectations about gender and age, young women with health issues must often deal with bias in their careers and personal lives. Not only do they feel pressured to seem perfect and youthful, they also find themselves amid labyrinthine obstacles in a culture that has one narrow idea of womanhood.Lent Hirsch weaves her own harrowing experiences together with stories from other women, perspectives from sociologists on structural inequality, and insights from neuroscientists on misogyny in health research. She shows how health issues and disabilities amplify what women in general already confront: warped beauty standards, workplace sexism, worries about romantic partners, and mistrust of their own bodies. By shining a light on this hidden demographic, Lent Hirsch explores the challenges that all women face.

Sick and Tired of Feeling Sick and Tired: Living with Invisible Chronic Illness


Paul J. Donoghue - 1992
    Since its first publication, Sick and Tired of Feeling Sick and Tired has offered hope and coping strategies to thousands of people who suffer from ICI. Paul Donoghue and Mary Siegel teach their readers how to rethink how they themselves view their illness and how to communicate with loved ones and doctors in a way that meets their needs. The authors' understanding makes readers feel they have been heard for the first time. For this edition, the authors include a new introduction drawing on the experiences of the many people who have responded to the book and to their lectures and television appearances. They expand the definition of ICI to include other ailments such as depression, addiction, and obsessive-compulsive disorders. They bring the resource material, including Web sites, up to the present, and they offer fresh insights on four topics that often emerge: guilt, how ICI affects the family, meaningfulness, and defining acceptance.

You're Not Crazy And You're Not Alone


Stacey Robbins - 2013
     Stacey explores the common areas that women with Hashi's struggle: like perfectionism and self-rejection -- and common past experiences -- like abuse or injury. Stacey inspires women to look at their lives, and Hashimoto's differently, and to use this diagnosis as an opportunity for inner healing, greater happiness, and loving themselves.

My Bucket Has Holes: Living with Bipolar II


Sarah Loucks - 2016
    From childhood to diagnosis to mental hospitals, everything is included, including the ugly parts of being raised in a time period that did not understand mental illness and instead applied "tough love" to children who acted abnormally.

You Don't Look Sick!: Living Well with Invisible Chronic Illness


Joy H. Selak - 2005
    This resource helps you focus on building a meaningful life that contains illness as opposed to a life of frustration and fear. Designed for patients in at all stages of the chronic illness journey, this book will also be illuminating for caregivers and loved ones.From the book: ""I've learned that having a chronic illness is not a prison sentence. It does not mean I must spend the rest of my life feeling depressed and angry, locked away from the world inside my little sick box. It does not mean that I am useless and no longer have any gifts to share, but it may mean that I must develop some new ones.""You Don't LOOK Sick! addresses practical aspects of chronic illness, such as: hiring a doctor managing chronic pain coping with grief and the loss of function winning battles with health and disability insurers countering the social bias against the chronically ill recognizing the limitations of chronics illness care and charting a path for changeIn You Don't LOOK Sick!: Living Well with Invisible Chronic Illness, you will find stories, dialogue, humor, examples, and analogy of the three stages to illustrate a challenging but navigable journey. You will also find suggested reading materials for learning to live well, medical Internet resources, illness-specific Web sites, names and addresses of national associations, and a bibliography of medical books by topic. The short chapters and straightforward language of the book will be helpful for readers who are weary and dispirited. From the authors: "I've learned that having a chronic illness is not a prison sentence. It does not mean I must spend the rest of my life feeling depressed and angry, locked away from the world inside my little sick box. It does not mean that I am useless and no longer have any gifts to share, but it may mean that I must develop some new ones."--Joy H. Selak"My goal is to work with patients so that, like world class athletes, they can perform at their peak capacity. My job is more than giving answers; I must educate, counsel and encourage patients to set goals and implement a personal care program as well as take appropriate medications."--Dr. Steven Overman The authors are experienced public speakers. If you wish to inquire about their availability to speak to patients or health care professionals, please contact Joy Selak by email at JoyWrites@austin.rr.com.

Bipolar Happens! 35 Tips and Tricks to Manage Bipolar Disorder


Julie A. Fast - 2011
    Written with a very funny and riveting honesty as only a person with the illness can do, Bipolar Happens! offers practical knowledge and deep insights into what it is like to live with bipolar disorder.Compelling, insightful and never afraid to tell the truth , many of Julie’s readers credit this book as being their personal catalyst for change. “When I read this book I actually felt that someone really understood me, and it made me feel hope for the first time since my diagnosis. I didn’t know what it meant to be psychotic or why I got overwhelmed a lot in crowds. I learned how to manage mania much better than in the past. And now I can see that I’m not the only one who wakes up with depression. Julie is funny and so willing to say what many people won’t. This book talks about the stuff we go through that never gets put into books. The book is like reading fables. It’s not overwhelming, but you really learn a lot.”

Stop Endometriosis and Pelvic Pain: What Every Woman and Her Doctor Need to Know


Andrew S. Cook - 2012
    Dr. Cook explains why so many patients are misunderstood and misdiagnosed, why most endometriosis surgery is done so poorly, the principles and correct techniques for effective endometriosis surgery, and how to find the best doctors and healthcare providers. This book embraces a women's perspective and provides much-needed support for women who have suffered from the pain of endometriosis. He also explains his comprehensive and successful program for treating endometriosis.

Unwell Women: Misdiagnosis and Myth in a Man-Made World


Elinor Cleghorn - 2021
     Elinor Cleghorn became an unwell woman ten years ago. She was diagnosed with an autoimmune disease after a long period of being told her symptoms were anything from psychosomatic to a possible pregnancy. As Elinor learned to live with her unpredictable disease she turned to history for answers, and found an enraging legacy of suffering, mystification, and misdiagnosis.In Unwell Women, Elinor Cleghorn traces the almost unbelievable history of how medicine has failed women by treating their bodies as alien and other, often to perilous effect. The result is an authoritative and groundbreaking exploration of the relationship between women and medical practice, from the wandering womb of Ancient Greece to the rise of witch trials across Europe, and from the dawn of hysteria as a catchall for difficult-to-diagnose disorders to the first forays into autoimmunity and the shifting understanding of hormones, menstruation, menopause, and conditions like endometriosis.Packed with character studies and case histories of women who have suffered, challenged, and rewritten medical orthodoxy--and the men who controlled their fate--this is a revolutionary examination of the relationship between women, illness, and medicine. With these case histories, Elinor pays homage to the women who suffered so strides could be made, and shows how being unwell has become normalized in society and culture, where women have long been distrusted as reliable narrators of their own bodies and pain. But the time for real change is long overdue: answers reside in the body, in the testimonies of unwell women--and their lives depend on medicine learning to listen.

The Lonely Patient: How We Experience Illness


Michael Stein - 2007
    For many, it is as if they are traveling to someplace entirely new and they must go there alone, with only faded directions back to their old lives. Often, even their loved ones can only guess at what they must be experiencing.The Lonely Patient is a clear-eyed and deeply affecting examination of the inner life of those grappling with illness. It looks into the chasm between the well and the sick by exploring and giving voice to the often unarticulated aspects of illness, offering people with illness—and their family and friends—a frank and intelligent discussion of how to negotiate the psychological and emotional aspects of what they are going through.Michael Stein, M.D., a professor of medicine at Brown University Medical School as well as an acclaimed novelist, uses the stories of a number of patients, including that of his beloved, terminally ill brother-in-law, Richard, to consider the personal narrative of sickness. What sets Stein's book apart is his intimate scrutiny of the uniqueness of each patient's experience, which he breaks into four parts—betrayal, terror, loss, and loneliness—and renders each in such a way that he opens a dialogue about our expectations of health and, after its shocking disappearance, of illness.Beautifully written and keenly insightful, The Lonely Patient is a valuable book for patients and their caregivers—as well as a probing inquiry into a universal experience.

Coping with Prednisone: (*And Other Cortison-Related Medicines) It May Work Miracles, But How Do You Handle the Side Effects?


Eugenia Zukerman - 1997
    Provides a guide to making treatment with this steroid as effective and trouble-free as possible.

Skin Picking: The Freedom to Finally Stop


Annette Pasternak - 2014
    Step-by-step she leads you through: 1) Exercises to help you to break the habit of the behavior. 2) Techniques to reduce stress and anxiety naturally, thus reducing the body’s need to pick. 3) How to release negative thoughts and emotions holding you back.4) Lifestyle changes to restore physiological balance, including which foods to avoid, which to eat more of, and natural supplements to help you stop. This comprehensive guide is a lifesaver for those suffering from skin picking, and is invaluable also for health professionals interested in learning how to help their patients who pick.

This Too Shall Last: Finding Grace When Suffering Lingers


K.J. Ramsey - 2020
    We silently, secretly wither under the pressure of living as though suffering is a predicament we can avoid or annihilate by having enough faith or trying harder. When your prayers for healing haven't been answered, the fog of depression isn't lifting, your marriage is ending in divorce, or grief won't go away, it's easy to feel you've failed God or, worse, he's failed you. If God loves us, why does he allow us to hurt?Over a decade ago chronic illness plunged therapist and writer K.J. Ramsey straight into this paradox. Before her illness, faith made sense. But when pain came and never left, K.J. had to find a way across the widening canyon that seemed to separate God's goodness from her excruciating circumstances.She wanted to conquer suffering. Instead, she encountered the God who chose it. She wanted to make pain past-tense. Instead, God invited her into a bigger story.This Too Shall Last offers an antidote to our cultural idolatry of effort and ease. Through personal story and insights from neuroscience and theology, Ramsey invites us to let our tears become lenses of the wonder that before God ever rescues us, he stands in solidarity with us. We are all mid-story in circumstances we did not choose, wondering when our hard things will end and where grace will come if they don't. Together, we can encounter grace in the middle, where living with suffering that lingers can mean receiving God's presence that lasts.What if the church treated suffering like a story to tell rather than a secret to keep until it passes?

Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick


Maya Dusenbery - 2018
    In addition to offering a clear-eyed explanation of the root causes of this insidious and entrenched bias and laying out its effects, she suggests concrete steps we can take to cure it.