Book picks similar to
Raising Henry: A Memoir of Motherhood, Disability, and Discovery by Rachel Adams
memoir
non-fiction
memoirs
disability
This Is Your Mind on Plants
Michael Pollan - 2021
Exploring and participating in the cultures that have grown up around these drugs while consuming (or, in the case of caffeine, trying not to consume) them, Pollan reckons with the powerful human attraction to psychoactive plants. Why do we go to such great lengths to seek these shifts in consciousness, and then why do we fence that universal desire with laws and customs and fraught feelings?
The Night the Lights Went Out: A Memoir of Life After Brain Damage
Drew Magary - 2021
But in The Night the Lights Went Out, he finds himself far out of his depths. On the night of the 2018 Deadspin Awards, he suffered a mysterious fall that caused him to smash his head so hard on a cement floor that he cracked his skull in three places and suffered a catastrophic brain hemorrhage. For two weeks, he remained in a coma. The world was gone to him, and him to it.In his long recovery from his injury, including understanding what his family and friends went through as he lay there dying, coming to terms with his now permanent disabilities, and trying to find some lesson in this cosmic accident, he leaned on the one sure thing that he knows and that didn't leave him--his writing.Drew takes a deep dive into what it meant to be a bystander to his own death and figuring out who this new Drew is: a Drew that doesn't walk as well, doesn't taste or smell or see or hear as well, and a Drew that is often failing as a husband and a father as he bounces between grumpiness, irritability, and existential fury. But what's a good comeback story without heartbreak? Eager to get back what he lost, Drew experiences an awakening of a whole other kind in this incredibly funny, medically illuminating, and heartfelt memoir.
What My Bones Know: A Memoir of Healing from Complex Trauma
Stephanie Foo - 2022
. . . I want to have words for what my bones know."By age thirty, Stephanie Foo was successful on paper: She had her dream job as an award-winning radio producer at This American Life and a loving boyfriend. But behind her office door, she was having panic attacks and sobbing at her desk every morning. After years of questioning what was wrong with herself, she was diagnosed with complex PTSD--a condition that occurs when trauma happens continuously, over the course of years.Both of Foo's parents abandoned her when she was a teenager, after years of physical and verbal abuse and neglect. She thought she'd moved on, but her new diagnosis illuminated the way her past continued to threaten her health, relationships, and career. She found limited resources to help her, so Foo set out to heal herself, and to map her experiences onto the scarce literature about C-PTSD.In this deeply personal and thoroughly researched account, Foo interviews scientists and psychologists and tries a variety of innovative therapies. She returns to her hometown of San Jose, California, to investigate the effects of immigrant trauma on the community, and she uncovers family secrets in the country of her birth, Malaysia, to learn how trauma can be inherited through generations. Ultimately, she discovers that you don't move on from trauma--but you can learn to move with it.Powerful, enlightening, and hopeful, What My Bones Know is a brave narrative that reckons with the hold of the past over the present, the mind over the body--and examines one woman's ability to reclaim agency from her trauma.
Beyond the Pale: Folklore, Family and the Mystery of Our Hidden Genes
Emily Urquhart - 2015
Stephen's Day, 2010, in St. John's, Newfoundland, when the author gives birth to a baby girl named Sadie Jane who has a shock of snow-white hair. News of the child's icy locks travels across the hospital, and physicians and nurses from all wards visit the unusually beautiful newborn as she lies sleeping in her plastic bassinet. The maternity-floor janitor, however, feels something is amiss. Her eyes wide, incredulous and panicky, the janitor asks, "Is she an albino?" The idea is immediately dismissed, but after three months of medical testing, Sadie is diagnosed with albinism, a rare genetic condition where pigment fails to form in the skin, hair and eyes. She is visually impaired and faces a lifetime avoiding the sun. She will always have the otherworldly appearance that drew the awestruck hospital staff to her side.A journalist and folklore scholar accustomed to processing the world through other people's stories, Emily is drawn to understanding her child's difference by researching the cultural beliefs associated with albinism worldwide. What she finds on her journey vacillates between beauty and darkness. She discovers that Noah's birth story is believed to be the first record of a baby born with albinism, and that the Kuna people in Panama revere members of their society with albinism, seeing them as defenders of the moon in the night sky. She attends a gathering of people with albinism in St. Louis and interviews geneticists, social scientists, novelists and folklorists in Canada, England and the US. But when she uncovers information about gruesome attacks on people with albinism in Tanzania, rooted in witchcraft, she feels compelled to travel to East Africa, her sun-shy toddler in tow, in an effort to understand these human-rights violations. Upon her return to Canada she discovers a family photograph from the past that might illuminate her daughter’s present. While navigating new territory as a first-time parent of a child with a disability, Emily embarks on a three-year journey across North America and Africa to discover how we explain human differences, not through scientific facts or statistics but through a system of cultural beliefs. Part parenting memoir, part cultural critique and part travelogue, Beyond the Pale, as the title suggests, takes the reader into dark and unknown territory in the search for enlightenment.
I Heart My Little A-Holes
Karen Alpert - 2013
because he wants to watch Caillou, he’s an a-hole. When your daughter outlines every corner of your living room with a purple crayon, she’s an a-hole. When your rug rats purposely decorate the kitchen ceiling with their smoothies, they’re a-holes. So it’s only natural to want to kill them sometimes. Of course you can’t because you’d go to prison, and then you’d really never get to poop alone again. Plus, there’s that whole loving them more than anything in the whole world thing. Karen Alpert is the writer of the popular blog Baby Sideburns. You may have seen some of her more viral posts like “Ten Things I Really F’ing Want for Mother’s Day,” “Daddy Sticker Chart” and “What NOT to F’ing Buy My Kids this Holiday.” Or you may know her from her Facebook page that has over 130,000 followers. I Heart My Little A-Holes is full of hilarious stories, lists, thoughts and pictures that will make you laugh so hard you’ll wish you were wearing a diaper.
Cost of Living: Essays
Emily Maloney - 2022
A thousand dollars for a broken leg, a few hundred for a nasty cut while cooking dinner. Then there are the greater costs for even greater misfortunes. The car accidents, breast cancers, blood diseases, and dark depressions.When Emily Maloney was nineteen she tried to kill herself. An act that would not only cost a great deal personally, but also financially, sending her down a dark spiral of misdiagnoses, years spent in and out of hospitals and doctor’s offices, and tens of thousands owed in medical debt. To work to pay off this crippling burden, Emily becomes an emergency room technician. Doing the grunt work in a hospital, and taking care of patients at their most vulnerable moments, chronicling these interactions in searingly beautiful, surprising ways.Shocking and often slyly humorous, Cost of Living is a brilliant examination of just what exactly our troubled healthcare system asks us to pay, as well as a look at what goes on behind the scenes at our hospitals and in the minds of caregivers.
Now I See You: A Memoir
Nicole C. Kear - 2014
Kear's biggest concern is choosing a major--until she walks into a doctor's office in midtown Manhattan and gets a life-changing diagnosis. She is going blind, courtesy of an eye disease called retinitis pigmentosa, and has only a decade or so before Lights Out. Instead of making preparations as the doctor suggests, Kear decides to carpe diem and make the most of the vision she has left. She joins circus school, tears through boyfriends, travels the world, and through all these hi-jinks, she keeps her vision loss a secret.When Kear becomes a mother, just a few years shy of her vision's expiration date, she amends her carpe diem strategy, giving up recklessness in order to relish every moment with her kids. Her secret, though, is harder to surrender - and as her vision deteriorates, harder to keep hidden. As her world grows blurred, one thing becomes clear: no matter how hard she fights, she won't win the battle against blindness. But if she comes clean with her secret, and comes to terms with the loss, she can still win her happy ending.Told with humor and irreverence, Now I See You is an uplifting story about refusing to cower at life's curveballs, about the power of love to triumph over fear. But, at its core, it's a story about acceptance: facing the truths that just won't go away, and facing yourself, broken parts and all.
The Man Who Couldn't Stop
David Adam - 2014
In this captivating fusion of science, history and personal memoir, writer David Adam explores the weird thoughts that exist within every mind, and how they drive millions of us towards obsessions and compulsions.David has suffered from OCD for twenty years, and The Man Who Couldn’t Stop is his unflinchingly honest attempt to understand the condition and his experiences. What might lead an Ethiopian schoolgirl to eat a wall of her house, piece by piece; or a pair of brothers to die beneath an avalanche of household junk that they had compulsively hoarded? At what point does a harmless idea, a snowflake in a clear summer sky, become a blinding blizzard of unwanted thoughts? Drawing on the latest research on the brain, as well as historical accounts of patients and their treatments, this is a book that will challenge the way you think about what is normal, and what is mental illness.Told with fierce clarity, humour and urgent lyricism, this extraordinary book is both the haunting story of a personal nightmare, and a fascinating doorway into the darkest corners of our minds.
Rosemary: The Hidden Kennedy Daughter
Kate Clifford Larson - 2015
The daughter they secreted away made all the difference.Joe and Rose Kennedy’s strikingly beautiful daughter Rosemary attended exclusive schools, was presented as a debutante to the Queen of England, and traveled the world with her high-spirited sisters. And yet, Rosemary was intellectually disabled — a secret fiercely guarded by her powerful and glamorous family. Major new sources — Rose Kennedy’s diaries and correspondence, school and doctors' letters, and exclusive family interviews — bring Rosemary alive as a girl adored but left far behind by her competitive siblings. Kate Larson reveals both the sensitive care Rose and Joe gave to Rosemary and then — as the family’s standing reached an apex — the often desperate and duplicitous arrangements the Kennedys made to keep her away from home as she became increasingly intractable in her early twenties. Finally, Larson illuminates Joe’s decision to have Rosemary lobotomized at age twenty-three, and the family's complicity in keeping the secret. Rosemary delivers a profoundly moving coda: JFK visited Rosemary for the first time while campaigning in the Midwest; she had been living isolated in a Wisconsin institution for nearly twenty years. Only then did the siblings understand what had happened to Rosemary and bring her home for loving family visits. It was a reckoning that inspired them to direct attention to the plight of the disabled, transforming the lives of millions.
Bringing Up Bébé: One American Mother Discovers the Wisdom of French Parenting
Pamela Druckerman - 2012
They ate braised leeks. They played by themselves while their parents sipped coffee. And yet French kids were still boisterous, curious, and creative. Why? How? With a notebook stashed in her diaper bag, Druckerman set out to investigate—and wound up sparking a national debate on parenting. Researched over three years and written in her warm, funny voice, Bringing Up Bébé is deeply wise, charmingly told, and destined to become a classic resource for American parents.
Call Me Tuesday
Leigh Byrne - 2012
For no apparent reason, she's singled out from her siblings, blamed for her family's problems and targeted for unspeakable abuse. The loving environment she's come to know becomes an endless nightmare of twisted punishments as she's forced to confront the dark cruelty lurking inside the mother she idolizes. Based on a true story, Call Me Tuesday recounts, with raw emotion, a young girl's physical and mental torment at the mercy of the monster in her mother's clothes--a monster she doesn't know how to stop loving. Tuesday's painful journey through the hidden horrors of child abuse will open your eyes, and her unshakable love for her parents will tug at your heartstrings.
Sybil Exposed: The Extraordinary Story Behind the Famous Multiple Personality Case
Debbie Nathan - 2011
Sybil became both a pop phenomenon and a revolutionary force in the psychotherapy industry. The book rocketed multiple personality disorder (MPD) into public consciousness and played a major role in having the diagnosis added to the psychiatric bible, Diagnostic and Statistical Manual of Mental Disorders. But what do we really know about how Sybil came to be? In her news-breaking book Sybil Exposed, journalist Debbie Nathan gives proof that the allegedly true story was largely fabricated. The actual identity of Sybil (Shirley Mason) has been available for some years, as has the idea that the book might have been exaggerated. But in Sybil Exposed, Nathan reveals what really powered the legend: a trio of women—the willing patient, her ambitious shrink, and the imaginative journalist who spun their story into bestseller gold. From horrendously irresponsible therapeutic practices—Sybil’s psychiatrist often brought an electroshock machine to Sybil’s apartment and climbed into bed with her while administering the treatment— to calculated business decisions (under an entity they named Sybil, Inc., the women signed a contract designating a three-way split of profits from the book and its spin-offs, including board games, tee shirts, and dolls), the story Nathan unfurls is full of over-the-top behavior. Sybil’s psychiatrist, driven by undisciplined idealism and galloping professional ambition, subjected the young woman to years of antipsychotics, psychedelics, uppers, and downers, including an untold number of injections with Pentothal, once known as “truth serum” but now widely recognized to provoke fantasies. It was during these “treatments” that Sybil produced rambling, garbled, and probably “false-memory”–based narratives of the hideous child abuse that her psychiatrist said caused her MPD. Sybil Exposed uses investigative journalism to tell a fascinating tale that reads like fiction but is fact. Nathan has followed an enormous trail of papers, records, photos, and tapes to unearth the lives and passions of these three women. The Sybil archive became available to the public only recently, and Nathan examined all of it and provides proof that the story was an elaborate fraud—albeit one that the perpetrators may have half-believed. Before Sybil was published, there had been fewer than 200 known cases of MPD; within just a few years after, more than 40,000 people would be diagnosed with it. Set across the twentieth century and rooted in a time when few professional roles were available to women, this is a story of corrosive sexism, unchecked ambition, and shaky theories of psychoanalysis exuberantly and drastically practiced. It is the story of how one modest young woman’s life turned psychiatry on its head and radically changed the course of therapy, and our culture, as well.
Nerdy, Shy, and Socially Inappropriate: A User Guide to an Asperger Life
Cynthia Kim - 2014
Her own life presents many rich examples. From being labelled nerdy and shy as an undiagnosed child to redefining herself when diagnosed with Asperger Syndrome as an adult, she describes how her perspective shifted to understanding a previously confusing world and combines this with the results of extensive research to explore the 'why' of ASD traits. She explains how they impact on everything from self-care to holding down a job and offers typically practical and creative strategies to help manage them, including a section on the vestibular, sensory and social benefits of martial arts for people with autism.Well known in the autism community and beyond for her popular blog, Musings of an Aspie, Cynthia Kim's book is rich with personal anecdotes and useful advice. This intelligent insider guide will help adults with ASDs and their partners, family members, friends, and colleagues, but it also provides a fresh and witty window onto a different worldview.
Crazy: A Father's Search Through America's Mental Health Madness
Pete Earley - 2006
But it was only when his own son-in the throes of a manic episode-broke into a neighbor's house that he learned what happens to mentally ill people who break a law. This is the Earley family's compelling story, a troubling look at bureaucratic apathy and the countless thousands who suffer confinement instead of care, brutal conditions instead of treatment, in the "revolving doors" between hospital and jail. With mass deinstitutionalization, large numbers of state mental patients are homeless or in jail-an experience little better than the horrors of a century ago. Earley takes us directly into that experience-and into that of a father and award-winning journalist trying to fight for a better way.
The Empathy Exams
Leslie Jamison - 2014
She draws from her own experiences of illness and bodily injury to engage in an exploration that extends far beyond her life, spanning wide-ranging territory—from poverty tourism to phantom diseases, street violence to reality television, illness to incarceration—in its search for a kind of sight shaped by humility and grace.