He was given four years to live. In 2010, in a state of lung-function collapse, Simon knew with crystal clarity that now was not his time to die. Against all prevailing medical opinion, he chose to ventilate in order to stay alive.Here, the young filmmaker, a husband and father of five small children draws us deeply into his inner world. Told in simply expressed and beautifully stark prose - in the vein of such memoirs as Jean-Dominique Bauby's The Diving Bell and the Butterfly - the result is an astonishing journey into a life which, though brutally compromised, is lived more fully and in the moment than most, revealing at its core the power of love its most potent.Written using an eye-gaze computer, It's Not Yet Dark is an unforgettable book about relationships and family, about what connects and separates us as people and, ultimately, about what it means to be alive.

    After World War II, Don's work with the Air Force brought them to Colorado, where their twelve children perfectly spanned the baby boom: the oldest born in 1945, the youngest in 1965. In those years, there was an established script for a family like the Galvins—aspiration, hard work, upward mobility, domestic harmony—and they worked hard to play their parts. But behind the scenes was a different story: psychological breakdown, sudden shocking violence, hidden abuse. By the mid-1970s, six of the ten Galvin boys, one after another, were diagnosed as schizophrenic. How could all this happen to one family?What took place inside the house on Hidden Valley Road was so extraordinary that the Galvins became one of the first families to be studied by the National Institute of Mental Health. Their story offers a shadow history of the science of schizophrenia, from the era of institutionalization, lobotomy, and the schizophrenogenic mother to the search for genetic markers for the disease, always amid profound disagreements about the nature of the illness itself. And unbeknownst to the Galvins, samples of their DNA informed decades of genetic research that continues today, offering paths to treatment, prediction, and even eradication of the disease for future generations.With clarity and compassion, bestselling and award-winning author Robert Kolker uncovers one family's unforgettable legacy of suffering, love, and hope.

    No one in this story was a ghost. This was not a story.”When Marcelo Hernandez Castillo was five years old and his family was preparing to cross the border between Mexico and the United States, he suffered temporary, stress-induced blindness. Castillo regained his vision, but quickly understood that he had to move into a threshold of invisibility before settling in California with his parents and siblings. Thus began a new life of hiding in plain sight and of paying extraordinarily careful attention at all times for fear of being truly seen. Before Castillo was one of the most celebrated poets of a generation, he was a boy who perfected his English in the hopes that he might never seem extraordinary.With beauty, grace, and honesty, Castillo recounts his and his family’s encounters with a system that treats them as criminals for seeking safe, ordinary lives. He writes of the Sunday afternoon when he opened the door to an ICE officer who had one hand on his holster, of the hours he spent making a fake social security card so that he could work to support his family, of his father’s deportation and the decade that he spent waiting to return to his wife and children only to be denied reentry, and of his mother’s heartbreaking decision to leave her children and grandchildren so that she could be reunited with her estranged husband and retire from a life of hard labor.Children of the Land distills the trauma of displacement, illuminates the human lives behind the headlines and serves as a stunning meditation on what it means to be a man and a citizen.

    Joshua Mezrich creates life from loss, transplanting organs from one body to another. In this intimate, profoundly moving work, he illuminates the extraordinary field of transplantation that enables this kind of miracle to happen every day.When Death Becomes Life is a thrilling look at how science advances on a grand scale to improve human lives. Mezrich examines more than one hundred years of remarkable medical breakthroughs, connecting this fascinating history with the inspiring and heartbreaking stories of his transplant patients. Combining gentle sensitivity with scientific clarity, Mezrich reflects on his calling as a doctor and introduces the modern pioneers who made transplantation a reality—maverick surgeons whose feats of imagination, bold vision, and daring risk taking generated techniques and practices that save millions of lives around the world.Mezrich takes us inside the operating room and unlocks the wondrous process of transplant surgery, a delicate, intense ballet requiring precise timing, breathtaking skill, and at times, creative improvisation. In illuminating this work, Mezrich touches the essence of existence and what it means to be alive. Most physicians fight death, but in transplantation, doctors take from death. Mezrich shares his gratitude and awe for the privilege of being part of this transformative exchange as the dead give their last breath of life to the living. After all, the donors are his patients, too.When Death Becomes Life also engages in fascinating ethical and philosophical debates: How much risk should a healthy person be allowed to take to save someone she loves? Should a patient suffering from alcoholism receive a healthy liver? What defines death, and what role did organ transplantation play in that definition? The human story behind the most exceptional medicine of our time, Mezrich’s riveting book is a beautiful, poignant reminder that a life lost can also offer the hope of a new beginning.

    She was a poor Southern tobacco farmer who worked the same land as her enslaved ancestors, yet her cells—taken without her knowledge—became one of the most important tools in medicine. The first “immortal” human cells grown in culture, they are still alive today, though she has been dead for more than sixty years. If you could pile all HeLa cells ever grown onto a scale, they’d weigh more than 50 million metric tons—as much as a hundred Empire State Buildings. HeLa cells were vital for developing the polio vaccine; uncovered secrets of cancer, viruses, and the atom bomb’s effects; helped lead to important advances like in vitro fertilization, cloning, and gene mapping; and have been bought and sold by the billions.Yet Henrietta Lacks remains virtually unknown, buried in an unmarked grave.Now Rebecca Skloot takes us on an extraordinary journey, from the “colored” ward of Johns Hopkins Hospital in the 1950s to stark white laboratories with freezers full of HeLa cells; from Henrietta’s small, dying hometown of Clover, Virginia — a land of wooden quarters for enslaved people, faith healings, and voodoo — to East Baltimore today, where her children and grandchildren live and struggle with the legacy of her cells.Henrietta’s family did not learn of her “immortality” until more than twenty years after her death, when scientists investigating HeLa began using her husband and children in research without informed consent. And though the cells had launched a multimillion-dollar industry that sells human biological materials, her family never saw any of the profits. As Rebecca Skloot so brilliantly shows, the story of the Lacks family — past and present — is inextricably connected to the history of experimentation on African Americans, the birth of bioethics, and the legal battles over whether we control the stuff we are made of.Over the decade it took to uncover this story, Rebecca became enmeshed in the lives of the Lacks family—especially Henrietta’s daughter Deborah, who was devastated to learn about her mother’s cells. She was consumed with questions: Had scientists cloned her mother? Did it hurt her when researchers infected her cells with viruses and shot them into space? What happened to her sister, Elsie, who died in a mental institution at the age of fifteen? And if her mother was so important to medicine, why couldn’t her children afford health insurance?Intimate in feeling, astonishing in scope, and impossible to put down, The Immortal Life of Henrietta Lacks captures the beauty and drama of scientific discovery, as well as its human consequences.

    Laurie finds grown-up life just as harrowing as her reckless youth, as she meets Mr. Right, moves in, settles down, and crosses the toe-stubbing threshold of matrimony. From her mother's grade-school warning to avoid kids in tie-dyed shirts because their hippie parents spent their food money on drugs and art supplies; to her night-before-the-wedding panic over whether her religion is the one where you step on the glass; to her unfortunate overpreparation for the mandatory drug-screening urine test at work; to her audition as a Playboy centerfold as research for a newspaper story, Autobiography of a Fat Bride has the same zits-and-all candor and outrageous humor that made Idiot Girls an instant cult phenomenon. In Autobiography of a Fat Bride, Laurie contemplates family, home improvement, and the horrible tyrannies of cosmetic saleswomen. She finds that life doesn't necessarily get any easier as you get older. But it does get funnier.

    Escaping the clich�s of fleeting young love, their summer romance bloomed into a relationship that survived college and culminated in a marriage and two children. From the outside looking in, their life had all the trappings of what most would consider a success story.But, as in any marriage, things weren't always as they seemed. On top of the typical stresses of parenting, money, and work, there were Aaron's untended wounds of depression, addiction, and family trauma. Then, when burning lesions appeared on his body overnight, Eleanor was as baffled as his doctors. There seemed to be no obvious diagnosis, let alone a cure. And when the lesions gave way to Aaron's increasingly disturbed concerns about parasites living inside him, the husband she loved began to unravel before her eyes. A new fissure ruptured in their marriage, and new questions piled onto old ones: Where does physical illness end and mental illness begin? Where does one person end and another begin? And how do we exist alongside someone else's suffering?Emotional, propulsive, and at times heartbreaking, EVERYTHING I HAVE IS YOURS tells the story of a marriage tested by powerful forces out of both partners' control. It's not only a memoir of a wife's tireless quest to heal her husband, but one that asks just what it means to accept someone as they are.

    And it can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or disheartening life changes that come so close on the heels of a diagnosis of a chronic condition or even a life-threatening illness.The author, who became ill while a university law professor in the prime of her career, tells the reader how she got sick and, to her and her partner's bewilderment, stayed that way. Toni had been a longtime meditator, going on long meditation retreats and spending many hours rigorously practicing, but soon discovered that she simply could no longer engage in those difficult and taxing forms. She had to learn ways to make "being sick" the heart of her spiritual practice and, through truly learning how to be sick, she learned how, even with many physical and energetic limitations, to live a life of equanimity, compassion, and joy. Whether we ourselves are sick now or not, we can learn these vital arts of living well from How to Be Sick.

    As the mother of forensic science, Frances Glessner Lee is the reason why homicide detectives are a thing. She is responsible for the popularity of forensic science in television shows and pop culture. Long overlooked in the history books, this extremely detailed and thoroughly researched biography will at long last tell the story of the life and contributions of this pioneering woman.

    The Noble Hustle is Pulitzer finalist Colson Whitehead’s hilarious memoir of his search for meaning at high stakes poker tables, which the author describes as “Eat, Pray, Love for depressed shut-ins.”  On one level, The Noble Hustle is a familiar species of participatory journalism--a longtime neighborhood poker player, Whitehead was given a $10,000 stake and an assignment from the online online magazine Grantland to see how far he could get in the World Series of Poker.  But since it stems from the astonishing mind of Colson Whitehead (MacArthur Award-endorsed!), the book is a brilliant, hilarious, weirdly profound, and ultimately moving portrayal of--yes, it sounds overblown and ridiculous, but really!--the human condition.      After weeks of preparation that included repeated bus trips to glamorous Atlantic City, and hiring a personal trainer to toughen him up for sitting at twelve hours a stretch, the author journeyed to the gaudy wonderland that is Las Vegas – the world’s greatest “Leisure Industrial Complex” -- to try his luck in the multi-million dollar tournament.   Hobbled by his mediocre playing skills and a lifelong condition known as “anhedonia” (the inability to experience pleasure) Whitehead did not – spoiler alert!   - win tens of millions of dollars.  But he did chronicle his progress, both literal and existential, in this unbelievably funny, uncannily accurate social satire whose main target is the author himself.   Whether you’ve been playing cards your whole life, or have never picked up a hand, you’re sure to agree that this book contains some of the best writing about beef jerky ever put to paper.

    From an important new American writer comes this powerful collection of personal essays on fear, creativity, art, faith, academia, the Internet, and justice.In this poignant and inciting collection of literary essays, Megan Stielstra tells stories to ward off fears both personal and universal as she grapples toward a better way to live. In her titular piece “The Wrong Way To Save Your Life,” she answers the question of what has value in our lives—a question no longer rhetorical when the apartment above her family’s goes up in flames. “Here is My Heart” sheds light on Megan’s close relationship with her father, whose continued insistence on climbing mountains despite a series of heart attacks leads the author to dissect deer hearts in a poetic attempt to interrogate her own feelings about mortality. Whether she's imagining the implications of open-carry laws on college campuses, recounting the story of going underwater on the mortgage of her first home, or revealing the unexpected pains and joys of marriage and motherhood, Stielstra's work informs, impels, enlightens, and embraces us all. The result is something beautiful—this story, her courage, and, potentially, our own.Intellectually fierce and viscerally intimate, Megan Stielstra's voice is witty, wise, warm, and above all, achingly human.“Stielstra is a masterful essayist.”—Roxane Gay, author of Bad Feminist and Hunger

    Her compelling and demanding collection The Death of Adam—in which she reflected on her Presbyterian upbringing, investigated the roots of Midwestern abolitionism, and mounted a memorable defense of Calvinism—is respected as a classic of the genre, praised by Doris Lessing as “a useful antidote to the increasingly crude and slogan-loving culture we inhabit.” In this new collection she returns to the themes which have preoccupied her work: the role of faith in modern life, the inadequacy of fact, the contradictions inherent in human nature. Clear-eyed and forceful as ever, Robinson demonstrates once again why she is regarded as a modern rhetorical master.

    Reprinted here for the first time is Franzen's controversial l996 investigation of the fate of the American novel in what became known as "the Harper's essay," as well as his award-winning narrative of his father's struggle with Alzheimer's disease, and a rueful account of his brief tenure as an Oprah Winfrey author.

    Or so he kept telling himself. But, no matter how busy or tired he was, something kept niggling at him. Books. Books he'd always wanted to read. Books he'd said he'd read that he actually hadn't. Books that whispered the promise of escape from the daily grind. And so, with the turn of a page, Andy began a year of reading that was to transform his life completely.This book is Andy's inspirational and very funny account of his expedition through literature: classic, cult, and everything in between. Beginning with a copy of Bulgakov's Master and Margarita that he happens to find one day in a bookstore, he embarks on a literary odyssey. From Middlemarch to Anna Karenina to A Confederacy of Dunces, this is a heartfelt, humorous, and honest examination of what it means to be a reader, and a witty and insightful journey of discovery and soul-searching that celebrates the abiding miracle of the book and the power of reading.

    A modern day fairy tale of New York, Your Voice in My Head is a dazzling and devastating memoir, clear-eyed and shot through with wit. In a voice unlike any other, Emma Forrest explores depression and mania, but also the beauty of love—and the heartbreak of loss.