Book picks similar to
The Body Silent: The Different World of the Disabled by Robert Francis Murphy
anthropology
non-fiction
disability
nonfiction
As I Live and Breathe
Jamie Weisman - 2002
. . The book soars." --"The San Diego Union-Tribune" Jamie Weisman was a patient long before she was a doctor. She was born with a rare defect in her immune system that leaves her prey to a range of ailments and crises and that, because it is treatable but not curable, will keep her a patient for life. In this probing and inspiring book, she brings her sojourns on both sides of the doctor-patient divide to bear on the issues of the flesh that preoccupy us all. It is a worthy addition to the best that has been written about our physical selves, a meditation on our extraordinary powers of healing and the limitations that leave intact the miracle and tragedy of being.
Taking Turns: Stories from HIV/AIDS Care Unit 371
M.K. Czerwiec - 2017
Taking Turns pulls back the curtain on life in the ward.A shining example of excellence in the treatment and care of patients, Unit 371 was a community for thousands of patients and families affected by HIV and AIDS and the people who cared for them. This graphic novel combines Czerwiec’s memories with the oral histories of patients, family members, and staff. It depicts life and death in the ward, the ways the unit affected and informed those who passed through it, and how many look back on their time there today. Czerwiec joined Unit 371 at a pivotal time in the history of AIDS: deaths from the syndrome in the Midwest peaked in 1995 and then dropped drastically in the following years, with the release of antiretroviral protease inhibitors. This positive turn of events led to a decline in patient populations and, ultimately, to the closure of Unit 371. Czerwiec’s restrained, inviting drawing style and carefully considered narrative examine individual, institutional, and community responses to the AIDS epidemic—as well as the role that art can play in the grieving process.Deeply personal yet made up of many voices, this history of daily life in a unique AIDS care unit is an open, honest look at suffering, grief, and hope among a community of medical professionals and patients at the heart of the epidemic.
Rescuing Jeffrey: A Memoir
Richard Galli - 2000
Although his father, Richard, saved him, Jeffrey was paralyzed with a devastating spinal cord injury. In this book, Richard Galli offers a compelling, disarmingly honest account of the decisions and experiences confronted by all such individuals who suddenly find themselves wholly dependant on others to survive—and of the realities that must be likewise faced by their families.A lawyer and former journalist, Galli writes with much intelligence and stark emotional intensity of life as it is really lived by quadriplegics and those who care for them. An unforgettable story about tragedy, love, and the choices we make at the brink of survival, Rescuing Jeffrey is "gut-wrenchingly candid," as Publishers Weekly observed, and "likely to arouse controversy and sharply divided reactions . . . Yet this eloquent story of heartbreak and hope is ultimately life affirming." The book will be must-reading for all students of counseling, rehabilitation, and related disciplines.
The Eden Express: A Memoir of Insanity
Mark Vonnegut - 1975
That he emerged to write this funny and true book and then moved on to find the meaningful life that for a while had seemed beyond reach is what ultimately happens in The Eden Express. But the real story here is that throughout his harrowing experience his sense of humor let him see the humanity of what he was going through, and his gift of language let him describe it in such a moving way that others could begin to imagine both its utter ordinariness as well as the madness we all share.
Far from the Tree: Parents, Children, and the Search for Identity
Andrew Solomon - 2012
He writes about families coping with deafness, dwarfism, Down's syndrome, autism, schizophrenia, or multiple severe disabilities; with children who are prodigies, who are conceived in rape, who become criminals, who are transgender. While each of these characteristics is potentially isolating, the experience of difference within families is universal, and Solomon documents triumphs of love over prejudice in every chapter.All parenting turns on a crucial question: to what extent should parents accept their children for who they are, and to what extent they should help them become their best selves. Drawing on ten years of research and interviews with more than three hundred families, Solomon mines the eloquence of ordinary people facing extreme challenges.Elegantly reported by a spectacularly original and compassionate thinker, Far from the Tree explores how people who love each other must struggle to accept each other—a theme in every family’s life.
The Good Nurse: A True Story of Medicine, Madness, and Murder
Charles Graeber - 2013
But Cullen was no mercy killer, nor was he a simple monster. He was a favorite son, husband, beloved father, best friend, and celebrated caregiver. Implicated in the deaths of as many as 300 patients, he was also perhaps the most prolific serial killer in American history.Cullen's murderous career in the world's most trusted profession spanned sixteen years and nine hospitals across New Jersey and Pennsylvania. When, in March of 2006, Charles Cullen was marched from his final sentencing in an Allentown, Pennsylvania, courthouse into a waiting police van, it seemed certain that the chilling secrets of his life, career, and capture would disappear with him. Now, in a riveting piece of investigative journalism nearly ten years in the making, journalist Charles Graeber presents the whole story for the first time. Based on hundreds of pages of previously unseen police records, interviews, wire-tap recordings and videotapes, as well as exclusive jailhouse conversations with Cullen himself and the confidential informant who helped bring him down, THE GOOD NURSE weaves an urgent, terrifying tale of murder, friendship, and betrayal.Graeber's portrait of Cullen depicts a surprisingly intelligent and complicated young man whose promising career was overwhelmed by his compulsion to kill, and whose shy demeanor masked a twisted interior life hidden even to his family and friends. Were it not for the hardboiled, unrelenting work of two former Newark homicide detectives racing to put together the pieces of Cullen's professional past, and a fellow nurse willing to put everything at risk, including her job and the safety of her children, there's no telling how many more lives could have been lost.In the tradition of In Cold Blood, THE GOOD NURSE does more than chronicle Cullen's deadly career and the breathless efforts to stop him; it paints an incredibly vivid portrait of madness and offers a penetrating look inside America's medical system. Harrowing and irresistibly paced, this book will make you look at medicine, hospitals, and the people who work in them, in an entirely different way.
Angelhead: My Brother's Descent into Madness
Greg Bottoms - 2000
Beginning with Michael's first psychotic break—seeing God in his suburban bedroom window while high on LSD—Greg Bottoms recounts, in gripping, dramatic prose, the bizarre disappearances, suicide attempts, and the shocking crime that land Michael in the psychiatric wing of a maximum security prison. A work of nonfiction with the form and imagery of a novel, Angelhead enables the reader to witness not only the fragmenting of a mind, but of a family as well.
Asylums: Essays on the Social Situation of Mental Patients and Other Inmates
Erving Goffman - 1961
It focuses on the relationship between the inmate and the institution, how the setting affects the person and how the person can deal with life on the inside.
Educating Esmé: Diary of a Teacher's First Year
Esmé Raji Codell - 1999
Fresh-mouthed and free-spirited, the irrepressible Madame Esmé—as she prefers to be called—does the cha-cha during multiplication tables, roller-skates down the hallways, and puts on rousing performances with at-risk students in the library. Her diary opens a window into a real-life classroom from a teacher’s perspective. While battling bureaucrats, gang members, abusive parents, and her own insecurities, this gifted young woman reveals what it takes to be an exceptional teacher. Heroine to thousands of parents and educators, Esmé now shares more of her ingenious and yet down-to-earth approaches to the classroom in a supplementary guide to help new teachers hit the ground running. As relevant and iconoclastic as when it was first published, Educating Esmé is a classic, as is Madame Esmé herself.
You're the Only One I've Told: The Stories Behind Abortion
Meera Shah - 2020
Meera Shah, Chief medical officer of Planned Parenthood Hudson Peconic, what she did, she would tell them she was a doctor and leave it at that. But when she started to be direct about her work as an abortion provider an interesting thing started to happen: one by one, people would confide that they'd had an abortion themselves. The refrain was often the same: You're the only one I've told. This book collects these stories as they've been told to Shah to humanize abortion and to combat myths that persist in the discourse that surrounds it. A wide range of ages, races, socioeconomic factors, and experiences shows that abortion always occurs in a unique context. Today, a healthcare issue that's so precious and foundational to reproductive, social, and economic freedom for millions of people is exploited by politicians who lack understanding or compassion about the context in which abortion occurs. Stories have the power to break down stigmas and help us to empathize with those whose experiences are unlike our own. A portion of proceeds will be donated to promote reproductive health access.
Fresh Fruit, Broken Bodies: Migrant Farmworkers in the United States
Seth Holmes - 2013
An anthropologist and MD in the mold of Paul Farmer and Didier Fassin, Seth Holmes shows how market forces, anti-immigrant sentiment, and racism undermine health and healthcare. Holmes’s material is visceral and powerful. He trekked with his companions illegally through the desert into Arizona and was jailed with them before they were deported. He lived with indigenous families in the mountains of Oaxaca and in farm labor camps in the U.S., planted and harvested corn, picked strawberries, and accompanied sick workers to clinics and hospitals. This “embodied anthropology” deepens our theoretical understanding of how health equity is undermined by a normalization of migrant suffering, the natural endpoint of systemic dehumanization, exploitation, and oppression that clouds any sense of empathy for “invisible workers.” Fresh Fruit, Broken Bodies is far more than an ethnography or supplementary labor studies text; Holmes tells the stories of food production workers from as close to the ground as possible, revealing often theoretically-discussed social inequalities as irreparable bodily damage done. This book substantiates the suffering of those facing the danger of crossing the border, threatened with deportation, or otherwise caught up in the structural violence of a system promising work but endangering or ignoring the human rights and health of its workers.All of the book award money and royalties from the sales of this book have been donated to farm worker unions, farm worker organizations and farm worker projects in consultation with farm workers who appear in the book.
Crashing Through: A True Story of Risk, Adventure, and the Man Who Dared to See
Robert Kurson - 2006
The bestselling author of Shadow Divers returns with a riveting story of exploration, mystery, and the discovery of an unknown world--this time about one man's incredible odyssey from blindness into sight.
A Border Passage: From Cairo to America – A Woman's Journey
Leila Ahmed - 1999
As a young woman in Cairo in the forties and fifties, Ahmed witnessed some of the major transformations of this century—the end of British colonialism, the rise of Arab nationalism, and the breakdown of Egypt's once multireligious society. As today's Egypt continues to undergo revolutionary change, Ahmed's inspirational story remains as poignant and relevant as ever.
What Made Maddy Run: The Secret Struggles and Tragic Death of an All-American Teen
Kate Fagan - 2017
This was a girl who succeeded at everything she tried, and who was only getting started.But when Maddy began her long-awaited college career, her parents noticed something changed. Previously indefatigable Maddy became withdrawn, and her thoughts centered on how she could change her life. In spite of thousands of hours of practice and study, she contemplated transferring from the school that had once been her dream. When Maddy's dad, Jim, dropped her off for the first day of spring semester, she held him a second longer than usual. That would be the last time Jim would see his daughter.What Made Maddy Run began as a piece that Kate Fagan, a columnist for espnW, wrote about Maddy's life. What started as a profile of a successful young athlete whose life ended in suicide became so much larger when Fagan started to hear from other college athletes also struggling with mental illness. This is the story of Maddy Holleran's life, and her struggle with depression, which also reveals the mounting pressures young people, and college athletes in particular, face to be perfect, especially in an age of relentless connectivity and social media saturation.
Illness
Havi Carel - 2008
She argues that illness should be seen not simply as a localized biological dysfunction but as a transformation of our social, psychological, and physical worlds and our temporal existence. By focusing on illness as a lived experience, she reveals illness as a life-changing event rather than a limited physiological problem, showing that the body is not a lifeless container for the self but the core of human subjectivity and embodied existence.