Disability Theory


Tobin Anthony Siebers - 2008
    Clear, cogent, compelling analyses of the tension between the 'social model' of disability and the material details of impairment; of identity politics and unstable identities; of capability rights and human interdependence; of disability and law, disability as masquerade, disability and sexuality, disability and democracy---they're all here, in beautifully crafted and intellectually startling essays. Disability Theory is a field-defining book: and if you're curious about what 'disability' has to do with 'theory,' it's just the book you've been waiting for, too."---Michael Bérubé, Pennsylvania State University "Disability Theory is magisterially written, thoroughly researched, and polemically powerful. It will be controversial in a number of areas and will probably ruffle feathers both in disability studies as well as in realms of cultural theory. And that's all to the good."---Michael Davidson, University of California, San Diego"Not only is Disability Theory a groundbreaking contribution to disability studies, it is also a bold, ambitious and much needed revision to a number of adjacent and overlapping fields including cultural studies, literary theory, queer theory, and critical race studies. Siebers has written a powerful manifesto that calls theory to account and forces readers to think beyond our comfort zones."---Helen Deutsch, University of California, Los AngelesIntelligent, provocative, and challenging, Disability Theory revolutionizes the terrain of theory by providing indisputable evidence of the value and utility that a disability studies perspective can bring to key critical and cultural questions. Tobin Siebers persuasively argues that disability studies transfigures basic assumptions about identity, ideology, language, politics, social oppression, and the body. At the same time, he advances the emerging field of disability studies by putting its core issues into contact with signal thinkers in cultural studies, literary theory, queer theory, gender studies, and critical race theory.

Crip Theory: Cultural Signs of Queerness and Disability


Robert McRuer - 2006
    Both disability studies and queer theory are centrally concerned with how bodies, pleasures, and identities are represented as "normal" or as abject, but Crip Theory is the first book to analyze thoroughly the ways in which these interdisciplinary fields inform each other.Drawing on feminist theory, African American and Latino/a cultural theories, composition studies, film and television studies, and theories of globalization and counter-globalization, Robert McRuer articulates the central concerns of crip theory and considers how such a critical perspective might impact cultural and historical inquiry in the humanities. Crip Theory puts forward readings of the Sharon Kowalski story, the performance art of Bob Flanagan, and the journals of Gary Fisher, as well as critiques of the domesticated queerness and disability marketed by the Millennium March, or Bravo TV's Queer Eye for the Straight Guy. McRuer examines how dominant and marginal bodily and sexual identities are composed, and considers the vibrant ways that disability and queerness unsettle and re-write those identities in order to insist that another world is possible.

Enforcing Normalcy: Disability, Deafness, and the Body


Lennard J. Davis - 1995
    Davis argues forcefully against 'ableist' discourse and for a complete recasting of the category of disability itself. Enforcing Normalcy surveys the emergence of a cluster of concepts around the term 'normal' as these matured in Western Europe and the United States over the past 250 years. Linking such notions to the concurrent emergence of discourses about the nation, Davis shows how the modern nation-state contracted its identity on the backs not only of colonized subjects, but of its physically disabled minority. In a fascinating chapter on contemporary cultural theory, Davis explores the pitfalls of privileging the figure of sight in conceptualizing the nature of textuality. And in the treatment of nudes and fragmented bodies in Western art, he shows how the ideal of physical wholeness is both demanded and denied in the classical aesthetics of representation. Enforcing Normalcy redraws the boundaries of political and cultural discourse. By insisting that disability be added to the familiar triad of race, class, and gender, the book challenges progressives to expand the limits of their thinking about human oppression.

Claiming Disability: Knowledge and Identity


Simi Linton - 1998
    Claiming Disability captures this moment in the first comprehensive examination of disability studies as a field of inquiry. Arguing that disability studies takes for its subject matter not simply the variations that exist in human behavior, appearance, functioning, sensory acuity, and cognitive processing, but the meaning we make of those variations, this work offers both a passionate challenge to status quo definitions of disability and a methodology for reexamining it.

Feminist, Queer, Crip


Alison Kafer - 2013
    Challenging the ways in which ideas about the future and time have been deployed in the service of compulsory able-bodiedness and able-mindedness, Kafer rejects the idea of disability as a pre-determined limit. She juxtaposes theories, movements, and identities such as environmental justice, reproductive justice, cyborg theory, transgender politics, and disability that are typically discussed in isolation and envisions new possibilities for crip futures and feminist/queer/crip alliances. This bold book goes against the grain of normalization and promotes a political framework for a more just world.

The Rejected Body: Feminist Philosophical Reflections on Disability


Susan Wendell - 1996
    Among the topics it addresses are who should be identified as disabled; whether disability is biomedical, social or both; what causes disability and what could 'cure' it; and whether scientific efforts to eliminate disabling physical conditions are morally justified.Wendell provides a remarkable look at how cultural attitudes towards the body contribute to the stigma of disability and to widespread unwillingness to accept and provide for the body's inevitable weakness.

Illness as Metaphor and AIDS and its Metaphors


Susan Sontag - 1989
    By demystifying the fantasies surrounding cancer, Sontag shows cancer for what it is--just a disease. Cancer, she argues, is not a curse, not a punishment, certainly not an embarrassment and, it is highly curable, if good treatment is followed.Almost a decade later, with the outbreak of a new, stigmatized disease replete with mystifications and punitive metaphors, Sontag wrote a sequel to Illness as Metaphor, extending the argument of the earlier book to the AIDS pandemic.These two essays now published together, Illness as Metaphor and AIDS and Its Metaphors, have been translated into many languages and continue to have an enormous influence on the thinking of medical professionals and, above all, on the lives of many thousands of patients and caregivers.

Brilliant Imperfection: Grappling with Cure


Eli Clare - 2017
    It saves lives, manipulates lives, and prioritizes some lives over others. It provides comfort, makes profits, justifies violence, and promises resolution to body-mind loss. Clare grapples with this knot of contradictions, maintaining that neither an anti-cure politics nor a pro-cure worldview can account for the messy, complex relationships we have with our body-minds.The stories he tells range widely, stretching from disability stereotypes to weight loss surgery, gender transition to skin lightening creams. At each turn, Clare weaves race, disability, sexuality, class, and gender together, insisting on the nonnegotiable value of body-mind difference. Into this mix, he adds environmental politics, thinking about ecosystem loss and restoration as a way of delving more deeply into cure.Ultimately Brilliant Imperfection reveals cure to be an ideology grounded in the twin notions of normal and natural, slippery and powerful, necessary and damaging all at the same time.

The Ugly Laws: Disability in Public


Susan Schweik - 2009
    Seeming to criminalize disability and thus offering a visceral example of discrimination, these "ugly laws" have become a sort of shorthand for oppression in disability studies, law, and the arts.In this watershed study of the ugly laws, Susan M. Schweik uncovers the murky history behind the laws, situating the varied legislation in its historical context and exploring in detail what the laws meant. Illustrating how the laws join the history of the disabled and the poor, Schweik not only gives the reader a deeper understanding of the ugly laws and the cities where they were generated, she locates the laws at a crucial intersection of evolving and unstable concepts of race, nation, sex, class, and gender. Moreover, she explores the history of resistance to the ordinances, using the often harrowing life stories of those most affected by their passage. Moving to the laws' more recent history, Schweik analyzes the shifting cultural memory of the ugly laws, examining how they have been used--and misused--by academics, activists, artists, lawyers, and legislators.

Bodyminds Reimagined: (Dis)ability, Race, and Gender in Black Women’s Speculative Fiction


Sami Schalk - 2018
    Bridging black feminist theory with disability studies, Schalk demonstrates that this genre's political potential lies in the authors' creation of bodyminds that transcend reality's limitations. She reads (dis)ability in neo-slave narratives by Octavia Butler (Kindred) and Phyllis Alesia Perry (Stigmata) not only as representing the literal injuries suffered under slavery, but also as a metaphor for the legacy of racial violence. The fantasy worlds in works by N. K. Jemisin, Shawntelle Madison, and Nalo Hopkinson—where werewolves have obsessive-compulsive-disorder and blind demons can see magic—destabilize social categories and definitions of the human, calling into question the very nature of identity. In these texts, as well as in Butler’s Parable series, able-mindedness and able-bodiedness are socially constructed and upheld through racial and gendered norms. Outlining (dis)ability's centrality to speculative fiction, Schalk shows how these works open new social possibilities while changing conceptualizations of identity and oppression through nonrealist contexts.

The Right to Maim: Debility, Capacity, Disability


Jasbir K. Puar - 2017
    Puar brings her pathbreaking work on the liberal state, sexuality, and biopolitics to bear on our understanding of disability. Drawing on a stunning array of theoretical and methodological frameworks, Puar uses the concept of “debility”—bodily injury and social exclusion brought on by economic and political factors—to disrupt the category of disability. She shows how debility, disability, and capacity together constitute an assemblage that states use to control populations. Puar's analysis culminates in an interrogation of Israel's policies toward Palestine, in which she outlines how Israel brings Palestinians into biopolitical being by designating them available for injury. Supplementing its right to kill with what Puar calls the right to maim, the Israeli state relies on liberal frameworks of disability to obscure and enable the mass debilitation of Palestinian bodies. Tracing disability's interaction with debility and capacity, Puar offers a brilliant rethinking of Foucauldian biopolitics while showing how disability functions at the intersection of imperialism and racialized capital.

Sick Woman Theory


Johanna Hedva - 2016
    The ‘sick’ part of the Sick Woman speaks to an identity that gets defined by ableism: if you are defined by the care you give and take, you are a person who is unproductive, or a drain on resources, or dysfunctional, or disordered, or incurable, or worthless, etc, ad infinitum – in other words, your embodied existence deviates from ableist standards. Hedva's analysis looks at how ableism is perhaps the most pernicious ideology, because it’s the very bedrock of how we decide whether a person is valued or not. White supremacy, racism, misogyny, transphobia, heteronormativity – all of these things need ableism in order to work because they are means of oppressing people based on an invented hierarchy of superiority and normativity.

Language and Symbolic Power


Pierre Bourdieu - 1982
    Bourdieu develops a forceful critique of traditional approaches to language, including the linguistic theories of Saussure and Chomsky and the theory of speech-acts elaborated by Austin and others. He argues that language should be viewed not only as a means of communication but also as a medium of power through which individuals pursue their own interests and display their practical competence.Drawing on the concepts that are part of his distinctive theoretical approach, Bourdieu maintains that linguistic utterances or expressions can be understood as the product of the relation between a "linguistic market" and a "linguistic habitus." When individuals use language in particular ways, they deploy their accumulated linguistic resources and implicitly adapt their words to the demands of the social field or market that is their audience. Hence every linguistic interaction, however personal or insignificant it may seem, bears the traces of the social structure that it both expresses and helps to reproduce.Bourdieu's account sheds fresh light on the ways in which linguistic usage varies according to considerations such as class and gender. It also opens up a new approach to the ways in which language is used in the domain of politics. For politics is, among other things, the arena in which words are deeds and the symbolic character of power is at stake.This volume, by one of the leading social thinkers in the world today, represents a major contribution to the study of language and power. It will be of interest to students throughout the social sciences and humanities, especially in sociology, politics, anthropology, linguistics, and literature.

Animacies: Biopolitics, Racial Mattering, and Queer Affect


Mel Y. Chen - 2012
    Chen draws on recent debates about sexuality, race, and affect to examine how matter that is considered insensate, immobile, or deathly, animates cultural lives. Toward that end, Chen investigates the blurry division between the living and the dead, or that which is beyond the human or animal. Within the field of linguistics, animacy has been described variously as a quality of agency, awareness, mobility, sentience, or liveness. Chen turns to cognitive linguistics to stress how language habitually differentiates the animate and the inanimate. Expanding this construct, Chen argues that animacy undergirds much that is pressing and indeed volatile in contemporary culture, from animal rights debates to biosecurity concerns.Chen's book is the first to bring the concept of animacy together with queer of color scholarship, critical animal studies, and disability theory. Through analyses of dehumanizing insults, the meanings of queerness, animal protagonists in recent Asian/American art and film, the lead toy panic in 2007, and the social lives of environmental illness, Animacies illuminates a hierarchical politics infused by race, sexuality, and ability. In this groundbreaking book, Chen rethinks the criteria governing agency and receptivity, health and toxicity, productivity and stillness—and demonstrates how attention to the affective charge of matter challenges commonsense orderings of the world.Mel Y. Chen is Assistant Professor of Gender and Women's Studies at the University of California, Berkeley."Animacies is a book about 'reworldings,' as Mel Y. Chen traces the myriad ways that objects and affects move through and reshape zones of possibility for political transformation and queer resistance to neoliberal biopolitics. At the same time, Animacies itself generates such transformations: grounded in a generous, expansive understanding of queer of color and disability/crip critique, Chen's study reworlds or reorients disability studies, gender and sexuality studies, critical race theory, animal studies, affect studies, and linguistics. In all of these critical spaces, Animacies might be described as the breathtaking and revivifying book we have been waiting for."—Robert McRuer, author of Crip Theory: Cultural Signs of Queerness and Disability"This ambitious transdisciplinary analysis of the relations between humans, nonhuman animals, and matter charts a compelling and innovative rethinking of the biopolitics of 'animacy.' Mel Y. Chen animates animacy, a concept of sentience hierarchy derived in linguistics, to offer a far-ranging critique that implicates disability studies, queer of color critique, and postcolonial theory. The generative result is a timely and crucial intervention that foregrounds the oft-occluded import of race and sex in the rapidly growing fields of posthumanist theory, new materialisms, and animal studies."—Jasbir K. Puar, author of Terrorist Assemblages: Homonationalism in Queer Times

Men, Women, and Chain Saws: Gender in the Modern Horror Film


Carol J. Clover - 1992
    Carol Clover argues, however, that these films work mainly to engage the viewer in the plight of the victim-hero - the figure, often a female, who suffers pain and fright but eventually rises to vanquish the forces of oppression.