This groundbreaking, award-winning book endeavors to convey the experience of a person who can only see through his or her sense of touch, taste, smell or hearing.Raised black line drawings on black paper, which can be deciphered by touch, complement a beautifully written text describing colors through imagery. Braille letters accompany the text so that the sighted reader can begin to imagine what it is like to use Braille to read. A full Braille alphabet at the end of the book can be used to learn more.

    Though she's been deaf since the age of six, Joey's mother has never allowed her to learn sign language. She strains to read the lips of those around her, but often fails. Everything changes when Joey meets Dr. Charles Mansell and his baby chimpanzee, Sukari. Her new friends use sign language to communicate, and Joey secretly begins to learn to sign. Spending time with Charlie and Sukari, Joey has never been happier. She even starts making friends at school for the first time. But as Joey's world blooms with possibilities, Charlie's and Sukari's choices begin to narrow--until Sukari's very survival is in doubt.

    If you have only just begun to discover why someone with Asperger's syndrome is different, this book will inform and entertain you. The descriptions provide an accurate balance between the qualities and difficulties associated with Asperger's syndrome, while the photographs will make the journey of discovery enjoyable and remarkable.'- Tony Attwood, author of Asperger's Syndrome and The Complete Guide to Asperger's Syndrome

    For the first time, books 1 - 3 of The Adrien English Mysteries collected in one volume! Fatal Shadows - When his former best friend and employee is murdered following a very public argument, bookseller and sometimes mystery writer Adrien English finds himself suspected of murder. A Dangerous Thing - Adrien English arrives at the Pine Shadow Ranch only to find a corpse in his driveway. By the time the unfriendly local sheriffs arrive, the body has disappeared. The Hell You Say - It’s Christmas time and the “ill-starred and bookish” bookseller and occasional mystery writer must contend with a Satanic cult, a handsome university professor and his on-again/off-again relationship with the eternally conflicted LAPD Detective Jake Riordan. And, as ever, murder...

    Yet many who travel this path discover rich, unexpected rewards along the way. In this candid and poignant collection of personal stories, sixty-three mothers describe the gifts of respect, strength, delight, perspective, and love, which their child with Down syndrome has brought into their lives. perspectives, and draw from a wide spectrum of ethnicity, world views, and religious beliefs. Some are parenting within a traditional family structure; some are not. Some never considered terminating their pregnancy; some struggled with the decision. Some were calm at the time of diagnosis; some were traumatised. Some write about their pregnancy and the months after giving birth; some reflect on years of experience with their child. Their diverse experiences point to a common truth: the life of a child with Down syndrome is something to celebrate. These women have something to say - not just to other mothers but to all of us.

    Same Lake, Different Boat is a transformational work--designed to renew our minds to think biblically about disability in order that our lives, our relationships, and our congregations might wholly reflect Christ.

    Tracing bloodlines from Sri Lanka's civil wars to Brooklyn and Toronto streets, these fierce poems are full of heart and guts, telling raw truths about brown girl border crossings before and after 9/11, surviving abuse, mixed-race journeys and high femme rebellions. Consensual Genocide celebrates our survival and marks our rebel memories into history.

    Generated from a confluence of sources including humanities and medicine, primary care medicine, narratology, and the study of doctor-patient relationships, narrative medicine is medicine practiced with the competence to recognize, absorb, interpret, and be moved by the stories of illness. By placing events in temporal order, with beginnings, middles, and ends, and by establishing connections among things using metaphor and figural language, narrative medicine helps doctors to recognize patients and diseases, convey knowledge, accompany patients through the ordeals of illness--and according to Rita Charon, can ultimately lead to more humane, ethical, and effective health care. Trained in medicine and in literary studies, Rita Charon is a pioneer of and authority on the emerging field of narrative medicine. In this important and long-awaited book she provides a comprehensive and systematic introduction to the conceptual principles underlying narrative medicine, as well as a practical guide for implementing narrative methods in health care. A true milestone in the field, it will interest general readers, and experts in medicine and humanities, and literary theory.

    On that day, his family's car skidded off an overpass, killing Matt's father and sister and left him paralyzed from the chest down, confining him to a wheelchair. His mother and brother escaped from the accident unharmed but were left to pick up the pieces of their decimated family.This pivotal event set Matt off on a lifelong journey, from his intensive care experiences at the Mayo Clinic to becoming a paralyzed yoga teacher and founder of a non-profit organization. Forced to explore what it truly means to live in a body, he emerges with an entirely new view of being a "whole" person.Waking is a chronicle of that process. By turns agonizingly personal, philosophical, and heartbreakingly honest, this groundbreaking memoir takes the reader inside the body, heart, and mind of a boy whose world has been shattered. The author allows us to follow with him as he rebuilds from the ground up, searching for "healing stories" to help him reconnect his mind and his body. To do so, he must reject much of what traditional medicine tells him and instead turn to yoga as a centerpiece of his daily practice. The author finds not only a better life, but meaning and purpose in the mysterious distance that we all experience between mind and body.In searing candid, frequently poetic language, Sanford pulls back the curtain on what it means to survive devastating trauma, from returning to a broken life to the uncertainty of finding sexual intimacy with a paralyzed body. But first and foremost the author offers a powerful message about the endurance of the human spirit, and the body that houses it.

    They adopted from South Korea twice: an infant and an older child. There are two stories in Trevor s memoir. The first is about her daughter's difficulty adjusting to adoption. The second story is about her son, diagnosed with a brain tumor, an event that changed all of their lives forever, and how this family or any family must endure crises and tragedy and still find a way to go on. The title 'Pushing up the Sky', comes from a Native American story about the power of people working together for a common good. This is the theme in Terra Trevor s memoir. This is the story of a remarkable family facing incredible challenges. It is a story of compromises and insights, profound joy, deep suffering, and terrific rewards. Parenting birth and adopted children is one theme of this book. Most of all, it is a story on the meaning of family, and learning to let go of expectations and to forge a new identity. Hope is offered as a path, with the resolve to celebrate each new day and to cherish every second of it.

    What happens when these dreams are shattered by a physical or cognitive disability? A Different Kind of Perfect offers comfort, consolation, and wisdom from parents who have been there--and are finding their way through.The writings collected here are grouped into chapters reflecting the progressive stages of many parents' emotional journeys, starting with grief, denial, and anger and moving towards acceptance, empowerment, laughter, and even joy. Each chapter opens with an introduction by Neil Nicoll, a child and family psychologist who specializes in development disorders.

    Legally, they were classified as minors or mentally deficient, unable to obtain driver's licenses or sign contracts and wills. Many worked at menial tasks or were constantly unemployed, and schools for the deaf taught a difficult regimen of speechreading and oral speech methods rather than signing. After several decades of activism, deaf men and women are now largely accepted within mainstream Japanese society.Deaf in Japan, a groundbreaking study of deaf identity, minority politics, and sign language, traces the history of the deaf community in Japan, from the establishment of the first schools for the deaf in the 1870s to the birth of deaf activist movements in the postwar period and current culture wars over signing and assimilation. Drawing on archival and ethnographic research and in-depth interviews with deaf men and women from three generations, Karen Nakamura examines shifting attitudes toward and within the deaf community.Nakamura suggests that the notion of deaf identity is intimately linked with the Japanese view of modernization and Westernization. The left-affiliated Japanese Federation of the Deaf embraces an assimilationist position, promoting lip-reading and other forms of accommodation with mainstream society. In recent years, however, young disability advocates, exponents of an American-style radical separatism, have promoted the use of Japanese Sign Language.Nakamura, who signs in both ASL and JSL, finds that deafness has social characteristics typical of both ethnic minority and disability status, comparing the changing deaf community with other Japanese minority groups such as the former Burakumin, the Okinawans, and zainichi Koreans. Her account of the language wars that have erupted around Japanese signing gives evidence of broader changes in attitudes regarding disability, identity, and culture in Japan.

    It's July 4, 1946. World War II has ended, and life is getting back to normal. But for Norm, the pressing question now is whether he will ever be able to play baseball again, or be an artist. It's up to Norm to find the strength to get beyond this roadblock and move on with his life.Set against the quickening pace of life after wartime constraints, this inspiring novel is about an optimist who overcomes his misfortune with discipline and humor--and fulfills his dreams in ways no one could have expected.

    A bird was born with only one wing. He knows he is different from his siblings. Even if they laughed at him, Broken Bird decides that he will fly. And fly, he did. In Chinese. Distributed by Tsai Fong Books, Inc.

    Presents the A-Z of what's great about having Asperger syndrome.

    Before World War II, plastic surgery was in its infancy. The most rudimentary techniques were only known to a few surgeons worldwide. The Allies were tremendously fortunate in having the maverick surgeon Archibald McIndoe - nicknamed 'the Boss' or 'the Maestro' - operating at a small hospital in East Grinstead in the south of England. McIndoe constructed a medical infrastructure from scratch. After arguing with his superiors, he set up a revolutionary new treatment regime. Uniquely concerned with the social environment, or 'holistic care', McIndoe also enlisted the help of the local civilian population. He rightly secured his group of patients - dubbed the Guinea Pig Club - an honored place in society as heroes of Britain's war. For the first time official records have been used to explain fully how and why this remarkable relationship developed between the Guinea Pig Club, the RAF and the Home Front. First-person recollections bring to life the heroism of the airmen with incredible clarity.

    It started when he was fourteen. He is now twenty-two. It is taking away his ability to walk and to reason. It is getting worse, some years more rapidly than others." These words begin the first section of "Blue Peninsula," a narrative of a son's degenerative illness in thirty-three parts focused around poems that have provided companionship and sustenance to the author. When multiple diagnostic avenues delivered no explanation for the worsening disabilities of her older son, Ike, Madge McKeithen "became a poetry addict--collecting, consuming, ripping poems out of magazines, buying slender volumes that would fit in my pocket or pocketbook, stashing them in loose-leaf notebooks, on shelves, stacking them on the floor. In the midst of all this grief, I had fallen in love. With words. Poems, especially. And just in time." McKeithen draws on a wonderfully wide ranging group of of poets and lyricists--including Emily Dickinson, the Rolling Stones, Paul Celan, Bruce Springsteen, Marie Howe, Walt Whitman, and many others--to illuminate, comfort, and help to express her sorrow. Some chapters are reflections on friendships and family relationships in the context of a chronic and worsening illness. Some consider making peace with what life has dealt, and others value intentionally reworking it. Not written to suggest easy solace, this powerful work aims to keep company, as would any individual whose loved one is on a course in which the only way out is through.

    Fantasy, fear, and freedom all play parts in A STORY OF WITCHERY, a book-length narrative poem by Jennifer Calkins, and illustrated by Sarah Lane. Here we meet Emily, our "small and weedy" protagonist, an orphan complicit (perhaps) in her own abandonment, and who is caught up, as poet Amy Gerstler writes in her Introduction, in a story "entwined with science facts and twisted clinical fictions." In language rolling and tripping with spare precision, Calkins makes a modern pilgrim progress into the imagination and the dark world of medicine. Rich and haunting images create an seemingly familiar environment which, like the internal landscape of the protagonist, dissolves only to reform, until finally resolving into a healed whole.

    Through a careful examination of the experiences of Mexican, Japanese, and Chinese immigrants in Los Angeles, Natalia Molina illustrates the many ways local health officials used complexly constructed concerns about public health to demean, diminish, discipline, and ultimately define racial groups. She shows how the racialization of Mexican Americans was not simply a matter of legal exclusion or labor exploitation, but rather that scientific discourses and public health practices played a key role in assigning negative racial characteristics to the group. The book skillfully moves beyond the binary oppositions that usually structure works in ethnic studies by deploying comparative and relational approaches that reveal the racialization of Mexican Americans as intimately associated with the relative historical and social positions of Asian Americans, African Americans, and whites. Its rich archival grounding provides a valuable history of public health in Los Angeles, living conditions among Mexican immigrants, and the ways in which regional racial categories influence national laws and practices. Molina’s compelling study advances our understanding of the complexity of racial politics, attesting that racism is not static and that different groups can occupy different places in the racial order at different times.

    Believing that all life is valuable and that some are not more worthy of it than others, these women have given birth in the face of disapproval and hostility, defied both the creed of perfection and accepted medical wisdom, and given the issue of abortion a complexity beyond the simplistic pro-life/pro-choice dichotomy. As it questions the accuracy of screening procedures, the definition of a worthwhile life, and the responsiblity for determining the value of an imperfect life, this book trenchantly brings to light many issues that for years have been marginalized by the mainstream media and restricted to disability activism.

    It also shows how to improve confidence, deal with stress, and build on the creative talent that many dyslexics possess.Dyslexia: How to survive and succeed at work:- Explains what dyslexic and dyspraxic difficulties are- Describes how they affect workplace efficiency- Offers strategies to manage dyslexic difficulties and reduce their adverse effect on work efficiency- Provides information about ways in which employers can help dyslexic employees

    It describes and suggests concrete ways to deal with some of the issues and problems faced by those on the autism spectrum. It includes a broad spectrum of suggestions for different types of relationships.

    Becca surprised everyone with a rare genetic disorder called Noonan's syndrome. As Becca struggled to survive her family plunged into poverty. Their remarkable journey out of poverty is a story of it's own, but within the pages lie secrets much more important we all should know.Tiny Titan by Ann Yurcek launches a new kind of Mother’s Day story for all the countless mothers in America who dedicate their lives to exceptional children with special medical and mental health care needs. The story and the children are real. BOOK ONE - BECCA'S STORYIn 1989, the Yurceks sixth child, Becca was born with a rare genetic disorder, and while she struggled to survive, her family tumbled into poverty. This is the true and inspirational story of their journey out of poverty and the many miracles they received along the way. BOOK 2 - GIVING BACK In the spirit of giving back, they adopted and reunited five siblings separated in foster care. And for their new children they fought for resources in mental health and child welfare with the same tenacity they had fought for Becca in the medical world. Others' said their journey was impossible, but they proved them wrong.Winner Gold Mom's Choice - Best Adult Non-Fiction5 Star Dove AwardBooks & Authors - Best InspirationalTINY TITAN SAMPLE CHAPTERBy Ann Yurcek -9- Christmas I sunk into despair. The holiday was fast approaching and Christmas was the last thing on our minds with Becca critically ill in the PICU and everyone else sick too. There was no money for gifts, and there was no time to buy or make anything. I was sick, tired and depressed over the circumstances we found ourselves in. If the phone rang, I was afraid to answer it because it might carry the news that Becca was worsening or no longer here. The phone was a constant reminder of trouble. It rang with bill collectors waiting for money. It rang when medical personnel had more dreaded news or another crisis for Becca. My emotions rose and fell like tidal waves, up, up, up and down, down, down. I tried not to think; not thinking was how I coped. It was like the stairs I ran at the hospital, up and down, and then I’d stop and sit, empty and mindless. I could not think about my children going without gifts at Christmas, but our lives were impossibly out of control. We had fallen into a dark hole due to no fault of my innocent children. At any moment they were going to lose their new baby sister. They were caught in the tidal wave of catastrophic illness when they needed a Santa most to give them hope. How would I explain to my children that Santa forgot them?I was used to planning ahead and beginning in July bought two presents each month to cover birthdays and Christmas. Over the years my frugal plan had worked flawlessly. I squirreled away the hottest toys for Christmas gifts with early season purchases. While other families were school shopping I was making wishes come true. It was a challenge to make my kids birthdays and Christmas memorable. I love the holidays and I began to bargain shop for Marissa’s September birthday gift. I budgeted a little each month until Christmas, finding sale and clearance treasures, completing my shopping race under budget. In November we celebrated Jim, Nathan and Ian’s birthdays followed in December by Matt’s birthday, and then Kristy’s birthday in early January. The gifts I bought with Jim’s carpet points guaranteed the boys November birthday gifts. Matt at age three was easy; all I needed was something big. Big for my little kids were exciting and ten dollars went a long way. Other than that I had nothing.

    "I have a disability," says Bryan. "It is not my fault. I just am." Bryan, with the help of his father Tom, helps us all examine what is normal about each of us. The book includes additional information about Down syndrome.

    Yet those dreams nearly vanished when a shark tore off her left arm. In Bethany Hamilton: Follow Your Dreams!, young readers will follow Bethany's recovery from the devastating shark attack as she retakes the surf and waves. Full-color photographs, timeline, and a compelling biographical narrative will engage readers as they learn how Bethany overcame the greatest challenges of her young life. Bethany Hamilton is part of Bearport's Defining Moments: Overcoming Challenges series.

    Snyder and David T. Mitchell trace how disabled people came to be viewed as biologically deviant. The eugenics era pioneered techniques that managed "defectives" through the application of therapies, invasive case histories, and acute surveillance techniques, turning disabled persons into subjects for a readily available research pool. In its pursuit of normalization, eugenics implemented disability regulations that included charity systems, marriage laws, sterilization, institutionalization, and even extermination. Enacted in enclosed disability locations, these practices ultimately resulted in expectations of segregation from the mainstream, leaving today's disability politics to focus on reintegration, visibility, inclusion, and the right of meaningful public participation. Snyder and Mitchell reveal cracks in the social production of human variation as aberrancy. From our modern obsessions with tidiness and cleanliness to our desire to attain perfect bodies, notions of disabilities as examples of human insufficiency proliferate. These disability practices infuse more general modes of social obedience at work today. Consequently, this important study explains how disabled people are instrumental to charting the passage from a disciplinary society to one based upon regulation of the self.