Book picks similar to
Autism and the Myth of the Person Alone by Douglas Biklen
autism
non-fiction
disability
nonfiction
Bloom: Finding Beauty in the Unexpected--A Memoir
Kelle Hampton - 2012
The author of the popular blog Enjoying the Small Things—named The Bump’s Best Special Needs Blog and The Blog You’ve Learned the Most From in the 2010 BlogLuxe Awards—Kelle Hampton interweaves lyrical prose and stunning four-color photography as she recounts the unforgettable story of the first year in the life of her daughter Nella, who has Down syndrome. Poignant, eye-opening, and heart-soaring, Hampton’s Bloom is ultimately about embracing life and really living it.
Thank My Lucky Scars
Ward Foley - 2006
But it was through the death of a close friend that he learned a profound lesson and discovered a secret that changed his life forever. This is a story about finding what you want most, in the most unlikely places, and usually right under your nose. Share the joy of seeing your own life–and everything around you–in bold new ways.
Eating an Artichoke: A Mother's Perspective on Asperger Syndrome
Echo R. Fling - 2000
After two years at the pre-school, five-year-old Jimmy had failed to make any friends, had recently started to act aggressively towards his classmates, and was beginning to react violently to any changes in his routine. Echo was not taken completely by surprise: she had suspected for some time that her son was different from other children. Over the next five years, she and her husband accompanied Jimmy to doctors, medical specialists, learning consultants and psychologists. Finally, at the age of ten, Jimmy was diagnosed with Asperger Syndrome.This is the book that Echo Fling needed when she first set out to have Jimmy diagnosed, and it will enable parents and teachers to understand and help other children with Asperger Syndrome.
The Boy Who Felt Too Much: How a renowned neuroscientist and his son changed our view of autism forever
Lorenz Wagner - 2019
. . A tale of love, constancy and groundbreaking research.' --RON SUSKIND, Pulitzer Prize-winning journalist and author of Life, AnimatedHenry Markram is the Elon Musk of neuroscience, the man behind the billion-dollar Blue Brain Project to build a supercomputer model of the brain. He has set the goal of decoding all disturbances of the mind within a generation. This quest is personal for him. The driving force behind his grand ambition has been his son Kai, who suffers from autism. Raising Kai made Henry Markram question all that he thought he knew about neuroscience, and then inspired his groundbreaking research that would upend the conventional wisdom about autism, expressed in his now‑famous theory of Intense World Syndrome.When Kai was first diagnosed, his father consulted studies and experts. He knew as much about the human brain as almost anyone but still felt as helpless as any parent confronted with this condition in his child. What's more, the scientific consensus that autism was a deficit of empathy didn't mesh with Markram's experience of his son. He became convinced that the disorder, which has seen a 657 per cent increase in diagnoses over the past decade, was fundamentally misunderstood. Bringing his world‑class research to bear on the problem, he devised a radical new theory of the disorder: People like Kai don't feel too little; they feel too much. Their senses are too delicate for this world.The theory of Intense World Syndrome could change the way we see autism forever, and it's thanks to Kai, the boy who changed everything.
Mind Over Mother: Every mum's guide to worry and anxiety in the first years
Anna Mathur
She offers little nuggets of gold while reminding us to point some of our kindness and love inwards.' Giovanna Fletcher, bestselling author of Happy Mum, Happy Baby 'Anna is breath of fresh air - relatable, funny and wise' Sarah Turner, bestselling author of The Unmumsy MumBaby-proof the house; panic-proof the mum.Do you overthink what you said to the mum in the supermarket queue? Is your internal dialogue more critical than kind? Perhaps you wake to check your baby is breathing, or the sight of a rash sends you down an internet search rabbit hole. Whatever your level of anxiety, however much it impacts your life, this book is for you.Anxiety is making motherhood a less pleasant, more fraught and pressured experience, and we do not have to accept joy-sapping worry and energy-draining overthinking as part of the motherhood job description. In Mind Over Mother, Anna Mathur, psychotherapist and mum of three, explains how to:* Understand anxiety, why it affects you and what to do about it* Make your mind a kinder, calmer, happier place to be* Transform your motherhood experience by addressing your thinkingThe most powerful tool Anna has to communicate this isn't the letters after her name, it is the fact that she is open about her own experience of maternal anxiety. By sharing her journey, she gives you the confidence to reframe yours.Mind Over Mother is full of light bulb moments of realisation. It will have you learning, laughing and loving yourself through the journey of motherhood. You will learn to address the most important conversation you'll ever have - the one inside your head, because investing in your mental health is the best gift you can offer yourself and your child.
Autism's False Prophets: Bad Science, Risky Medicine, and the Search for a Cure
Paul A. Offit - 2007
Following this "discovery," a handful of parents declared that a mercury-containing preservative in several vaccines was responsible for the disease. If mercury caused autism, they reasoned, eliminating it from a child's system should treat the disorder. Consequently, a number of untested alternative therapies arose, and, most tragically, in one such treatment, a doctor injected a five-year-old autistic boy with a chemical in an effort to cleanse him of mercury, which stopped his heart instead.Children with autism have been placed on stringent diets, subjected to high-temperature saunas, bathed in magnetic clay, asked to swallow digestive enzymes and activated charcoal, and injected with various combinations of vitamins, minerals, and acids. Instead of helping, these therapies can hurt those who are most vulnerable, and particularly in the case of autism, they undermine childhood vaccination programs that have saved millions of lives. An overwhelming body of scientific evidence clearly shows that childhood vaccines are safe and does not cause autism. Yet widespread fear of vaccines on the part of parents persists.In this book, Paul A. Offit, a national expert on vaccines, challenges the modern-day false prophets who have so egregiously misled the public and exposes the opportunism of the lawyers, journalists, celebrities, and politicians who support them. Offit recounts the history of autism research and the exploitation of this tragic condition by advocates and zealots. He considers the manipulation of science in the popular media and the courtroom, and he explores why society is susceptible to the bad science and risky therapies put forward by many antivaccination activists.
Resistance and Hope: Essays by Disabled People
Alice Wong - 2018
This is crip wisdom for the people. Edited by Alice Wong, founder of the Disability Visibility Project, Resistance and Hope will transform the way you think about activism, leadership and social justice. How do we fight back in an era of uncertainty, institutionalized cruelty, and widespread tolerance for ableism and hate? Written in 2017, the authors explore resistance, hope, self care, disability rights and justice, and the politics of Trump in a series of provocative, challenging essays. They bring the power of intersectional cross-platform organizing and the strength found through mutual accountability to words that will help you define the resistance you want to fight for, not just the harm you want to react against. Dare to dream bigger and create space for all with this visionary essay anthology from multiply marginalized disabled people redefining an inclusive climate of resistance. The time is NOW! "Get this book right now! Resistance and Hope is the disability justice Bible you've been waiting for. If you want to read a book chock full of disabled Black, brown, queer, trans genius, real talk and vision, this book will give you comrades reassurances that we are brilliant revolutionaries and a plethora of tools and visions for how we make the road by limping, crutching, rolling, signing and stimming. I am so grateful for Alice Wong for doing the cultural work of putting this together and for every single writer in this book." — Leah Piepzna-Samarasinha, performer, community organizer, and author of Care Work: Dreaming Disability Justice (Arsenal Pulp Press, October 1, 2018) “Until our movements are fully intersectional, we will not make the progress necessary to build the equitable society we all deserve. Resistance and Hope is a necessary manual for all of us as we learn how to build movements that are as inclusive as the world we hope to see.” — Brittany Packnett, activist, educator, writer, Co-Founder of Campaign Zero and Co-Host of Pod Save the People “Resistance and Hope: Essays by Disabled People is a timely and must-read collection of essays by some of the most cutting edge leaders in the Disability Rights Movement. If you are interested in learning more about disability rights and justice, activism, and current times we are living in today take the time to read and may these pieces evoke discussions in your communities as we fight for justice and equity.” — Judy Heumann, Disability Activist “It is so necessary for people who have been historically marginalized to tell their own stories. I am proud to know Alice Wong, who is someone dedicated to telling these stories with authenticity and integrity.” — Blair Imani, Author of Modern HERstory and Founder of Equality for HER ANTHOLOGY CONTRIBUTORS Lydia X. Z. Brown Anita Cameron Cyree Jarelle Johnson DJ Kuttin Kandi Mari Kurisato Talila A. Lewis Noemi Martinez Stacey Milbern Mia Mingus Lev Mirov Leroy Moore Shain M. Neumeier Naomi Ortiz Victoria Rodríguez-Roldán Vilissa K. Thompson Aleksei Valentín Maysoon Zayid Editorial Assistant: Robin M.
Life Inside My Mind: 31 Authors Share Their Personal Struggles
Jessica BurkhartCindy L. Rodriguez - 2018
Millions of people are going through similar things. And many of them are people you know—you know them because they write the books that you’re reading.Life Inside My Mind is an anthology of true-life events from writers of this generation, for this generation. It takes aim at ending the shame of mental illness. With the intention of providing hope to those who are suffering, awareness to those who are witnessing a friend or family member battle mental illness, and opening the floodgates to conversations about mental illness, Side Effects tackles the stigmas around mental illness in a new and refreshing way.
Becoming Nicole: The Transformation of an American Family
Amy Ellis Nutt - 2015
But it wasn’t long before they noticed a marked difference between Jonas and his brother, Wyatt. Jonas preferred sports and trucks and many of the things little boys were “supposed” to like; but Wyatt liked princess dolls and dress-up and playing Little Mermaid. By the time the twins were toddlers, confusion over Wyatt’s insistence that he was female began to tear the family apart. In the years that followed, the Maineses came to question their long-held views on gender and identity, to accept and embrace Wyatt’s transition to Nicole, and to undergo an emotionally wrenching transformation of their own that would change all their lives forever.Becoming Nicole chronicles a journey that could have destroyed a family but instead brought it closer together. It’s the story of a mother whose instincts told her that her child needed love and acceptance, not ostracism and disapproval; of a Republican, Air Force veteran father who overcame his deepest fears to become a vocal advocate for trans rights; of a loving brother who bravely stuck up for his twin sister; and of a town forced to confront its prejudices, a school compelled to rewrite its rules, and a courageous community of transgender activists determined to make their voices heard. Ultimately, Becoming Nicole is the story of an extraordinary girl who fought for the right to be herself.Granted wide-ranging access to personal diaries, home videos, clinical journals, legal documents, medical records, and the Maineses themselves, Amy Ellis Nutt spent almost four years reporting this immersive account of an American family confronting an issue that is at the center of today’s cultural debate. Becoming Nicole will resonate with anyone who’s ever raised a child, felt at odds with society’s conventions and norms, or had to embrace life when it plays out unexpectedly. It’s a story of standing up for your beliefs and yourself—and it will inspire all of us to do the same.
Haben: The Deafblind Woman Who Conquered Harvard Law
Haben Girma - 2019
However, she had difficulty reading facial features or distinguishing people in group conversations. Relying on her own problem-solving skills, Girma overcame roadblocks while simultaneously obtaining her undergraduate and then law degree. In the process, she developed new methods of communication and found her calling in advocating for the deaf and blind communities in more accessible communication, education, and employment opportunities. As a lawyer and advocate, Girma shares a collection of vignettes illustrating the defining points in her life. She peppers her writing with a witty sense of humor and showcases her strength in facing obstacles, along with challenging antiquated societal beliefs about people with disabilities, whether describing her experience climbing Alaska's Mendenhall Glacier or helping a drunk friend get to his dorm by using her seeing-eye dog that he adores as a lure
Ask Me About My Uterus: A Quest to Make Doctors Believe in Women's Pain
Abby Norman - 2018
She was repeatedly hospitalized in excruciating pain, but the doctors insisted it was a urinary tract infection and sent her home with antibiotics. Unable to get out of bed, much less attend class, Norman dropped out of college and embarked on what would become a years-long journey to discover what was wrong with her. It wasn't until she took matters into her own hands--securing a job in a hospital and educating herself over lunchtime reading in the medical library--that she found an accurate diagnosis of endometriosis.In Ask Me About My Uterus, Norman describes what it was like to have her pain dismissed, to be told it was all in her head, only to be taken seriously when she was accompanied by a boyfriend who confirmed that her sexual performance was, indeed, compromised. Putting her own trials into a broader historical, sociocultural, and political context, Norman shows that women's bodies have long been the battleground of a never-ending war for power, control, medical knowledge, and truth. It's time to refute the belief that being a woman is a preexisting condition.
Reversed: A Memoir
Lois Letchford - 2018
Nothing is impossible when one digs deep,and looks at students through a new lens.
Just a Few Bumps
Emily L. Nash - 2020
Tackling the job with skills picked up along the way and enough Redbull to sink a battleship. The stories are real. The patients are real, and the emotions are real. Things I would tell my former student-self: You are going to laugh. You are going to cry. You are going to be scared. You are going to want to quit. You will have PTSD. You are going to see death. But hold on, you got this. It's just a few bumps.
Practically Perfect in Every Way
Jennifer Niesslein - 2007
Fulfilling her goal of enlightened self-improvement begins with the relatively mundane (her house), moves on toward progressively larger themes (money, marriage, motherhood), and ends up with karmic insights into the burning issues of life (spirituality and meaning). As she allows an array of self-help experts-from Dr. Phil to the Fly Lady, pediatrician William Sears to holistic health guru Dr. Andrew Weil-to copilot her life, Niesslein sometimes finds herself in terra incognita. She runs through her house throwing items away. She communicates with her husband in three-minute speeches. She encourages her first-grader to dream up revenge fantasies. She searches for holy water. At one point, she is even possessed-briefly-by the spirit of a conservative talk-radio host. Although the road to self-help Nirvana is fraught with peril, she discovers that there is such a thing as the good life. It's just a question of how perfect you have to be to get it. With her irreverent sensibility and uncanny insight into the Zeitgeist, Jennifer Niesslein takes on our uniquely American preoccupation with the perfectibility of man and turns it squarely on its ear.