Book picks similar to
Life Disrupted: Getting Real about Chronic Illness in Your Twenties and Thirties by Laurie Edwards
health
non-fiction
chronic-illness
nonfiction
A Really Good Day: How Microdosing Made a Mega Difference in My Mood, My Marriage, and My Life
Ayelet Waldman - 2017
When a small vial arrives in her mailbox from "Lewis Carroll," Ayelet Waldman is at a low point. Her mood storms have become intolerably severe; she has tried nearly every medication possible; her husband and children are suffering with her. So she opens the vial, places two drops on her tongue, and joins the ranks of an underground but increasingly vocal group of scientists and civilians successfully using therapeutic microdoses of LSD. As Waldman charts her experience over the course of a month--bursts of productivity, sleepless nights, a newfound sense of equanimity--she also explores the history and mythology of LSD, the cutting-edge research into the drug, and the byzantine policies that control it. Drawing on her experience as a federal public defender, and as the mother of teenagers, and her research into the therapeutic value of psychedelics, Waldman has produced a book that is eye-opening, often hilarious, and utterly enthralling.
Adventures in Human Being: A Grand Tour from the Cranium to the Calcaneum
Gavin Francis - 2015
How many of us understand the way seizures affect the brain, how the heart is connected to wellbeing, or the why the foot carries the key to our humanity? In Adventures in Human Being, award-winning author Gavin Francis leads readers on a journey into the hidden pathways of the human body, offering a guide to its inner workings and a celebration of its marvels.Drawing on his experiences as a surgeon, ER specialist, and family physician, Francis blends stories from the clinic with episodes from medical history, philosophy, and literature to describe the body in sickness and in health, in living and in dying. At its heart, Adventures in Human Being is a meditation on what it means to be human. Poetic, eloquent, and profoundly perceptive, this book will transform the way you view your body.
The Last Asylum: A Memoir of Madness in our Times
Barbara Taylor - 2014
Her journey there began when, overwhelmed by anxiety as she completed her doctoral studies in London, England, she found relief by dosing herself with alcohol and tranquillizers. She then embarked on what would turn out to be a decades- long psychoanalysis.The analysis dredged up acutely painful memories of an unhappy and confusing childhood back in Saskatoon. As Taylor struggled to cope with these, she would twice be re-admitted to Friern. She took refuge in day-care institutions and a psychiatric hostel, all the while continuing her therapy, which eventually put her on the road to recovery.This searingly honest, beautifully written memoir is the narrative of the author’s madness years, set inside the wider story of our treatment of psychiatric illness: from the great age of asylums to the current era of community care, ‘Big Pharma’, and quick fixes. It is a meditation on her own experience as well as that of millions of others – both in Europe and in North America – who have suffered, are suffering, and will suffer from mental illness.
Carly's Voice: Breaking Through Autism
Arthur Fleischmann - 2012
Doctors predicted that she would never intellectually develop beyond the abilities of a small child. Although she made some progress after years of intensive behavioral and communication therapy, Carly remained largely unreachable. Then, at the age of ten, she had a breakthrough. While working with her devoted therapists Howie and Barb, Carly reached over to their laptop and typed in "HELP TEETH HURT," much to everyone's astonishment. This was the beginning of Carly's journey toward self-realization. Although Carly still struggles with all the symptoms of autism, which she describes with uncanny accuracy and detail, she now has regular, witty, and profound conversations on the computer with her family, her therapists, and the many thousands of people who follow her via her blog, Facebook, and Twitter. In Carly's Voice, her father, Arthur Fleischmann, blends Carly's own words with his story of getting to know his remarkable daughter. One of the first books to explore firsthand the challenges of living with autism, it brings readers inside a once-secret world and in the company of an inspiring young woman who has found her voice and her mission.
Haldol and Hyacinths: A Bipolar Life
Melody Moezzi - 2013
When at eighteen, she began battling a severe physical illness, her community stepped up, filling her hospital rooms with roses, lilies, and hyacinths. But when she attempted suicide and was diagnosed with bipolar disorder, there were no flowers. Despite several stays in psychiatric hospitals, bombarded with tranquilizers, mood-stabilizers, and antipsychotics, she was encouraged to keep her illness a secret—by both her family and an increasingly callous and indifferent medical establishment. Refusing to be ashamed, Moezzi became an outspoken advocate, determined to fight the stigma surrounding mental illness and reclaim her life along the way.Both an irreverent memoir and a rousing call to action, Haldol and Hyacinths is the moving story of a woman who refused to become torn across cultural and social lines. Moezzi reports from the front lines of the no-man’s land between sickness and sanity, and the Midwest and the Middle East. A powerful, funny, and poignant narrative told through a unique and fascinating cultural lens, Haldol and Hyacinths is a tribute to the healing power of hope, humor, and acceptance.
Everything Happens for a Reason: And Other Lies I've Loved
Kate Bowler - 2018
She lost thirty pounds, chugged antacid, and visited doctors for three months before she was finally diagnosed with Stage IV colon cancer.As she navigates the aftermath of her diagnosis, Kate pulls the reader deeply into her life, which is populated with a colorful, often hilarious collection of friends, pastors, parents, and doctors, and shares her laser-sharp reflections on faith, friendship, love, and death. She wonders why suffering makes her feel like a loser and explores the burden of positivity. Trying to relish the time she still has with her son and husband, she realizes she must change her habit of skipping to the end and planning the next move. A historian of the "American prosperity gospel"--the creed of the mega-churches that promises believers a cure for tragedy, if they just want it badly enough--Bowler finds that, in the wake of her diagnosis, she craves these same "outrageous certainties." She wants to know why it's so hard to surrender control over that which you have no control. She contends with the terrifying fact that, even for her husband and child, she is not the lynchpin of existence, and that even without her, life will go on.On the page, Kate Bowler is warm, witty, and ruthless, and, like Paul Kalanithi, one of the talented, courageous few who can articulate the grief she feels as she contemplates her own mortality.
The Bright Hour: A Memoir of Living and Dying
Nina Riggs - 2017
They are promises. They are the only way to walk from one night to the other."Nina Riggs was just thirty-seven years old when initially diagnosed with breast cancer--one small spot. Within a year, the mother of two sons, ages seven and nine, and married sixteen years to her best friend, received the devastating news that her cancer was terminal.How does one live each day, "unattached to outcome"? How does one approach the moments, big and small, with both love and honesty?Exploring motherhood, marriage, friendship, and memory, even as she wrestles with the legacy of her great-great-great grandfather, Ralph Waldo Emerson, Nina Riggs's breathtaking memoir continues the urgent conversation that Paul Kalanithi began in his gorgeous When Breath Becomes Air. She asks, what makes a meaningful life when one has limited time?Brilliantly written, disarmingly funny, and deeply moving, The Bright Hour is about how to love all the days, even the bad ones, and it's about the way literature, especially Emerson, and Nina's other muse, Montaigne, can be a balm and a form of prayer. It's a book about looking death squarely in the face and saying "this is what will be."Especially poignant in these uncertain times, The Bright Hour urges us to live well and not lose sight of what makes us human: love, art, music, words.
This Is Your Brain on Music: The Science of a Human Obsession
Daniel J. Levitin - 2006
Why does music evoke such powerful moods? The answers are at last be- coming clear, thanks to revolutionary neuroscience and the emerging field of evolutionary psychology. Both a cutting-edge study and a tribute to the beauty of music itself, This Is Your Brain on Music unravels a host of mysteries that affect everything from pop culture to our understanding of human nature, including: • Are our musical preferences shaped in utero? • Is there a cutoff point for acquiring new tastes in music? • What do PET scans and MRIs reveal about the brain’s response to music? • Is musical pleasure different from other kinds of pleasure?This Is Your Brain on Music explores cultures in which singing is considered an essential human function, patients who have a rare disorder that prevents them from making sense of music, and scientists studying why two people may not have the same definition of pitch. At every turn, this provocative work unlocks deep secrets about how nature and nurture forge a uniquely human obsession.
Thin
Grace Bowman - 2006
Until one day, aged 18, she went on a diet. That didn’t stop. Then couldn’t stop. That trapped her in ‘a secret world of eating-related happiness and unhappiness’. And saw her weight swiftly drop to below six stone. A grippingly honest account of life with anorexia nervosa, Thin is Grace’s heartbreaking, shocking and, finally, inspirational story. A memoir that is in part insider’s exposé and in part survivor’s testimony, it explains the struggle for self-discovery, and chronicles the devastating battles waged for control over mind and body. Breaking secrets, Grace shatters the myths surrounding this widely misunderstood illness, helping those bound within the rules of anorexia to find a way out, and those on the outside to understand more.Thin also has resonance beyond the world of eating disorders. For in daring to tell the truth, Grace reveals her extraordinary story to be a common one, reflected in the shape of many of our lives. She draws on the universal themes of female self-image and self-determination, which have inspired such classics as The Bell Jar and A Room of One’s Own, to shatter the myths surrounding anorexia. And the powerful insights she brings to overcoming addiction make this an invaluable narrative for all those looking to find hope and renewal in the acceptance of change and growth.Thin is the most eloquent account of anorexia yet.
Unseen: The secret world of chronic illness
Jacinta Parsons - 2020
Doctors couldn’t explain why, and Jacinta wondered if it might be in her head. She could barely function, was frequently unable to eat or get out of bed for days, and gradually turned into a shadow of herself. Eventually she got a diagnosis: Crohn’s disease. But knowing this wouldn’t stop her life from spiralling into a big mess of doctors, hospitals and medical disasters.What’s most extraordinary about Jacinta’s story is how common it is. Nearly half of Australians live with a chronic illness, but most of these conditions are not obvious, often endured in secrecy and little understood. They are unseen.With compelling candour, Jacinta trains a microscope on the unique challenges of living with an invisible condition. She lays bare the struggles with shame, loss of identity, the threat of mortality, and the profoundly complex relationships between the chronically ill and their own bodies, as well as with those around them. It’s a story of trying to fix an unfixable illness, getting beaten down then clawing back up, and how that experience can shape a life.
Little Panic: Dispatches from an Anxious Life
Amanda Stern - 2018
Plagued with fear that her friends and family will be taken from her if she's not watching--that her mother will die, or forget she has children and just move away--Stern treats every parting as her last. Shuttled between a barefoot bohemian life with her mother in Greenwich Village, and a sanitized, stricter world of affluence uptown with her father, Stern has little she can depend on. And when Etan Patz disappears down the block from their MacDougal Street home, she can't help but believe that all her worst fears are about to come true. Tenderly delivered and expertly structured, Stern's memoir is a document of the transformation of New York City and a deep, personal, and comedic account of the trials and errors of seeing life through a very unusual lens.
The Great Pain Deception: Faulty Medical Advice Is Making Us Worse
Steven Ray Ozanich - 2011
The Great Pain Deception was awarded Runner-Up Finalist in "Best New Health Book" of 2012 and also honored as Finalist in "Health: Alternative Medicine."Back pain, knee pain, shoulder pain, hand and foot pain, rarely come from herniated discs and joint failures. Pain, such as fibromyalgia, is a deception of the mind created by the brain to keep dark, threatening, and sad emotions from entering consciousness. The vast majority of pains and symptoms emanate from a mindbody process stemming from a personality of perfectionism. However, pain is not "in the mind" of the sufferer--and is often misrepresented as such by people who reject a mindbody process for reasons of ego and monetary gain.Symptoms inside and outside of the body are primarily the result of emotional conflict hidden within the body and outside of awareness. We live in a world of medical marvels. However, those marvels have become a double-edged sword, often creating more problems than they resolve. John Sarno, MD, at the NYU School of Medicine discovered in the 1970s that back pain was not coming from the things seen on the imaging, such as herniated discs, arthritis, stenosis, scoliosis, etc. Pain was coming from oxygen reduction through the autonomic nervous system due to elevated tension levels, but had been errantly linked to the "normal abnormalities" seen on MRIs and X-rays.Most physicians refused to believe his findings even though his success rate in healing the most troublesome of pain-cases was well above theirs. Dr. Sarno labeled the disorder TMS, or tension myoneural syndrome, currently being called The Mindbody Syndrome. Inside The Great Pain Deception Steve tells his compelling story of a 30-year battle with pain and ultimate healing after discovering Dr. Sarno's work. After Steve healed he began receiving hundreds of emails, calls, and letters, asking for his help--too many to respond to, so he decided to write his experience down in a book. After 10 years of research, Steve has conveyed an amazing testimonial of triumph over tragedy, an inspiring story of healing that is a must read if you suffer from any ailment from mild to severe. The only thing standing between good health, and healing, is ego. Pain and unpleasant symptoms serve a purpose. Disease is the report card of how happy we are; feedback of a life not lived. Symptoms are anger flowing over into the physical realm, signs of internal conflict. Pain and illness are the virtual language of the unconscious mind. When we are untrue to ourselves and needs, living by the codes and wishes of others, denying our deepest desires--symptoms then form to reveal the deeper conflict.Modern medicine is pointing us toward our bodies in the attempt to cure us through engineering the human system. These high-tech processes are often making us worse by ignoring the message that the body is trying to convey through such things as colitis, irritable bladder, fibromyalgia, skin disorders and an infinite variety of other symptoms, including cancer. This book does an excellent job of exploring the realm of mind within body--and ultimate healing.
The Examined Life: How We Lose and Find Ourselves
Stephen Grosz - 2012
These beautifully rendered tales illuminate the fundamental pathways of life from birth to death.A woman finds herself daydreaming as she returns home from a business trip; a young man loses his wallet. We learn, too, from more extreme examples: the patient who points an unloaded gun at a police officer, the compulsive liar who convinces his wife he's dying of cancer. The stories invite compassionate understanding, suggesting answers to the questions that compel and disturb us most about love and loss, parents and children, work and change. The resulting journey will spark new ideas about who we are and why we do what we do.
Life After Deaf: My Misadventures in Hearing Loss and Recovery
Noel Holston - 2019
On a spring night in 2010, Noel Holston, a journalist, songwriter, and storyteller, went to bed with reasonably intact hearing. By dawn, it was gone, thus beginning a long process of hearing-restoration that included misdiagnoses, an obstinate health-insurance bureaucracy, failed cochlear-implant surgery, and a second surgery that finally worked. He negotiated the gauntlet with a wry sense of humor and the aid of his supportive wife, Marty. Life After Deaf details his experience with warmth, understanding, and candor. It’s the story not only of his way back to the world of the hearing, but of a great marriage that weathered serious testing. Their determination and resilience serve as a source of inspiration for all.Life After Deaf is not just for the more than forty million people in the United States alone who cope with some form of hearing loss, but is also for their wide circles of friends, family, caregivers, and audiologists. This highly readable book will be an invaluable guide and source of hope for the large number of baby boomers now handling hearing loss.
Now I See You: A Memoir
Nicole C. Kear - 2014
Kear's biggest concern is choosing a major--until she walks into a doctor's office in midtown Manhattan and gets a life-changing diagnosis. She is going blind, courtesy of an eye disease called retinitis pigmentosa, and has only a decade or so before Lights Out. Instead of making preparations as the doctor suggests, Kear decides to carpe diem and make the most of the vision she has left. She joins circus school, tears through boyfriends, travels the world, and through all these hi-jinks, she keeps her vision loss a secret.When Kear becomes a mother, just a few years shy of her vision's expiration date, she amends her carpe diem strategy, giving up recklessness in order to relish every moment with her kids. Her secret, though, is harder to surrender - and as her vision deteriorates, harder to keep hidden. As her world grows blurred, one thing becomes clear: no matter how hard she fights, she won't win the battle against blindness. But if she comes clean with her secret, and comes to terms with the loss, she can still win her happy ending.Told with humor and irreverence, Now I See You is an uplifting story about refusing to cower at life's curveballs, about the power of love to triumph over fear. But, at its core, it's a story about acceptance: facing the truths that just won't go away, and facing yourself, broken parts and all.