Book picks similar to
Strong at the Broken Places: Voices of Illness, A Chorus of Hope by Richard Merrill Cohen
nonfiction
non-fiction
chronic-illness
health
Disfigured: On Fairy Tales, Disability, and Making Space
Amanda Leduc - 2020
After all, the ogre never gets the princess. And since fairy tales are the foundational myths of our culture, how can a girl with a disability ever think she'll have a happy ending?By examining the ways that fairy tales have shaped our expectations of disability, Disfigured will point the way toward a new world where disability is no longer a punishment or impediment but operates, instead, as a way of centering a protagonist and helping them to cement their own place in a story, and from there, the world. Through the book, Leduc ruminates on the connections we make between fairy tale archetypes—the beautiful princess, the glass slipper, the maiden with long hair lost in the tower—and tries to make sense of them through a twenty-first-century disablist lens. From examinations of disability in tales from the Brothers Grimm and Hans Christian Andersen through to modern interpretations ranging from Disney to Angela Carter, and the fight for disabled representation in today's media, Leduc connects the fight for disability justice to the growth of modern, magical stories, and argues for increased awareness and acceptance of that which is other—helping us to see and celebrate the magic inherent in different bodies.
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome
Amy Silverman - 2016
And that is the case with My Heart Can't Even Believe It, by journalist, blogger, and NPR contributor Amy Silverman. Amy bravely looks at her life, before and after her daughter Sophie was born, and reflects on her transformation from "a spoiled, self-centered brat," who used words like retard and switched lines at the Safeway to avoid a bagger with special needs, into the mother of a kid with Down syndrome and all that her new identity entails. She describes her evolution as gradual, one built by processing her fears and facing questions both big and small about Sophie, Down syndrome, and her place in the world. Funny, touching, and honest, this wonderful book looks at a daughter and her power to change minds and fill hearts with love so deep.
Everything Happens for a Reason: And Other Lies I've Loved
Kate Bowler - 2018
She lost thirty pounds, chugged antacid, and visited doctors for three months before she was finally diagnosed with Stage IV colon cancer.As she navigates the aftermath of her diagnosis, Kate pulls the reader deeply into her life, which is populated with a colorful, often hilarious collection of friends, pastors, parents, and doctors, and shares her laser-sharp reflections on faith, friendship, love, and death. She wonders why suffering makes her feel like a loser and explores the burden of positivity. Trying to relish the time she still has with her son and husband, she realizes she must change her habit of skipping to the end and planning the next move. A historian of the "American prosperity gospel"--the creed of the mega-churches that promises believers a cure for tragedy, if they just want it badly enough--Bowler finds that, in the wake of her diagnosis, she craves these same "outrageous certainties." She wants to know why it's so hard to surrender control over that which you have no control. She contends with the terrifying fact that, even for her husband and child, she is not the lynchpin of existence, and that even without her, life will go on.On the page, Kate Bowler is warm, witty, and ruthless, and, like Paul Kalanithi, one of the talented, courageous few who can articulate the grief she feels as she contemplates her own mortality.
Shoot the Damn Dog: A Memoir of Depression
Sally Brampton - 2008
But behind the successful, glamorous career was a story that many of her friends and colleagues knew nothing about—her ongoing struggle with severe depression and alcoholism. Brampton's is a candid, tremendously honest telling of how she was finally able to "address the elephant in the room," and of a culture that sends the overriding message that people who suffer from depression are somehow responsible for their own illness. She offers readers a unique perspective of depression from the inside that is at times wrenching, but ultimately inspirational, as it charts her own coming back to life. Beyond her personal story, Brampton offers practical advice to all those affected by this illness. This book will resonate with any person whose life has been haunted by depression, at the same time offering help and understanding to those whose loved ones suffer from this debilitating condition.
In Search of Memory: The Emergence of a New Science of Mind
Eric R. Kandel - 2006
Nobel Prize winner Kandel intertwines cogntive psychology, neuroscience, and molecular biology with his own quest to understand memory.
Had I Known: A Memoir of Survival
Joan Lunden - 2015
After announcing her diagnosis of Stage 2 Triple Negative Breast Cancer on Good Morning America, people all over the country rallied around Joan as she went into warrior mode. Joan appeared on the cover of People Magazine bald, showing the world her brave resolve and that breast cancer does not need to define you.Joan’s illness has changed her in profoundly unexpected ways and has redefined her values and most of all, her health. Following a new clean and healthy way of eating, Joan became her best advocate by taking control of her nutrition, which helped combat the adverse side effects of chemotherapy like a warrior. Uncharacteristically vulnerable, irreverent and straight from the heart, Had I Known is a deeply personal and powerful story of pain, persistence, and perseverance in which Joan openly evaluates her decision to go public with her battle, shaving her head, wig shopping, re-connecting with her viewers, rediscovering her purpose, and ultimately realizing that sometimes you have to look back to move forward.
Where the Light Gets In: Losing My Mother Only to Find Her Again
Kimberly Williams-Paisley - 2016
But behind the scenes, Kim was dealing with a tragic secret: her mother, Linda, was suffering from a rare form of dementia that slowly crippled her ability to talk, write and eventually recognize people in her own family. Where the Light Gets In tells the full story of Linda’s illness—called primary progressive aphasia—from her early-onset diagnosis at the age of 62 through the present day. Kim draws a candid picture of the ways her family reacted for better and worse, and how she, her father and two siblings educated themselves, tried to let go of shame and secrecy, made mistakes, and found unexpected humor and grace in the midst of suffering. Ultimately the bonds of family were strengthened, and Kim learned ways to love and accept the woman her mother became. With a moving foreword by actor and advocate Michael J. Fox, Where the Light Gets In is a heartwarming tribute to the often fragile yet unbreakable relationships we have with our mothers.
Poster Child: A Memoir
Emily Rapp - 2006
By the time she was eight she'd had dozens of operations and her entire leg below the knee had been amputated. She had also become the smiling, always perky, indefatigable poster child for the March of Dimes, and spent much of her childhood traveling around the Midwest making appearances and giving pep talks. All the while she was learning to live with what she called my grievous, irrevocable flaw, and the paradox that being extraordinary was the only way to be ordinary.Poster Child is Rapp's unflinching, brutally honest and often darkly humorous account of wrestling with the tyranny of self-image as a teenager and then ultimately coming to terms with her own body as a young woman. It's about what it's like to live inside a broken body in a society that values beauty above almost everything else.
I Wanna Be Well: How a Punk Found Peace and You Can Too
Miguel Chen - 2018
Just like everyone else. But—also like everyone else—he’s suffered. A lot. Running from difficult personal losses—like the deaths of loved ones—was something he did for years, and it got the best of him. Eventually, though, he stopped running and started walking a spiritual path. That might be surprising for a dude in a relentlessly touring punk band (Teenage Bottlerocket), but Miguel quickly found that meditation, mindfulness, and yoga really helped. They allowed him to turn inward, to connect to himself and the world around him. Suddenly, he had found actual happiness. Miguel’s realistic. He knows it'll never be all sunshine and peaches. And yet, he is (for the most part) at peace with the world and with himself. It shocks even him sometimes. But he’s come to see the interconnectedness of all things, the beauty of life…even the parts that suck. Each short chapter ends with a hands-on practice that the reader can put into action right away—and each practice offers a distilled “TL;DR” takeaway point. TL;DR: Miguel Chen shares stories, meditations, and practices that can help us reconnect to each other, ourselves, and the world. They’ve worked for him—they can work for anyone.
The Bone Woman: A Forensic Anthropologist's Search for Truth in the Mass Graves of Rwanda, Bosnia, Croatia, and Kosovo
Clea Koff - 2001
Two years later, Clea Koff, a twenty-three-year-old forensic anthropologist, left the safe confines of a lab in Berkeley, California, to serve as one of sixteen scientists chosen by the United Nations to unearth the physical evidence of the Rwandan genocide. Over the next four years, Koff’s grueling investigations took her across geography synonymous with some of the worst crimes of the twentieth century. The Bone Woman is Koff’s unflinching, riveting account of her seven UN missions to Bosnia, Croatia, Kosovo, and Rwanda, as she shares what she saw, how it affected her, who was prosecuted based on evidence she found, and what she learned about the world. Yet even as she recounts the hellish nature of her work and the heartbreak of the survivors, she imbues her story with purpose, humanity, and a sense of justice. A tale of science in service of human rights, The Bone Woman is, even more profoundly, a story of hope and enduring moral principles.
How Can I Talk If My Lips Don't Move: Inside My Autistic Mind
Tito Rajarshi Mukhopadhyay - 2008
When he was three years old, Tito was diagnosed as severely autistic, but his remarkable mother, Soma, determined that he would overcome the problem by teaching him to read and write. The result was that between the ages of eight and eleven he wrote stories and poems of exquisite beauty, which Dr. Oliver Sacks called amazing and shocking. Their eloquence gave lie to all our assumptions about autism.Here Tito goes even further and writes of how the autistic mind works, how it views the outside world and the normal people he deals with daily, how he tells his stories to the mirror and hears stories back, how sounds become colors, how beauty fills his mind and heart. With this work, Tito whom Portia Iversen, co-founder of Cure Autism Now, has described as a window into autism such as the world has never seen gives the world a beacon of hope. For if he can do it, why can't others?Brave, bold, and deeply felt, this book shows that much we might have believed about autism can be wrong. Boston Globe
One Hundred Names for Love: A Memoir
Diane Ackerman - 2011
In this extraordinary memoir, she opens a window into the experience of wordlessness—the language paralysis called aphasia. In narrating the recovery of her husband, Paul West, from a stroke that reduced his vast vocabulary to a single syllable, she evokes the joy and mystery of the brain’s ability to find and connect words. Deeply rewarding to readers of all kinds, Ackerman has given us a literary love story, accessible insight into the science and medicine of brain injury,and invaluable spiritual sustenance in the face of life’s myriad physical sufferings.
Flying on the Inside: A Memoir of Trauma and Recovery
Rachel Gotto - 2021
Newly widowed and faced with a deadly brain tumour, she was given two years to live. She wanted more…When her six-year-old daughter found her collapsed on the kitchen floor, Rachel had no idea how much her life was about to change.A brain scan revealed a dark shadowy mass, a huge abnormal growth of tissue that, whilst benign, was still growing and would surely kill her. It was too big to operate on. It needed to be ‘managed’, and Rachel had, at best, two years to live.Refusing to accept the bleak prognosis, Rachel was determined to stay alive. She had already lost far too much. She had already watched her brother succumb, at only twenty-eight, to cancer. She had already lost her beloved husband in a terrible scuba diving accident when she was six months pregnant. So she did the only thing she knew how to do. She fought for her life.This gripping and inspiring memoir about overcoming tragedy and trauma charts one tenacious woman’s incredible fight to find light in the darkest of journeys. It is a life-affirming tale of positivity and hope in the face of the most difficult of human experiences.
The Spirit Catches You and You Fall Down: A Hmong Child, Her American Doctors, and the Collision of Two Cultures
Anne Fadiman - 1997
By 1988 she was living at home but was brain dead after a tragic cycle of misunderstanding, over-medication, and culture clash: "What the doctors viewed as clinical efficiency the Hmong viewed as frosty arrogance." The Spirit Catches You and You Fall Down is a tragedy of Shakespearean dimensions, written with the deepest of human feeling. Sherwin Nuland said of the account, "There are no villains in Fadiman's tale, just as there are no heroes. People are presented as she saw them, in their humility and their frailty—and their nobility.
The Perfect Predator: A Scientist's Race to Save Her Husband from a Deadly Superbug: A Memoir
Steffanie Strathdee - 2019
What at first seemed like a case of food poisoning quickly turned critical, and by the time Tom had been transferred via emergency medevac to the world-class medical center at UC San Diego, where both he and Steffanie worked, blood work revealed why modern medicine was failing: Tom was fighting one of the most dangerous, antibiotic-resistant bacteria in the world.Frantic, Steffanie combed through research old and new and came across phage therapy: the idea that the right virus, aka "the perfect predator," can kill even the most lethal bacteria. Phage treatment had fallen out of favor almost 100 years ago, after antibiotic use went mainstream. Now, with time running out, Steffanie appealed to phage researchers all over the world for help. She found allies at the FDA, researchers from Texas A&M, and a clandestine Navy biomedical center -- and together they resurrected a forgotten cure.