Funny, You Don't Look Autistic: A Comedian's Guide to Life on the Spectrum


Michael McCreary - 2019
    Like many others on the autism spectrum, 20-something stand-up comic Michael McCreary has been told by more than a few well-meaning folks that he doesn't "look" autistic. But, as he's quick to point out in this memoir, autism "looks" different for just about everyone with Autism Spectrum Disorder (ASD). Diagnosed with ASD at age five, McCreary got hit with the performance bug not much later. During a difficult time in junior high, he started journaling, eventually turning his pain e into something empowering--and funny. He scored his first stand-up gig at age 14, and hasn't looked back. An #OwnVoices memoir breaks down what it's like to live with autism for readers on and off the spectrum.

Angelhead: My Brother's Descent into Madness


Greg Bottoms - 2000
    Beginning with Michael's first psychotic break—seeing God in his suburban bedroom window while high on LSD—Greg Bottoms recounts, in gripping, dramatic prose, the bizarre disappearances, suicide attempts, and the shocking crime that land Michael in the psychiatric wing of a maximum security prison. A work of nonfiction with the form and imagery of a novel, Angelhead enables the reader to witness not only the fragmenting of a mind, but of a family as well.

A Stitch of Time: The Year a Brain Injury Changed My Language and Life


Lauren Marks - 2017
    She woke up in a hospital soon after with serious deficiencies to her reading, speaking, and writing abilities, and an unfamiliar diagnosis: aphasia. This would be shocking news for anyone, but Lauren was a voracious reader, an actress, director, and dramaturg, and at the time of the event, pursuing her PhD. At any other period of her life, this diagnosis would have been a devastating blow. But she woke up...different. The way she perceived her environment and herself had profoundly changed, her entire identity seemed crafted around a language she could no longer access. She returned to her childhood home to recover, grappling with a muted inner monologue and fractured sense of self.Soon after, Lauren began a journal, to chronicle her year following the rupture. A Stitch of Time is the remarkable result, an Oliver Sacks–like case study of a brain slowly piecing itself back together, featuring clinical research about aphasia and linguistics, interwoven with Lauren’s personal narrative and actual journal entries that marked her progress. Alternating between fascination and frustration, she relearns and re-experiences many of the things we take for granted—reading a book, understanding idioms, even sharing a “first kiss”—and begins to reconcile “The Girl I Used to Be” with “The Girl I Am Now.” Deeply personal and powerful, A Stitch of Time is an unforgettable journey of self-discovery, resilience, and hope.

Patient: The True Story of a Rare Illness


Ben Watt - 1996
    He didn’t leave for two and a half months. Watt had developed a rare life-threatening disease that initially baffled doctors. By the time he was allowed home, his ravaged body was forty-six pounds lighter and he was missing most of his small intestine. Watt injects pathos and humor into his medical nightmare, writing about his childhood, reflecting on his family and on his shared life with band member and partner Tracey Thorn. The result is a provocative and affecting memoir about life, illness, and survival.

Not Without My Sister: The True Story of Three Girls Violated and Betrayed by Those They Trusted


Kristina Jones - 2007
    It reveals three lives, separate but entwined, that have experienced unspeakable horror, unrelenting loyalty and unforgettable courage.From as early as three years old, Juliana, Celeste and Kristina were treated as sexual beings by their 'guardians' in the infamous religious cult known as the Children of God. They were made to watch and mimic orgies, received love letters and sexual advances from men old enough to be their grandfather, and were forced into abusive relationships. They were denied access to formal schooling, had to wander the streets begging for money, and were mercilessly beaten for 'crimes' as unpredictable as reading an encyclopaedia.Finally, unable to live with the guilt of what had happened to her children, their mother escaped with Kristina, cutting herself off from her remaining children in a bid to save at least one child. Desperate to save her sisters, Kristina eventually returned to the place of her torture to free Celeste. Years later, Juliana found the courage to escape, knowing that the child she was carrying would be subjected to the same fate if she did not.Now the three sisters have finally come together to reveal in full and horrific detail their existence within the Children of God cult. Their stories reveal a community spread throughout the world and its legacy of anorexia, depression, drug abuse, suicide and even murder. Lives are ripped apart and painstakingly mended with a shared strength that finally enabled the sisters to free themselves from the shadows of their past.

Mortality


Christopher Hitchens - 2012
    As he would later write in the first of a series of award-winning columns for "Vanity Fair," he suddenly found himself being deported "from the country of the well across the stark frontier that marks off the land of malady." Over the next eighteen months, until his death in Houston on December 15, 2011, he wrote constantly and brilliantly on politics and culture, astonishing readers with his capacity for superior work even in extremis.Throughout the course of his ordeal battling esophageal cancer, Hitchens adamantly and bravely refused the solace of religion, preferring to confront death with both eyes open. In this account of his affliction, he describes the torments of illness, discusses its taboos, and explores how disease transforms experience and changes our relationship to the world around us. By turns personal and philosophical, Hitchens embraces the full panoply of human emotions as cancer invades his body and compels him to grapple with the enigma of mortality.

Cockeyed: A Memoir of Blindness


Ryan Knighton - 2006
    In this penetrating, nervy memoir, which ricochets between meditation and black comedy, Knighton tells the story of his fifteen-year descent into blindness while incidentally revealing the world of the sighted in all its phenomenal peculiarity. Knighton learns to drive while unseeing; has his first significant relationship—with a deaf woman; navigates the punk rock scene and men's washrooms; learns to use a cane; and tries to pass for seeing while teaching English to children in Korea. Stumbling literally and emotionally into darkness, into love, into couch-shopping at Ikea, into adulthood, and into truce if not acceptance of his identity as a blind man, his writerly self uses his disability to provide a window onto the human condition. His experience of blindness offers unexpected insights into sight and the other senses, culture, identity, language, our fears and fantasies. Cockeyed is not a conventional confessional. Knighton is powerful and irreverent in words and thought and impatient with the preciousness we've come to expect from books on disability. Readers will find it hard to put down this wild ride around their everyday world with a wicked, smart, blind guide at the wheel.

The Boy Who Felt Too Much: How a renowned neuroscientist and his son changed our view of autism forever


Lorenz Wagner - 2019
    . . A tale of love, constancy and groundbreaking research.' --RON SUSKIND, Pulitzer Prize-winning journalist and author of Life, AnimatedHenry Markram is the Elon Musk of neuroscience, the man behind the billion-dollar Blue Brain Project to build a supercomputer model of the brain. He has set the goal of decoding all disturbances of the mind within a generation. This quest is personal for him. The driving force behind his grand ambition has been his son Kai, who suffers from autism. Raising Kai made Henry Markram question all that he thought he knew about neuroscience, and then inspired his groundbreaking research that would upend the conventional wisdom about autism, expressed in his now‑famous theory of Intense World Syndrome.When Kai was first diagnosed, his father consulted studies and experts. He knew as much about the human brain as almost anyone but still felt as helpless as any parent confronted with this condition in his child. What's more, the scientific consensus that autism was a deficit of empathy didn't mesh with Markram's experience of his son. He became convinced that the disorder, which has seen a 657 per cent increase in diagnoses over the past decade, was fundamentally misunderstood. Bringing his world‑class research to bear on the problem, he devised a radical new theory of the disorder: People like Kai don't feel too little; they feel too much. Their senses are too delicate for this world.The theory of Intense World Syndrome could change the way we see autism forever, and it's thanks to Kai, the boy who changed everything.

The Unwinding of the Miracle: A Memoir of Life, Death, and Everything That Comes After


Julie Yip-Williams - 2019
    What began as the chronicle of an imminent and early death became something much more--a powerful exhortation to the living.That Julie Yip-Williams survived infancy was a miracle. Born blind in Vietnam, she narrowly escaped euthanasia at the hands of her grandmother, only to flee with her family the political upheaval of her country in the late 1970s. Loaded into a rickety boat with three hundred other refugees, Julie made it to Hong Kong and, ultimately, America, where a surgeon at UCLA gave her partial sight. She would go on to become a Harvard-educated lawyer, with a husband, a family, and a life she had once assumed would be impossible. Then, at age thirty-seven, with two little girls at home, Julie was diagnosed with terminal metastatic colon cancer, and a different journey began.The Unwinding of the Miracle is the story of a vigorous life refracted through the prism of imminent death. When she was first diagnosed, Julie Yip-Williams sought clarity and guidance through the experience and, finding none, began to write her way through it--a chronicle that grew beyond her imagining. Motherhood, marriage, the immigrant experience, ambition, love, wanderlust, tennis, fortune-tellers, grief, reincarnation, jealousy, comfort, pain, the marvel of the body in full rebellion--this book is as sprawling and majestic as the life it records. It is inspiring and instructive, delightful and shattering. It is a book of indelible moments, seared deep--an incomparable guide to living vividly by facing hard truths consciously.With humor, bracing honesty, and the cleansing power of well-deployed anger, Julie Yip-Williams set the stage for her lasting legacy and one final miracle: the story of her life.

Beyond the Pale: Folklore, Family and the Mystery of Our Hidden Genes


Emily Urquhart - 2015
    Stephen's Day, 2010, in St. John's, Newfoundland, when the author gives birth to a baby girl named Sadie Jane who has a shock of snow-white hair. News of the child's icy locks travels across the hospital, and physicians and nurses from all wards visit the unusually beautiful newborn as she lies sleeping in her plastic bassinet. The maternity-floor janitor, however, feels something is amiss. Her eyes wide, incredulous and panicky, the janitor asks, "Is she an albino?" The idea is immediately dismissed, but after three months of medical testing, Sadie is diagnosed with albinism, a rare genetic condition where pigment fails to form in the skin, hair and eyes. She is visually impaired and faces a lifetime avoiding the sun. She will always have the otherworldly appearance that drew the awestruck hospital staff to her side.A journalist and folklore scholar accustomed to processing the world through other people's stories, Emily is drawn to understanding her child's difference by researching the cultural beliefs associated with albinism worldwide. What she finds on her journey vacillates between beauty and darkness. She discovers that Noah's birth story is believed to be the first record of a baby born with albinism, and that the Kuna people in Panama revere members of their society with albinism, seeing them as defenders of the moon in the night sky. She attends a gathering of people with albinism in St. Louis and interviews geneticists, social scientists, novelists and folklorists in Canada, England and the US. But when she uncovers information about gruesome attacks on people with albinism in Tanzania, rooted in witchcraft, she feels compelled to travel to East Africa, her sun-shy toddler in tow, in an effort to understand these human-rights violations. Upon her return to Canada she discovers a family photograph from the past that might illuminate her daughter’s present. While navigating new territory as a first-time parent of a child with a disability, Emily embarks on a three-year journey across North America and Africa to discover how we explain human differences, not through scientific facts or statistics but through a system of cultural beliefs. Part parenting memoir, part cultural critique and part travelogue, Beyond the Pale, as the title suggests, takes the reader into dark and unknown territory in the search for enlightenment.

Saving Sammy: Curing the Boy Who Caught OCD


Beth Alison Maloney - 2009
    Maloney's debut chronicles her son, Sammy, and the illness that, almost overnight, transformed him from a sunny, bright boy into an antisocial stranger 'so dominated by obsessions, compulsions, and rules that daily life becomes impossible.'

Still Me


Christopher Reeve - 1998
    With a New Afterword for this Edition.When the first 'Superman' movie came out I was frequently asked 'What is a hero?'  I remember the glib response I repeated so many times.  My answer was that a hero is someone who commits a courageous action without considering the consequences - a soldier who crawls out of a foxhole to drag an injured buddy to safety.  And I also meant individuals who are slightly larger than life: Houdini and Lindbergh, John Wayne, JFK, and Joe DiMaggio.  Now my definition is completely different.  I think a hero is an ordinary individual who finds strength to persevere and endure in spite of overwhelming obstacles: a fifteen-year-old boy who landed on his head while wrestling with his brother, leaving him barely able to swallow or speak; Travis Roy, paralysed in the first thirty seconds of a hockey game in his freshman year at college.  These are real heroes, and so are the families and friends who have stood by them."The whole world held its breath when Christopher Reeve struggled for life on Memorial Day, 1995.  On the third jump of a riding competition, Reeve was thrown headfirst from his horse in an accident that broke his neck and left him unable to move or breathe.In the years since then, Reeve has not only survived, but has fought for himself, for his family, and for the hundreds of thousands of people with spinal cord injuries in the United States and around the world.  And he has written 'Still Me', the heartbreaking, funny, courageous, and hopeful story of his life.Chris describes his early success on Broadway opposite the legendary Katherine Hepburn, the adventure of filming 'Superman' on the streets of New York, and how the movie made him a star.  He continued to move regularly between film acting and theater work in New York, Los Angeles, and at the WIlliamstown Theatre Festival in the Berkshires.  Reunited with his 'Bostonians' director, James Ivory, in 1992, he traveled to England to work with Emma Thompson and Anthony Hopkins in 'The Remains of the Day'.The Man who cannot move has not stopped moving.  He has established a charitable foundation to raise awareness and money for research on spinal cord injuries.  His work as director of the HBO film 'In the Gloaming' earned him an Emmy nomination, one of five that the film received.  His speeches at the Democratic National Convention and the Academy Awards inspired people around the country and the world.  He has testified before Congress on behalf of health insurance legislation, lobbied for increased federal funding for spinal cord research, and developed a working relationship with President Clinton.With dignity and sensitivity, he describes the journey he has made -physically, emotionally, spiritually.  He explores his complex relationship with his parents, his efforts to remain a devoted husband and father, and his continuing and heroic battle to rebuild his life.This is the determined, passionate story of one man, a gifted actor and star, and how he and his family came to grips with the kind of devastating, unexplainable shock that fate can bring to any of us.  Chris and Dana Reeve have gathered the will and the spirit to create a new life, one responsive and engaged and focused on the future.

I'll See You Again


Jackie Hance - 2013
    After the tragedy, she was "The Taconic Mom", whose unimaginable loss embodied every parent's worst nightmare. Suddenly, her life-long Catholic faith no longer explained the world. Her marriage to her husband, Warren, was ravaged by wrenching grief and recrimination. And her mind, unable to cope with the unfathomable, reinvented reality each night, so she awoke each morning having forgotten the heartbreaking facts: that Emma, age 8; Alyson, age 7; and Katie, age 5, were gone forever. They were killed in a minivan driven by their aunt, Jackie's sister-in-law, Diane Schuler, while returning from a camping weekend on a sunny July morning.I'll See You Again chronicles the day Jackie received the traumatizing phone call that defied all understanding, and the numbed and torturous events that followed, including the devastating medical findings that shattered Jackie to the core and shocked America. But this profoundly honest account is also the story of how a tight-knit community rallied around the Hances, providing the courage and strength for them to move forward. It's a story of forgiveness, hope, and rebirth, as Jackie and Warren struggle to rediscover the possibility of joy by welcoming their fourth daughter, Kasey Rose Hance.The story that Jackie Hance shares for the first time will touch your heart and warm you to the power of love and hope.

Brain Surgeon: A Doctor's Inspiring Encounters with Mortality and Miracles


Keith Black - 2009
    This title combines the dramatic narrative power of 'The Man Who Mistook His Wife for a Hat' with the fascinating scientific insights of Jerome Groopman to create a compelling look at one man's journey into the inner workings of the brain.

Letters


Kurt Vonnegut Jr. - 2012
    Written over a sixty-year period, these letters, the vast majority of them never before published, are funny, moving, and full of the same uncanny wisdom that has endeared his work to readers worldwide. Included in this comprehensive volume: the letter a twenty-two-year-old Vonnegut wrote home immediately upon being freed from a German POW camp, recounting the ghastly firebombing of Dresden that would be the subject of his masterpiece "Slaughterhouse-Five;" wry dispatches from Vonnegut's years as a struggling writer slowly finding an audience and then dealing with sudden international fame in middle age; righteously angry letters of protest to local school boards that tried to ban his work; intimate remembrances penned to high school classmates, fellow veterans, friends, and family; and letters of commiseration and encouragement to such contemporaries as Gail Godwin, Gunter Grass, and Bernard Malamud. Vonnegut's unmediated observations on science, art, and commerce prove to be just as inventive as any found in his novels--from a crackpot scheme for manufacturing "atomic" bow ties to a tongue-in-cheek proposal that publishers be allowed to trade authors like baseball players. ("Knopf, for example, might give John Updike's contract to Simon and Schuster, and receive Joan Didion's contract in return.") Taken together, these letters add considerable depth to our understanding of this one-of-a-kind literary icon, in both his public and private lives. Each letter brims with the mordant humor and openhearted humanism upon which he built his legend. And virtually every page contains a quotable nugget that will make its way into the permanent Vonnegut lexicon. - On a job he had as a young man: "Hell is running an elevator throughout eternity in a building with only six floors."- To a relative who calls him a "great literary figure" "I am an American fad--of a slightly higher order than the hula hoop."- To his daughter Nanny: "Most letters from a parent contain a parent's own lost dreams disguised as good advice."- To Norman Mailer: "I am cuter than you are." Sometimes biting and ironical, sometimes achingly sweet, and always alive with the unique point of view that made him the true cultural heir to Mark Twain, these letters comprise the autobiography Kurt Vonnegut never wrote.