Book picks similar to
Stricken: Voices from the Hidden Epidemic of Chronic Fatigue Syndrome by Peggy Munson
non-fiction
disability
chronic-illness
nonfiction
Waist-High in the World: A Life Among the Nondisabled
Nancy Mairs - 1997
In a blend of intimate memoir and passionate advocacy, Nancy Mairs takes on the subject woven through all her writing: disability and its effect on life, work, and spirit.
Unseen: The secret world of chronic illness
Jacinta Parsons - 2020
Doctors couldn’t explain why, and Jacinta wondered if it might be in her head. She could barely function, was frequently unable to eat or get out of bed for days, and gradually turned into a shadow of herself. Eventually she got a diagnosis: Crohn’s disease. But knowing this wouldn’t stop her life from spiralling into a big mess of doctors, hospitals and medical disasters.What’s most extraordinary about Jacinta’s story is how common it is. Nearly half of Australians live with a chronic illness, but most of these conditions are not obvious, often endured in secrecy and little understood. They are unseen.With compelling candour, Jacinta trains a microscope on the unique challenges of living with an invisible condition. She lays bare the struggles with shame, loss of identity, the threat of mortality, and the profoundly complex relationships between the chronically ill and their own bodies, as well as with those around them. It’s a story of trying to fix an unfixable illness, getting beaten down then clawing back up, and how that experience can shape a life.
Recovery: The Lost Art of Convalescence
Gavin Francis - 2022
Recovery and convalescence are words that exist at the periphery of our lives - until we are forced to contend with what they really mean.Here, GP and writer Gavin Francis explores how - and why - we get better, revealing the many shapes recovery takes, its shifting history and the frequent failure of our modern lives to make adequate space for it.Characterised by Francis's beautiful prose and his view of medicine as 'the alliance of science and kindness', Recovery is a book about a journey that most of us never intend to make. Along the way, he unfolds a story of hope, transformation, and the everyday miracle of healing.
About Us: Essays from the Disability Series of the New York Times
Peter Catapano - 2019
Speaking not only to those with disabilities, but also to their families, coworkers and support networks, the authors in About Us offer intimate stories of how they navigate a world not built for them.Since its 2016 debut, the popular New York Times’ “Disability” column has transformed the national dialogue around disability. Now, echoing the refrain of the disability rights movement, “Nothing about us without us,” this landmark collection gathers the most powerful essays from the series that speak to the fullness of human experience—stories about first romance, childhood shame and isolation, segregation, professional ambition, child-bearing and parenting, aging and beyond.Reflecting on the fraught conversations around disability—from the friend who says “I don’t think of you as disabled,” to the father who scolds his child with attention differences, “Stop it stop it stop it what is wrong with you?”—the stories here reveal the range of responses, and the variety of consequences, to being labeled as “disabled” by the broader public.Here, a writer recounts her path through medical school as a wheelchair user—forging a unique bridge between patients with disabilities and their physicians. An acclaimed artist with spina bifida discusses her art practice as one that invites us to “stretch ourselves toward a world where all bodies are exquisite.” With these notes of triumph, these stories also offer honest portrayals of frustration over access to medical care, the burden of social stigma and the nearly constant need to self-advocate in the public realm.In its final sections, About Us turns to the questions of love, family and joy to show how it is possible to revel in life as a person with disabilities. Subverting the pervasive belief that disability results in relentless suffering and isolation, a quadriplegic writer reveals how she rediscovered intimacy without touch, and a mother with a chronic illness shares what her condition has taught her young children.With a foreword by Andrew Solomon and introductory comments by co-editors Peter Catapano and Rosemarie Garland-Thomson, About Us is a landmark publication of the disability movement for readers of all backgrounds, forms and abilities.Topics Include: Becoming Disabled • Mental Illness is not a Horror Show • Disability and the Right to Choose • Brain Injury and the Civil Right We Don’t Think • The Deaf Body in Public Space • The Everyday Anxiety of the Stutterer • I Use a Wheelchair. And Yes, I’m Your Doctor • A Symbol for “Nobody” That’s Really for Everybody • Flying While Blind • My $1,000 Anxiety Attack • A Girlfriend of My Own • The Three-Legged Dog Who Carried Me • Passing My Disability On to My Children • I Have Diabetes. Am I to Blame? • Learning to Sing Again • A Disabled Life is a Life Worth Living
A Body, Undone: Living on After Great Pain
Christina Crosby - 2016
She was a respected senior professor of English who had celebrated her fiftieth birthday a month before. As she crested a hill, she caught a branch in the spokes of her bicycle, which instantly pitched her to the pavement. Her chin took the full force of the blow, and her head snapped back. In that instant, she was paralyzed.In A Body, Undone, Crosby puts into words a broken body that seems beyond the reach of language and understanding. She writes about a body shot through with neurological pain, disoriented in time and space, incapacitated by paralysis and deadened sensation. To address this foreign body, she calls upon the readerly pleasures of narrative, critical feminist and queer thinking, and the concentrated language of lyric poetry. Working with these resources, she recalls her 1950s tomboy ways in small-town, rural Pennsylvania, and records growing into the 1970s through radical feminism and the affirmations of gay liberation.Deeply unsentimental, Crosby communicates in unflinching prose the experience of "diving into the wreck" of her body to acknowledge grief, and loss, but also to recognize the beauty, fragility, and dependencies of all human bodies. A memoir that is a meditation on disability, metaphor, gender, sex, and love, A Body, Undone is a compelling account of living on, as Crosby rebuilds her body and fashions a life through writing, memory, and desire.
On Being Ill
Virginia Woolf - 1930
We cannot quote Shakespeare to describe a headache. We must, Woolf says, invent language to describe pain. And though illness enhances our perceptions, she observes that it reduces self-consciousness; it is "the great confessional." Woolf discusses the cultural taboos associated with illness and explores how illness changes the way we read. Poems clarify and astonish, Shakespeare exudes new brilliance, and so does melodramatic fiction!On Being Ill was published as an individual volume by Hogarth Press in 1930. While other Woolf essays, such as A Room of One’s Own and Three Guineas, were first published by Hogarth as individual volumes and have since been widely available, On Being Ill has been overlooked. The Paris Press edition features original cover art by Woolf’s sister, the painter Vanessa Bell. Hermione Lee’s Introduction discusses this extraordinary work, and explores Woolf’s revelations about poetry, language, and illness.
Sonata: A Memoir of Pain and the Piano
Andrea Avery - 2017
The heartbreaking story of this mysterious sonata—Schubert’s last, and his most elusive and haunting—is the soundtrack of Andrea's story.Sonata is a breathtaking exploration of a “Janus-head miracle”—Andrea's extraordinary talent and even more extraordinary illness. With no cure for her R.A. possible, Andrea must learn to live with this disease while not letting it define her, even though it leaves its mark on everything around her—family, relationships, even the clothes she wears. And in this riveting account, she never loses her wit, humor, or the raw artistry of a true performer.As the goshawk becomes a source of both devotion and frustration for Helen Macdonald in H is for Hawk, so the piano comes to represent both struggle and salvation for Andrea in her extraordinary debut.
Illness as Metaphor and AIDS and its Metaphors
Susan Sontag - 1989
By demystifying the fantasies surrounding cancer, Sontag shows cancer for what it is--just a disease. Cancer, she argues, is not a curse, not a punishment, certainly not an embarrassment and, it is highly curable, if good treatment is followed.Almost a decade later, with the outbreak of a new, stigmatized disease replete with mystifications and punitive metaphors, Sontag wrote a sequel to Illness as Metaphor, extending the argument of the earlier book to the AIDS pandemic.These two essays now published together, Illness as Metaphor and AIDS and Its Metaphors, have been translated into many languages and continue to have an enormous influence on the thinking of medical professionals and, above all, on the lives of many thousands of patients and caregivers.
Diana's Story
Deric Longden - 1989
In 1982 Diana contracted ME, a condition which meant years of pain and paralysis that ended in death. Throughout her illness Deric cared for her and this book is the story of that time.
Tender Points
Amy Berkowitz - 2015
Named after the diagnostic criteria for fibromyalgia, the book-length lyric essay explores sexual violence, gendered illness, chronic pain, and patriarchy through the lenses of lived experience and pop culture (Twin Peaks, Teenage Mutant Ninja Turtles, noise music, etc.). Teaching Guide (or Book Club Guide) here: bit.ly/2aqJV2X
The Truth About Statins: Risks and Alternatives to Cholesterol-Lowering Drugs
Barbara H. Roberts - 2012
Now, the Director of the Women’s Cardiac Center in Providence, Rhode Island uses case studies and anecdotes to discuss the uses, misuses, dangers, and benefits of statins, enabling you to make informed decisions on how and when to use them. Including information on when statins help and when they don’t, common side effects, gender differences and drug use, as well as tips and recipes that promote heart health, The Truth About Statins is a timely and invaluable tool for improving cardiovascular health and helping you meet your lipid-lowering goals.
Disability Visibility: First-Person Stories from the Twenty-first Century
Alice WongChristie Thompson - 2020
Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Now, just in time for the thirtieth anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.
Growing Up Disabled in Australia
Carly FindlayEmma Di Bernardo - 2020
A problem those around me wanted to fix.’‘We have all felt that uncanny sensation that someone is watching us.’‘The diagnosis helped but it didn’t fix everything.’‘Don’t fear the labels.’One in five Australians have a disability. And disability presents itself in many ways. Yet disabled people are still underrepresented in the media and in literature.Growing Up Disabled in Australia is the fifth book in the highly acclaimed, bestselling Growing Up series. It includes interviews with prominent Australians such as Senator Jordon Steele-John and Paralympian Isis Holt, poetry and graphic art, as well as more than 40 original pieces by writers with a disability or chronic illness.Contributors include Dion Beasley, Astrid Edwards, Jessica Walton, Carly-Jay Metcalfe, Gayle Kennedy and El Gibbs.
Companions of the Prophet - Book 1
Abdulwahid Hamid - 1995
Here the trials and triumphs of the early Muslims as individuals are well-portrayed. Their various paths to Islam - sometimes direct, sometimes long and tortuous, their devotion to the noble Prophet, their endeavours in peace time and their exploits in war - all serve to cast them in a heroic mould. This is the first of two (formerly published as a series of three) books based on original Arabic sources and written in a style that is lively and often gripping. The lives of the Sahabah or Companions of the Prophet, may God bless him and grant him peace, is a rich storehouse of knowledge, guidance and inspiration. The men and women whose stories are told here helped to lay the foundations of a new world order, and it is only fitting that they should be more widely known.
Rob Neyer's Big Book of Baseball Blunders: A Complete Guide to the Worst Decisions and Stupidest Moments in Baseball History
Rob Neyer - 2006
BLUNDER: BILLY BUCKNER'S MANAGER LEFT HIM IN THE GAME. Baseball bloopers are fun; they're funny, even. A pitcher slips on the mound and his pitch sails over the backstop. An infielder camps under a pop-up...and the ball lands ten feet away. An outfielder tosses a souvenir to a fan...but that was just the second out, and runners are circling the bases (and laughing). Without these moments, the highlight reels wouldn't be nearly as entertaining. Baseball blunders, however, can be tragic, and they will leave diehard fans asking why...why...why? Rob Neyer's Big Book of Baseball Blunders does its best to answer all those whys, exploring the worst decisions and stupidest moments of managers, general managers, owners, and even commissioners. As he did in his Big Book of Baseball Lineups, Rob Neyer provides readers with a fascinating examination of baseball's rich history, this time through the lens of the game's sometimes hilarious, often depressing, and always perplexing blunders. · Which ill-fated move cost the Chicago White Sox a great hitter and the 1919 World Series? · What was Babe Ruth thinking when he became the first (and still the only) player to end a World Series by getting caught trying to steal? · Did playing one-armed Pete Gray in 1945 cost the Browns a pennant? · How did winning a coin toss lead to the Dodgers losing the National League pennant on Bobby Thomson's "Shot Heard 'round the World"? · How damaging was the Frank Robinson-for-Milt Pappas deal, really? · Which of Red Sox manager Don Zimmer's mistakes in 1978 was the worst? · Which Yankees trade was even worse than swapping Jay Buhner for Ken Phelps? · What non-move cost Buck Showalter a job and gave Joe Torre the opportunity of a lifetime? · Game 7, 2003 ALCS: Pedro winds up to throw his 123rd pitch...what were you thinking? These are just a few of the legendary (and not-so-legendary) blunders that Neyer analyzes, always with an eye on what happened, why it happened, and how it changed the fickle course of history. And in separate chapters, Neyer also reviews some of the game's worst trades and draft picks and closely examines all the teams that fell just short of first place. Another in the series of Neyer's Big Books of baseball history, Baseball Blunders should win a place in every devoted fan's library.