Book picks similar to
Aquamarine Blue 5: Personal Stories of College Students with Autism by Dawn Prince-Hughes
autism
non-fiction
memoir
neurodiversity
Being Heumann: An Unrepentant Memoir of a Disability Rights Activist
Judith Heumann - 2020
From fighting to attend grade school after being described as a "fire hazard" to later winning a lawsuit against the New York City school system for denying her a teacher's license because of her paralysis, Judy's actions set a precedent that fundamentally improved rights for disabled people.As a young woman, Judy rolled her wheelchair through the doors of the US Department of Health, Education, and Welfare in San Francisco as a leader of the Section 504 Sit-In, the longest takeover of a governmental building in US history. Working with a community of over 150 disabled activists and allies, Judy successfully pressured the Carter administration to implement protections for disabled peoples' rights, sparking a national movement and leading to the creation of the Americans with Disabilities Act.Candid, intimate, and irreverent, Judy Heumann's memoir about resistance to exclusion invites readers to imagine and make real a world in which we all belong.
Schuyler's Monster: A Father's Journey with His Wordless Daughter
Robert Rummel-Hudson - 2008
Once they knew why she couldn’t speak, they needed to determine how to help her learn. They didn’t know that Schuyler was going to teach them a thing or two about fearlessness, tenacity, and joy.Schuyler’s Monster is more than the memoir of a parent dealing with a child’s disability. It is the story of the relationship between a unique and ethereal little girl floating through the world without words, and her earthbound father who struggles with whether or not he is the right dad for the job. It is the story of a family seeking answers to a child’s dilemma, but it is also a chronicle of their unique relationships, formed without traditional language against the expectations of a doubting world. It is a story that has equal measure of laughter and tears. Ultimately, it is the tale of a little girl who silently teaches a man filled with self-doubt how to be the father she needs. Schuyler can now communicate through assistive technology, and continues to be the source of her father's inspiration, literary and otherwise.
Unraveling the Mystery of Autism and Pervasive Developmental Disorder: A Mother's Story of Research & Recovery
Karyn Seroussi - 2000
Consulting medical papers, surfacing the Web, and networking with other parents, they traced the onset of their child's problems to an immune system breakdown that coincided with his vaccinations. As a result, his digestive system was unable to break down certain proteins, which in turn led to abnormal brain development. So Karyn and her husband got to work -- Karyn implementing their program at home while her husband tested his theories at the scientific lab where he worked.Unraveling the Mystery of Autism and Pervasive Developmental Disorder is an inspiring and suspenseful chronicle of how one couple empowered themselves to challenge the medical establishment that promised no hope -- and found a cure for their child. Here are the explanations and treatments they so carefully researched and discovered, a wealth of crucial tools and hands-on information that can help other parents reverse the effects of autism and PDD, including step-by-step instructions for the removal of dairy and gluten from the diet, special recipes, and an explanation of the roles of the key players in autism research.
Far from the Tree: Parents, Children, and the Search for Identity
Andrew Solomon - 2012
He writes about families coping with deafness, dwarfism, Down's syndrome, autism, schizophrenia, or multiple severe disabilities; with children who are prodigies, who are conceived in rape, who become criminals, who are transgender. While each of these characteristics is potentially isolating, the experience of difference within families is universal, and Solomon documents triumphs of love over prejudice in every chapter.All parenting turns on a crucial question: to what extent should parents accept their children for who they are, and to what extent they should help them become their best selves. Drawing on ten years of research and interviews with more than three hundred families, Solomon mines the eloquence of ordinary people facing extreme challenges.Elegantly reported by a spectacularly original and compassionate thinker, Far from the Tree explores how people who love each other must struggle to accept each other—a theme in every family’s life.
Modern Love: True Stories of Love, Loss, and Redemption
Daniel Jones - 2019
A man's promising fourth date ends in the emergency room. A female lawyer with bipolar disorder experiences the highs and lows of dating. A widower hesitates about introducing his children to his new girlfriend. A divorcée in her seventies looks back at the beauty and rubble of past relationships.These are just a few of the people who tell their stories in Modern Love, Revised and Updated, featuring dozens of the most memorable essays to run in The New York Times "Modern Love" column since its debut in 2004.Some of the stories are unconventional, while others hit close to home. Some reveal the way technology has changed dating forever; others explore the timeless struggles experienced by anyone who has ever searched for love. But all of the stories are, above everything else, honest. Together, they tell the larger story of how relationships begin, often fail, and--when we're lucky--endure.Edited by longtime "Modern Love" editor Daniel Jones and featuring a diverse selection of contributors--including Mindy Hung, Trey Ellis, Ann Hood, Deborah Copaken, Terri Cheney, and more--this is the perfect book for anyone who's loved, lost, stalked an ex on social media, or pined for true romance: In other words, anyone interested in the endlessly complicated workings of the human heart.
Show Me All Your Scars: True Stories of Living with Mental Illness
Lee GutkindChloe Mattingly - 2016
In these true stories, writers and their loved ones struggle as their worlds are upended. What do you do when your father kills himself, or your mother is committed to a psych ward, or your daughter starts hearing voices telling her to harm herself—or when you yourself hear such voices? Addressing bipolar disorder, OCD, trichillomania, self-harm, PTSD, and other diagnoses, these stories vividly depict the difficulties and sorrows—and sometimes, too, the unexpected and surprising rewards—of living with mental illness.
3500: An Autistic Boy's Ten-Year Romance with Snow White
Ron Miles - 2013
The last thing his parents expected was to see him come alive.What followed was a remarkable tale of inspiration, heartbreak, dedication and joy as Benjamin's family relocated from Seattle to Orlando in order to capture that magic and put it to practical use. Amidst the daily challenges of life for an autistic child, Benjamin's passion for one particular theme park attraction would lead his family on a breathtaking journey of hope and discovery.How many rides does it take for an ending to become a new beginning?
The Best Kind of Different: Our Family's Journey with Asperger's Syndrome
Shonda Schilling - 2010
Candid and compelling, The Best Kind of Different traces their family’s struggle with Asperger’s, following Curt and Shonda as they come to understand their son’s differences and in the process relearn everything they thought they knew about parenting.
NeuroTribes: The Legacy of Autism and the Future of Neurodiversity
Steve Silberman - 2015
Along the way, he reveals the untold story of Hans Asperger, the father of Asperger’s syndrome, whose “little professors” were targeted by the darkest social-engineering experiment in human history; exposes the covert campaign by child psychiatrist Leo Kanner to suppress knowledge of the autism spectrum for fifty years; and casts light on the growing movement of "neurodiversity" activists seeking respect, support, technological innovation, accommodations in the workplace and in education, and the right to self-determination for those with cognitive differences.
Funny, You Don't Look Autistic: A Comedian's Guide to Life on the Spectrum
Michael McCreary - 2019
Like many others on the autism spectrum, 20-something stand-up comic Michael McCreary has been told by more than a few well-meaning folks that he doesn't "look" autistic. But, as he's quick to point out in this memoir, autism "looks" different for just about everyone with Autism Spectrum Disorder (ASD). Diagnosed with ASD at age five, McCreary got hit with the performance bug not much later. During a difficult time in junior high, he started journaling, eventually turning his pain e into something empowering--and funny. He scored his first stand-up gig at age 14, and hasn't looked back. An #OwnVoices memoir breaks down what it's like to live with autism for readers on and off the spectrum.
My Lobotomy: A Memoir
Howard Dully - 2007
Yet somehow, this normal boy became one of the youngest people on whom Dr. Walter Freeman performed his barbaric transorbital—or ice pick—lobotomy.Abandoned by his family within a year of the surgery, Howard spent his teen years in mental institutions, his twenties in jail, and his thirties in a bottle. It wasn’t until he was in his forties that Howard began to pull his life together. But even as he began to live the “normal” life he had been denied, Howard struggled with one question: Why?“October 8, 1960. I gather that Mrs. Dully is perpetually talking, admonishing, correcting, and getting worked up into a spasm, whereas her husband is impatient, explosive, rather brutal, won’t let the boy speak for himself, and calls him numbskull, dimwit, and other uncomplimentary names.”There were only three people who would know the truth: Freeman, the man who performed the procedure; Lou, his cold and demanding stepmother who brought Howard to the doctor’s attention; and his father, Rodney. Of the three, only Rodney, the man who hadn’t intervened on his son’s behalf, was still living. Time was running out. Stable and happy for the first time in decades, Howard began to search for answers. “December 3, 1960. Mr. and Mrs. Dully have apparently decided to have Howard operated on. I suggested [they] not tell Howard anything about it.”Through his research, Howard met other lobotomy patients and their families, talked with one of Freeman’s sons about his father’s controversial life’s work, and confronted Rodney about his complicity. And, in the archive where the doctor’s files are stored, he finally came face to face with the truth.Revealing what happened to a child no one—not his father, not the medical community, not the state—was willing to protect, My Lobotomy exposes a shameful chapter in the history of the treatment of mental illness. Yet, ultimately, this is a powerful and moving chronicle of the life of one man. Without reticence, Howard Dully shares the story of a painfully dysfunctional childhood, a misspent youth, his struggle to claim the life that was taken from him, and his redemption.
Autism and the God Connection: Redefining the Autistic Experience Through Extraordinary Accounts of Spiritual Giftedness
William Stillman - 2006
Helping parents realize their child's unique spirit and reaffirm that every one of us is a blessing, this is an inspirational resource to discovering the intellect, beauty, and complexities of children with autism. Through countless interviews, William Stillman documents extraordinary examples of spiritual giftedness, and boldly challenges our traditionally held beliefs about people with disabilities. Readers will discover hope, comfort, inspiration, and love through these affirming anecdotes of ordinary families.
Unholy Ghost: Writers on Depression
Nell Casey - 2001
Unlike any other memoir of depression, however, Unholy Ghost includes many voices and depicts the most complete portrait of the illness. Lauren Slater eloquently describes her own perilous experience as a pregnant woman on antidepressant medication. Susanna Kaysen, writing for the first time about depression since Girl, Interrupted, criticizes herself and others for making too much of the illness. Larry McMurtry recounts the despair that descended after his quadruple bypass surgery. Meri Danquah describes the challenges of racism and depression. Ann Beattie sees melancholy as a consequence of her writing life. And Donald Hall lovingly remembers the "moody seesaw" of his relationship with his wife, Jane Kenyon.The collection also includes an illuminating series of companion pieces. Russell Banks's and Chase Twichell's essays represent husbandand-wife perspectives on depression; Rose Styron's contribution about her husband's struggle with melancholy is paired with an excerpt from William Styron's Darkness Visible; and the book's editor, Nell Casey, juxtaposes her own essay about seeing her sister through her depression with Maud Casey's account of this experience. These companion pieces portray the complicated bond -- a constant grasp for mutual understandingforged by depressives and their family members.With an introduction by Kay Redfield Jamison, Unholy Ghost allows the bewildering experience of depression to be adequately and beautifully rendered. The twenty-two stories that make up this book will offer solace and enlightenment to all readers.
Danger, Man Working: Writing from the Heart, the Gut, and the Poison Ivy Patch
Michael Perry - 2017
Mine is predicated on formative years spent cleaning my father’s calf pens: Just keep shoveling until you’ve got a pile so big, someone has to notice. The fact that I cast my life’s work as slung manure simply proves that I recognize an apt metaphor when I accidentally stick it with a pitchfork. . . . Poetry was my first love, my gateway drug—still the poets are my favorites—but I quickly realized I lacked the chops or insights to survive on verse alone. But I wanted to write. Every day. And so I read everything I could about freelancing, and started shoveling." The pieces gathered within this book draw on fifteen years of what Michael Perry calls "shovel time"—a writer going to work as the work is offered. The range of subjects is wide, from musky fishing, puking, and mountain-climbing Iraq War veterans to the frozen head of Ted Williams. Some assignments lead to self-examination of an alarming magnitude (as Perry notes, "It quickly becomes obvious that I am a self-absorbed hypochondriac forever resolving to do better nutritionally and fitness-wise but my follow-through is laughable.") But his favorites are those that allow him to turn the lens outward: "My greatest privilege," he says, "lies not in telling my own story; it lies in being trusted to tell the story of another."