Patient Zero and the Making of the AIDS Epidemic


Richard A. McKay - 2017
    Yet the term itself did not exist before the emergence of the HIV/AIDS epidemic in the 1980s. How did this idea so swiftly come to exert such a strong grip on the scientific, media, and popular consciousness? In Patient Zero, Richard A. McKay interprets a wealth of archival sources and interviews to demonstrate how this seemingly new concept drew upon centuries-old ideas—and fears—about contagion and social disorder. McKay presents a carefully documented and sensitively written account of the life of Gaétan Dugas, a gay man whose skin cancer diagnosis in 1980 took on very different meanings as the HIV/AIDS epidemic developed—and who received widespread posthumous infamy when he was incorrectly identified as patient zero of the North American outbreak. McKay shows how investigators from the US Centers for Disease Control inadvertently created the term amid their early research into the emerging health crisis; how an ambitious journalist dramatically amplified the idea in his determination to reframe national debates about AIDS; and how many individuals grappled with the notion of patient zero—adopting, challenging and redirecting its powerful meanings—as they tried to make sense of and respond to the first fifteen years of an unfolding epidemic. With important insights for our interconnected age, Patient Zero untangles the complex process by which individuals and groups create meaning and allocate blame when faced with new disease threats. What McKay gives us here is myth-smashing revisionist history at its best.

The Affect Theory Reader


Melissa Gregg - 2010
    The contributors include many of the central theorists of affect—those visceral forces beneath, alongside, or generally other than conscious knowing that can serve to drive us toward movement, thought, and ever-changing forms of relation. As Lauren Berlant explores “cruel optimism,” Brian Massumi theorizes the affective logic of public threat, and Elspeth Probyn examines shame, they, along with the other contributors, show how an awareness of affect is opening up exciting new insights in disciplines from anthropology, cultural studies, geography, and psychology to philosophy, queer studies, and sociology. In essays diverse in subject matter, style, and perspective, the contributors demonstrate how affect theory illuminates the intertwined realms of the aesthetic, the ethical, and the political as they play out across bodies (human and non-human) in both mundane and extraordinary ways. They reveal the broad theoretical possibilities opened by an awareness of affect as they reflect on topics including ethics, food, public morale, glamor, snark in the workplace, and mental health regimes. The Affect Theory Reader includes an interview with the cultural theorist Lawrence Grossberg and an afterword by the anthropologist Kathleen Stewart. In the introduction, the editors suggest ways of defining affect, trace the concept’s history, and highlight the role of affect theory in various areas of study.ContributorsSara AhmedBen AndersonLauren BerlantLone BertelsenSteven D. BrownPatricia Ticineto CloughAnna GibbsMelissa GreggLawrence GrossbergBen HighmoreBrian MassumiAndrew MurphieElspeth ProbynGregory J. SeigworthKathleen StewartNigel ThriftIan TuckerMegan Watkins

Your Sexually Addicted Spouse: How Partners Can Cope and Heal


Barbara Steffens - 2009
    Your Sexually Addicted Partner shatters the stigma and shame that millions of men and women carry when their partners are sexually addicted. They receive little empathy for their pain, which means they suffer alone, often shocked and isolated by the trauma. Barbara Steffens' groundbreaking new research shows that partners are not codependents but post-traumatic stress victims, while Marsha Means' personal experience provides insights, strategies, and critical steps to recognize, deal with, and heal partners of sexually addicted relationships. Firsthand accounts and stories reveal the impact of this addiction on survivors' lives. Chapters end with “On a Personal Note” questions and propose new paths that lead from trauma to empowerment, health, and hope. Useful appendices list health and mental health care providers and clergy.

Saint Foucault: Towards a Gay Hagiography


David M. Halperin - 1995
    Thus did Harriet Beecher Stowe announce her decision to beginwork on what would become one of the most influential novels ever written. The subject she had hesitated to meddle with was slavery, and the novel, of course, was Uncle Tom's Cabin. Still debated today for its portrayal of African Americans and its unresolved place in the literary canon, Stowe'sbest-known work was first published in weekly installments from June 5, 1851 to April 1, 1852. It caused such a stir in both the North and South, and even in Great Britain, that when Stowe met President Lincoln in 1862 he is said to have greeted her with the words, So you are the little woman whowrote the book that created this great war! In this landmark book, the first full-scale biography of Harriet Beecher Stowe in over fifty years, Joan D. Hedrick tells the absorbing story of this gifted, complex, and contradictory woman. Hedrick takes readers into the multilayered world of nineteenth century morals and mores, exploring theinfluence of then-popular ideas of true womanhood on Stowe's upbringing as a member of the outspoken Beecher clan, and her eventful life as a writer and shaper of public opinion who was also a mother of seven. It offers a lively record of the flourishing parlor societies that launched andsustained Stowe throughout the 44 years of her career, and the harsh physical realities that governed so many women's lives. The epidemics, high infant mortality, and often disastrous medical practices of the day are portrayed in moving detail, against the backdrop of western expansion, and thegreat social upheaval accompanying the abolitionist movement and the entry of women into public life. Here are Stowe's public triumphs, both before and after the Civil War, and the private tragedies that included the death of her adored eighteen month old son, the drowning of another son, and the alcohol and morphine addictions of two of her other children. The daughter, sister, and wife ofprominent ministers, Stowe channeled her anguish and her ambition into a socially acceptable anger on behalf of others, transforming her private experience into powerful narratives that moved a nation. Magisterial in its breadth and rich in detail, this definitive portrait explores the full measure of Harriet Beecher Stowe's life, and her contribution to American literature. Perceptive and engaging, it illuminates the career of a major writer during the transition of literature from anamateur pastime to a profession, and offers a fascinating look at the pains, pleasures, and accomplishments of women's lives in the last century.

Learning from the Germans: Race and the Memory of Evil


Susan Neiman - 2019
    Neiman is a white woman who came of age in the civil rights–era South and a Jewish woman who has spent much of her adult life in Berlin. Working from this unique perspective, she combines philosophical reflection, personal stories, and interviews with both Americans and Germans who are grappling with the evils of their own national histories.Through discussions with Germans, including Jan Philipp Reemtsma, who created the breakthrough Crimes of the Wehrmacht exhibit, and Friedrich Schorlemmer, the East German dissident preacher, Neiman tells the story of the long and difficult path Germans faced in their effort to atone for the crimes of the Holocaust. In the United States, she interviews James Meredith about his battle for equality in Mississippi and Bryan Stevenson about his monument to the victims of lynching, as well as lesser-known social justice activists in the South, to provide a compelling picture of the work contemporary Americans are doing to confront our violent history. In clear and gripping prose, Neiman urges us to consider the nuanced forms that evil can assume, so that we can recognize and avoid them in the future.

Trans/Love: Radical Sex, Love & Relationships Beyond the Gender Binary


Morty Diamond - 2011
    Rarely has a book about lust been full of so much love, conflict, and intelligence. If you think you already know what's in these stories, or you think you don't need to know, you're wrong."—Patrick Califa, author of Sex Changes: The Politics of TransgenderismExploring the crossroads of gender and sexuality, Trans/Love: Radical Sex, Love & Relationships Beyond the Gender Binary offers unusually engaging narratives that create a raw and honest depiction of dating, sex, love, and relationships among members of the gender variant community. FTM, MTF, thirdgender, genderqueer, and other non-traditional identities beyond the gender binary of traditional male and female are included in this often heartwarming, occasionally heartbreaking, always heartfelt groundbreaking anthology. From monogamous love and marriage to anonymous sex and one-night hook-ups (and everything in between), these stories offer readers insight into the precarious emotional and practical mechanics of intimacy among gender-variant experiences.Features contributions from award-winning authors including Julia Serano, Sassafras Lowery, and Max Valerio, alongside outstanding new writing by Tribe 8 guitarist and acclaimed film director Silas Howard, activist Joelle Ruby Ryan, filmmaker Ashley Altadonna, SisterSpit alum Cooper Lee Bombardier, and many other unique and talented voices.

Unseen: The secret world of chronic illness


Jacinta Parsons - 2020
    Doctors couldn’t explain why, and Jacinta wondered if it might be in her head. She could barely function, was frequently unable to eat or get out of bed for days, and gradually turned into a shadow of herself. Eventually she got a diagnosis: Crohn’s disease. But knowing this wouldn’t stop her life from spiralling into a big mess of doctors, hospitals and medical disasters.What’s most extraordinary about Jacinta’s story is how common it is. Nearly half of Australians live with a chronic illness, but most of these conditions are not obvious, often endured in secrecy and little understood. They are unseen.With compelling candour, Jacinta trains a microscope on the unique challenges of living with an invisible condition. She lays bare the struggles with shame, loss of identity, the threat of mortality, and the profoundly complex relationships between the chronically ill and their own bodies, as well as with those around them. It’s a story of trying to fix an unfixable illness, getting beaten down then clawing back up, and how that experience can shape a life.

The Land of Open Graves: Living and Dying on the Migrant Trail


Jason De León - 2015
    The Land of Open Graves reveals the suffering and deaths that occur daily in the Sonoran Desert of Arizona as thousands of undocumented migrants attempt to cross the border from Mexico into the United States.Drawing on the four major fields of anthropology, De León uses an innovative combination of ethnography, archaeology, linguistics, and forensic science to produce a scathing critique of “Prevention through Deterrence,” the federal border enforcement policy that encourages migrants to cross in areas characterized by extreme environmental conditions and high risk of death. For two decades, this policy has failed to deter border crossers while successfully turning the rugged terrain of southern Arizona into a killing field.In harrowing detail, De León chronicles the journeys of people who have made dozens of attempts to cross the border and uncovers the stories of the objects and bodies left behind in the desert.The Land of Open Graves will spark debate and controversy.

Mad in America: Bad Science, Bad Medicine, and the Enduring Mistreatment of the Mentally Ill


Robert Whitaker - 2002
    With a muckraker's passion, Whitaker argues that modern treatments for the severely mentally ill are just old medicine in new bottles, and that we as a society are deeply deluded about their efficacy. Tracing over three centuries of "cures" for madness, Whitaker shows how medical therapies have been used to silence patients and dull their minds. He tells of the eighteenth- and nineteenth-century practices of "spinning" the insane, extracting their teeth, ovaries, and intestines, and submerging patients in freezing water. The "cures" in the 1920s and 1930s were no less barbaric as eugenic attitudes toward the mentally ill led to brain-damaging lobotomies and electroshock therapy. Perhaps Whitaker's most damning revelation, however, is his report of how drug companies in the 1980s and 1990s skewed their studies in an effort to prove the effectiveness of their products. Based on exhaustive research culled from old patient medical records, historical accounts, numerous interviews, and hundreds of government documents, Mad in America raises important questions about our obligations to the mad, what it means to be "insane," and what we value most about the human mind.

The End of Sexual Identity: Why Sex Is Too Important to Define Who We Are


Jenell Williams Paris - 2011
    And yet concepts like "gay" or "straight" are relatively recent developments in human history. We let ourselves be defined by socially constructed notions of sexual identity and sexual orientation--even though these may not be the only or best ways to think about sexuality. Anthropologist Jenell Williams Paris offers a Christian framework for sexual holiness that accounts for complex postmodern realities. She assesses problems with popular cultural and Christian understandings of heterosexuality and homosexuality alike. The End of Sexual Identity moves beyond culture-war impasses to open up new space for conversations in diverse communities both inside and outside the church.

Twice Dead: Organ Transplants and the Reinvention of Death


Margaret M. Lock - 2001
    In the majority of cases individuals diagnosed as "brain dead" are the source of the organs without which transplants could not take place. In this compelling and provocative examination, Margaret Lock traces the discourse over the past thirty years that contributed to the locating of a new criterion of death in the brain, and its routinization in clinical practice in North America. She compares this situation with that in Japan where, despite the availability of the necessary technology and expertise, brain death was legally recognized only in 1997, and then under limited and contested circumstances. Twice Dead explores the cultural, historical, political, and clinical reasons for the ready acceptance of the new criterion of death in North America and its rejection, until recently, in Japan, with the result that organ transplantation has been severely restricted in that country. This incisive and timely discussion demonstrates that death is not self-evident, that the space between life and death is historically and culturally constructed, fluid, multiple, and open to dispute. In addition to an analysis of that professional literature on and popular representations of the subject, Lock draws on extensive interviews conducted over ten years with physicians working in intensive care units, transplant surgeons, organ recipients, donor families, members of the general public in both Japan and North America, and political activists in Japan opposed to the recognition of brain death. By showing that death can never be understood merely as a biological event, and that cultural, medical, legal, and political dimensions are inevitably implicated in the invention of brain death, Twice Dead confronts one of the most troubling questions of our era.

How to Improve Your Marriage Without Talking About It: Finding Love Beyond Words


Patricia Love - 2007
    Don't make a man feel like a woman by talking to him like you would your girlfriend.

Resistance and Hope: Essays by Disabled People


Alice Wong - 2018
    This is crip wisdom for the people. Edited by Alice Wong, founder of the Disability Visibility Project, Resistance and Hope will transform the way you think about activism, leadership and social justice. How do we fight back in an era of uncertainty, institutionalized cruelty, and widespread tolerance for ableism and hate? Written in 2017, the authors explore resistance, hope, self care, disability rights and justice, and the politics of Trump in a series of provocative, challenging essays. They bring the power of intersectional cross-platform organizing and the strength found through mutual accountability to words that will help you define the resistance you want to fight for, not just the harm you want to react against. Dare to dream bigger and create space for all with this visionary essay anthology from multiply marginalized disabled people redefining an inclusive climate of resistance. The time is NOW! "Get this book right now! Resistance and Hope is the disability justice Bible you've been waiting for. If you want to read a book chock full of disabled Black, brown, queer, trans genius, real talk and vision, this book will give you comrades reassurances that we are brilliant revolutionaries and a plethora of tools and visions for how we make the road by limping, crutching, rolling, signing and stimming. I am so grateful for Alice Wong for doing the cultural work of putting this together and for every single writer in this book." — Leah Piepzna-Samarasinha, performer, community organizer, and author of Care Work: Dreaming Disability Justice (Arsenal Pulp Press, October 1, 2018) “Until our movements are fully intersectional, we will not make the progress necessary to build the equitable society we all deserve. Resistance and Hope is a necessary manual for all of us as we learn how to build movements that are as inclusive as the world we hope to see.” — Brittany Packnett, activist, educator, writer, Co-Founder of Campaign Zero and Co-Host of Pod Save the People “Resistance and Hope: Essays by Disabled People is a timely and must-read collection of essays by some of the most cutting edge leaders in the Disability Rights Movement. If you are interested in learning more about disability rights and justice, activism, and current times we are living in today take the time to read and may these pieces evoke discussions in your communities as we fight for justice and equity.” — Judy Heumann, Disability Activist “It is so necessary for people who have been historically marginalized to tell their own stories. I am proud to know Alice Wong, who is someone dedicated to telling these stories with authenticity and integrity.” — Blair Imani, Author of Modern HERstory and Founder of Equality for HER ANTHOLOGY CONTRIBUTORS Lydia X. Z. Brown Anita Cameron Cyree Jarelle Johnson DJ Kuttin Kandi Mari Kurisato Talila A. Lewis Noemi Martinez Stacey Milbern Mia Mingus Lev Mirov Leroy Moore Shain M. Neumeier Naomi Ortiz Victoria Rodríguez-Roldán Vilissa K. Thompson Aleksei Valentín Maysoon Zayid Editorial Assistant: Robin M.

Politics of Piety: The Islamic Revival and the Feminist Subject


Saba Mahmood - 2004
    Unlike those organized Islamist activities that seek to seize or transform the state, this is a moral reform movement whose orthodox practices are commonly viewed as inconsequential to Egypt's political landscape. Saba Mahmood's compelling exposition of these practices challenges this assumption by showing how the ethical and the political are indelibly linked within the context of such movements.Not only is this book a sensitive ethnography of a critical but largely ignored dimension of the Islamic revival, it is also an unflinching critique of the secular-liberal principles by which some people hold such movements to account. The book addresses three central questions: How do movements of moral reform help us rethink the normative liberal account of politics? How does the adherence of women to the patriarchal norms at the core of such movements parochialize key assumptions within feminist theory about freedom, agency, authority, and the human subject? How does a consideration of debates about embodied religious rituals among Islamists and their secular critics help us understand the conceptual relationship between bodily form and political imaginaries? Politics of Piety is essential reading for anyone interested in issues at the nexus of ethics and politics, embodiment and gender, and liberalism and postcolonialism.

Testo Junkie: Sex, Drugs, and Biopolitics in the Pharmacopornographic Era


Paul B. Preciado - 2008
    Preciado shows the ways in which the synthesis of hormones since the 1950s has fundamentally changed how gender and sexual identity are formulated, and how the pharmaceutical and pornography industries are in the business of creating desire. This riveting continuation of Michel Foucault's The History of Sexuality also includes Preciado's diaristic account of his own use of testosterone every day for one year, and its mesmerizing impact on his body as well as his imagination.