Book picks similar to
Dance Me to the End: Ten Months and Ten Days with ALS by Alison Acheson
memoir
health
non-fiction
nonfiction
How We Age: A Doctor's Journey Into the Heart of Growing Old
Marc Agronin - 2011
His beat is a nursing home in Miami that some would dismiss as “God’s waiting room.” Nothing in the young doctor’s medical training had quite prepared him for what he was to discover there. As Agronin first learned from ninety-eight-year-old Esther and, later, from countless others, the true scales of aging aren’t one-sided—you can’t list the problems without also tallying the hopes and promises. Drawing on moving personal experiences and in-depth interviews with pioneers in the field, Agronin conjures a spellbinding look at what aging means today—how our bodies and brains age, and the very way we understand aging.
Not My Boy!: A Father, A Son, and One Family's Journey with Autism
Rodney Peete - 2010
Effectively woven throughout Peete's moving account of his life with his son R.J. are the powerful voices, insights, and dreams of other fathers, high-profile figures as well as unsung heroes, who've traveled this difficult path. Autism affects four times as many boys as it does girls. For their fathers, expectations and hopes are drastically changed--as NFL star Rodney Peete's were when his son R.J. was diagnosed at the age of three. After a period of anger and denial, an all-too-common reaction among fathers, Rodney joined his wife, Holly, in her efforts to help their son. With determination, love, and understanding, the family worked with R.J. to help him once again engage with the world. Eight challenging years later, R.J. has gone from the son one doctor warned would never say "I love you" to a thriving, vibrant boy who scored his first soccer goal while his dad cheered from the sidelines. Praise for Not My Boy! "I wish I had something fancy to say, but this story is simply beyond words--just read it! I vote to make Rodney's book, Not My Boy!, required reading for every first-time, second-time, or any-other-time father."--Will Smith / actor, producer "Rodney Peete writes a compelling book that will help fathers emotionally deal with the challenge of raising a child with autism. The mental toughness of a man all but disappears when faced with this reality, but Rodney's candid message will encourage anyone who is chosen to be on this journey."--Alonzo Mourning, former NBA player "Not My Boy is a must-read for parents--especially dads--who have a child on the autism spectrum. It's inspiring, enlightening, and most importantly, truthful. Rodney gives the reader the real story on how autism can cause total dysfunction in the family, and in even the strongest of marriages, if husband and wife don't work as a team. He opens up his heart, and speaks candidly about his mistakes, all the while learning how to best help R.J. in his battle to overcome the challenges of autism. Their fight is by no means over, but the experiences that he shares will help every family, and every couple, to be better advocates, teachers, and parents."--Artie Kempner, lead director for NASCAR/NFL on Fox "A book every father needs to read! Not My Boy is about unconditional love. I read it in one weekend. . . . It was and is amazing."--Cyd Wilson, InStyle magazine
Focus - A Memoir
Ingrid Ricks - 2009
FOCUS takes readers into Ingrid’s world as she faces the crippling fear of not being able to see her two young daughters grow up, of becoming a burden to her husband, of losing the career she loves, and of being robbed of the independence that defines her.Ultimately, FOCUS is about Ingrid’s quest to fix her eyes that ends up fixing her life. Through an eight-year journey marked by a trip to South Africa to write about AIDS orphans, a four-day visit with a doctor who focuses on whole-body health, a relationship-changing confrontation with her husband and a life-changing lesson from her daughters, Ingrid learns to embrace the moment and see what counts—something no amount of vision loss can take from her.
Things That Matter: Stories of Life & Death
David Galler - 2016
This book will equally deepen the awareness of clinicians and enlighten the lay reader. It is a gift to both.' Donald M. Berwick, MD, MPPIn this highly articulate, down-to-earth, generous book, Dr David Galler tells stories of life and death from his position as Intensive Care specialist at Middlemore Hospital. Written lyrically and warmly, these stories are based on real life events describing the everyday dilemmas and challenges that doctors and patients commonly face.It aims to explain and demystify much of the work doctors do, cast light on the workings of the medical establishment and how medicine operates, in the hope that it will encourage patients to seek to be better informed and play a greater role in the decisions that will affect them and their loved ones.It speaks to the resilience of individuals and families and their extraordinary generosity and dignity under the most extreme pressure. This book is about realistic optimism and is a celebration of life.It is also a very personal story about David Galler's life, his family and about his own slow coming of age as a doctor, from the sadness and helplessness he felt about his father's death to at last feeling that he was of some use to his most important patient, his mother.
I Forgot to Remember: A Memoir of Amnesia
Su Meck - 2014
Although her body healed rapidly, her memories never returned. Yet after just three weeks in the hospital, Su was released and once again charged with the care of two toddlers and a busy household. Adrift in a world about which she understood almost nothing, Su became an adept mimic, gradually creating routines and rituals that sheltered her and her family, however narrowly, from the near-daily threat of disaster, or so she thought. Though Su would eventually relearn to tie her shoes, cook a meal, and read and write, nearly twenty years would pass before a series of personally devastating events shattered the normal life she had worked so hard to build, and she realized that she would have to grow up all over again.In her own indelible voice, Su offers us a view from the inside of a terrible injury, with the hope that her story will help give other brain injury sufferers and their families the resolve and courage to build their lives anew. Piercing, heartbreaking, but finally uplifting, this book is the true story of a woman determined to live life on her own terms.
Because We Are Bad: OCD and a Girl Lost in Thought
Lily Bailey - 2016
She had killed someone with a thought, spread untold disease, and ogled the bodies of other children. Only by performing an exhausting series of secret routines could she make up for what she’d done. But no matter how intricate or repetitive, no act of penance was ever enough.Beautifully written and astonishingly intimate, Because We Are Bad recounts a childhood consumed by obsessive compulsive disorder. As a child, Bailey created a second personality inside herself—"I" became "we"—to help manifest compulsions that drove every minute of every day of her young life. Now she writes about the forces beneath her skin, and how they ordered, organized, and urged her forward. Lily charts her journey, from checking on her younger sister dozens of times a night, to "normalizing" herself at school among new friends as she grew older, and finally to her young adult years, learning—indeed, breaking through—to make a way for herself in a big, wide world that refuses to stay in check.Charming and raw, harrowing and redemptive, Because We Are Bad is an illuminating and uplifting look into the mind and soul of an extraordinary young woman, and a startling portrait of OCD that allows us to see and understand this condition as never before.
The Complex: An Insider Exposes the Covert World of the Church of Scientology
John Duignan - 2008
Duignan describes how, two years ago, he staged a dramatic escape from the elite paramilitary group at the core of the Church, the Sea Organization, and how he narrowly evaded pursuit by the Office of Special Affairs. He looks back on the 22 years he served in the Church's secret army and describes the hours of sleep deprivation, brain-washing and intense religious counseling he endured, as he was molded into a soldier of Scientology. He talks about the money-making-machine at the heart of the Church, the Scientology goal to Clear the Planet and Get Ethics In, and the punishments meted out to anyone who transgresses. We follow his journey through the Church and the painful investigation that leads to his eventual realization that there is something very wrong at Scientology's core.--From publisher description.
There is a Reaper
Michael Lynes - 2015
A mysterious illness suddenly plunges him and his family into a frightening nightmare of hospitals and doctors and extreme therapies far from his small-town home. Can his doctors diagnose his strange disease? How will he and his family adapt to a bizarre new world they have been thrust into? Heart-wrenching, searing, and powerful, There is a Reaper immerses the reader into Christopher's intense struggle against his pitiless foe as he matures and transforms in the white heat of his epic battle.
Saving Henry: A Mother's Journey
Laurie Strongin - 2010
Saving Henry is a memoir of the author's struggle to save the life of her son Henry, who suffered from a rare childhood illness. Henry was born with a heart condition that was operable, but which proved to be a precursor for a rare, almost-always fatal illness: Fanconi anemia. Laurie, Henry's mom, decided to do everything in her power to fight the course of the disease. She and her husband signed on for a brand new procedure called PGD that, through in vitro fertilization combined with genetic testing, was supposed to be able to produce a new baby who was a carrier of the gene, but who would not become ill with it. The stem cells from the umbilical cord could then be implanted into Henry's body and ultimately save him. As Laurie puts it, "I believe in love and science, nothing more and nothing less."Laurie and her husband had a second child who was healthy but not an FA carrier, and then went through nine failed courses of PGD before they had to give up. Meanwhile, the feisty little boy who loved Batman, Cal Ripken, and root beer-flavored anesthesia captivated everyone who came in contact with him, from New York City to Minneapolis, with his spunk and "never give up" attitude. Henry was the little kid who, when the nurses came to take blood samples, brandished his Harry Potter sword and said, "Bring it on!" and when he lost his hair after a chemo treatment, he declared, "Hey, I look like Michael Jordan!" Laurie became a lobbyist for stem cell research, testifying before Congress, written up by Lisa Belkin in the New York Times and other media, and appearing on Nightline to discuss Henry's case and the importance of the research. Throughout it all, Henry's courage and bravery were a source of inspiration for the many nurses, doctors, friends and family who interacted with him-- and he has saved many lives through his participation in groundbreaking research. This is the moving and incredibly inspiring story of this family's search for a cure, and the impact their amazing son had on the lives of so many.
My Emily
Matt Patterson - 2011
Emily wasn't born perfect - so one might think. She was born with Down Syndrome and many would jump to the conclusion that she would have very little hope for a life with any significance. Two years later came the diagnosis of leukemia. What little hope remaining turned to no hope whatsoever - or so one might think. The life of this little girl, with all its perceived imperfections, had great meaning. Her loving nature and courage touched the hearts of everyone she met. She also taught them how to value their own lives - even with their many "imperfections."
Happiness: The Crooked Little Road to Semi-Ever After
Heather Harpham - 2017
Their magical interlude ends, full stop, when Heather becomes pregnant - Brian is sure he loves her, only he doesn't want kids. Heather returns to California to deliver their daughter alone, buoyed by family and friends. Mere hours after Gracie's arrival, Heather's bliss is interrupted when a nurse wakes her, "Get dressed, your baby is in trouble." This is not how Heather had imagined new motherhood – alone, heartsick, an unexpectedly solo caretaker of a baby who smelled "like sliced apples and salted pretzels" but might be perilously ill. Brian reappears as Gracie's condition grows dire; together Heather and Brian have to decide what they are willing to risk to ensure their girl sees adulthood. The grace and humor that ripple through Harpham's writing transform the dross of heartbreak and parental fears into a clear-eyed, warm-hearted view of the world. Profoundly moving and subtly written, Happiness radiates in many directions - new, romantic love; gratitude for a beautiful, inscrutable world; deep, abiding friendship; the passion a parent has for a child; and the many unlikely ways to build a family. Ultimately it's a story about love and happiness, in their many crooked configurations.
And Then I Cried: Stories of a Mortuary NCO
Justin Jordan - 2012
Jordan details life as an Air Force Mortuary Non Commissioned Officer. In his stunning debut Jordan forces the reader to walk beside him on his journey in this gruesome world. Jordan holds nothing back, and shares in graphic detail how he honored Americas heroes, both at deployed locations and stateside. This book will pry your eyes wide open as you gasp from the sheer horror he faced daily, from dealing with the families of the fallen, to witnessing the embalming and preparations of the deceased. Jordan also shares how this job taxed his mental well being, as he suffered in silence, longing not to care. Jordan is still serving on Active Duty and suffers from the crippling effects of PTSD, his story will enlighten you, it will touch you, and yes, you will cry.
Hazard: A Sister's Flight from Family and a Broken Boy
Margaret Combs - 2017
Margaret Combs shows how her Southern Baptist family coped with the lived reality of autism in an era of ignorance and shame, the 1950s through the 1970s, and shares her own tragedy and anguish of being torn between helping her brother and yearning for her own life. Like many siblings of disabled children, young Margaret drives herself to excel in order to make up for her family’s sorrow and ultimately flees her family for what she hopes is a “normal” life.Hazard is also a story of indelible bonds between siblings: the one between Combs and her sister, and the deep and rueful one she has with her disabled brother; how he and she were buddies; and how fervently she wanted to make him whole. Initially fueled by a wish that her brother had never been born, the author eventually arrives in a deeper place of gratitude for this same brother, whom she loves and who loves her in return.
Fall Down, Laughing: How Squiggy Caught Multiple Sclerosis and Didn't Tell Nobody
David L. Lander - 2000
The actor shares his sixteen-year struggle to hide his multiple sclerosis from his wife, daughter, and the public from his first signs of vertigo five years after Laverne & Shirley until his decision to announce his illness.
The Coitus Chronicles: My Quest for Sex, Love, and Orgasms
Olive B. Persimmon - 2019
Just say yes!Meet Olive Persimmon. Growing up, she looked exactly like Danny DeVito, except she was thirteen and a girl. By some miracle, she grew into a relatively normal, well-adjusted thirty-something woman living in New York City—with one notable exception: she hasn’t had sex in five years, one month, three days, two-point-five hours . . . and counting.Faced with bona fide sex rut, she decides it's time to take action to save her love life and get her mojo back. Challenged by a friend to "say yes" to experiences she might normally avoid, Olive embarks on a series of adventures and explores everything from BDSM classes to cuddlers-for-hire, from foot fetishes to lessons with a top-ranked pickup artist, and more! Each awkward, funny, and sometimes downright embarrassing encounter brings Olive closer to discovering the power of saying yes—to herself, others, and life itself.For fans of Jenny Slate, this is a funny, irreverent, and honest tale of one young woman's journey to reclaim her sexuality on the fringes of New York City's sex and dating world.Readers can see for themselves how this girl next door overcame insecurities around dating, sex, and love--all with openness, honesty, and a wicked sense of humor. Along the way, readers will wonder: Will Olive ever have sex again? Will her love life be okay? Will her toe fungus come back? Does she ever find her mojo, and where was it hiding?