Book picks similar to
Waist-High in the World: A Life Among the Nondisabled by Nancy Mairs
disability
nonfiction
memoir
non-fiction
My Body Is a Book of Rules
Elissa Washuta - 2014
When her mood-stabilizing medications aren’t threatening her life, they’re shoving her from depression to mania and back in the space of an hour. Her crisis of American Indian identity bleeds into other areas of self-doubt; mental illness, sexual trauma, ethnic identity, and independence become intertwined. Sifting through the scraps of her past in fifteen formally inventive chapters, Washuta aligns the strictures of her Catholic school education with Cosmopolitan’s mandates for womanhood, views memories through the distorting lens of Law & Order: Special Victims Unit, and contrasts her bipolar highs and lows with those of Britney Spears and Kurt Cobain. Built on the bones of fundamental identity questions as contorted by a distressed brain, My Body Is a Book of Rules pulls no punches in its self-deprecating and ferocious look at human fallibility.
Moving Violations: War Zones, Wheelchairs, and Declarations of Independence
John Hockenberry - 1995
It is a story of obstacles--physical, emotional, and psychic--overcome again, and again, and again. Whether riding a mule up a hillside in Iraq surrounded by mud-stained Kurdish refugees, navigating his wheelchair through intractable stretches of Middle Eastern sand, or auditioning to be the first journalist in space, John Hockenberry, ace reporter, is determined not only to bring back the story, but also to prove that nothing can hold him back from death-defying exploits. However, he will never be a poster boy for a Jerry Lewis telethon. A paraplegic since an auto accident at age nineteen, Hockenberry holds nothing back in this achingly honest, often hilarious chronicle that ranges from the Ayatollah's funeral (where his wheelchair is pushed by a friendly Iranian chanting "Death to all Americans"), to the problems of crip sex and the inaccessibility of the New York City subway system. In this immensely moving chronicle--so filled with marvelous storytelling that it reads like a novel--John Hockenberry finds that the most difficult journey is the one that begins at home, as he confronts the memories of his beloved one-armed grandfather, and finally meets his institutionalized Uncle Peter, whose very existence was long a secret buried in the family history.Moving Violations is a sometimes harrowing but ultimately joyful ride.
My Leaky Body: Tales from the Gurney
Julie Devaney - 2012
Julie Devaney takes us on a journey through the health care system as she is diagnosed and treated for ulcerative colitis. In and out of emergency rooms in Vancouver and Toronto, she’s poked, prodded, and abandoned to a closet at one point, bearing the helplessness and indignities of a system that at best confuses a patient into silence.Raw, harrowing, and darkly funny, Julie Devaney argues convincingly for fixes to the system and better training for all medical personnel. As she recovers, she sets out to do just that: setting up a gurney on stage at workshops and conferences across the country to teach Bedside Manners 101 and to advocate for repairs to the system.Part memoir, part love story, part revolutionary manifesto, My Leaky Body is politically astute, gooey like cake batter, and raw like ulcerated bowels. Devaney writes the book that will heal her aching heart and relax her strictured rectum as she weaves stories from professional and public interactions with tales from her gurney.
The Valedictorian of Being Dead: The True Story of Dying Ten Times to Live
Heather B. Armstrong - 2019
Armstrong writes about her experience as one of only a few people to participate in an experimental treatment for depression involving ten rounds of a chemically induced coma approximating brain death.For years, Heather B. Armstrong has alluded to her struggle with depression on her website. But in 2016, Heather found herself in the depths of a depression she just couldn’t shake, an episode darker and longer than anything she had previously experienced. This book recalls the torturous eighteen months of suicidal depression she endured and the month-long experimental study in which doctors used propofol anesthesia to quiet all brain activity for a full fifteen minutes before bringing her back from a flatline. Ten times. The experience wasn’t easy. Not for Heather or her family. But a switch was flipped, and Heather hasn’t experienced a single moment of suicidal depression since. The Valedictorian of Being Dead brings to light a groundbreaking new treatment for depression.
The Invisible Kingdom: Reimagining Chronic Illness
Meghan O'Rourke - 2022
Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier. Drawing on her own medical experiences as well as a decade of interviews with doctors, patients, researchers, and public health experts, O’Rourke traces the history of Western definitions of illness, and reveals how inherited ideas of cause, diagnosis, and treatment have led us to ignore a host of hard-to-understand medical conditions, ones that resist easy description or simple cures. And as America faces this health crisis of extraordinary proportions, the populations most likely to be neglected by our institutions include women, the working class, and people of color. Blending lyricism and erudition, candor and empathy, O’Rourke brings together her deep and disparate talents and roles as critic, journalist, poet, teacher, and patient, synthesizing the personal and universal into one monumental project arguing for a seismic shift in our approach to disease. The Invisible Kingdom offers hope for the sick, solace and insight for their loved ones, and a radical new understanding of our bodies and our health.
Wasted: A Memoir of Anorexia and Bulimia
Marya Hornbacher - 1997
A vivid, honest, and emotionally wrenching memoir, Wasted is the story of one woman's travels to reality's darker side—and her decision to find her way back on her own terms.
Eyes to the Wind: A Memoir of Love and Death, Hope and Resistance
Ady Barkan - 2019
But one day, he noticed a troubling weakness in his hand. At first, he brushed it off as carpal tunnel syndrome, but after a week of neurological exams and two MRIs, he learned the cause of the problem: amyotrophic lateral sclerosis, better known as ALS or Lou Gehrig’s disease. At age thirty-two, Ady was given just three to four years to live. Yet despite the devastating diagnosis, he refused to let his remaining days go to waste. Eyes to the Wind is a rousing memoir featuring intertwining storylines about determination, perseverance, and how to live a life filled with purpose and intention. The first traces Ady’s battle with ALS: how he turned the initial shock and panic from his diagnosis into a renewed commitment to social justice—not despite his disability but because of it. The second, told in flashbacks, illustrates Ady’s journey from a goofy political nerd to a prominent figure in the enduring fight for equity and justice whose “selfless activism fighting to make health care a right should be an inspiration to us all” (Senator Bernie Sanders). From one of today’s most vocal advocates for social justice, Eyes to the Wind’s “primary question is existential: how to live when you are dying? Barkan’s answer is to share, open up, act, and capital-R Resist, and his memoir, clearly and candidly written, establishes a legacy” (Booklist).
My Stroke of Insight: A Brain Scientist's Personal Journey
Jill Bolte Taylor - 2006
Through the eyes of a curious scientist, she watched her mind deteriorate whereby she could not walk, talk, read, write, or recall any of her life. Because of her understanding of the brain, her respect for the cells in her body, and an amazing mother, Jill completely recovered. In My Stroke of Insight, she shares her recommendations for recovery and the insight she gained into the unique functions of the two halves of her brain. When she lost the skills of her left brain, her consciousness shifted away from normal reality where she felt "at one with the universe." Taylor helps others not only rebuild their brains from trauma, but helps those of us with normal brains better understand how we can consciously influence the neural circuitry underlying what we think, how we feel and how we react to life's circumstances.
Recollections of My Nonexistence: A Memoir
Rebecca Solnit - 2020
She tells of being poor, hopeful, and adrift in the city that became her great teacher; of the small apartment that, when she was nineteen, became the home in which she transformed herself; of how punk rock gave form and voice to her own fury and explosive energy.Solnit recounts how she came to recognize the epidemic of violence against women around her, the street harassment that unsettled her, the trauma that changed her, and the authority figures who routinely disdained and disbelieved girls and women, including her. Looking back, she sees all these as consequences of the voicelessness that was and still is the ordinary condition of women, and how she contended with that while becoming a writer and a public voice for women’s rights.She explores the forces that liberated her as a person and as a writer—books themselves, the gay men around her who offered other visions of what gender, family, and joy could be, and her eventual arrival in the spacious landscapes and overlooked conflicts of the American West. These influences taught her how to write in the way she has ever since, and gave her a voice that has resonated with and empowered many others.
Mill Town: Reckoning with What Remains
Kerri Arsenault - 2020
For over 100 years the community orbited around a paper mill that employs most townspeople, including three generations of Arsenault’s own family. Years after she moved away, Arsenault realized the price she paid for her seemingly secure childhood. The mill, while providing livelihoods for nearly everyone, also contributed to the destruction of the environment and the decline of the town’s economic, physical, and emotional health in a slow-moving catastrophe, earning the area the nickname “Cancer Valley.” Mill Town is an personal investigation, where Arsenault sifts through historical archives and scientific reports, talks to family and neighbors, and examines her own childhood to illuminate the rise and collapse of the working-class, the hazards of loving and leaving home, and the ambiguous nature of toxics and disease. Mill Town is a moral wake-up call that asks, Whose lives are we willing to sacrifice for our own survival?
The Sound of a Wild Snail Eating
Elisabeth Tova Bailey - 2010
While an illness keeps her bedridden, Bailey watches a wild snail that has taken up residence on her nightstand. As a result, she discovers the solace and sense of wonder that this mysterious creature brings and comes to a greater understanding of her own confined place in the world. Intrigued by the snail’s molluscan anatomy, cryptic defenses, clear decision making, hydraulic locomotion, and mysterious courtship activities, Bailey becomes an astute and amused observer, providing a candid and engaging look into the curious life of this underappreciated small animal. Told with wit and grace, The Sound of a Wild Snail Eating is a remarkable journey of survival and resilience, showing us how a small part of the natural world illuminates our own human existence and provides an appreciation of what it means to be fully alive.
Okay Fine Whatever: The Year I Went from Being Afraid of Everything to Only Being Afraid of Most Things
Courtenay Hameister - 2018
She fretted about everything. Her age. Her size. Her romantic prospects. How likely it was that she would get hit by a bus on the way home. Until a couple years ago, when, in her mid-forties, she decided to fight back against her debilitating anxieties by spending a year doing little things that scared her--things that the average person might consider doing for a half second before deciding: "nope." Things like: attending a fellatio class. She did that. She also spent an afternoon in a sensory deprivation tank, got (legally) high in the middle of a workday, had a session with a professional cuddler, braved twenty-eight first dates, and (perhaps scariest of all) actually met someone who might possibly appreciate her for who she is.
Are You Somebody?: The Accidental Memoir of a Dublin Woman
Nuala O'Faolain - 1996
There are thousands who have yet to discover this extraordinary memoir of an Irish woman who has stepped away from the traditional roles to define herself and find contentment. They will make this paperback a long-selling classic.
So Sad Today: Personal Essays
Melissa Broder - 2016
In the fall of 2012, she went through a harrowing cycle of panic attacks and dread that wouldn't abate for months. So she began @sosadtoday, an anonymous Twitter feed that allowed her to express her darkest feelings, and which quickly gained a dedicated following. In So Sad Today, Broder delves deeper into the existential themes she explores on Twitter, grappling with sex, death, love, low self-esteem, addiction, and the drama of waiting for the universe to text you back. With insights as sharp as her humor, Broder explores—in prose that is both gutsy and beautiful, aggressively colloquial and achingly poetic—questions most of us are afraid to even acknowledge, let alone answer, in order to discover what it really means to be a person in this modern world.
Care Work: Dreaming Disability Justice
Leah Lakshmi Piepzna-Samarasinha - 2018
Powerful and passionate, Care Work is a crucial and necessary call to arms.