He kept his cerebral palsy a secret from the record- keepers and medical authorities for 20 years. He had a distinguished and highly decorated career despite the pain he endured to appear normal.He served on board destroyers, a battleship, two aircraft carriers and functioned as an administrator for a Seal unit. The outside world also impacted on him further aggravating his CP when he was challenged by alcoholism and excessive grief caused by the suicide of a brother. With help, John Quinn triumphed over both, as he did the painful cerebral palsy.

    From the mid-nineteenth century to the early twentieth, over 250 institutions for the insane were built throughout the United States; by 1948, they housed more than a half million patients. The blueprint for these hospitals was set by Pennsylvania hospital superintendent Thomas Story Kirkbride: a central administration building flanked symmetrically by pavilions and surrounded by lavish grounds with pastoral vistas. Kirkbride and others believed that well-designed buildings and grounds, a peaceful environment, a regimen of fresh air, and places for work, exercise, and cultural activities would heal mental illness. But in the second half of the twentieth century, after the introduction of psychotropic drugs and policy shifts toward community-based care, patient populations declined dramatically, leaving many of these beautiful, massive buildings--and the patients who lived in them--neglected and abandoned. Architect and photographer Christopher Payne spent six years documenting the decay of state mental hospitals like these, visiting seventy institutions in thirty states. Through his lens we see splendid, palatial exteriors (some designed by such prominent architects as H. H. Richardson and Samuel Sloan) and crumbling interiors--chairs stacked against walls with peeling paint in a grand hallway; brightly colored toothbrushes still hanging on a rack; stacks of suitcases, never packed for the trip home. Accompanying Payne's striking and powerful photographs is an essay by Oliver Sacks (who described his own experience working at a state mental hospital in his book Awakenings). Sacks pays tribute to Payne's photographs and to the lives once lived in these places, "where one could be both mad and safe."

     Elinor Cleghorn became an unwell woman ten years ago. She was diagnosed with an autoimmune disease after a long period of being told her symptoms were anything from psychosomatic to a possible pregnancy. As Elinor learned to live with her unpredictable disease she turned to history for answers, and found an enraging legacy of suffering, mystification, and misdiagnosis.In Unwell Women, Elinor Cleghorn traces the almost unbelievable history of how medicine has failed women by treating their bodies as alien and other, often to perilous effect. The result is an authoritative and groundbreaking exploration of the relationship between women and medical practice, from the wandering womb of Ancient Greece to the rise of witch trials across Europe, and from the dawn of hysteria as a catchall for difficult-to-diagnose disorders to the first forays into autoimmunity and the shifting understanding of hormones, menstruation, menopause, and conditions like endometriosis.Packed with character studies and case histories of women who have suffered, challenged, and rewritten medical orthodoxy--and the men who controlled their fate--this is a revolutionary examination of the relationship between women, illness, and medicine. With these case histories, Elinor pays homage to the women who suffered so strides could be made, and shows how being unwell has become normalized in society and culture, where women have long been distrusted as reliable narrators of their own bodies and pain. But the time for real change is long overdue: answers reside in the body, in the testimonies of unwell women--and their lives depend on medicine learning to listen.

    Presented in 31 daily thoughts, this compassionate guide will help you begin to get free of the shame and anxiety you feel over home care.Inside you will learn:· How to shift your perspective of care tasks from moral to functional· How to stop negative self-talk and shame around care tasks· How to give yourself permission to rest, even when things aren’t finished· How to motivate yourself to care for your space

    In this captivating story, Manguso recalls her struggle: arduous blood cleansings, collapsed veins, multiple chest catheters, depression, the deaths of friends and strangers, addiction, and, worst of all for a writer, the trite metaphors that accompany prolonged illness. A book of tremendous grace, The Two Kinds of Decay transcends the very notion of what an illness story can and should be.

    During the day, she worked with toddlers with significant delays in language development and used Augmentative and Alternative Communication (AAC) devices to help them communicate. At night, she wondered: If dogs can understand words we say to them, shouldn't they be able to say words to us? Can dogs use AAC to communicate with humans?Christina decided to put her theory to the test with Stella and started using a paw-sized button programmed with her voice to say the word "outside" when clicked, whenever she took Stella out of the house. A few years later, Stella now has a bank of more than thirty word buttons, and uses them daily either individually or together to create near-complete sentences.How Stella Learned to Talk is part memoir and part how-to guide. It chronicles the journey Christina and Stella have taken together, from the day they met, to the day Stella "spoke" her first word, and the other breakthroughs they've had since. It also reveals the techniques Christina used to teach Stella, broken down into simple stages and actionable steps any dog owner can use to start communicating with their pets.Filled with conversations that Stella and Christina have had, as well as the attention to developmental detail that only a speech-language pathologist could know, How Stella Learned to Talk will be the indispensable dog book for the new decade.

    And yet, whenever somebody discovers that I am deaf, my body still reacts with churning terror. How do you build up a sense of robust pride when your body has taught itself to be fearful?Fiona Murphy’s memoir about being deaf is a revelation.Secrets are heavy, burdensome things. Imagine carrying a secret that if exposed could jeopardise your chances of securing a job and make you a social outcast. Fiona Murphy kept her deafness a secret for over twenty-five years.But then, desperate to hold onto a career she’d worked hard to pursue, she tried hearing aids. Shocked by how the world sounded, she vowed never to wear them again. After an accident to her hand, she discovered that sign language could change her life, and that Deaf culture could be part of her identity.Just as Fiona thought she was beginning to truly accept her body, she was diagnosed with a rare condition that causes the bones of the ears to harden. She was steadily losing her residual hearing. The news left her reeling.Blending memoir with observations on the healthcare industry, The Shape of Sound is a story about the corrosive power of secrets, stigma and shame, and how deaf experiences and disability are shaped by economics, social policy, medicine and societal expectations.This is the story of how Fiona learns to listen to her body. If you enjoy the writing of Bri Lee and Fiona Wright, this is a book for you.

    To learn how others had moved beyond labels, he bought his own short bus and set out cross-country, looking for kids who had dreamed up magical, beautiful ways to overcome the obstacles that separated them from the so-called normal world.The Short Bus is his irreverent and poignant record of that odyssey, meeting thirteen people in thirteen states who taught Mooney that there’s no such thing as normal—and that to really live, every person must find their own special way of keeping on.  The Short Bus is a unique gem, propelled by Mooney’s heart, humor, and outrageous rebellions.

    What about on a scale of spicy to citrus? Is it more like a lava lamp or a mosaic? Pain, though a universal element of human experience, is dimly understood and sometimes barely managed. Pain Woman Takes Your Keys, and Other Essays from a Nervous System is a collection of literary and experimental essays about living with chronic pain. Sonya Huber moves away from a linear narrative to step through the doorway into pain itself, into that strange, unbounded reality. Although the essays are personal in nature, this collection is not a record of the author’s specific condition but an exploration that transcends pain’s airless and constraining world and focuses on its edges from wild and widely ranging angles. Huber addresses the nature and experience of invisible disability, including the challenges of gender bias in our health care system, the search for effective treatment options, and the difficulty of articulating chronic pain. She makes pain a lens of inquiry and lyricism, finds its humor and complexity, describes its irascible character, and explores its temperature, taste, and even its beauty.

    Combining attachment theory, trauma research, and emotionally focused therapeutic techniques, Susan M. Johnson guides the clinician in modifying the interactional patterns that maintain traumatic stress and fostering positive, healing relationships among survivors and their partners. In-depth case material brings to life the process of assessment and treatment with couples coping with the impact of different kinds of trauma, including childhood abuse, serious illness, and combat experiences. The concluding chapter features valuable advice on therapist self-care.

    No one yet knew that an experimental antibiotic given to her mother had wreaked havoc on her fetal nervous system, eventually causing her to go deaf. As a self-proclaimed "child freak," she acted out her fury with her boxy hearing aids and Coke-bottle glasses by faking her own drowning at a camp for crippled children. Ever since that first real-life performance, Galloway has used theater, whether onstage or off, to defy and transcend her reality. With disarming candor, she writes about her mental breakdowns, her queer identity, and living in a silent, quirky world populated by unforgettable characters. What could have been a bitter litany of complaint is instead an unexpectedly hilarious and affecting take on life.From the Trade Paperback edition.

    Say hello to Carly.'In fairytales, the characters who look different are often cast as the villain or monsters. It's only when they shed their unconventional skin that they are seen as "good" or less frightening. There are very few stories where the character that looks different is the hero of the story ... I've been the hero of my story - telling it on my own terms, proud about my facial difference and disability, not wanting a cure for my rare, severe and sometimes confronting skin condition, and knowing that I am beautiful even though I don't have beauty privilege.'This honest, outspoken and thought-provoking memoir by award-winning writer and appearance activist Carly Findlay will challenge all your assumptions and beliefs about what it is like to have a visibly different appearance. Carly lives with a rare skin condition, Ichthyosis, and what she faces every day, and what she has to live with, will have you cheering for her and her courage and irrepressible spirit. This is both a moving memoir and a proud manifesto on disability and appearance diversity issues.'Believe the hype - by turns frank, funny, and fearsome, Findlay's extraordinary memoir is an early contender for 2019's best Australian non-fiction ... a powerful and moving invitation to examine the structures of privilege and dehumanisation that we so desperately need address in this country.' Better Read Than Dead

    The Anatomy of Peace asks, What if conflicts at home, conflicts at work, and conflicts in the world stem from the same root cause? What if we systematically misunderstand that cause? And what if, as a result, we unwittingly perpetuate the very problems we think we are trying to solve? Through an intriguing story we learn how and why we contribute to the divisions and problems we blame on others and the surprising way that these problems can be solved. Yusuf al-Falah, an Arab, and Avi Rozen, a Jew, each lost his father at the hands of the other's ethnic cousins. The Anatomy of Peace is the story of how they came together, how they help warring parents and children come together, and how we too can find our way out of the struggles that weigh us down. This second edition includes new sections enabling readers to go deeper into the book's key concepts; access to free digital study and discussion guides; and information about The Reconciliation Project, a highly successful global peace initiative based on concepts in The Anatomy of Peace.

    The result is a book so relentlessly funny and frank, it's totally refreshing.

    She was repeatedly hospitalized in excruciating pain, but the doctors insisted it was a urinary tract infection and sent her home with antibiotics. Unable to get out of bed, much less attend class, Norman dropped out of college and embarked on what would become a years-long journey to discover what was wrong with her. It wasn't until she took matters into her own hands--securing a job in a hospital and educating herself over lunchtime reading in the medical library--that she found an accurate diagnosis of endometriosis.In Ask Me About My Uterus, Norman describes what it was like to have her pain dismissed, to be told it was all in her head, only to be taken seriously when she was accompanied by a boyfriend who confirmed that her sexual performance was, indeed, compromised. Putting her own trials into a broader historical, sociocultural, and political context, Norman shows that women's bodies have long been the battleground of a never-ending war for power, control, medical knowledge, and truth. It's time to refute the belief that being a woman is a preexisting condition.