The Diving Bell and the Butterfly


Jean-Dominique Bauby - 1997
    In my case, blinking my left eyelid is my only means of communication.’In December 1995, Jean-Dominique Bauby, editor-in-chief of French ‘Elle’ and the father of two young children, suffered a massive stroke and found himself paralysed and speechless, but entirely conscious, trapped by what doctors call ‘locked-in syndrome’. Using his only functioning muscle – his left eyelid – he began dictating this remarkable story, painstakingly spelling it out letter by letter.His book offers a haunting, harrowing look inside the cruel prison of locked-in syndrome, but it is also a triumph of the human spirit.

When Rabbit Howls


Truddi Chase - 1987
    What surfaced was terrifying: she was inhabited by 'the Troops'-92 individual personalities. This groundbreaking true story is made all the more extraordinary in that it was written by the Troops themselves. What they reveal is a spellbinding descent into a personal hell-and an ultimate deliverance for the woman they became.

It's Not Yet Dark


Simon Fitzmaurice - 2014
    He was given four years to live. In 2010, in a state of lung-function collapse, Simon knew with crystal clarity that now was not his time to die. Against all prevailing medical opinion, he chose to ventilate in order to stay alive.Here, the young filmmaker, a husband and father of five small children draws us deeply into his inner world. Told in simply expressed and beautifully stark prose - in the vein of such memoirs as Jean-Dominique Bauby's The Diving Bell and the Butterfly - the result is an astonishing journey into a life which, though brutally compromised, is lived more fully and in the moment than most, revealing at its core the power of love its most potent.Written using an eye-gaze computer, It's Not Yet Dark is an unforgettable book about relationships and family, about what connects and separates us as people and, ultimately, about what it means to be alive.

The Shapeless Unease: A Year of Not Sleeping


Samantha Harvey - 2020
    She tried everything to appease her wakefulness: from medication to therapy, changes in her diet to changes in her living arrangements. Nothing seemed to help.The Shapeless Unease is Harvey's darkly funny and deeply intelligent anatomy of her insomnia, an immersive interior monologue of a year without one of the most basic human needs. Original and profound, and narrated with a lucid breathlessness, this is a startlingly insightful exploration of memory, writing and influence, death and the will to survive, from "this generation's Virginia Woolf" (Telegraph).

Life Among the Savages


Shirley Jackson - 1953
    But the writer possessed another side, one which is delightfully exposed in this hilariously charming memoir of her family's life in rural Vermont. Fans of Please Don't Eat the Daisies, Cheaper by the Dozen, and anything Erma Bombeck ever wrote will find much to recognize in Shirley Jackson's home and neighborhood: children who won't behave, cars that won't start, furnaces that break down, a pugnacious corner bully, household help that never stays, and a patient, capable husband who remains lovingly oblivious to the many thousands of things mothers and wives accomplish every single day."Our house," writes Jackson, "is old, noisy, and full. When we moved into it we had two children and about five thousand books; I expect that when we finally overflow and move out again we will have perhaps twenty children and easily half a million books." Jackson's literary talents are in evidence everywhere, as is her trenchant, unsentimental wit. Yet there is no mistaking the happiness and love in these pages, which are crowded with the raucous voices of an extraordinary family living a wonderfully ordinary life.

Sickened: The Memoir of a Munchausen by Proxy Childhood


Julie Gregory - 2003
    Just twelve, she’s tall, skinny, and weak. It’s four o’clock, and she hasn’t been allowed to eat anything all day. Her mother, on the other hand, seems curiously excited. She's about to suggest open-heart surgery on her child to "get to the bottom of this." She checks her teeth for lipstick and, as the doctor enters, shoots the girl a warning glance. This child will not ruin her plans.SickenedFrom early childhood, Julie Gregory was continually X-rayed, medicated, and operated on—in the vain pursuit of an illness that was created in her mother’s mind. Munchausen by proxy (MBP) is the world’s most hidden and dangerous form of child abuse, in which the caretaker—almost always the mother—invents or induces symptoms in her child because she craves the attention of medical professionals. Many MBP children die, but Julie Gregory not only survived, she escaped the powerful orbit of her mother's madness and rebuilt her identity as a vibrant, healthy young woman.Sickened is a remarkable memoir that speaks in an original and distinctive Midwestern voice, rising to indelible scenes in prose of scathing beauty and fierce humor. Punctuated with Julie's actual medical records, it re-creates the bizarre cocoon of her family's isolated double-wide trailer, their wild shopping sprees and gun-waving confrontations, the astonishing naïveté of medical professionals and social workers. It also exposes the twisted bonds of terror and love that roped Julie's family together—including the love that made a child willing to sacrifice herself to win her mother's happiness. The realization that the sickness lay in her mother, not in herself, would not come to Julie until adulthood. But when it did, it would strike like lightning. Through her painful metamorphosis, she discovered the courage to save her own life—and, ultimately, the life of the girl her mother had found to replace her. Sickened takes us to new places in the human heart and spirit. It is an unforgettable story, unforgettably told.

Phosphorescence: On Awe, Wonder and Things That Sustain You When the World Goes Dark


Julia Baird - 2020
    We know, for example, that there are a few core truths to science of happiness. We know that being kind and altruistic makes us happy, that turning off devices, talking to people, forging relationships, living with meaning and delving into the concerns of others offer our best chance at achieving happiness. But how do we retain happiness? It often slips out of our hands as quickly as we find it. So, when we are exposed to, or learn, good things, how do we continue to burn with them?And more than that, when our world goes dark, when we're overwhelmed by illness or heartbreak, loss or pain, how do we survive, stay alive or even bloom? In the muck and grit of a daily existence full of disappointments and a disturbing lack of control over many of the things that matter most - finite relationships, fragile health, fraying economies, a planet in peril - how do we find, nurture and carry our own inner, living light - a light to ward off the darkness?Absorbing, achingly beautiful, inspiring and deeply moving, Julia Baird has written exactly the book we need for these times.

The Body in Pain: The Making and Unmaking of the World


Elaine Scarry - 1985
    The book is an analysis of physical suffering and its relation to the numerous vocabularies and cultural forces--literary, political, philosophical, medical, religious--that confront it. Elaine Scarry bases her study on a wide range of sources: literature and art, medical case histories, documents on torture compiled by Amnesty International, legal transcripts of personal injury trials, and military and strategic writings by such figures as Clausewitz, Churchill, Liddell Hart, and Kissinger, She weaves these into her discussion with an eloquence, humanity, and insight that recall the writings of Hannah Arendt and Jean-Paul Sartre. Scarry begins with the fact of pain's inexpressibility. Not only is physical pain enormously difficult to describe in words--confronted with it, Virginia Woolf once noted, "language runs dry"--it also actively destroys language, reducing sufferers in the most extreme instances to an inarticulate state of cries and moans. Scarry analyzes the political ramifications of deliberately inflicted pain, specifically in the cases of torture and warfare, and shows how to be fictive. From these actions of "unmaking" Scarry turns finally to the actions of "making"--the examples of artistic and cultural creation that work against pain and the debased uses that are made of it. Challenging and inventive, The Body in Pain is landmark work that promises to spark widespread debate.

All in My Head: An Epic Quest to Cure an Unrelenting, Totally Unreasonable, and Only Slightly Enlightening Headache


Paula Kamen - 2005
    While she was putting in her contacts, the left lens disturbed a constellation of nerves behind her eye. The pain was more piercing than that of any other headache she had ever experienced. More than a decade later, she still has a headache-the exact same headache. From surgery to a battery of Botox injections to a dousing of Lithuanian holy water, from a mountain of pharmaceutical products to aromatherapy and even a vibrating hat, All in My Head chronicles the sometimes frightening, usually absurd, and always ineffective remedies Kamen-like so many others-tried in order to relieve the pain. Beleaguered and frustrated by doctors who, frustrated themselves, periodically declared her pain psychosomatic, she came to understand the plight of the millions who suffer chronic pain in its many forms. Full of self-deprecating humor and razorsharp reporting, All in My Head is the remarkable story of patience, acceptance, and perseverance in the face of terrifying pain.

Ex Libris: Confessions of a Common Reader


Anne Fadiman - 1998
    For Fadiman, as for many passionate readers, the books she loves have become chapters in her own life story. Writing with remarkable grace, she revives the tradition of the well-crafted personal essay, moving easily from anecdotes about Coleridge and Orwell to tales of her own pathologically literary family. As someone who played at blocks with her father's 22-volume set of Trollope ("My Ancestral Castles") and who only really considered herself married when she and her husband had merged collections ("Marrying Libraries"), she is exquisitely well equipped to expand upon the art of inscriptions, the perverse pleasures of compulsive proof-reading, the allure of long words, and the satisfactions of reading out loud. There is even a foray into pure literary gluttony: Charles Lamb liked buttered muffin crumbs between the leaves, and Fadiman knows of more than one reader who literally consumes page corners. Perfectly balanced between humor and erudition, Ex Libris establishes Fadiman as one of our finest contemporary essayists.

Crazy Brave


Joy Harjo - 2012
    She attended an Indian arts boarding school, where she nourished an appreciation for painting, music, and poetry; gave birth while still a teenager; and struggled on her own as a single mother, eventually finding her poetic voice.Narrating the complexities of betrayal and love, Crazy Brave is a memoir about family and the breaking apart necessary in finding a voice. Harjo’s tale of a hardscrabble youth, young adulthood, and transformation into an award-winning poet and musician is haunting, unique, and visionary.

Dictee


Theresa Hak Kyung Cha - 1982
    A classic work of autobiography that transcends the self, Dictée is the story of several women: the Korean revolutionary Yu Guan Soon, Joan of Arc, Demeter and Persephone, Cha's mother Hyung Soon Huo (a Korean born in Manchuria to first-generation Korean exiles), and Cha herself. The elements that unite these women are suffering and the transcendence of suffering. The book is divided into nine parts structured around the Greek Muses. Cha deploys a variety of texts, documents, images, and forms of address and inquiry to explore issues of dislocation and the fragmentation of memory. The result is a work of power, complexity, and enduring beauty.

Are You My Mother? A Comic Drama


Alison Bechdel - 2012
    Now, a second thrilling tale of filial sleuthery, this time about her mother: voracious reader, music lover, passionate amateur actor. Also a woman, unhappily married to a closeted gay man, whose artistic aspirations simmered under the surface of Bechdel's childhood . . . and who stopped touching or kissing her daughter good night, forever, when she was seven. Poignantly, hilariously, Bechdel embarks on a quest for answers concerning the mother-daughter gulf. It's a richly layered search that leads readers from the fascinating life and work of the iconic twentieth-century psychoanalyst Donald Winnicott, to one explosively illuminating Dr. Seuss illustration, to Bechdel’s own (serially monogamous) adult love life. And, finally, back to Mother—to a truce, fragile and real-time, that will move and astonish all adult children of gifted mothers.

Shrill: Notes from a Loud Woman


Lindy West - 2016
    From a painfully shy childhood in which she tried, unsuccessfully, to hide her big body and even bigger opinions; to her public war with stand-up comedians over rape jokes; to her struggle to convince herself, and then the world, that fat people have value; to her accidental activism and never-ending battle royale with Internet trolls, Lindy narrates her life with a blend of humor and pathos that manages to make a trip to the abortion clinic funny and wring tears out of a story about diarrhea.With inimitable good humor, vulnerability, and boundless charm, Lindy boldly shares how to survive in a world where not all stories are created equal and not all bodies are treated with equal respect, and how to weather hatred, loneliness, harassment, and loss--and walk away laughing. Shrill provocatively dissects what it means to become self-aware the hard way, to go from wanting to be silent and invisible to earning a living defending the silenced in all caps.

Get Me Out of Here: My Recovery from Borderline Personality Disorder


Rachel Reiland - 2002
    A mother, wife, and working professional, Reiland was diagnosed with borderline personality disorder at the age of 29—a diagnosis that finally explained her explosive anger, manipulative behaviors, and self-destructive episodes including bouts of anorexia, substance abuse, and promiscuity. A truly riveting read with a hopeful message.