Disability Theory


Tobin Anthony Siebers - 2008
    Clear, cogent, compelling analyses of the tension between the 'social model' of disability and the material details of impairment; of identity politics and unstable identities; of capability rights and human interdependence; of disability and law, disability as masquerade, disability and sexuality, disability and democracy---they're all here, in beautifully crafted and intellectually startling essays. Disability Theory is a field-defining book: and if you're curious about what 'disability' has to do with 'theory,' it's just the book you've been waiting for, too."---Michael Bérubé, Pennsylvania State University "Disability Theory is magisterially written, thoroughly researched, and polemically powerful. It will be controversial in a number of areas and will probably ruffle feathers both in disability studies as well as in realms of cultural theory. And that's all to the good."---Michael Davidson, University of California, San Diego"Not only is Disability Theory a groundbreaking contribution to disability studies, it is also a bold, ambitious and much needed revision to a number of adjacent and overlapping fields including cultural studies, literary theory, queer theory, and critical race studies. Siebers has written a powerful manifesto that calls theory to account and forces readers to think beyond our comfort zones."---Helen Deutsch, University of California, Los AngelesIntelligent, provocative, and challenging, Disability Theory revolutionizes the terrain of theory by providing indisputable evidence of the value and utility that a disability studies perspective can bring to key critical and cultural questions. Tobin Siebers persuasively argues that disability studies transfigures basic assumptions about identity, ideology, language, politics, social oppression, and the body. At the same time, he advances the emerging field of disability studies by putting its core issues into contact with signal thinkers in cultural studies, literary theory, queer theory, gender studies, and critical race theory.

Freakery: Cultural Spectacles of the Extraordinary Body


Rosemarie Garland-Thomson - 1996
    Midgets. Tribal non-Westerners. The very fat. The very thin. Hermaphrodites. Conjoined twins. The disabled. The very hirsute. In American history, all have shared the platform equally, as freaks, human oddities, their only commonality their assigned role of anomalous other to the gathered throngs. For the price of a ticket, freak shows offered spectators an icon of bodily otherness whose difference from them secured their own membership in a common American identity--by comparison ordinary, tractable, normal.Rosemarie Thomson's groundbreaking anthology probes America's disposition toward the visually different. The book's essays fall into four main categories: historical explorations of American freak shows in the era of P.T. Barnum; the articulation of the freak in literary and textual discourses; contemporary relocations of freak shows; and theoretical analyses of freak culture. Essays address such diverse topics as American colonialism and public presentations of natives; laughing gas demonstrations in the 1840's; Shirley Temple and Tom Thumb; Todd Browning's landmark movie Freaks; bodybuilders as postmodern freaks; freaks in Star Trek; Michael Jackson's identification with the Elephant Man; and the modern talk show as a reconfiguration of the freak show. In her introduction, Thomson traces the freak show from antiquity to the modern period and explores the constitutive, political, and textual properties of such exhibits.Freakery is a fresh, insightful exploration of a heretofore neglected aspect of American mass culture.

Crippled: Austerity and the Demonization of Disabled People


Frances Ryan - 2019
    In the age of austerity, it's disabled people who are hardest hit, affecting over 3.7 million people. This is in addition to a situation in which half of those in poverty are either disabled or living with a disabled person.In Crippled, leading commentator Frances Ryan tells the story of those most affected by this devastating regime, people who have been too often been silenced. This includes the tetraplegic living in a first floor flat forced to crawl down flights of stairs because the council doesn't provide accessible housing; the young girl forced to sleep in her wheelchair and admitted to hospital with malnutrition because cuts mean she no longer had a carer to help her get to bed or cook; or the Londoner with schizophrenia found 'fit for work', and with nothing to live on was found dead at home three months later.Through these personal stories the book shows the scale of the crisis, while also showing how the disabled community is fighting back. It is a passionate demand for the recognition of disability rights and a call for an end to austerity policies that disproportionately affect those most in need.

Academic Ableism: Disability and Higher Education


Jay Timothy Dolmage - 2017
    For too long, argues Jay Timothy Dolmage, disability has been constructed as the antithesis of higher education, often positioned as a distraction, a drain, a problem to be solved. The ethic of higher education encourages students and teachers alike to accentuate ability, valorize perfection, and stigmatize anything that hints at intellectual, mental, or physical weakness, even as we gesture toward the value of diversity and innovation. Examining everything from campus accommodation processes, to architecture, to popular films about college life, Dolmage argues that disability is central to higher education, and that building more inclusive schools allows better education for all.

The Body in Pain: The Making and Unmaking of the World


Elaine Scarry - 1985
    The book is an analysis of physical suffering and its relation to the numerous vocabularies and cultural forces--literary, political, philosophical, medical, religious--that confront it. Elaine Scarry bases her study on a wide range of sources: literature and art, medical case histories, documents on torture compiled by Amnesty International, legal transcripts of personal injury trials, and military and strategic writings by such figures as Clausewitz, Churchill, Liddell Hart, and Kissinger, She weaves these into her discussion with an eloquence, humanity, and insight that recall the writings of Hannah Arendt and Jean-Paul Sartre. Scarry begins with the fact of pain's inexpressibility. Not only is physical pain enormously difficult to describe in words--confronted with it, Virginia Woolf once noted, "language runs dry"--it also actively destroys language, reducing sufferers in the most extreme instances to an inarticulate state of cries and moans. Scarry analyzes the political ramifications of deliberately inflicted pain, specifically in the cases of torture and warfare, and shows how to be fictive. From these actions of "unmaking" Scarry turns finally to the actions of "making"--the examples of artistic and cultural creation that work against pain and the debased uses that are made of it. Challenging and inventive, The Body in Pain is landmark work that promises to spark widespread debate.

The Disability Studies Reader


Lennard J. Davis - 1997
    This volume represents a major advance in presenting the most important writings about disability with an emphasis on those writers working from a materialist and postmodernist perspective.Drawing together experts in cultural studies, literary criticism, sociology, biology, the visual arts, pedagogy and post-colonial studies, the collection provides a comprehensive approach to the issue of disability. Contributors include Erving Goffman, Susan Sontag, Michelle Fine and Susan Wendell.

Compassion Amidst the Chaos: Tales told by an ER Doc


Christopher Davis, MD - 2020
    You meet one when life doesn't go as planned. Survival requires immediate dependence and trust in a stranger in a white coat. As soon as the imminent danger has passed— they are off to the next case. Many patients don't realize that their stories stay with those that served them. Patients have the most to teach about humility and humanity."Compassion Amidst the Chaos" is brimming with the tension, anguish, exhaustion, relief, gratitude, and compassion that are all part of a typical day at work in the ER. Travel with Dr. Chris Davis through the cases he remembers most from his 35-year career as an emergency medicine doctor.

Trapped in America's Safety Net: One Family's Struggle


Andrea Louise Campbell - 2014
    She survived—and, miraculously, the baby was born healthy. But that’s where the good news ends. Marcella was left paralyzed from the chest down. This accident was much more than just a physical and emotional tragedy. Like so many Americans—50 million, or one-sixth of the country’s population—neither Marcella nor her husband, Dave, who works for a small business, had health insurance. On the day of the accident, she was on her way to class for the nursing program through which she hoped to secure one of the few remaining jobs in the area with the promise of employer-provided insurance. Instead, the accident plunged the young family into the tangled web of means-tested social assistance. As a social policy scholar, Campbell thought she knew a lot about means-tested assistance programs. What she quickly learned was that missing from most government manuals and scholarly analyses was an understanding of how these programs actually affect the lives of the people who depend on them. Using Marcella and Dave’s situation as a case in point, she reveals their many shortcomings in Trapped in America’s Safety Net. Because American safety net programs are designed for the poor, Marcella and Dave first had to spend down their assets and drop their income to near-poverty level before qualifying for help. What’s more, to remain eligible, they will have to stay under these strictures for the rest of their lives, meaning they are barred from doing many of the things middle-class families are encouraged to do: Save for retirement. Develop an emergency fund. Take advantage of tax-free college savings. And, while Marcella and Dave’s story is tragic, the financial precariousness they endured even before the accident is all too common in America, where the prevalence of low-income work and unequal access to education have generated vast—and growing—economic inequality. The implementation of Obamacare has cut the number of uninsured and underinsured and reduced some of the disparities in coverage, but it continues to leave too many people open to tremendous risk.Behind the statistics and beyond the ideological battles are human beings whose lives are stunted by policies that purport to help them. In showing how and why this happens, Trapped in America’s Safety Net offers a way to change it.

Save the World on Your Own Time


Stanley Fish - 2008
    When teachers offer themselves as moralists, political activists, or agents of social change rather than as credentialed experts in a particular subject and the methods used to analyze it, they abdicate their true purpose. And yet professors now routinely bring their political views into the classroom and seek to influence the political views of their students. Those who do this will often invoke academic freedom, but Fish argues that academic freedom, correctly understood, is the freedom to do the academic job, not the freedom to do any job that comes into the professor's mind. He insists that a professor's only obligation is "to present the material in the syllabus and introduce students to state-of-the-art methods of analysis. Not to practice politics, but to study it; not to proselytize for or against religious doctrines, but to describe them; not to affirm or condemn Intelligent Design, but to explain what it is and analyze its appeal."Given that hot-button issues such as Holocaust denial, free speech, and the Israeli-Palestinian conflict are regularly debated in classrooms across the nation, Save the World On Your Own Time is certain to spark fresh debate—and to incense both liberals and conservatives—about the true purpose of higher education in America.

Stigma: Notes on the Management of Spoiled Identity


Erving Goffman - 1963
    Disqualified from full social acceptance, they are stigmatized individuals. Physically deformed people, ex-mental patients, drug addicts, prostitutes, or those ostracized for other reasons must constantly strive to adjust to their precarious social identities. Their image of themselves must daily confront and be affronted by the image which others reflect back to them.Drawing extensively on autobiographies and case studies, sociologist Erving Goffman analyzes the stigmatized person’s feelings about himself and his relationship to “normals” He explores the variety of strategies stigmatized individuals employ to deal with the rejection of others, and the complex sorts of information about themselves they project. In Stigma the interplay of alternatives the stigmatized individual must face every day is brilliantly examined by one of America’s leading social analysts.

Rogues and Heroes of Newport's Gilded Age


Edward Morris - 2012
    They built lavish villas designed by the best Beaux Arts–style architects of the time, including Richard Morris Hunt, Charles McKim and Robert Swain Peabody. America’s elite delighted in referring to these grand retreats as “summer cottages,” where they would play tennis and polo and sail their yachts along the shores of the Ocean State. The coachman had an important role as the discreet outdoor butler for Gilded Age gentlemen—not only was he in charge of the horses, but he also acted as a travel advisor and connoisseur of entertainment venues. From the driver’s seat, author and guide Edward Morris provides a diverse collection of biographical sketches that reveal the outrageous and opulent lives of some of America’s leading entrepreneurs.

Becoming a Learner: Realizing the Opportunity of Education


Matthew Sanders - 2012
    As a result, many students talk about college in ways that cause them to overlook some of their most important learning opportunities. Becoming a Learner asks students to carefully reconsider conventional common sense about college and learning, and invites them to consider a new conversation about college and learning that focuses on who they are becoming and their ability to learn.

Looking Awry: An Introduction to Jacques Lacan through Popular Culture


Slavoj Žižek - 1991
    Slavoj Zizek, a leading intellectual in the new social movements of Eastern Europe, provides a virtuoso reading of the psycholanalytic theory of Jacques Lacan through the works of contemporary popular culture, from horror fiction and detective thrillers to popular romances and Hitchcock films.

Exile and Pride: Disability, Queerness, and Liberation


Eli Clare - 1999
    . . . Using the language of the elemental world, he delineates a complex human intersection and transmutes cruelty into its opposite—a potent, lifegiving remedy.”—Alison Bechdel, author of Fun HomeFirst published in 1999, Exile & Pride established Eli Clare as one of the leading writers on the intersections of queerness and disability. With this critical tenth-anniversary edition, the groundbreaking publication secures its position as essential to the history of queer and disability politics, and, through significant new material that boldly interrogates and advances the original text, to its future as well. Clare’s writing on his experiences as a genderqueer activist/writer with cerebral palsy permanently changed the landscape of disability politics and queer liberation, and yet Exile & Pride is much too great in scope to be defined by even these two issues. Instead it offers an intersectional framework for understanding how our bodies actually experience the politics of oppression, power, and resistance. At the heart of Clare’s exploration of environmental destruction, white working-class identity, queer community, disabled sexuality, childhood sexual abuse, coalition politics, and his own gender transition is a call for social justice movements that are truly accessible for everyone.Blending prose and theory, personal experience and political debate, anger and compassion, Exile & Pride provides a window into a world where our whole selves in all their complexity can be loved and accepted.An award-winning poet and essayist, Eli Clare is also the author of The Marrow’s Telling.

Unsettled


Rosaleen McDonagh - 2021
    Unsettled explores racism, ableism, abuse and resistance as well as the bonds of community, family and friendship. As an Irish Traveller writing from a feminist perspective, McDonagh’s essays are rich and complex, raw and honest, and, above all else, uncompromising.Praise for UnsettledDon’t read this memoir in sorrow and outrage, read it because Rosaleen McDonagh is so proud, smart and ingenious, she will make you feel more properly alive. Beautifully written, this book beats back the darkness. It brings us all further on. — Anne EnrightMoving and eloquent, this collection is both the story of one woman’s life and a work of profound literary activism. — Emilie PineRosaleen’s story is her story. It’s a very important story and she has a right to tell it. Rosaleen demonstrates, contrary to some settled people’s opinion, that our community is matriarchal, our mothers are so resourceful, and we are not victims. The book is a testimony to the importance of identity and belonging. — Anne BurkeLike James Baldwin before her, this work is a ferociously honest exploration of the intricacies of racism, identity, sexuality, disability, grief, sensuality and marginalisation. It is also a beautiful piece of prose; honest and difficult and deeply moving. This book sees Rosaleen McDonagh masterfully taking all the parts of her life and fitting them together brilliantly for us. A must read. — Mark O’HalloranEmotive, honest and raw. Rosaleen McDonagh takes us on a journey of self acceptance, a journey that sees her face challenging obstacles and setbacks; as well as meeting friends and allies who help her to carve out a place in which she belongs. Unsettled is not only the recount of personal experiences but an authentic glimpse of Traveller life and culture as well as Rosaleen’s very sense of identity. — Michael Power