Covering the best practices for raising and caring for children with Down syndrome through age five, this book is invaluable to new parents who have welcomed a baby with Down syndrome into their lives. This new edition incorporates the latest scientific, medical, educational research, and practical information available, as well as parents' suggestions and feedback. Existing chapters have been revised, some completely rewritten by new authors, and in keeping with its parent-friendly reputation, most of the book's contributors are parents of children with Down syndrome Chapters cover: - What Is Down Syndrome?: A primer on the causes, characteristics, and diagnosis, including the latest information on genetics and prenatal testing;- Adjusting to Your Baby: Advice from an experienced mother on coping with common emotions and announcing the news to friends and family;- Medical Concerns & Treatments: An overview of possible health issues including celiac disease, sleep apnea, diabetes, reflux, and skin problems, with an emphasis on detecting signs early for needed treatment;- Daily Care: The gamut of care from feeding to bathing, with expanded information about toilet training;- Family Life: The impact on siblings and couples, discipline issues, and new material to help everyone understand that a child's behavior is a form of communication;- Development & Learning: Expectations about development plus new material on variability in development, learning styles, using reading todevelop language, memory strengths and weaknesses, and using play to encourage learning;- Early Intervention: An overview of services and therapies for babies & toddlers with new information on the transdisciplinary approach, providing services in the natural environment, transitioning preschool, and common questions & answers;- Legal Rights & Financial Issues: Explains your child's educational and legal rights, and financial information, including the latest on federal education and civil rights laws, sources of financial assistance, health insurance, trusts, and guardianship.Full of new photos, parent statements, updated and expanded resources and reading lists, this build everything parents need to build a bright and healthy future for their child with Down syndrome.

    He was a medical student and she was a nurse. Everything changed the moment the doctor rushed their infant daughter from the room just after her birth, knowing instantly that something was wrong. Sarah had almond-shaped eyes, a single crease across her palm instead of three, and low-set ears all of which suggested that the baby had Down syndrome.Beginning on the day Sarah is born and ending when she is a young adult living in a group home, Beautiful Eyes is the story of a father's journey toward acceptance of a child who is different. In a voice that is unflinchingly honest and unerringly compassionate, Austin chronicles his life with his daughter: watching her learn to walk and talk and form her own opinions, making decisions about her future, and navigating cultural assumptions and prejudices all the while confronting, with poignancy and moving candor, his own limitations as her father.It is Sarah herself, who, in her own coming of age and her own reconciling with her difference, teaches her father to understand her. Time and again, she surprises him: performing Lady Gaga s "Poker Face" at a talent show; explaining how the word "retarded" is hurtful; reacting to the events of her life with a mixture of love, pain, and humor; and insisting on her own humanity in a world that questions it. As Sarah begins to blossom into herself, her father learns to look past his daughter's disability and see her as the spirited, warmhearted, and uniquely wise person she is.

    The author of the popular blog Enjoying the Small Things—named The Bump’s Best Special Needs Blog and The Blog You’ve Learned the Most From in the 2010 BlogLuxe Awards—Kelle Hampton interweaves lyrical prose and stunning four-color photography as she recounts the unforgettable story of the first year in the life of her daughter Nella, who has Down syndrome. Poignant, eye-opening, and heart-soaring, Hampton’s Bloom is ultimately about embracing life and really living it.

    But when the boy regressed into the distant, wordless world of severe autism, those hopes were crushed.As Jason walked through the barren land of unanswered prayer, he discovered that he was not alone--so many in the church today are overwhelmed with pain and doubt. We think our faith is supposed to guarantee us a sense of emotional stability, even in the midst of soul-crushing circumstances; but by avoiding the brokenness inside ourselves, we end up missing the beauty of a God at work deep within us.Aching Joy is a road map for anyone facing a difficult, unresolved situation. We can embrace both the sorrow and beauty of the land of unanswered prayer in order to find renewed hope in the greatness of God and the expectation of good.The goal of Aching Joy is not to see the silver lining in the midst of our hardships but to encourage us to follow the example of Christ, who entered fully into both the joy and the sorrow of human experiences with confidence that His Father's eternal kingdom would outlast and outshine them. When we open our hearts to the restoration that only Christ can perform, we will begin to find a deeper gladness that has no veneer and wears no mask. We will find a joy in the midst of the aching.

    You need a new road map, and fast...When Jennifer Groneberg and her husband learned they'd be having twin boys, their main concern was whether they'd need an addition on their house. Then, five days after Avery and Bennett were born, Avery was diagnosed with Down syndrome.Here, Jennifer shares the story of what followed. She dealt with doctors-some who helped, and some who were disrespectful or even dangerous. She saw some relationships in her life grow stronger, while severing ties with people who proved unsupportive. And she continues to struggle to find balance in the hardships and joys of raising a child with special needs. This book is a resource, a companion for parents, and above all, a story of the love between a mother and her son-as she learns that Avery is exactly the child she never knew she wanted.

    Another bolts across a busy parking lot, turns and smiles at his mom. An eighteen-year-old student bursts into tears when asked to change activities at school. Sound familiar? These and other common behavior issues in children with Down syndrome can quickly become engrained and may even persist into adulthood. No parent wants that to happen, and thankfully, help is available! Dr. David Stein, a psychologist and Co-Director of the Down Syndrome Program at Boston Children's Hospital, shares his approach to behavior management in this new book for parents. Supporting Positive Behavior in Children and Teens with Down Syndrome examines how the brain of a person with Down syndrome works, how those differences impact behavior, and why bad behavior should not be viewed as a willful act. Governed by this new awareness, parents are in a better position to change and manage their child's behavior using these guiding principles: [[Be proactive, not reactive [[Be consistent [[Use visual schedules & Social Stories to direct behavior [[Develop a token reward chart [[Keep gut reactions in check [[Teach siblings to ignore bad behavior [[Learn effective disciplinary techniques [[Know when professional help is needed Some of these parenting concepts are intuitive, others are not, but when they are followed consistently, children and teens with Down syndrome do their best behaviorally and the parent-child relationship remains as positive and loving as it should be.

    He kept his cerebral palsy a secret from the record- keepers and medical authorities for 20 years. He had a distinguished and highly decorated career despite the pain he endured to appear normal.He served on board destroyers, a battleship, two aircraft carriers and functioned as an administrator for a Seal unit. The outside world also impacted on him further aggravating his CP when he was challenged by alcoholism and excessive grief caused by the suicide of a brother. With help, John Quinn triumphed over both, as he did the painful cerebral palsy.

    Yet many who travel this path discover rich, unexpected rewards along the way. In this candid and poignant collection of personal stories, sixty-three mothers describe the gifts of respect, strength, delight, perspective, and love, which their child with Down syndrome has brought into their lives. perspectives, and draw from a wide spectrum of ethnicity, world views, and religious beliefs. Some are parenting within a traditional family structure; some are not. Some never considered terminating their pregnancy; some struggled with the decision. Some were calm at the time of diagnosis; some were traumatised. Some write about their pregnancy and the months after giving birth; some reflect on years of experience with their child. Their diverse experiences point to a common truth: the life of a child with Down syndrome is something to celebrate. These women have something to say - not just to other mothers but to all of us.

    Other families know what you are going through. Find strength in not only your faith, but in the community of others who understand your heartache and disappointment, and the desperate need to help these children have a future.[[Provides an account of real-life struggles and solutions from early childhood to young adulthood[[Opens a window into their life and family in hopes of encouraging others[[Reveals understanding, compassionate support for families facing these heart-wrenching challenges.

    As diagnosis rates continue to rise for autism, ADHD, learning disabilities, and other developmental differences, parents face a maze of medical, psychological, and educational choices – and a great deal of emotional stress. Many books address children’s learning or behavior problems and advise parents what they can do to help their kids, but until Not What I Expected: Help and Hope for Parents of Atypical Children there were no books that explain what the parents are going through - and how they can cope with their own emotional upheaval – for their own sake, and for the wellbeing of the whole family.   With compassion, clarity, and an emphasis on practical solutions, Dr. Rita Eichenstein's Not What I Expected: Help and Hope for Parents of Atypical Children walks readers through the five stages of acceptance (similar to the stages of grief, but modified for parents of special-needs kids). Using vivid anecdotes and suggestions, she helps readers understand their own emotional experience, nurture themselves in addition to their kids, identify and address relationship wounds including tension in a marriage and struggles with children (special-needs and neurotypical), and embrace their child with acceptance, compassion and joy.

    Barkley has become a leading authority on attention-deficit/hyperactivity disorder (ADHD) in kids and teens. He has learned what a huge difference parents can make in supporting their children's success--as well as how overwhelming it can be. This concise guide presents 12 key parenting principles for dealing with common behavioral, emotional, and school challenges. By cultivating a mindset of acceptance and compassion--together with an understanding of the executive function deficits of ADHD--you can strengthen your loving connection with your child and help your whole family thrive. Filled with practical suggestions and quick-reference lists and tips, this is the perfect book to read cover to cover or pick up any time you need extra support.

    And no delay causes more parental anxiety than late talking, which is associated in many parents' minds with such serious conditions as autism and severe intellectual disability. In fact, as children's speech expert Stephen Camarata points out in this enlightening book, children are late in beginning to talk for a wide variety of reasons. For some children, late talking may be a symptom of other, more serious, problems; for many others, however, it may simply be a stage with no long-term complications.Camarata describes in accessible language what science knows about the characteristics and causes of late talking. He explains that late talking is only one of a constellation of autism symptoms. Although all autistic children are late talkers, not all late-talking children are autistic.Camarata draws on more than twenty-five years of professional experience diagnosing and treating late talkers--and on his personal experience of being a late talker himself and having a late-talking son. He provides information that will help parents navigate the maze of doctors, speech therapists, early childhood services, and special education; and he describes the effect that late talking may have on children's post-talking learning styles.

    Once they are mastered, these skills allow reduced adult supervision.

    She had an adoring husband, a beautiful two-year-old son, a sunny Manhattan apartment, and a position as a tenured professor at Columbia University. Everything changed with the birth of her second child, Henry. Just minutes after he was born, doctors told her that Henry had Down syndrome, and she knew that her life would never be the same. In this honest, self-critical, and surprisingly funny book, Adams chronicles the first three years of Henry’s life and her own transformative experience of unexpectedly becoming the mother of a disabled child. A highly personal story of one family’s encounter with disability, Raising Henry is also an insightful exploration of today’s knotty terrain of social prejudice, disability policy, genetics, prenatal testing, medical training, and inclusive education. Adams untangles the contradictions of living in a society that is more enlightened and supportive of people with disabilities than ever before, yet is racing to perfect prenatal tests to prevent children like Henry from being born. Her book is gripping, beautifully written, and nearly impossible to put down. Once read, her family’s story is impossible to forget.

    Parents and family members who never thought they could get inside the head of their autistic loved one, at last, have a way to break through to the curious, subtle, and complex life within.Using an alphabet grid to painstakingly construct words, sentences, and thoughts that he is unable to speak out loud, Naoki answers even the most delicate questions that people want to know. Questions such as: “Why do people with autism talk so loudly and weirdly?” “Why do you line up your toy cars and blocks?” “Why don’t you make eye contact when you’re talking?” and “What’s the reason you jump?” (Naoki’s answer: “When I’m jumping, it’s as if my feelings are going upward to the sky.”) With disarming honesty and a generous heart, Naoki shares his unique point of view on not only autism but life itself. His insights—into the mystery of words, the wonders of laughter, and the elusiveness of memory—are so startling, so strange, and so powerful that you will never look at the world the same way again.