Book picks similar to
Freakery: Cultural Spectacles of the Extraordinary Body by Rosemarie Garland-Thomson
disability
history
nonfiction
non-fiction
Far from the Tree: Parents, Children, and the Search for Identity
Andrew Solomon - 2012
He writes about families coping with deafness, dwarfism, Down's syndrome, autism, schizophrenia, or multiple severe disabilities; with children who are prodigies, who are conceived in rape, who become criminals, who are transgender. While each of these characteristics is potentially isolating, the experience of difference within families is universal, and Solomon documents triumphs of love over prejudice in every chapter.All parenting turns on a crucial question: to what extent should parents accept their children for who they are, and to what extent they should help them become their best selves. Drawing on ten years of research and interviews with more than three hundred families, Solomon mines the eloquence of ordinary people facing extreme challenges.Elegantly reported by a spectacularly original and compassionate thinker, Far from the Tree explores how people who love each other must struggle to accept each other—a theme in every family’s life.
Aspergirls: Empowering Females with Asperger Syndrome
Rudy Simone - 2010
The image of coping well presented by AS females can often mask difficulties, deficits, challenges, & loneliness.
Reality Hunger: A Manifesto
David Shields - 2010
YouTube and Facebook dominate the web. In Reality Hunger: A Manifesto, his landmark new book, David Shields (author of the New York Times best seller The Thing About Life Is That One Day You’ll Be Dead) argues that our culture is obsessed with “reality” precisely because we experience hardly any.Most artistic movements are attempts to figure out a way to smuggle more of what the artist thinks is reality into the work of art. So, too, every artistic movement or moment needs a credo, from Horace’s Ars Poetica to Lars von Trier’s “Vow of Chastity.” Shields has written the ars poetica for a burgeoning group of interrelated but unconnected artists in a variety of forms and media who, living in an unbearably manufactured and artificial world, are striving to stay open to the possibility of randomness, accident, serendipity, spontaneity; actively courting reader/listener/viewer participation, artistic risk, emotional urgency; breaking larger and larger chunks of “reality” into their work; and, above all, seeking to erase any distinction between fiction and nonfiction.The questions Reality Hunger explores—the bending of form and genre, the lure and blur of the real—play out constantly all around us. Think of the now endless controversy surrounding the provenance and authenticity of the “real”: A Million Little Pieces, the Obama “Hope” poster, the sequel to The Catcher in the Rye, Robert Capa’s “The Falling Soldier” photograph, the boy who wasn’t in the balloon. Reality Hunger is a rigorous and radical attempt to reframe how we think about “truthiness,” literary license, quotation, appropriation.Drawing on myriad sources, Shields takes an audacious stance on issues that are being fought over now and will be fought over far into the future. People will either love or hate this book. Its converts will see it as a rallying cry; its detractors will view it as an occasion for defending the status quo. It is certain to be one of the most controversial and talked-about books of the year.
In a Different Key: The Story of Autism
John Donvan - 2016
Beginning with his family’s odyssey, In a Different Key tells the extraordinary story of this often misunderstood condition, and of the civil rights battles waged by the families of those who have it. Unfolding over decades, it is a beautifully rendered history of ordinary people determined to secure a place in the world for those with autism—by liberating children from dank institutions, campaigning for their right to go to school, challenging expert opinion on what it means to have autism, and persuading society to accept those who are different. It is the story of women like Ruth Sullivan, who rebelled against a medical establishment that blamed cold and rejecting “refrigerator mothers” for causing autism; and of fathers who pushed scientists to dig harder for treatments. Many others played starring roles too: doctors like Leo Kanner, who pioneered our understanding of autism; lawyers like Tom Gilhool, who took the families’ battle for education to the courtroom; scientists who sparred over how to treat autism; and those with autism, like Temple Grandin, Alex Plank, and Ari Ne’eman, who explained their inner worlds and championed the philosophy of neurodiversity. This is also a story of fierce controversies—from the question of whether there is truly an autism “epidemic,” and whether vaccines played a part in it; to scandals involving “facilitated communication,” one of many treatments that have proved to be blind alleys; to stark disagreements about whether scientists should pursue a cure for autism. There are dark turns too: we learn about experimenters feeding LSD to children with autism, or shocking them with electricity to change their behavior; and the authors reveal compelling evidence that Hans Asperger, discoverer of the syndrome named after him, participated in the Nazi program that consigned disabled children to death.<
Women and Other Monsters: Building a New Mythology
Jess Zimmerman - 2021
In our language, in our stories (many written by men), we underline the idea that women who step out of bounds--who are angry or greedy or ambitious, who are overtly sexual or not sexy enough--aren't just outside the norm. They're unnatural. Monstrous. But maybe, the traits we've been told make us dangerous and undesirable are actually our greatest strengths.Through fresh analysis of 11 female monsters, including Medusa, the Harpies, the Furies, and the Sphinx, Jess Zimmerman takes us on an illuminating feminist journey through mythology. She guides women (and others) to reexamine their relationships with traits like hunger, anger, ugliness, and ambition, teaching readers to embrace a new image of the female hero: one that looks a lot like a monster, with the agency and power to match.Often, women try to avoid the feeling of monstrousness, of being grotesquely alien, by tamping down those qualities that we're told fall outside the bounds of natural femininity. But monsters also get to do what other female characters--damsels, love interests, and even most heroines--do not. Monsters get to be complete, unrestrained, and larger than life. Today, women are becoming increasingly aware of the ways rules and socially constructed expectations have diminished us. After seeing where compliance gets us--harassed, shut out, and ruled by predators--women have never been more ready to become repellent, fearsome, and ravenous.
Against Equality: Queer Critiques of Gay Marriage
Ryan ConradCraig Willse - 2010
This pocket-sized book of archival texts lays out some of the historical foundations of queer resistance to the gay marriage mainstream alongside more contemporary inter-subjective critiques that deal directly with issues of race, class, gender, citizenship, age, ability, and more. In portable book form, the critical conversations that are happening so readily on the internet will no longer be withheld from those with little to no online access like queer and trans prisoners, people of low income, rural folks and the technologically challenged. Contributors include Kate Bornstein, Eric Stanley, Dean Spade, Craig Willse, Kenyon Farrow, Kate Raphael, Deeg, John D’Emilio, Ryan Conrad, Yasmin Nair, Martha Jane Kaufman, Katie Miles, and Mattilda Bernstein Sycamore.- - -"Against Equality makes the powerful argument that same-sex marriage is an essentially conservative cause, an effort to prop up a fundamentally unfair system. As an alternative, it offers us the inspiring vision of a truly radical queer politics, devoted to attacking injustice, not just allowing a few more gay people to benefit from it." – Walter Benn Michaels, The Trouble with Diversity: How We Learned to Love Identity and Ignore Inequality"Rather than being merely anti-marriage, the book deliberately articulates multiple alternative visions – such as building and valuing our own grassroots familial 'networks of accountability' – thus edging us closer to true 'equality,' or dare I say liberation, celebrating our differences as queers. – Jessica Max Stein (Make/Shift Magazine)"A powerful, moving read from a side often overlooked by mainstream society. A must read for anyone 'for' or 'against' gay marriage." – Steve Mason (California State Inmate/Queer Librarian)[This Anthology] brings to light that a venomous black-and-white rhetorical split has developed on gay marriage. The dichotomous engagement with the issue is damaging to the cohesion of the GLBTQ community and stops discussions short. This collection offers valuable, if controversial, much needed nuance to a radically fractured debate." – Ericka Steckle (Bitch Magazine)
Crippled: Austerity and the Demonization of Disabled People
Frances Ryan - 2019
In the age of austerity, it's disabled people who are hardest hit, affecting over 3.7 million people. This is in addition to a situation in which half of those in poverty are either disabled or living with a disabled person.In Crippled, leading commentator Frances Ryan tells the story of those most affected by this devastating regime, people who have been too often been silenced. This includes the tetraplegic living in a first floor flat forced to crawl down flights of stairs because the council doesn't provide accessible housing; the young girl forced to sleep in her wheelchair and admitted to hospital with malnutrition because cuts mean she no longer had a carer to help her get to bed or cook; or the Londoner with schizophrenia found 'fit for work', and with nothing to live on was found dead at home three months later.Through these personal stories the book shows the scale of the crisis, while also showing how the disabled community is fighting back. It is a passionate demand for the recognition of disability rights and a call for an end to austerity policies that disproportionately affect those most in need.
Postmodernist Fiction
Brian McHale - 1987
We have a postmodern architecture, a postmodern dance, perhaps even a postmodern philosophy and a postmodern condition. But do we have a postmodern fiction?In this trenchant and lively study Brian McHale undertakes to construct a version of postmodernist fiction which encompasses forms as wide-ranging as North American metafiction, Latin American magic realism, the French New New Novel, concrete prose and science fiction. Considering a variety of theoretical approaches including those of Ingarden, Eco, Doležel, Pavel, and Hrushovski, McHale shows that the common denominator is postmodernist fictin’s ability to thrust its own ontological status into the foreground and to raise questions about the world (or worlds) in which we live. Far from being, as unsympathetic critics have sometimes complained, about nothing but itself — or even about nothing at all — postmodernist fiction in McHale’s construction of it proves to be about (among other things) those handy literary perennials, Love and Death.
Theory of Colours
Johann Wolfgang von Goethe - 1810
To Goethe, the theory was the result of mistaking an incidental result for an elemental principle. Far from pretending to a knowledge of physics, he insisted that such knowledge was an actual hindrance to understanding. He based his conclusions exclusively upon exhaustive personal observation of the phenomena of color.Of his own theory, Goethe was supremely confident: "From the philosopher, we believe we merit thanks for having traced the phenomena of colours to their first sources, to the circumstances under which they appear and are, and beyond which no further explanation respecting them is possible."Goethe's scientific conclusions have, of course, long since been thoroughly demolished, but the intelligent reader of today may enjoy this work on quite different grounds: for the beauty and sweep of his conjectures regarding the connection between color and philosophical ideas; for an insight into early nineteenth-century beliefs and modes of thought; and for the flavor of life in Europe just after the American and French Revolutions.The work may also be read as an accurate guide to the study of color phenomena. Goethe's conclusions have been repudiated, but no one quarrels with his reporting of the facts to be observed. With simple objects -- vessels, prisms, lenses, and the like -- the reader will be led through a demonstration course not only in subjectively produced colors, but also in the observable physical phenomena of color. By closely following Goethe's explanations of the color phenomena, the reader may become so divorced from the wavelength theory -- Goethe never even mentions it -- that he may begin to think about color theory relatively unhampered by prejudice, ancient or modern.
Galileo's Middle Finger: Heretics, Activists, and the Search for Justice in Science
Alice Domurat Dreger - 2015
For two decades, historian Alice Dreger has led a life of extraordinary engagement, combining activist service to victims of unethical medical research with defense of scientists whose work has outraged identity politics activists. With spirit and wit, Dreger offers in Galileo’s Middle Finger an unforgettable vision of the importance of rigorous truth seeking in today’s America, where both the free press and free scholarly inquiry struggle under dire economic and political threats.This illuminating chronicle begins with Dreger’s own research into the treatment of people born intersex (once called hermaphrodites). Realization of the shocking surgical and ethical abuses conducted in the name of “normalizing” intersex children’s gender identities moved Dreger to become an internationally recognized patient rights’ activist. But even as the intersex rights movement succeeded, Dreger began to realize how some fellow progressive activists were employing lies and personal attacks to silence scientists whose data revealed uncomfortable truths about humans. In researching one such case, Dreger suddenly became the target of just these kinds of attacks.Troubled, she decided to try to understand more—to travel the country to ferret out the truth behind various controversies, to obtain a global view of the nature and costs of these battles. Galileo’s Middle Finger describes Dreger’s long and harrowing journeys between the two camps for which she felt equal empathy: social justice activists determined to win and researchers determined to put hard truths before comfort. Ultimately what emerges is a lesson about the intertwining of justice and of truth—and a lesson of the importance of responsible scholars and journalists to our fragile democracy.
This Bridge Called My Back: Writings by Radical Women of Color
Cherríe L. Moraga - 1981
Through personal essays, criticism, interviews, testimonials, poetry, and visual art, the collection explores, as coeditor Cherríe Moraga writes, “the complex confluence of identities—race, class, gender, and sexuality—systemic to women of color oppression and liberation.”
Academic Ableism: Disability and Higher Education
Jay Timothy Dolmage - 2017
For too long, argues Jay Timothy Dolmage, disability has been constructed as the antithesis of higher education, often positioned as a distraction, a drain, a problem to be solved. The ethic of higher education encourages students and teachers alike to accentuate ability, valorize perfection, and stigmatize anything that hints at intellectual, mental, or physical weakness, even as we gesture toward the value of diversity and innovation. Examining everything from campus accommodation processes, to architecture, to popular films about college life, Dolmage argues that disability is central to higher education, and that building more inclusive schools allows better education for all.
The Black Atlantic: Modernity and Double-Consciousness
Paul Gilroy - 1993
Eurocentrism. Caribbean Studies. British Studies. To the forces of cultural nationalism hunkered down in their camps, this bold hook sounds a liberating call. There is, Paul Gilroy tells us, a culture that is not specifically African, American, Caribbean, or British, but all of these at once, a black Atlantic culture whose themes and techniques transcend ethnicity and nationality to produce something new and, until now, unremarked. Challenging the practices and assumptions of cultural studies, "The Black Atlantic" also complicates and enriches our understanding of modernism.Debates about postmodernism have cast an unfashionable pall over questions of historical periodization. Gilroy bucks this trend by arguing that the development of black culture in the Americas arid Europe is a historical experience which can be called modern for a number of clear and specific reasons. For Hegel, the dialectic of master and slave was integral to modernity, and Gilroy considers the implications of this idea for a transatlantic culture. In search of a poetics reflecting the politics and history of this culture, he takes us on a transatlantic tour of the music that, for centuries, has transmitted racial messages and feeling around the world, from the Jubilee Singers in the nineteenth century to Jimi Hendrix to rap. He also explores this internationalism as it is manifested in black writing from the "double consciousness" of W. E. B. Du Bois to the "double vision" of Richard Wright to the compelling voice of Toni Morrison.In a final tour de force, Gilroy exposes the shared contours of black and Jewish concepts of diaspora in order both to establish a theoretical basis for healing rifts between blacks and Jews in contemporary culture and to further define the central theme of his book: that blacks have shaped a nationalism, if not a nation, within the shared culture of the black Atlantic.
The Boy in the Moon: A Father's Journey to Understand His Extraordinary Son
Ian Brown - 2009
At age thirteen, he is mentally and developmentally between one and three years old and will need constant care for the rest of his life. Brown travels the globe, meeting with genetic scientists and neurologists as well as parents, to solve the questions Walker’s doctors can’t answer. In his journey, he offers an insightful critique of society’s assumptions about the disabled, and he discovers a connected community of families living with this illness. As Brown gradually lets go of his self-blame and hope for a cure, he learns to accept the Walker he loves, just as he is. Honest, intelligent, and deeply moving, The Boy in the Moon explores the value of a single human life.