Book picks similar to
Human: Finding myself in the autism spectrum by Warren Mayocchi
autism
nonfiction
giveaways
non-fiction
See Me
Hailey Rodgers - 2019
So why is it that so many young adults identify themselves as unsatisfied or unhappy with their lives? There is a misconception that in order to be happy you must first be successful. In fact, the opposite is true: you must be happy first in order to be successful. This raises the question: How do I become happy? The answer: Discover your authentic self. See Me is about the importance of living authentically as a young adult. While young adults tend to talk about authenticity, it can actually be the hardest time in your life to feel confident in yourself. This book is a tool to help you stay true to who you are amidst the pressure to conform to societal norms. It aims to inspire young adults through guiding principles and the incredible stories of others who comprehend the value non-conformity and consistently work to live an authentic life.
ALS Saved My Life ... until it didn't
Jenni Kleinman Berebitsky - 2018
But what do we do when nothing goes as we had ever hoped? Jenni Berebitsky, diagnosed in 2009 with ALS has been answering these questions every day. With the hope of helping others move forward after life altering events, Jenni shares her story of life wiht ALS, outlining practical and existential changes needed to adapt and thrive.
The Valedictorian of Being Dead: The True Story of Dying Ten Times to Live
Heather B. Armstrong - 2019
Armstrong writes about her experience as one of only a few people to participate in an experimental treatment for depression involving ten rounds of a chemically induced coma approximating brain death.For years, Heather B. Armstrong has alluded to her struggle with depression on her website. But in 2016, Heather found herself in the depths of a depression she just couldn’t shake, an episode darker and longer than anything she had previously experienced. This book recalls the torturous eighteen months of suicidal depression she endured and the month-long experimental study in which doctors used propofol anesthesia to quiet all brain activity for a full fifteen minutes before bringing her back from a flatline. Ten times. The experience wasn’t easy. Not for Heather or her family. But a switch was flipped, and Heather hasn’t experienced a single moment of suicidal depression since. The Valedictorian of Being Dead brings to light a groundbreaking new treatment for depression.
He Wanted the Moon: The Madness and Medical Genius of Dr. Perry Baird, and His Daughter's Quest to Know Him
Mimi Baird - 2015
Perry Baird was a rising medical star in the late 1920s and 1930s. Early in his career, ahead of his time, he grew fascinated with identifying the biochemical root of manic depression, just as he began to suffer from it himself. By the time the results of his groundbreaking experiments were published, Dr. Baird had been institutionalized multiple times, his medical license revoked, and his wife and daughters estranged. He later received a lobotomy and died from a consequent seizure, his research incomplete, his achievements unrecognized.Mimi Baird grew up never fully knowing this story, as her family went silent about the father who had been absent for most of her childhood. Decades later, a string of extraordinary coincidences led to the recovery of a manuscript which Dr. Baird had worked on throughout his brutal institutionalization, confinement, and escape. This remarkable document, reflecting periods of both manic exhilaration and clear-headed health, presents a startling portrait of a man who was a uniquely astute observer of his own condition, struggling with a disease for which there was no cure, racing against time to unlock the key to treatment before his illness became impossible to manage.Fifty years after being told her father would forever be “ill” and “away,” Mimi Baird set off on a quest to piece together the memoir and the man. In time her fingers became stained with the lead of the pencil he had used to write his manuscript, as she devoted herself to understanding who he was, why he disappeared, and what legacy she had inherited. The result of his extraordinary record and her journey to bring his name to light is He Wanted the Moon, an unforgettable testament to the reaches of the mind and the redeeming power of a determined heart.Soon to be a major motion picture, from Brad Pitt and Tony Kushner
How to Be Autistic
Charlotte Amelia Poe - 2020
From food and fandom, to body modification and comic conventions, Charlotte’s experiences through the torments of schooldays and young adulthood leave us with a riot of conflicting emotions: horror, empathy, despair, laugh-out-loud amusement and, most of all, respect.For Charlotte, autism is a fundamental aspect of their identity and art. They address the reader in a voice that is direct, sharply clever and ironic. They witness their own behaviour with a wry humour as they sympathises with those who care for them, yet all the while challenging the neurotypical narratives of autism as something to be ‘fixed’.‘I wanted to show the side of autism that you don’t find in books and on Facebook. My story is about survival, fear and, finally, hope. There will be parts that make you want to cover your eyes, but I beg you to read on, because if I can change just one person’s perceptions, if I can help one person with autism feel like they’re less alone, then this will all be worth it.’This is an exuberant, inspiring, life-changing insight into autism from a viewpoint almost entirely missing from public discussion.Charlotte uses they/them pronouns.
We Danced: Our Story of Love and Dementia
Scott M. Rose - 2021
It opens with snapshots of her troubled childhood and early adult life in two difficult marriages. It quickly transitions to our first meeting, friendship, and relationship - not without their own complications. Through those trials, she showed tremendous strength and heart. We eventually married and lived a love story that others marveled at for years. We travelled, went to concerts, built a home, and remained completely devoted. While still in her early sixties, she lost a piece of herself. Words became harder to find. Steps to perform the simplest tasks became impossible to follow. We knew something was wrong but had no idea the severity of her condition. Our world turned upside down.The latter half of the book chronicles in exacting detail her diagnosis and life with Frontotemporal Degeneration, a dementia known as FTD. I cared for her for the three and a half years of this disease. Her mental state deteriorated rapidly. I changed to a more flexible job to stay with her more during the day as she lost even the most basic functions of eating alone, toileting, or using a phone. We still created tender moments and danced but she was losing a tremendous amount of weight and required greater and greater care.Financials not allowing me to quit work, I succumbed to the recommendations of multiple professionals and made the painful decision to place her in memory care. I visited her every day, two to three times per day, and we made the best of a horrible situation. We still shared many tender moments during this last year, including the moment I held her hand as she passed. The story is told in a vulnerable and unfiltered manner. It collects writings from both husband and wife through journals, letters, and social media posts integrated into the main narrative. It captures our real-life, undying love story through this incurable disease
The Journal of Best Practices: A Memoir of Marriage, Asperger Syndrome, and One Man's Quest to Be a Better Husband
David Finch - 2012
Five years after he married Kristen, the love of his life, they learn that he has Asperger syndrome. The diagnosis explains David’s ever-growing list of quirks and compulsions, his lifelong propensity to quack and otherwise melt down in social exchanges, and his clinical-strength inflexibility. But it doesn’t make him any easier to live with.Determined to change, David sets out to understand Asperger syndrome and learn to be a better husband—no easy task for a guy whose inability to express himself rivals his two-year-old daughter's, who thinks his responsibility for laundry extends no further than throwing things in (or at) the hamper, and whose autism-spectrum condition makes seeing his wife's point of view a near impossibility.Nevertheless, David devotes himself to improving his marriage with an endearing yet hilarious zeal that involves excessive note-taking, performance reviews, and most of all, the Journal of Best Practices: a collection of hundreds of maxims and hard-won epiphanies that result from self-reflection both comic and painful. They include "Don’t change the radio station when she's singing along," "Apologies do not count when you shout them," and "Be her friend, first and always." Guided by the Journal of Best Practices, David transforms himself over the course of two years from the world’s most trying husband to the husband who tries the hardest, the husband he’d always meant to be.Filled with humor and surprising wisdom, The Journal of Best Practices is a candid story of ruthless self-improvement, a unique window into living with an autism-spectrum condition, and proof that a true heart can conquer all.
The Spark: A Mother's Story of Nurturing Genius
Kristine Barnett - 2013
At nine he started working on an original theory in astrophysics that experts believe may someday put him in line for a Nobel Prize, and at age twelve he became a paid researcher in quantum physics. But the story of Kristine’s journey with Jake is all the more remarkable because his extraordinary mind was almost lost to autism. At age two, when Jake was diagnosed, Kristine was told he might never be able to tie his own shoes. The Spark is a remarkable memoir of mother and son. Surrounded by “experts” at home and in special ed who tried to focus on Jake’s most basic skills and curtail his distracting interests—moving shadows on the wall, stars, plaid patterns on sofa fabric—Jake made no progress, withdrew more and more into his own world, and eventually stopped talking completely. Kristine knew in her heart that she had to make a change. Against the advice of her husband, Michael, and the developmental specialists, Kristine followed her instincts, pulled Jake out of special ed, and began preparing him for mainstream kindergarten on her own. Relying on the insights she developed at the daycare center she runs out of the garage in her home, Kristine resolved to follow Jacob’s “spark”—his passionate interests. Why concentrate on what he couldn’t do? Why not focus on what he could? This basic philosophy, along with her belief in the power of ordinary childhood experiences (softball, picnics, s’mores around the campfire) and the importance of play, helped Kristine overcome huge odds. The Barnetts were not wealthy people, and in addition to financial hardship, Kristine herself faced serious health issues. But through hard work and determination on behalf of Jake and his two younger brothers, as well as an undying faith in their community, friends, and family, Kristine and Michael prevailed. The results were beyond anything anyone could have imagined. Dramatic, inspiring, and transformative, The Spark is about the power of love and courage in the face of overwhelming obstacles, and the dazzling possibilities that can occur when we learn how to tap the true potential that lies within every child, and in all of us.
Hope Prevails: Insights from a Doctor's Personal Journey Through Depression
Michelle Bengtson - 2016
Michelle Bengtson sees the devastation of depression. Early on, she practiced the most effective treatments and prescribed them for her clients. But when she experienced depression herself, she found that the treatments she had recommended were lacking. Her experience showed her the missing component in treating depression. In "Hope Prevails," Dr. Bengtson writes with deep compassion, blending her training and faith, to offer readers a hope grounded in God's love and grace. She helps readers understand what depression is, how it affects them spiritually, and what, by God's grace, it cannot do. The result is an approach that offers the hope of release, not just the management of symptoms. For those who struggle with depression and those who want to help them, "Hope Prevails" offers hope for the future.
Everyday Aspergers
Samantha Craft - 2016
A former schoolteacher and mother of three boys, Craft doesn't experience ordinary everyday happenings like most. In her vivid world, nothing is simple and everything appears pertinent. Even an average trip to the grocery store is a feat and cause for reflection. From being a dyslexic cheerleader with dysgraphia going the wrong direction, to bathroom stalking, to figuring out if she can wear that panty-free dress, Craft explores the profoundness of daily living through hilarious anecdotes and heartwarming childhood memories. When she's not laughing at the bizarreness of her days or reflecting back, then she's sharing the serious and relevant challenges of everyday living on the autism spectrum. Ten years in the making, Craft's revealing memoir brings Asperger's Syndrome into a spectrum of brilliant light-exposing the day-to-day interactions and complex inner workings of an autistic female from childhood to midlife.
Send in the Idiots: Stories from the Other Side of Autism
Kamran Nazeer - 2006
In 1982, when he was four years old, Kamran Nazeer was enrolled in a small school in New York City alongside a dozen other children diagnosed with autism. Calling themselves the Idiots, these kids received care that was at the cutting edge of developmental psychology. Twenty-three years later, the school no longer exists.Send in the Idiots is the always candid, often surprising, and ultimately moving investigation into what happened to those children. Now a policy adviser in England, Kamran decides to visit four of his old classmates to find out the kind of lives that they are living now, how much they've been able to overcome—and what remains missing. A speechwriter unable to make eye contact; a messenger who gets upset if anyone touches his bicycle; a depressive suicide victim; and a computer engineer who communicates difficult emotions through the use of hand puppets: these four classmates reveal an astonishing, thought-provoking spectrum of behavior.Bringing to life the texture of autistic lives and the pressures and limitations that the condition presents, Kamran also relates the ways in which those can be eased over time, and with the right treatment. Using his own experiences to examine such topics as the difficulties of language, conversation as performance, and the politics of civility, Send in the Idiots is also a rare and provocative exploration of the way that people—all people—learn to think and feel. Written with unmatched insight and striking personal testimony, Kamran Nazeer's account is a stunning, invaluable, and utterly unique contribution to the literature of what makes us human.
War Ready: In My Father's Shadow
Mary Lou Darst - 2011
Her father served in the military, and she traveled the world with him and her family. His assignments took them to Alaska, Virginia, Japan, Texas, and Germany, as part of the US Army's responsibilities in policing the world. This candid memoir recounts her family's life in new places and cultures following World War II. What was it like to be a child living in Japan seven years after the war? What was it like to be a thirteen-year-old living in Germany twelve years after the war? What was it like to grow up moving between cultures? This is the story of one family bound to service in the military at a time when the world was being redefined. For a young girl, it was the adventure of a lifetime as she learned the secrets of finding her own way in that new world. The author's story was informed by reading her father's diary, which offers up intimate and candid insight into the life of a typical soldier in a time of war. His entries describe his time serving aboard a battleship built for 800 soldiers--but carrying 6,000 to war. His tales--told from the perspective of a young soldier in southern England, Wales, and Scotland from 1943 to 1945--are glimpses into a life many will never know firsthand.
What My Bones Know: A Memoir of Healing from Complex Trauma
Stephanie Foo - 2022
. . . I want to have words for what my bones know."By age thirty, Stephanie Foo was successful on paper: She had her dream job as an award-winning radio producer at This American Life and a loving boyfriend. But behind her office door, she was having panic attacks and sobbing at her desk every morning. After years of questioning what was wrong with herself, she was diagnosed with complex PTSD--a condition that occurs when trauma happens continuously, over the course of years.Both of Foo's parents abandoned her when she was a teenager, after years of physical and verbal abuse and neglect. She thought she'd moved on, but her new diagnosis illuminated the way her past continued to threaten her health, relationships, and career. She found limited resources to help her, so Foo set out to heal herself, and to map her experiences onto the scarce literature about C-PTSD.In this deeply personal and thoroughly researched account, Foo interviews scientists and psychologists and tries a variety of innovative therapies. She returns to her hometown of San Jose, California, to investigate the effects of immigrant trauma on the community, and she uncovers family secrets in the country of her birth, Malaysia, to learn how trauma can be inherited through generations. Ultimately, she discovers that you don't move on from trauma--but you can learn to move with it.Powerful, enlightening, and hopeful, What My Bones Know is a brave narrative that reckons with the hold of the past over the present, the mind over the body--and examines one woman's ability to reclaim agency from her trauma.
Asperger's From the Inside Out: A Supportive and Practical Guide for Anyone with Asperger's Syndrome
Michael John Carley - 2008
This fascinating book reveals his personal experience with the confusion and trauma associated with this condition-and offers insights into living an independent and productive life.Now the Executive Director of the world's largest Asperger's oranization, Carley helps readers in such areas as:- Social interactions - Nurturing interests - Whom to confide in-and how - Dealing with family and loved ones - Finding work that suits your strengths and talents
The Spectrum Girl’s Survival Guide
Siena Castellon - 2020
From the answers to everyday questions such as 'Am I using appropriate body language?' and 'Did I say the wrong thing?', through to discussing the importance of understanding your emotions, looking after your physical and mental health and coping with anxiety and sensory overloads, award-winning neurodiversity campaigner Siena Castellon uses her own experiences to provide you with the skills to overcome any challenge.With practical tips on friendships, dating, body image, consent and appearance, as well as how to survive school and bullying, The Spectrum Girl's Survival Guide gives you the power to embrace who you are, reminding you that even during the toughest of teen moments, you are never alone.