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Karen Havelin - 2019
    As the reader moves in reverse to meet Laura’s younger and somewhat healthier selves (a hopeful bride in New York, a baby queer in Paris, a figure skater in Norway) we uncover her tireless work to gain control of her identity, her illness and the conflicting demands made by doctors, friends, lovers and family.Man Booker Prize-winning author Paul Beatty says most books about disease try to describe the pain; told in poetic whisper, Karen Havelin's debut novel lets pain speak for itself. It's a book that dares you be nosy, to eavesdrop and listen in to a stoic young woman whom no one noticed until she began to disappear, her body disintegrating from the inside out until there's nothing left but searing agony and almost impossibly―a burning triumph.Jarringly funny and perceptive; an intimate reckoning with the inner demons and precarity of everyday life, unpacked through the very specific lens of a woman with chronic pain.

A Body, Undone: Living on After Great Pain


Christina Crosby - 2016
    She was a respected senior professor of English who had celebrated her fiftieth birthday a month before. As she crested a hill, she caught a branch in the spokes of her bicycle, which instantly pitched her to the pavement. Her chin took the full force of the blow, and her head snapped back. In that instant, she was paralyzed.In A Body, Undone, Crosby puts into words a broken body that seems beyond the reach of language and understanding. She writes about a body shot through with neurological pain, disoriented in time and space, incapacitated by paralysis and deadened sensation. To address this foreign body, she calls upon the readerly pleasures of narrative, critical feminist and queer thinking, and the concentrated language of lyric poetry. Working with these resources, she recalls her 1950s tomboy ways in small-town, rural Pennsylvania, and records growing into the 1970s through radical feminism and the affirmations of gay liberation.Deeply unsentimental, Crosby communicates in unflinching prose the experience of "diving into the wreck" of her body to acknowledge grief, and loss, but also to recognize the beauty, fragility, and dependencies of all human bodies. A memoir that is a meditation on disability, metaphor, gender, sex, and love, A Body, Undone is a compelling account of living on, as Crosby rebuilds her body and fashions a life through writing, memory, and desire.

Beasts of Burden: Animal and Disability Liberation


Sunaura Taylor - 2015
    Fusing philosophy, memoir, science, and the radical truths these disciplines can bring—whether about factory farming, disability oppression, or our assumptions of human superiority over animals—Taylor draws attention to new worlds of experience and empathy that can open up important avenues of solidarity across species and ability. Beasts of Burden is a wonderfully engaging and elegantly written work, both philosophical and personal, by a brilliant new voice.

Mermaid: A Memoir of Resilience


Eileen Cronin - 2014
    Her boisterous Catholic family accepted her situation as “God’s will,” treating her no differently than her ten siblings, as she “squiddled” through their 1960s Cincinnati home. But starting school, even wearing prosthetics, Cronin had to brave bullying and embarrassing questions. Thanks to her older brother’s coaching, she handled a classmate’s playground taunts with a smack from her lunchbox. As a teen, thrilled when boys asked her out, she was confused about what sexuality meant for her. She felt most comfortable and happiest relaxing and skinny dipping with her girlfriends, imagining herself “an elusive mermaid.” The cause of her disability remained taboo, however, even as she looked toward the future and the possibility of her own family.In later years, as her mother battled mental illness and denied having taken the drug thalidomide—known to cause birth defects—Cronin felt apart from her family. After the death of a close brother, she turned to alcohol. Eventually, however, she found the strength to set out on her own, volunteering at hospitals and earning a PhD in clinical psychology.Reflecting with humor and grace on her youth, search for love, and quest for answers, Cronin spins a shimmering story of self-discovery and transformation.

12 Principles for Raising a Child with ADHD


Russell A. Barkley - 2020
    Barkley has become a leading authority on attention-deficit/hyperactivity disorder (ADHD) in kids and teens. He has learned what a huge difference parents can make in supporting their children's success--as well as how overwhelming it can be. This concise guide presents 12 key parenting principles for dealing with common behavioral, emotional, and school challenges. By cultivating a mindset of acceptance and compassion--together with an understanding of the executive function deficits of ADHD--you can strengthen your loving connection with your child and help your whole family thrive. Filled with practical suggestions and quick-reference lists and tips, this is the perfect book to read cover to cover or pick up any time you need extra support.

Tender Points


Amy Berkowitz - 2015
    Named after the diagnostic criteria for fibromyalgia, the book-length lyric essay explores sexual violence, gendered illness, chronic pain, and patriarchy through the lenses of lived experience and pop culture (Twin Peaks, Teenage Mutant Ninja Turtles, noise music, etc.). Teaching Guide (or Book Club Guide) here: bit.ly/2aqJV2X

The Ultimate Guide to Sex and Disability: For All of Us Who Live with Disabilities, Chronic Pain, and Illness


Miriam Kaufman - 2003
    For sufferers of ailments from chronic fatigue syndrome and spinal cord injury to multiple sclerosis, fibromyalgia, and others, the book provides encouragement, support, and expert information on sex positions, orgasm, and sex toys. It also features illustrations, a resource guide with hundreds of books, websites, and organizations.

Safety Skills for Asperger Women: How to Save a Perfectly Good Female Life


Liane Holliday Willey - 2011
    The focus throughout is on keeping safe, and this extends to travel, social awareness, and general life management. With deeply personal accounts from the author's own experiences, this book doesn't shy away from difficult issues such as coping with bullying, self-harm, depression, and eating disorders. The positive and encouraging advice gives those with AS the guidance to safeguard themselves from emotional and physical harm, and live happy and independent lives.This book will be essential reading for all females with Asperger Syndrome, their friends and families, and all professionals whose work brings them into contact with females with AS.

Extraordinary Bodies: Figuring Physical Disability in American Culture and Literature


Rosemarie Garland-Thomson - 1996
    Rosemarie Garland Thomson examines disabled figures in sentimental novels such as Harriet Beecher Stowe's Uncle Tom's Cabin and Rebecca Harding Davis's Life in the Iron Mills, African-American novels by Toni Morrison and Audre Lorde, and the popular cultural ritual of the freak show.

Loud Hands: Autistic People, Speaking


Julia Bascom - 2012
    Loud Hands: Autistic People, Speaking is a collection of essays written by and for Autistic people. Spanning from the dawn of the Neurodiversity movement to the blog posts of today, Loud Hands: Autistic People, Speaking catalogues the experiences and ethos of the Autistic community and preserves both diverse personal experiences and the community’s foundational documents together side by side.-from ASAN

Everyone Here Spoke Sign Language: Hereditary Deafness on Martha's Vineyard


Nora Ellen Groce - 1984
    In stark contrast to the experience of most Deaf people in our own society, the Vineyarders who were born Deaf were so thoroughly integrated into the daily life of the community that they were not seen--and did not see themselves--as handicapped or as a group apart. Deaf people were included in all aspects of life, such as town politics, jobs, church affairs, and social life. How was this possible?On the Vineyard, hearing and Deaf islanders alike grew up speaking sign language. This unique sociolinguistic adaptation meant that the usual barriers to communication between the hearing and the Deaf, which so isolate many Deaf people today, did not exist.

The Theory of Hummingbirds


Michelle Kadarusman - 2017
    They have wings." That's what Alba's mother always says. Of course, Alba doesn't have wings or two good feet: she has Cleo. Cleo is the name Alba has given to her left foot, which was born twisted in the wrong direction. When she points this out, though, her mother just smiles like the world has some surprise in store she doesn't know about yet.Well, Alba has her own surprise planned. After many surgeries and one final cast, Cleo is almost ready to meet the world straight on--just in time to run in the school cross-country race. Unfortunately, Alba's best friend Levi thinks there's no way she can pull it off. And she thinks there's no way he's right about the school librarian hiding a wormhole in her office. Tempers flare. Sharp words fly faster than hummingbirds. And soon it looks like both friends will be stuck proving their theories on their own.The Theory of Hummingbirds is now available in a paperback edition with French flaps and a brand-new cover!

Troublemakers: Lessons in Freedom from Young Children at School


Carla Shalaby - 2017
    Time and again, we make seemingly endless efforts to moderate, punish, and even medicate our children, when we should instead be concerned with transforming the very nature of our institutions, systems, and structures, large and small. Through delicately crafted portraits of these memorable children—Zora, Lucas, Sean, and Marcus—Troublemakers allows us to see school through the eyes of those who know firsthand what it means to be labeled a problem.From Zora’s proud individuality to Marcus’s open willfulness, from Sean’s struggle with authority to Lucas’s tenacious imagination, comes profound insight—for educators and parents alike—into how schools engender, exclude, and then try to erase trouble, right along with the young people accused of making it. And although the harsh disciplining of adolescent behavior has been called out as part of a school-to-prison pipeline, the children we meet in these pages demonstrate how a child’s path to excessive punishment and exclusion in fact begins at a much younger age.Shalaby’s empathetic, discerning, and elegant prose gives us a deeply textured look at what noncompliance signals about the environments we require students to adapt to in our schools. Both urgent and timely, this paradigm-shifting book challenges our typical expectations for young children and with principled affection reveals how these demands—despite good intentions—work to undermine the pursuit of a free and just society.

Babies with Down Syndrome: A New Parents' Guide


Susan Skallerup - 2008
    Covering the best practices for raising and caring for children with Down syndrome through age five, this book is invaluable to new parents who have welcomed a baby with Down syndrome into their lives. This new edition incorporates the latest scientific, medical, educational research, and practical information available, as well as parents' suggestions and feedback. Existing chapters have been revised, some completely rewritten by new authors, and in keeping with its parent-friendly reputation, most of the book's contributors are parents of children with Down syndrome Chapters cover: - What Is Down Syndrome?: A primer on the causes, characteristics, and diagnosis, including the latest information on genetics and prenatal testing;- Adjusting to Your Baby: Advice from an experienced mother on coping with common emotions and announcing the news to friends and family;- Medical Concerns & Treatments: An overview of possible health issues including celiac disease, sleep apnea, diabetes, reflux, and skin problems, with an emphasis on detecting signs early for needed treatment;- Daily Care: The gamut of care from feeding to bathing, with expanded information about toilet training;- Family Life: The impact on siblings and couples, discipline issues, and new material to help everyone understand that a child's behavior is a form of communication;- Development & Learning: Expectations about development plus new material on variability in development, learning styles, using reading todevelop language, memory strengths and weaknesses, and using play to encourage learning;- Early Intervention: An overview of services and therapies for babies & toddlers with new information on the transdisciplinary approach, providing services in the natural environment, transitioning preschool, and common questions & answers;- Legal Rights & Financial Issues: Explains your child's educational and legal rights, and financial information, including the latest on federal education and civil rights laws, sources of financial assistance, health insurance, trusts, and guardianship.Full of new photos, parent statements, updated and expanded resources and reading lists, this build everything parents need to build a bright and healthy future for their child with Down syndrome.

Stigma: Notes on the Management of Spoiled Identity


Erving Goffman - 1963
    Disqualified from full social acceptance, they are stigmatized individuals. Physically deformed people, ex-mental patients, drug addicts, prostitutes, or those ostracized for other reasons must constantly strive to adjust to their precarious social identities. Their image of themselves must daily confront and be affronted by the image which others reflect back to them.Drawing extensively on autobiographies and case studies, sociologist Erving Goffman analyzes the stigmatized person’s feelings about himself and his relationship to “normals” He explores the variety of strategies stigmatized individuals employ to deal with the rejection of others, and the complex sorts of information about themselves they project. In Stigma the interplay of alternatives the stigmatized individual must face every day is brilliantly examined by one of America’s leading social analysts.