You need a new road map, and fast...When Jennifer Groneberg and her husband learned they'd be having twin boys, their main concern was whether they'd need an addition on their house. Then, five days after Avery and Bennett were born, Avery was diagnosed with Down syndrome.Here, Jennifer shares the story of what followed. She dealt with doctors-some who helped, and some who were disrespectful or even dangerous. She saw some relationships in her life grow stronger, while severing ties with people who proved unsupportive. And she continues to struggle to find balance in the hardships and joys of raising a child with special needs. This book is a resource, a companion for parents, and above all, a story of the love between a mother and her son-as she learns that Avery is exactly the child she never knew she wanted.

    If the problem is physical, she takes the child to a doctor. But if the problem is a misunderstanding of her child's mind, where does she turn for help? This is Ben's story. He was a happy, healthy boy -- a mother's dream come true. Yet by the age of three, Ben's development was significantly delayed: He couldn't make sense of the simplest phrases, and he still hadn't started talking. When Karen Foli finally took her son, Ben, to a speech and hearing clinic, she was told that he was "probably retarded and perhaps autistic." But Karen knew that Ben was highly perceptive, even frustrated by his inability to communicate. Trusting her "mother's intuition," Karen set out on a journey to learn the truth about her son's condition....and what she found was APD. A person with auditory processing disorder receives jumbled and distorted sounds. But the ability to hear is usually normal. Even though it affects millions of Americans, APD can be difficult to diagnose and challenging to treat. Through years of research, and personal interviews, Karen Foli learned everything she needed to know about APD in order to help her son achieve the greatest gift of all: communication. Like Sound Through Water is her story -- winning, inspiring, and true.

    And that is the case with My Heart Can't Even Believe It, by journalist, blogger, and NPR contributor Amy Silverman. Amy bravely looks at her life, before and after her daughter Sophie was born, and reflects on her transformation from "a spoiled, self-centered brat," who used words like retard and switched lines at the Safeway to avoid a bagger with special needs, into the mother of a kid with Down syndrome and all that her new identity entails. She describes her evolution as gradual, one built by processing her fears and facing questions both big and small about Sophie, Down syndrome, and her place in the world. Funny, touching, and honest, this wonderful book looks at a daughter and her power to change minds and fill hearts with love so deep.

    That's what I would give to you." -Fanni Victoria Green-Lemons, in conversation with her daughter, Danyealah Green-Lemons In "Mom," Dave Isay-StoryCorps's founder and the editor of the project's bestselling collection, "Listening Is an Act of Love"-presents a celebration of American mothers. Featuring StoryCorps's most revelatory stories on the subject, "Mom" looks across a diversity of experience to present an entirely original portrait of motherhood. Through conversations between parents and children, husbands and wives, siblings and friends, the life of the American mother unfolds. In stories that take us from the woods of New Hampshire to urban Detroit and beyond, we meet mothers and children from all walks of life-an immigrant mother instilling in her children the importance of education, adult children caring for an elderly parent, a woman remembering the sound of her mother's laugh, and mothers and children of all ages learning to grow into new roles over time. Visiting families in moments of profound joy and sadness, courage and despair, struggle and triumph, we learn new truths about that most primal and sacred of bonds-the relationship between mother and child. With this vital contribution to the American storybook, StoryCorps has created a tribute to mothers that honors the wealth of our national experience. An appreciation of the wisdom and generosity passed between mothers and children, this generation to the next, "Mom" offers powerful lessons in the meaning of family and the expansiveness of the human heart. Watch a Video

    This "rueful, riveting, piercingly funny" (Julia Cameron) book is written by a Harvard graduate--but it tells a story in which hearts trump brains every time. It's a tale about mothering a Down syndrome child that opts for sass over sap, and it's a book of heavenly visions and inexplicable phenomena that's as down-to-earth as anyone could ask for. This small masterpiece is Martha Beck's own story--of leaving behind the life of a stressed-out superachiever, opening herself to things she'd never dared consider, meeting her son for (maybe) the first time...and "unlearn[ing] virtually everything Harvard taught [her] about what is precious and what is garbage.""Beck [is] very funny, particularly about the most serious possible subjects--childbirth, angels and surviving at Harvard." --New York Times Book Review"Immensely appealing...hooked me on the first page and propelled me right through visions and out-of-body experiences I would normally scoff at." --Detroit Free Press"I challenge any reader not to be moved by it." --Newsday"Brilliant." --Minneapolis Star-Tribune

    That's what adoptive mom Heather Avis learned, and that's the invitation of this book.As the mother of three adopted children - two with Down syndrome - Heather Avis has learned that it's truly the lucky few who get to live a life like hers, who actually recognize that God's plans are best, even when they seem so radically different from the plans we have for ourselves.When Heather started her journey into parenthood she never thought it would look like this, never planned to have three adopted children, and certainly never imagined that two of them would have Down syndrome. But like most things God does, once she stepped into the craziness and confusion that comes with the unknown and the unplanned, she realized that they were indeed among the lucky few.Discover in this book what 70,000+ followers of Heather's hit Instagram account @macymakesmyday already know: the power of faith and family can help us stay strong in the toughest times. This book will also be especially touching to those with adopted family members or children with Down syndrome in their lives.

    At nine he started working on an original theory in astrophysics that experts believe may someday put him in line for a Nobel Prize, and at age twelve he became a paid researcher in quantum physics. But the story of Kristine’s journey with Jake is all the more remarkable because his extraordinary mind was almost lost to autism. At age two, when Jake was diagnosed, Kristine was told he might never be able to tie his own shoes. The Spark is a remarkable memoir of mother and son. Surrounded by “experts” at home and in special ed who tried to focus on Jake’s most basic skills and curtail his distracting interests—moving shadows on the wall, stars, plaid patterns on sofa fabric—Jake made no progress, withdrew more and more into his own world, and eventually stopped talking completely. Kristine knew in her heart that she had to make a change. Against the advice of her husband, Michael, and the developmental specialists, Kristine followed her instincts, pulled Jake out of special ed, and began preparing him for mainstream kindergarten on her own. Relying on the insights she developed at the daycare center she runs out of the garage in her home, Kristine resolved to follow Jacob’s “spark”—his passionate interests. Why concentrate on what he couldn’t do? Why not focus on what he could? This basic philosophy, along with her belief in the power of ordinary childhood experiences (softball, picnics, s’mores around the campfire) and the importance of play, helped Kristine overcome huge odds. The Barnetts were not wealthy people, and in addition to financial hardship, Kristine herself faced serious health issues. But through hard work and determination on behalf of Jake and his two younger brothers, as well as an undying faith in their community, friends, and family, Kristine and Michael prevailed. The results were beyond anything anyone could have imagined. Dramatic, inspiring, and transformative, The Spark is about the power of love and courage in the face of overwhelming obstacles, and the dazzling possibilities that can occur when we learn how to tap the true potential that lies within every child, and in all of us.

    In the process, she founded The Miracle Project, a groundbreaking organization that uses the performing arts to connect with children with autism. Both controversial and unorthodox, Hall's innovative approach has been praised by leaders in the field of autism, including Temple Grandin, Barry Prizant, and Dr. Stanley Greenspan. She was also the subject of the Emmy Award-winning documentary Autism: The Musical. Hall now speaks around the country sharing her wisdom. Now I See the Moon is a story of hope, faith, and miracles; it is a story only a mother could tell.

    To learn how others had moved beyond labels, he bought his own short bus and set out cross-country, looking for kids who had dreamed up magical, beautiful ways to overcome the obstacles that separated them from the so-called normal world.The Short Bus is his irreverent and poignant record of that odyssey, meeting thirteen people in thirteen states who taught Mooney that there’s no such thing as normal—and that to really live, every person must find their own special way of keeping on.  The Short Bus is a unique gem, propelled by Mooney’s heart, humor, and outrageous rebellions.

    Narrated by two "imperfect" sisters with "special" children, the book features a collection of entertaining and heartwarming stories from parents of children with a wide range of disabilities. It will have any parent laughing out loud and viewing the positive side of raising an "imperfect" child with humorous chapters like: Us vs. Them battle: "It's hard to hear about how good their kid is on the baseball field, when yours would rather catch real flies." Medication: "We've met parents who feel guilty for putting their kids on meds for not putting their kids on meds even for taking their kids' meds. ("That Ritalin really helped; you should have seen me organize those closets.") Food: "Yes, my daughter would like a Happy Meal. Just hold the meal and she'll be happy." Marriage: "You can remember the name of Beaver Cleaver's first grade teacher, but you can't remember the name of your child's disability?" Sports: "Do we have to follow the ball Mom? It's more fun following a bee!" Everyday life: "Sorry I missed the bus Mom; I was practicing funny faces in the mirror."

     Anne Lamott, Jayne Anne Phillips, Sallie Tisdale, Susan Straight, Jane Lazarre, Nora Okja Keller, Beth Kephart, Ariel Gore, Alex Witchel, and many other contemporary writers elevate the discussion of motherhood above the level of tantrum control and potty training. Irreverent, wistful, hilarious, fierce, and tender, these essays offer an unsparing look at the myths and realities, the serious and silly sides, the thankless and supremely satisfying aspects of being a mom -- and are a testament to the notion that motherhood gives women more to think about, not less.

    Covering the best practices for raising and caring for children with Down syndrome through age five, this book is invaluable to new parents who have welcomed a baby with Down syndrome into their lives. This new edition incorporates the latest scientific, medical, educational research, and practical information available, as well as parents' suggestions and feedback. Existing chapters have been revised, some completely rewritten by new authors, and in keeping with its parent-friendly reputation, most of the book's contributors are parents of children with Down syndrome Chapters cover: - What Is Down Syndrome?: A primer on the causes, characteristics, and diagnosis, including the latest information on genetics and prenatal testing;- Adjusting to Your Baby: Advice from an experienced mother on coping with common emotions and announcing the news to friends and family;- Medical Concerns & Treatments: An overview of possible health issues including celiac disease, sleep apnea, diabetes, reflux, and skin problems, with an emphasis on detecting signs early for needed treatment;- Daily Care: The gamut of care from feeding to bathing, with expanded information about toilet training;- Family Life: The impact on siblings and couples, discipline issues, and new material to help everyone understand that a child's behavior is a form of communication;- Development & Learning: Expectations about development plus new material on variability in development, learning styles, using reading todevelop language, memory strengths and weaknesses, and using play to encourage learning;- Early Intervention: An overview of services and therapies for babies & toddlers with new information on the transdisciplinary approach, providing services in the natural environment, transitioning preschool, and common questions & answers;- Legal Rights & Financial Issues: Explains your child's educational and legal rights, and financial information, including the latest on federal education and civil rights laws, sources of financial assistance, health insurance, trusts, and guardianship.Full of new photos, parent statements, updated and expanded resources and reading lists, this build everything parents need to build a bright and healthy future for their child with Down syndrome.

    Enjoy being a parent again!

    In Sweden children play outside all year round, regardless of the weather, and letting young babies nap outside in freezing temperatures is not only common—it is a practice recommended by physicians. In the US, on the other hand, she found that the playgrounds, which she had expected to find teeming with children, were mostly deserted. In preschool, children were getting drilled to learn academic skills, while their Scandinavian counterparts were climbing trees, catching frogs, and learning how to compost. Worse, she realized that giving her daughters the same freedom to play outside that she had enjoyed as a child in Sweden could quickly lead to a visit by Child Protective Services. The brewing culture clash finally came to a head when McGurk was fined for letting her children play in a local creek, setting off an online firestorm when she expressed her anger and confusion on her blog. The rules and parenting philosophies of her native country and her adopted homeland were worlds apart. Struggling to fit in and to decide what was best for her children, McGurk turned to her own childhood for answers. Could the Scandinavian philosophy of “there is no such thing as bad weather, only bad clothes” be the key to better lives for her American children? And how would her children’s relationships with nature change by introducing them to Scandinavian concepts like friluftsliv (“open-air living”) and hygge (the coziness and the simple pleasures of home)? McGurk embarked on a six-month-long journey to Sweden to find out. There’s No Such Thing as Bad Weather is a fascinating personal narrative that highlights the importance of spending time outdoors, and illustrates how the Scandinavian culture could hold the key to raising healthier, resilient, and confident children in America.

    Doctors predicted that she would never intellectually develop beyond the abilities of a small child. Although she made some progress after years of intensive behavioral and communication therapy, Carly remained largely unreachable. Then, at the age of ten, she had a breakthrough. While working with her devoted therapists Howie and Barb, Carly reached over to their laptop and typed in "HELP TEETH HURT," much to everyone's astonishment. This was the beginning of Carly's journey toward self-realization. Although Carly still struggles with all the symptoms of autism, which she describes with uncanny accuracy and detail, she now has regular, witty, and profound conversations on the computer with her family, her therapists, and the many thousands of people who follow her via her blog, Facebook, and Twitter. In Carly's Voice, her father, Arthur Fleischmann, blends Carly's own words with his story of getting to know his remarkable daughter. One of the first books to explore firsthand the challenges of living with autism, it brings readers inside a once-secret world and in the company of an inspiring young woman who has found her voice and her mission.