But during one play date, his mother notices that her son is slightly different from the other children. In the alternately heartwarming and bittersweet tale, a young mother tries to cope with both the overwhelming discovery of her child's autism and the trials of raising him while keeping her family together. This is a story that resonates not only for those whose families have been affected by autism, but also for all past, present, and future parents.

    Now Amy lies somewhere between life and death. Erin and her parents must find the courage to accept that Amy's life support system will never bring her back. Can Amy's dying become hope for someone else's living?Time to Let GoThe doctors assure Erin Bennett and her parents that they can't find any physical cause for her headaches, but the throbbing, violent pain is so intense that Erin knows she needs help. Even landing the lead in the senior musical opposite David Delvin doesn't give her much pleasure. The headaches started just after the death of Erin's younger sister Amy. Erin thought her grieving was over. A therapist begins to help her deal with the pain, but what is it about David that triggers Erin's violent reaction.

    The first section presents disability in a historical context, from the first “deaf and dumb” person granted the right to have sex to the surgeon who first cauterized war wounds. The middle section explores the physician as lover, and the final section depicts the rise and fall of a relationship. Characterized by a flesh-and-blood character, Holman, who also represents the larger tensions that arise between the abled and disabled.

    Embracing contradiction and repetition, this work maps itself around embodied experiences of disability, race, gender transgression and transition, family violence, and sexuality.

    Shattered perceptions and shards of narrative recount the events, from wreck through recovery and beyond. In lyric prose, the stories spiral back through generations to touch on questions of mortality and family, immigration and migration, legacies intended or inflicted. In the wake of her near-fatal cycling collision, Peggy Shumaker searches for meaning within extremity. Through a long convalescence, she reevaluates her family’s past, treating us to a meditation on the meaning of justice and the role of love in the grueling process of healing. Her book, a moving memoir of childhood and family, testifies to the power of collective empathy in the transformations that make and remake us throughout our lives. We all live with injury and loss. This book transforms injury, transforms loss. Shumaker crafts language unlike anyone else, language at once poetic and profound. Her memoir enacts our human desire to understand the fragmented self. We see in practice the power of words to restore what medical science cannot: the fragile human psyche and its immense capacity for forgiveness.

    They wanted to be ballerinas and dance on stage like their sisters and cousins and friends.But it would be hard for these girls to make their dream come true. They had cerebral palsy or other physical disabilities, which meant their muscles didn’t move the way they wanted them to. Some wore leg braces. Some used wheelchairs and walkers to get around. But these girls were determined. They had a dedicated teacher.  Every week they practiced. They worked hard. And one day they were ready.     Ballerina Dreams is an inspiring true story of love, hope and courage for everyone and anyone who has ever wished (and worked) hard enough to make their dreams come true.Ballerina Dreams is the winner of the 2008 Bank Street - Flora Stieglitz Award.

    But for twin girls with the disease, what began as a family’s stubborn determination grew into a miracle.            The tragedy of CF has been touchingly recounted in such books as Frank Deford’s Alex: The Life of a Child, but The Power of Two is the first book to portray the symbiotic relationship between twins who share this life-threatening disease through adulthood. Isabel Stenzel Byrnes and Anabel Stenzel tell of their lifelong struggle to pursue normal lives with cystic fibrosis while grappling with the realization that they will die young. Their story reflects the physical and emotional challenges of a particularly aggressive form of CF and tells how the twins’ bicultural heritage—Japanese and German—influenced the way they coped with these challenges.            Born in 1972, seventeen years before scientists discovered the genetic mutation that causes CF, Isabel and Anabel endured the daily regimen of chest percussion, frequent doctor visits, and lengthy hospitalizations. But they tell how, in the face of innumerable setbacks, their deep-seated dependence on each other allowed them to survive long enough to reap the benefits of the miraculous lung transplants that marked a crossroads in their lives: “We have an old life—one of growing up with chronic illness—and a new life—one of opportunities and gifts we have never imagined before.” In this memoir, they pay tribute to the people who shaped their experience.            The Power of Two is an honest and gripping portrayal of day-to-day health care, the impact of chronic illness on marriage and family, and the importance of a support network to continuing survival. It conveys an important message to both popular and professional readers as it addresses key psychosocial issues in chronic illness throughout the sufferer’s lifespan and illuminates the human side of advances in biotechnology.            Even as gene therapy and stem cell research increase the chances for eradicating CF, this stirring account portrays its effects on one family that refused to give up. These two remarkable sisters have much to teach about the power of perseverance—and about the ultimate power of hope.

    He had never been declared insane by a medical professional or found guilty of any criminal charge. But he was deaf and black in the Jim Crow South. Unspeakable is the story of his life.Using legal records, institutional files, and extensive oral history interviews--some conducted in sign language--Susan Burch and Hannah Joyner piece together the story of a deaf man accused in 1925 of attempted rape, found insane at a lunacy hearing, committed to the criminal ward of the State Hospital for the Colored Insane, castrated, forced to labor for the institution, and held at the hospital for more than seven decades. Junius Wilson's life was shaped by some of the major developments of twentieth-century America: Jim Crow segregation, the civil rights movement, deinstitutionalization, the rise of professional social work, and the emergence of the deaf and disability rights movements. In addition to offering a bottom-up history of life in a segregated mental institution, Burch and Joyner's work also enriches the traditional interpretation of Jim Crow by highlighting the complicated intersections of race and disability as well as of community and language. This moving study expands the boundaries of what biography can and should be. There is much to learn and remember about Junius Wilson--and the countless others who have lived unspeakable histories.

    By the time he was thirty, he was one of the top heart and lung specialists in Chicago. A new biography, The Blind Doctor: The Jacob Bolotin Story by Rosalind Perlman, reveals the amazing life of a remarkable man who was born blind to poor parents in Chicago in 1888. During the last years of his short life, Dr. Bolotin used his celebrity to give speeches around the Midwest to raise the awareness of the world to the plight of the blind. When he died at the age of thirty-six, five thousand people attended his funeral.

    What may be typical activities for most kids are a daily struggle that may result in social, emotional, or academic problems. Dr. Lucy Jane Miller, the best-known SPD researcher in the world, brings together a lifetime of study to teach parents and others the signs and symptoms of SPD and its four major subtypes; ways the disorder is diagnosed and treated; sensory strategies for living with the condition; and methods to help SPD kids thrive.

    Through poetry, art, and essays, this zine tells our stories—funny, sexy, and complex—as a radical act of resistance, and prioritizes the work of trans people and people of color working for radical social change.Featuring artwork, poetry, and essays by Ahimsa Timoteo Bodhrán, Sarain Cuthand, Louis Esmé Cruz, Sharon Deevey, Loree Erickson, romham padraig gallacher, Raven Gildea, emi k, Dani Frances Montgomery, Peggy Munson , billie rain, Tsi-ge'-yu Sharp, Captain Snowden, suki valentine, and Sharon Wachsler.

    The two boys love playing sports watching movies, reading books, and talking about animals. By working together, a best friend’s understanding and compassion change Matt’s frustration into excitement. No matter where they go—from the basketball court to the playground swings to the neighborhood pool—the two friends enjoy spending time with each other.*Ideal for fans of My Brother Charlie, All My Stripes, and I See Things Differently: A First Look at Autism *A delightful autism story book*A sweet story about two friends and how they help each otherDavid Harrington’s bright illustrations delightfully compliment Celeste Shally’s sweet and touching story of friendship. This book is the perfect guide for parents and children to better understand people with autism spectrum disorders.

    An Important Picture Book From Beverly LewisWhat parent hasn't urged her son or daughter not to stare or tease a child who is "different" or disabled in some way?As Jesse's sister struggle to understand her brother--and to deal with the kids who make fun of him--families everywhere will benefit from this sensitive yet realistic story about learning to understand and befriend a child with special needs.

    It's a touching tale of mutual devotion and teamwork. Hanni and Beth: Safe & Sound includes factual information about how Hanni was raised and trained, how Beth and Hanni learned to work together as a team, and what it's like to be blind.

    Explores canine behavior and behavior problems, including recognizing, preventing and correcting them.

    In doing so they emphasize the unknowability of another’s bodily experience and the effects—physical, emotional, and social—of medical procedures.In The Scar of Visibility, Petra Kuppers examines the use of medical imagery practices in contemporary art, as well as different arts of everyday life (self-help groups, community events, Internet sites), focusing on fantasies and “knowledge projects” surrounding the human body. Among the works she investigates are the controversial Body Worlds exhibition of plastinized corpses; video projects by Shimon Attie on diabetes and Douglas Gordon on mental health and war trauma; performance pieces by Angela Ellsworth, Bob Flanagan, and Kira O’Reilly; films like David Cronenberg’s Crash and Marina de Van’s In My Skin that fetishize body wounds; representations of the AIDS virus in the National Museum of Health and on CSI: Crime Scene Investigations; and the paintings of outsider artist Martin Ramírez.At the heart of this work is the scar—a place of production, of repetition and difference, of multiple nerve sensations, fragile skin, outer sign, and bodily depth. Through the embodied sign of the scar, Kuppers articulates connections between subjective experience, history, and personal politics. Illustrated throughout, The Scar of Invisibility broadens our understanding of the significance of medical images in visual culture.Petra Kuppers is associate professor of English at the University of Michigan, Ann Arbor, and the author of Disability and Contemporary Performance: Bodies on Edge.

    The typically brief office visit leaves little time for doctors to listen to their patients, though it is in these narratives that disease is both revealed and perpetuated--and can be released and treated. Lewis Mehl-Madrona’s Narrative Medicine examines the foundations of the indigenous use of story as a healing modality. Citing numerous case histories that demonstrate the profound power of narrative in healing, the author shows how when we learn to dialogue with disease, we come to understand the power of the “story” we tell about our illness and our possibilities for better health. He shows how this approach also includes examining our relationships to our extended community to find any underlying disharmony that may need healing. Mehl-Madrona points the way to a new model of medicine--a health care system that draws its effectiveness from listening to the healing wisdom of the past and also to the present-day voices of its patients.

    The collection includes a variety of women's illness narratives-poetry, essays, short fiction, short drama, analyses, and transcribed oral testimonies-as well as traditional analytic essays about themes and issues raised by the narratives. Stories of Illness and Healing bridges the artificial divide between women's lives and scholarship in gender, health, and medicine.The authors of these narratives are diverse in age, ethnicity, family situation, sexual orientation, and economic status. They are doctors, patients, spouses, mothers, daughters, activists, writers, educators, and performers. The narratives serve to acknowledge that women's illness experiences are more than their diseases, that they encompass their entire lives. The pages of this book echo with personal accounts of illness, diagnosis, and treatment. They reflect the social constructions of women's bodies, their experiences of sexuality and reproduction, and their roles as professional and family caregivers. Finally, and perhaps most importantly, Stories of Illness and Healing draws the connection between women's suffering and advocacy for women's lives.

    Too often, though, people with developmental and other disabilities lack the opportunities and supports to fully participate in the life of their faith community. That’s why families and service providers need to read this groundbreaking guidebook—and share a copy with congregations that want to become places of welcome and belonging for people with disabilities.Bringing his practical ideas to life with anecdotes, quotes, and examples of successful strategies, Erik Carter helps readersreflect on how welcoming their congregation is—and could be—for people with disabilities and their familiesarticulate and pursue a bold vision of inclusion throughout their congregation, community, city, or statetake steps to break down attitudinal, architectural, programmatic, and other barriers to inclusiondesign appropriate, inclusive religious education programs for children, youth, and adultslearn how service providers can actively support the spiritual preferences, strengths, and needs of people with disabilitiesTo make inclusion work in any faith community, this how-to book gives readers workable strategies and photocopiable forms for identifying “indicators of welcome,†encouraging community outreach, and gathering important information about the support needs of people with disabilities and their families.

    Then, in her thirties, she was diagnosed with multiple sclerosis. In I've Heard the Vultures Singing, Perillo confronts, in stark but funny terms, the ironies of being someone with her history and gusto for life being suddenly unable to walk. ("Ground-truthing" is what biologists call entering an environment and surveying what is there via the senses of sight and sound.) These essays explore what it’s like to experience desire as a sick person, how to lower one’s expectations just enough for a wilderness experience, and how to navigate the vagaries of a disease that has no predictable trajectory. I've Heard the Vultures Singing records in unflinching, honest prose one woman’s struggle to find her place in a difficult new world.

    Winner of the Prairie Schooner Prize in Poetry, this collection plumbs the depths of nature and culture (how, for instance, “gar” in Old English means “spear,” and an octopus can lose a limb during mating) to give form to the darkness and the light that make us human. In poetry whose tone is largely one of lament tempered by a wry and intelligent humor, Paul Guest does what a poet does best: he gives us the moments of his life refashioned to reflect the larger arc and meaning of our own—of life, that is, writ large.

    This reassuring, easy-to-use guide features advice on:Adjusting to life with diabetesHelping your children take control of their healthMonitoring diet and insulin levelsHandling emergenciesFinding support for you and your childrenThe Everything Parent's Guide to Children with Juvenile Diabetes helps parents deal with the challenges you and your child face when living with diabetesOone day at a time. Moira McCarthy is a well-known parent in the diabetes community. She is the national chairman of government advocacy of the Juvenile Diabetes Research Foundation and volunteers as a Bag of Hope delivery mom to newly diagnosed families. An award-winning news reporter and magazine writer, Ms. McCarthy has appeared on CNN, many other national and local news programs, and twice on the front page of the New York Times.Jake Kushner, M.D., was a postdoctoral research fellow at the Laboratory of Morris White, the Howard Hughes Medical Institute, the Joslin Diabetes Center, and Harvard Medical School. He has worked as an instructor in medicine in the Department of Pediatrics at Harvard Medical School and as a faculty member in the Cell and Molecular Biology Graduate Group and Cell Biology and Physiology Program at the University of Pennsylvania School of Medicine.

    One in a series of guides for teachers, this text presents 100 ideas for supporting pupils with dyslexia.

    Her graceful account of the first year in this new reality is so vivid that the reader hears the clocks ticking. This is a story of unwavering love and loyalty, of faith brutally tested, and of outcomes possible only when luck, deep courage, and advanced medical technology combine. Humor, honesty, and flawless writing make this book a must-read.

    Tickles, and wants to get him another cat to keep company while she's at school? What happens after Jennifer and her mother find another cat one day while going to go shopping to get her some new clothes at mall and later finds it again when they have a pet carrier to bring it home in? What happens when her two cats meet for the first time? What happens after she discovers her new cat, who she has named Uno, has only one eye? What happens when a new girl, Hillary, who's in a wheelchair, joins her class? And last, what is the lesson the book tries to convey? All of these questions get answered in the award winning children's book "A Lesson My Cat Taught Me." This book was a runner-up in the 2011 Sharp Writ Awards - Children's Books Category.

    One day, Morris's dad read him an article about an American dog trainer living in Switzerland. This is the story of his relationship with Buddy, his own seeing eye dog.

    Includes info on mood stabilizers, anti-psychotics, anti-depressants, anti-anxiety drugs, risks, benefits, wellness tools, withdrawal, detailed Resource section, information for people staying on their medications, and much more. Written by Will Hall, with a 14-member health professional Advisory board providing research assistance and 24 other collaborators involved in developing and editing. The guide has photographs and art throughout, and a beautiful original cover painting by Ashley McNamara.

    In the U.S. Native women are more likely than women from any other group to suffer violence, from rape and battery to more subtle forms of abuse, and Sharing Our Stories of Survival explores the causes and consequences of such behavior. The stories and case-studies presented here are often painful and raw, and the statistics are overwhelmingly grim; but a countervailing theme also runs through this extremely informative volume: Many of the women who appear in these pages are survivors, often strengthened by their travails, and the violence examined here is human violence, meaning that it can be changed, if only with much effort and education. The first step is to lay out the truth for all to see, and that is the purpose accomplished by this book.

    If you have had a seizure or if you’re one of the 3 million Americans experiencing epilepsy, you might not know how best to cope with this common condition. Many myths surround epilepsy, and it’s hard to separate them from the facts. In Cleveland Clinic Guide to Epilepsy, Dr. Elaine Wyllie, a world-renowned pediatric neurologist and epilepsy specialist, sets the facts straight. She shares insights, discoveries, and inspiring stories from the front lines. Inside you’ll find guidance to help you: • Understand your diagnosis in order to gain the best care possible. • Know what to expect when you or someone you love has a seizure. • Discover the newest treatments and what to do if the medications aren’t working. • Get the facts about epilepsy in people of all ages and understand issues specific to children, seniors, and women. • Find inspiration and encouragement from the powerful stories of people who have experienced epilepsy.

    Victoria reads a story, paints a picture, bakes biscuits and plays games with the other children in this sensitive and inclusive portrayal of a typical day in the life of a little girl with Downs Syndrome.

    This book brings together the best disability studies in education scholars to address the pressing questions facing the field. It provides an introduction to the field for the newcomer, a sharp challenge to the status quo in special and general education, and a map to understanding the serious disability issues confronting education today.

    It was this desire that led him to create his most famous invention, the telephone, and turned him into one of the most well-known names of all time. Young readers will find themselves fascinated by this in-depth look at Bell’s life and times; his journey from compassionate teacher to master inventor; his success—by just a day—in becoming the first to patent his new creation; and his other, less celebrated, but important achievements.

    Kligman. While most of the experiments were testing cosmetics, detergents, and deodorants, the trials also included scores of Phase I drug trials, inoculations of radioactive isotopes, and applications of dioxin in addition to mind-control experiments for the Army and CIA. These experiments often left the subject-prisoners, mostly African Americans, in excruciating pain and had long-term debilitating effects on their health. This is one among many episodes of the sordid history of medical experimentation on the black population of the United States.The story of the Holmesburg trials was documented by Allen Hornblum in his 1998 book Acres of Skin. The more general history of African Americans as human guinea pigs has most recently been told by Harriet Washington in her 2007 book Medical Apartheid. The subject is currently a topic of heated public debate in the wake of a 2006 report from an influential panel of medical experts recommending that the federal government loosen the regulations in place since the 1970s that have limited the testing of pharmaceuticals on prison inmates.Sentenced to Science retells the story of the Holmesburg experiments more dramatically through the eyes of one black man, Edward "Butch" Anthony, who suffered greatly from the experiments for which he "volunteered" during multiple terms at the prison. This is not only one black man's highly personal account of what it was like to be an imprisoned test subject, but also a sobering reminder that there were many African Americans caught in the viselike grip of a scientific research community willing to bend any code of ethics in order to accomplish its goals and a criminal justice system that sold prisoners to the highest bidder.

    Her goal is to configure disability as something more than a problem, and beyond simply a positive or a negative, and to treat texts on disability as potential sites to examine neo-liberal culture. Titchkosky holds that through an exploration of the potential behind limited representations of disability, we can relate to disability as a meaningful form of resistance to the restricted normative order of contemporary embodiment.Incorporating a textual analysis of ordinary depictions of disability, this innovative study promises to represent embodied differences in new ways and alter our imaginative relations to the politics of the body.

    Overrepresented in special education classes, yet underrepresented in educational research, these students - the largest group within segregated special education classes - share their perceptions of the world and their place within it. Eight 'portraits in progress' consisting of their own words and framed by their poetry and drawings, reveal compelling insights about life inside and out of the American urban education system. The book uses an intersectional analysis to examine how power circulates in society throughout and among historical, cultural, institutional, and interpersonal domains, impacting social, academic, and economic opportunities for individuals, and expanding or circumscribing their worlds.

    She claims disablement as a site of powerful social and religious critique and reflection. With searing honesty, she reveals how our culture, only recently tolerant and supportive of disabled people, still fears them. The presence of disabled persons stands as a rebuke to our images of body and health, to the distorted values of our consumerist culture, and the globalized economy that embodies those values in unjust structures. Yet, Betcher claims, disablement has also revealed powerful alternative understandings of the body and body politic, in Scripture, in the actions of Jesus, in the healing work of the Spirit at work in the world. Brimming with insight, Betcher's work is a revelation and a bracing challenge to all Christians.