The Spark: A Mother's Story of Nurturing Genius


Kristine Barnett - 2013
    At nine he started working on an original theory in astrophysics that experts believe may someday put him in line for a Nobel Prize, and at age twelve he became a paid researcher in quantum physics. But the story of Kristine’s journey with Jake is all the more remarkable because his extraordinary mind was almost lost to autism. At age two, when Jake was diagnosed, Kristine was told he might never be able to tie his own shoes. The Spark is a remarkable memoir of mother and son. Surrounded by “experts” at home and in special ed who tried to focus on Jake’s most basic skills and curtail his distracting interests—moving shadows on the wall, stars, plaid patterns on sofa fabric—Jake made no progress, withdrew more and more into his own world, and eventually stopped talking completely. Kristine knew in her heart that she had to make a change. Against the advice of her husband, Michael, and the developmental specialists, Kristine followed her instincts, pulled Jake out of special ed, and began preparing him for mainstream kindergarten on her own. Relying on the insights she developed at the daycare center she runs out of the garage in her home, Kristine resolved to follow Jacob’s “spark”—his passionate interests. Why concentrate on what he couldn’t do? Why not focus on what he could? This basic philosophy, along with her belief in the power of ordinary childhood experiences (softball, picnics, s’mores around the campfire) and the importance of play, helped Kristine overcome huge odds. The Barnetts were not wealthy people, and in addition to financial hardship, Kristine herself faced serious health issues. But through hard work and determination on behalf of Jake and his two younger brothers, as well as an undying faith in their community, friends, and family, Kristine and Michael prevailed. The results were beyond anything anyone could have imagined. Dramatic, inspiring, and transformative, The Spark is about the power of love and courage in the face of overwhelming obstacles, and the dazzling possibilities that can occur when we learn how to tap the true potential that lies within every child, and in all of us.

Asperger's From the Inside Out: A Supportive and Practical Guide for Anyone with Asperger's Syndrome


Michael John Carley - 2008
    This fascinating book reveals his personal experience with the confusion and trauma associated with this condition-and offers insights into living an independent and productive life.Now the Executive Director of the world's largest Asperger's oranization, Carley helps readers in such areas as:- Social interactions - Nurturing interests - Whom to confide in-and how - Dealing with family and loved ones - Finding work that suits your strengths and talents

January First: A Child's Descent into Madness and Her Father's Struggle to Save Her


Michael Schofield - 2012
    In January's case, she is hallucinating 95 percent of the time that she is awake. Potent psychiatric drugs that would level most adults barely faze her. January, "Jani" to her family, has literally hundreds of imaginary friends. They go by names like 400-the-Cat, 100 Degrees, and 24 Hours and live on an island called "Calalini," which she describes as existing "on the border of my world and your world." Some of these friends are good, and some of them, such as 400, are very bad. They tell her to jump off buildings, attack her brother, and scream at strangers.In the middle of these never-ending delusions, hallucinations, and paroxysms of rage are Jani's parents, who have gone to the ends of the earth to keep both of their children alive and unharmed. They live in separate one-bedroom apartments in order to keep her little brother, Bohdi, safe from his big sister—and wage a daily war against a social system that has all but completely failed them. January First is the story of the daily struggles and challenges they face as they do everything they can to help their daughter while trying to keep their family together. It is the inspiring tale of their resolute determination and faith.

In a Different Key: The Story of Autism


John Donvan - 2016
    Beginning with his family’s odyssey, In a Different Key tells the extraordinary story of this often misunderstood condition, and of the civil rights battles waged by the families of those who have it. Unfolding over decades, it is a beautifully rendered history of ordinary people determined to secure a place in the world for those with autism—by liberating children from dank institutions, campaigning for their right to go to school, challenging expert opinion on what it means to have autism, and persuading society to accept those who are different.  It is the story of women like Ruth Sullivan, who rebelled against a medical establishment that blamed cold and rejecting “refrigerator mothers” for causing autism; and of fathers who pushed scientists to dig harder for treatments. Many others played starring roles too: doctors like Leo Kanner, who pioneered our understanding of autism; lawyers like Tom Gilhool, who took the families’ battle for education to the courtroom; scientists who sparred over how to treat autism; and those with autism, like Temple Grandin, Alex Plank, and Ari Ne’eman, who explained their inner worlds and championed the philosophy of neurodiversity. This is also a story of fierce controversies—from the question of whether there is truly an autism “epidemic,” and whether vaccines played a part in it; to scandals involving “facilitated communication,” one of many treatments that have proved to be blind alleys; to stark disagreements about whether scientists should pursue a cure for autism. There are dark turns too: we learn about experimenters feeding LSD to children with autism, or shocking them with electricity to change their behavior; and the authors reveal compelling evidence that Hans Asperger, discoverer of the syndrome named after him, participated in the Nazi program that consigned disabled children to death.<

Asperger Syndrome and Anxiety: A Guide to Successful Stress Management


Nick Dubin - 2009
    For people with Asperger Syndrome (AS), this stress can be particularly difficult to manage. On a daily basis people with AS must fit into a world that seems totally foreign to them and this can increase feelings of alienation and anxiety, making life's challenges especially hard to cope with.The first book on anxiety written specifically for adults with Asperger Syndrome, this book offers practical advice on how individuals with AS can manage their anxiety more effectively. As a person with AS who has struggled with feelings of anxiety and learnt how to overcome them, Nick Dubin shares his own tried and tested solutions along with up-to-date research on stress management for individuals with AS, including a chapter on Cognitive Behavioural Therapy (CBT). Dubin explores the key problem areas that can lead to anxiety for people with AS such as lack of social skills, difficulties establishing romantic relationships and uncertainty about employment.Asperger Syndrome and Anxiety provides real solutions to a common problem and is essential reading for anyone with AS who has trouble managing stress. The book will also be of interest to family members, teachers and other professionals working with individuals with AS.

The Oasis Guide to Asperger Syndrome: Advice, Support, Insight, and Inspiration


Patricia Romanowski Bashe - 2001
    One in 300 individuals may have AS--exhibiting characteristics such as average to high intelligence, obsessive behavior, intense special interests, and difficulty dealing with everyday social situations--and it is now more prevalent than childhood cancer and Down's syndrome. As the mother of a boy diagnosed with AS in 1994, Barbara Kirby found scant resources and support. She developed the internationally renowned OASIS (Online Asperger Syndrome Information and Support) Web site in 1995 to help other parents find the information they need. She teamed up with Patricia Romanowski Bashe, now co-owner of OASIS and herself the mother of a son with AS, to write "The OASIS Guide to Asperger Syndrome," which has become the standout authority in the field and a must-have for this growing audience. Now Bashe and Kirby have crafted a fully revised edition of this comprehensive resource for parents, teachers, therapists, and anyone who knows or works with someone with AS. In addition to discussing what AS looks like and how parents can guide their unique child through the social, emotional, and intellectual challenges of growing up, this edition includes new developments made in AS research over the past four years, new thinking on diagnosis and evaluation, the latest approaches to medication and social skills development, and tips on navigating the maze of interventions, therapies, and special education. The authors know firsthand the joys and frustrations of raising children with AS, and they share their own experiences as well as those of dozens of parents facing the same issues. Filled with practical information and emotional support, this is the most complete and authoritative guide available. Whether your child has been diagnosed or troubling symptoms are just becoming apparent, this book will point you in the right direction as you face the particular challenges of loving and raising a child with Asperger Syndrome.

Explaining Humans: What Science Can Teach Us about Life, Love and Relationships


Camilla Pang - 2020
    Desperate for a solution, Camilla asked her mother if there was an instruction manual for humans that she could consult. But, without the blueprint to life, she was hoping for, Camilla began to create her own. Now armed with a PhD in biochemistry, Camilla dismantles our obscure social customs and identifies what it really means to be human using her unique expertise and a language she knows best: science.Through a set of scientific principles, this book examines life's everyday interactions including:- Decisions and the route we take to make them;- Conflict and how we can avoid it;- Relationships and how we establish them;- Etiquette and how we conform to it.Explaining Humans is an original and incisive exploration of human nature and the strangeness of social norms, written from the outside looking in. Camilla's unique perspective of the world, in turn, tells us so much about ourselves - about who we are and why we do it - and is a fascinating guide on how to lead a more connected, happier life.

Eating an Artichoke: A Mother's Perspective on Asperger Syndrome


Echo R. Fling - 2000
    After two years at the pre-school, five-year-old Jimmy had failed to make any friends, had recently started to act aggressively towards his classmates, and was beginning to react violently to any changes in his routine. Echo was not taken completely by surprise: she had suspected for some time that her son was different from other children. Over the next five years, she and her husband accompanied Jimmy to doctors, medical specialists, learning consultants and psychologists. Finally, at the age of ten, Jimmy was diagnosed with Asperger Syndrome.This is the book that Echo Fling needed when she first set out to have Jimmy diagnosed, and it will enable parents and teachers to understand and help other children with Asperger Syndrome.

ADHD 2.0 : New Science and Essential Strategies for Thriving with Distraction—From Childhood Through Adulthood


Edward M. Hallowell - 2021
    Edward M. Hallowell and Dr. John J. Ratey literally "wrote the book" on ADD/ADHD more than two decades ago. Their bestseller, Driven to Distraction, largely introduced this diagnosis to the public and sold more than a million copies along the way.Now, most people have heard of ADHD and know someone who may have it. But lost in the discussion of both childhood and adult diagnosis of ADHD is the potential upside: Many hugely successful entrepreneurs and highly creative people attribute their achievements to ADHD. Also unknown to most are the recent research developments, including innovations that give a clearer understanding of the ADHD brain in action. In ADHD 2.0, Drs. Hallowell and Ratey, both of whom have this "variable attention trait," draw on the latest science to provide both parents and adults with ADHD a plan for minimizing the downside and maximizing the benefits of ADHD at any age. They offer an arsenal of new strategies and lifestyle hacks for thriving with ADHD, including- Find the right kind of difficult. Use these behavior assessments to discover the work, activity, or creative outlet best suited to an individual's unique strengths.- Reimagine environment. What specific elements to look for--at home, at school, or in the workplace--to enhance the creativity and entrepreneurial spirit inherent in the ADHD mind.- Embrace innate neurological tendencies. Take advantage of new findings about the brain's default mode network and cerebellum, which confer major benefits for people with ADHD.- Tap into the healing power of connection. Tips for establishing and maintaining positive connection "the other Vitamind C" and the best antidote to the negativity that plagues so many people with ADHD.- Consider medication. Gets the facts about the underlying chemistry, side effects, and proven benefits of all the pharmaceutical options.As inspiring as it is practical, ADHD 2.0 will help you tap into the power of this mercurial condition and find the key that unlocks potential.

Divergent Mind: Thriving in a World That Wasn't Designed for You


Jenara Nerenberg - 2020
    Being a journalist, she dove into the research and uncovered neurodiversity—a framework that moves away from pathologizing “abnormal” versus “normal” brains and instead recognizes the vast diversity of our mental makeups. When it comes to women, sensory processing differences are often overlooked, masked, or mistaken for something else entirely. Between a flawed system that focuses on diagnosing younger, male populations, and the fact that girls are conditioned from a young age to blend in and conform to gender expectations, women often don’t learn about their neurological differences until they are adults, if at all. As a result, potentially millions live with undiagnosed or misdiagnosed neurodivergences, and the misidentification leads to depression, anxiety, low self-esteem, and shame. Meanwhile, we all miss out on the gifts their neurodivergent minds have to offer.Divergent Mind is a long-overdue, much-needed answer for women who have a deep sense that they are “different.” Sharing real stories from women with high sensitivity, ADHD, autism, misophonia, dyslexia, SPD and more, Nerenberg explores how these brain variances present differently in women and dispels widely-held misconceptions (for example, it’s not that autistic people lack sensitivity and empathy, they have an overwhelming excess of it).Nerenberg also offers us a path forward, describing practical changes in how we communicate, how we design our surroundings, and how we can better support divergent minds. When we allow our wide variety of brain makeups to flourish, we create a better tomorrow for us all.

Hello I Want to Die Please Fix Me: Depression in the First Person


Anna Mehler Paperny - 2019
    Illuminating, completely engaging—it's essential reading for all since we all know someone whose life, family or friends are touched by the disease that directly afflicts a fifth of Canadians. In her early twenties, while outwardly thriving in her dream job and enjoying warm familial support and a strong social network, award-winning journalist Anna Mehler Paperny found herself trapped by feelings of failure and despair. Her first suicide attempt—ingesting a deadly mix of sleeping pills and antifreeze—landed her in the ICU, followed by weeks of enforced detention that ran the gamut of horrifying, boring, hilarious, and absurd. This was Anna's entry into the labyrinthine psychiatric care system responsible for providing care to millions of Canadians.As she struggled to survive the psych ward and as an outpatient—enduring the "survivor's" shame of facing concerned family, friends, and co-workers; finding (or not) the right therapist, the right meds; staying healthy, insured, and employed—Anna could not help but turn her demanding journalist's eye on her condition and on the system in which she found herself. She set off on a quest to "know her enemy," interviewing leading practitioners in the field across Canada and the US—from psychiatrists to neurological experts, brain-mapping pioneers to heroic family practitioners, and others dabbling in novel hypotheses. She reveals in courageously frank detail her own experiences with the pharmacological pitfalls and side effects of long-term treatment, and offers moving case studies of conversations with others, opening wide a window into how we treat (and fail to treat) the disease that accounts for more years swallowed up by disability than any other in the world.

Reasons to Stay Alive


Matt Haig - 2015
    Reasons to Stay Alive is Matt’s inspiring account of how, minute by minute and day by day, he overcame the disease with the help of reading, writing, and the love of his parents and his girlfriend (and now-wife), Andrea. And eventually, he learned to appreciate life all the more for it. Everyone’s lives are touched by mental illness: if we do not suffer from it ourselves, then we have a friend or loved one who does. Matt’s frankness about his experiences is both inspiring to those who feel daunted by depression and illuminating to those who are mystified by it. Above all, his humor and encouragement never let us lose sight of hope. Speaking as his present self to his former self in the depths of depression, Matt is adamant that the oldest cliché is the truest—there is light at the end of the tunnel. He teaches us to celebrate the small joys and moments of peace that life brings, and reminds us that there are always reasons to stay alive.

The Man Who Couldn't Stop


David Adam - 2014
    In this captivating fusion of science, history and personal memoir, writer David Adam explores the weird thoughts that exist within every mind, and how they drive millions of us towards obsessions and compulsions.David has suffered from OCD for twenty years, and The Man Who Couldn’t Stop is his unflinchingly honest attempt to understand the condition and his experiences. What might lead an Ethiopian schoolgirl to eat a wall of her house, piece by piece; or a pair of brothers to die beneath an avalanche of household junk that they had compulsively hoarded? At what point does a harmless idea, a snowflake in a clear summer sky, become a blinding blizzard of unwanted thoughts? Drawing on the latest research on the brain, as well as historical accounts of patients and their treatments, this is a book that will challenge the way you think about what is normal, and what is mental illness.Told with fierce clarity, humour and urgent lyricism, this extraordinary book is both the haunting story of a personal nightmare, and a fascinating doorway into the darkest corners of our minds.

A Thorn in My Pocket: Temple Grandin's Mother Tells the Family Story


Eustacia Cutler - 2004
    She tells of her fight to keep Temple in the mainstream of family, community, and school life, how Temple responded and went on to succeed, as Ms. Cutler puts it, beyond my wildest dreams. Ms. Cutler also explores the nature of the autism disorder as doctors understand it today, and how its predominant characteristics reflect our own traits in an exaggerated form.Insightful chapters include: And Baby Makes ThreeAs the Twig Is BentChildhoodThe Separate Worlds BeginThings Fall ApartAnd Start All Over AgainThe End of ChildhoodThen What Happened?Looking for the SourceThe Legacy of GenesWhat It Means to Be Human

Far from the Tree: Parents, Children, and the Search for Identity


Andrew Solomon - 2012
    He writes about families coping with deafness, dwarfism, Down's syndrome, autism, schizophrenia, or multiple severe disabilities; with children who are prodigies, who are conceived in rape, who become criminals, who are transgender. While each of these characteristics is potentially isolating, the experience of difference within families is universal, and Solomon documents triumphs of love over prejudice in every chapter.All parenting turns on a crucial question: to what extent should parents accept their children for who they are, and to what extent they should help them become their best selves. Drawing on ten years of research and interviews with more than three hundred families, Solomon mines the eloquence of ordinary people facing extreme challenges.Elegantly reported by a spectacularly original and compassionate thinker, Far from the Tree explores how people who love each other must struggle to accept each other—a theme in every family’s life.