Book picks similar to
Choosing Down Syndrome: Ethics and New Prenatal Testing Technologies by Chris Kaposy
ethics
parenting
abortion
disability
Shut Up About...Your Perfect Kid!
Gina Gallagher - 2007
Narrated by two "imperfect" sisters with "special" children, the book features a collection of entertaining and heartwarming stories from parents of children with a wide range of disabilities. It will have any parent laughing out loud and viewing the positive side of raising an "imperfect" child with humorous chapters like:
Us vs. Them battle: "It's hard to hear about how good their kid is on the baseball field, when yours would rather catch real flies."
Medication: "We've met parents who feel guilty for putting their kids on meds for not putting their kids on meds even for taking their kids' meds. ("That Ritalin really helped; you should have seen me organize those closets.")
Food: "Yes, my daughter would like a Happy Meal. Just hold the meal and she'll be happy."
Marriage: "You can remember the name of Beaver Cleaver's first grade teacher, but you can't remember the name of your child's disability?"
Sports: "Do we have to follow the ball Mom? It's more fun following a bee!"
Everyday life: "Sorry I missed the bus Mom; I was practicing funny faces in the mirror."
As a Man Thinketh and From Poverty to Power
James Allen - 2011
Loosely based in its principles around the Biblical proverb "As a man thinketh in his heart, so is he," As a Man Thinketh asserts the powerful idea that belief is central to bringing about positive events in one's life. From Poverty to Power, Allen's first book, relies on a similar philosophy but addresses themes of adversity and suffering more directly and offers his simple wisdom as a means of overcoming difficulty. Allen's writings are powerful and relevant today as they were over a century ago, and this collection brings their solace and inspiration to modern listeners.
The Boy in the Moon: A Father's Journey to Understand His Extraordinary Son
Ian Brown - 2009
At age thirteen, he is mentally and developmentally between one and three years old and will need constant care for the rest of his life. Brown travels the globe, meeting with genetic scientists and neurologists as well as parents, to solve the questions Walker’s doctors can’t answer. In his journey, he offers an insightful critique of society’s assumptions about the disabled, and he discovers a connected community of families living with this illness. As Brown gradually lets go of his self-blame and hope for a cure, he learns to accept the Walker he loves, just as he is. Honest, intelligent, and deeply moving, The Boy in the Moon explores the value of a single human life.
Just Take a Bite: Easy, Effective Answers to Food Aversions and Eating Challenges!
Lori Ernsperger - 2004
Learn the possible causes, when you need professional help, and how to deal with the behavior at home. Learn why Don't play with your food! and Clean your plate! - along with many other old saws - are just plain wrong. And who said you have to eat dessert last? Get ready to have some stereotypes shattered! Helpful chapters include: Who Are Resistant eaters? Oral-Motor Development Environmental and Behavioral Factors Contributing to Problems with Eating Sensory-Based and Motor-Based Problems Affecting the Resistant Eater Motor-Based Eating Problems vs. Sensory-Based Eating Problems Designing and Implementing a Comprehensive Treatment Plan Environmental Controls Gastrointestinal, Physical and Oral-Motor Development Stages of Sensory Development for Eating A Recipe for Success
The Boy Who Loved Too Much: A True Story of Pathological Friendliness
Jennifer Latson - 2017
It also makes him enormously vulnerable. Eli lacks the innate skepticism that will help his peers navigate adolescence more safely—and vastly more successfully. Journalist Jennifer Latson follows Eli over three critical years of his life as his mother, Gayle, must decide whether to shield Eli entirely from the world and its dangers or give him the freedom to find his own way and become his own person. By intertwining Eli and Gayle’s story with the science and history of Williams syndrome, the book explores the genetic basis of behavior and the quirks of human nature. More than a case study of a rare disorder, however, The Boy Who Loved Too Much is a universal tale about the joys and struggles of raising a child, of growing up, and of being different.
Road Map to Holland: How I Found My Way Through My Son's First Two Years with Down Syndrome
Jennifer Graf Groneberg - 2008
You need a new road map, and fast...When Jennifer Groneberg and her husband learned they'd be having twin boys, their main concern was whether they'd need an addition on their house. Then, five days after Avery and Bennett were born, Avery was diagnosed with Down syndrome.Here, Jennifer shares the story of what followed. She dealt with doctors-some who helped, and some who were disrespectful or even dangerous. She saw some relationships in her life grow stronger, while severing ties with people who proved unsupportive. And she continues to struggle to find balance in the hardships and joys of raising a child with special needs. This book is a resource, a companion for parents, and above all, a story of the love between a mother and her son-as she learns that Avery is exactly the child she never knew she wanted.
Carrier: Untangling the Danger in My DNA
Bonnie J. Rough - 2010
Rough receives the test results that confirm she is a carrier of the genetic condition "hypohidrotic ectodermal dysplasia," or H.E.D., it propels her on a journey deep into her family's past in the American West.At first glance, H.E.D. seems only to be a superficial condition: a peculiar facial bone structure, sparse hair, few teeth, and an inability to sweat. But a closer look reveals the source of a lifetime of infections, breathing problems, and drug dependency for Bonnie's grandfather Earl, who suffered from the disorder. After a boyhood as a small-town oddity and an adulthood fraught with disaster, Earl died penniless and alone at the age of 49. Bonnie's mother was left with an inheritance that included not just the gene for H.E.D., but also the emotional pain that came from witnessing her father's misery.As Bonnie and her husband consider becoming parents themselves, their biological legacy haunts every decision. The availability of genetic testing gives them new choices to make, choices more excruciating than any previous generation could have imagined. Ultimately, Carrier is a story of a modern moral crisis, one that reveals the eternal tension between past and future."
Children With Starving Brains: A Medical Treatment Guide for Autism Spectrum Disorder
Jaquelyn McCandless - 2002
Genetic susceptibility activated by "triggers" such as pesticides and heavy metals in vaccines can lead to immune system impairment, gut dysfunction, and pathogen invasion such as yeast and viruses in many children. This is the first book written by an experienced clinician that gives a step-by-step treatment guide for parents and doctors based on the understanding that ASD is a complex biomedical illness resulting in significant brain malnutrition. Dr. McCandless, whose grandchild with autism has inspired her "broad spectrum approach," describes important diagnostic tools needed to select appropriate treatment programs. Her book explains major therapies newly available and identifies safe and effective options for parents and physicians working together to improve the health of these special children.Author Biography: Jacquelyn McCandless received her M.D. from the University of Illinois College of Medicine and is certified as a Diplomate of the American Board of Psychiatry and Neurology. Since the early 1990s, her interest in women's issues and sexuality has led to an alternative medicine practice with a focus on anti-aging, brain nutrition, and natural hormone therapy. In 1996, after her granddaughter was diagnosed with autism, she returned even more to basic medicine and began working with biomedical aspects of developmentally delayed children. She now utilizes the knowledge she gained searching for treatments for her grandchild to help other ASD children.
Life As We Know It: A Father, a Family, and an Exceptional Child
Michael Bérubé - 1996
When Jamie Bérubé was born with Down syndrome in 1991, he was immediately subject to the medical procedures, insurance guidelines, policies, and representations that surround every child our society designates as disabled. In this wrenching yet ultimately inspiring book, Jamie's father, literary scholar Michael Bérubé, describes not only the challenges of raising his son but the challenge of seeing him as a person rather than as a medical, genetic, or social problem.
When love is not enough
Cherry Willoughby - 2012
How devastatingly and terrifyingly wrong she was.Her entire world was about to be broken apart in more ways than she could ever have imagined.Who could she turn to, and more importantly, who would listen?
Like Sound Through Water: A Mother's Journey Through Auditory Processing Disorder
Karen J. Foli - 2002
If the problem is physical, she takes the child to a doctor. But if the problem is a misunderstanding of her child's mind, where does she turn for help? This is Ben's story. He was a happy, healthy boy -- a mother's dream come true. Yet by the age of three, Ben's development was significantly delayed: He couldn't make sense of the simplest phrases, and he still hadn't started talking. When Karen Foli finally took her son, Ben, to a speech and hearing clinic, she was told that he was "probably retarded and perhaps autistic." But Karen knew that Ben was highly perceptive, even frustrated by his inability to communicate. Trusting her "mother's intuition," Karen set out on a journey to learn the truth about her son's condition....and what she found was APD. A person with auditory processing disorder receives jumbled and distorted sounds. But the ability to hear is usually normal. Even though it affects millions of Americans, APD can be difficult to diagnose and challenging to treat. Through years of research, and personal interviews, Karen Foli learned everything she needed to know about APD in order to help her son achieve the greatest gift of all: communication. Like Sound Through Water is her story -- winning, inspiring, and true.
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome
Amy Silverman - 2016
And that is the case with My Heart Can't Even Believe It, by journalist, blogger, and NPR contributor Amy Silverman. Amy bravely looks at her life, before and after her daughter Sophie was born, and reflects on her transformation from "a spoiled, self-centered brat," who used words like retard and switched lines at the Safeway to avoid a bagger with special needs, into the mother of a kid with Down syndrome and all that her new identity entails. She describes her evolution as gradual, one built by processing her fears and facing questions both big and small about Sophie, Down syndrome, and her place in the world. Funny, touching, and honest, this wonderful book looks at a daughter and her power to change minds and fill hearts with love so deep.
Autism Every Day: Over 150 Strategies Lived and Learned by a Professional Autism Consultant with 3 Sons on the Spectrum
Alyson Beytien - 2011
Autism consultant Alyson Beytien outlines over 150 tried-and-true techniques for home, school, and community. Alyson’s three boys cover the whole spectrum of autism—Asperger’s syndrome, high-functioning autism, and classic autism. She understands the wide range of needs these children have and has discovered what helps and what hinders. Covering a full gamut of issues—from picky-eating and echolalia to IEPs and “The Woes of Walmart”—Alyson’s ideas and interventions will inspire and inform all those who are connected to a person with autism. Alyson believes that each day brings more opportunities to learn, problem-solve, and celebrate the joys that children with autism bring to our world—after all, today’s crisis is tomorrow’s humor. Her family’s motto will soon become your everyday mantra: “Improvise and Overcome!”
The Upside of Down
Rebecca Talley - 2011
"Excuse me?""You're pregnant."Her heartbeat thundered in her ears. "I'm what?"Natalie Drake certainly has her hands full raising a large family, dealing with her difficult mother, and maintaining a relationship with her rebellious teenager. Just when things seem to be going smoothly, she finds out another unexpected surprise--she's going to have a baby. Faced with so many challenges, Natalie must learn to trust in a plan that isn't what she imagined and discover that every situation has an upside.Beloved author Rebecca Talley carefully creates this touching and heartfelt story that is sure to inspire you. With true-to-life characters and situations, The Upside of Down will reignite your faith and remind you of the importance of family.
A Week With Enya: We live blind...
Amar B. Singh - 2019
Where we don't, we read, we ask, we learn and then, we solve! What happens when there are no answers though? When nobody in the world knows! When we see the need to invent Gods even if we can't discover Him. Through a string of poems, the author narrates such an experience with his non-verbal and autistic daughter, Enya. What started as a week of babysitting for him soon became a seeking to change her into 'normal'. But, that seeking ended up transforming the seeker!The narrative in the form of poetry touches upon the revelation that comes out of desperation of not finding an answer at all and therefore, the thoughts getting tired of themselves and the mind taking a back seat. In that silence, the author says, things become clear and all aspects of life show their inter-relation! The intellect gives way to the intelligence, the body and mind as 'me' gives way to the world as 'me'! The mind map once seen, one starts to see the true nature of the 'me' and that perspective and clarity make everything clear and possible in life...