Chasing My Cure: A Doctor's Race to Turn Hope into Action


David Fajgenbaum - 2019
    But things changed dramatically when he began suffering from inexplicable fatigue. In a matter of weeks, his organs were failing and he was read his last rites. Doctors were baffled by his condition, which they had yet to even diagnose. Floating in and out of consciousness, Fajgenbaum prayed for a second chance, the equivalent of a dramatic play to second the game into overtime.Miraculously, Fajgenbaum survived--only to endure repeated near-death relapses from what would eventually be identified as a form of Castleman disease, an extremely deadly and rare condition that acts like a cross between cancer and an autoimmune disorder. When he relapsed while on the only drug in development and realized that the medical community was unlikely to make progress in time to save his life, Fajgenbaum turned his desperate hope for a cure into concrete action: Between hospitalizations he studied his own charts and tested his own blood samples, looking for clues that could unlock a new treatment. With the help of family, friends, and mentors, he also reached out to other Castleman disease patients and physicians, and eventually came up with an ambitious plan to crowdsource the most promising research questions and recruit world-class researchers to tackle them. Instead of waiting for the scientific stars to align, he would attempt to align them himself.More than five years later and now married to his college sweetheart, Fajgenbaum has seen his hard work pay off: A treatment he identified has induced a tentative remission and his novel approach to collaborative scientific inquiry has become a blueprint for advancing rare disease research. His incredible story demonstrates the potency of hope, and what can happen when the forces of determination, love, family, faith, and serendipity collide.

Stolen: A Memoir


Elizabeth Gilpin - 2021
    Growing angrier by the day, she began skipping practices and drinking to excess. At a loss, her parents turned to an educational consultant who suggested Elizabeth be enrolled in a behavioral modification program. That recommendation would change her life forever.The nightmare began when she was abducted from her bed in the middle of the night by hired professionals and dropped off deep into a camp in the woods of AppalachiaAfter three brutal months, Elizabeth was transferred to a boarding school in Southern Virginia that in reality functioned more like a prison. Its curriculum revolved around a perverse form of group therapy where students were psychologically abused and humiliated. Finally, at seventeen, Elizabeth convinced them she was rehabilitated enough to “graduate” and was released. In this eye-opening and unflinching book, Elizabeth recalls the horrors she endured, the friends she lost to suicide and addiction, and—years later—how she was finally able to pick up the pieces of her life and reclaim her identity.

That Good Night: Life and Medicine in the Eleventh Hour


Sunita Puri - 2019
    Sunita Puri knew from a young age that the gulf between her parents' experiences and her own was impossible to bridge, save for two elements: medicine and spirituality. Between days spent waiting for her mother, an anesthesiologist, to exit the OR, and evenings spent in conversation with her parents about their faith, Puri witnessed the tension between medicine's impulse to preserve life at all costs and a spiritual embrace of life's temporality. And it was that tension that eventually drew Puri, a passionate but unsatisfied medical student, to palliative medicine--a new specialty attempting to translate the border between medical intervention and quality-of-life care.Interweaving evocative stories of Puri's family and the patients she cares for, That Good Night is a stunning meditation on impermanence and the role of medicine in helping us to live and die well, arming readers with information that will transform how we communicate with our doctors about what matters most to us.

Working Stiff: Two Years, 262 Bodies, and the Making of a Medical Examiner


Judy Melinek - 2014
    Judy Melinek began her training as a New York City forensic pathologist. With her husband T.J. and their toddler Daniel holding down the home front, Judy threw herself into the fascinating world of death investigation, performing autopsies, investigating death scenes, counseling grieving relatives. Working Stiff chronicles Judy's two years of training, taking readers behind the police tape of some of the most harrowing deaths in the Big Apple, including a firsthand account of the events of September 11, the subsequent anthrax bio-terrorism attack, and the disastrous crash of American Airlines flight 587.Lively, action-packed, and loaded with mordant wit, Working Stiff offers a firsthand account of daily life in one of America's most arduous professions, and the unexpected challenges of shuttling between the domains of the living and the dead. The body never lies, and through the murders, accidents, and suicides that land on her table, Dr. Melinek lays bare the truth behind the glamorized depictions of autopsy work on shows like CSI and Law and Order to reveal the secret story of the real morgue.

A Manual for Heartache


Cathy Rentzenbrink - 2017
    In A Manual for Heartache she describes how she learnt to live with grief and loss and find joy in the world again. She explores how to cope with life at its most difficult and overwhelming and how we can emerge from suffering forever changed, but filled with hope.This is a moving, warm and uplifting book that offers solidarity and comfort to anyone going through a painful time, whatever it might be. It’s a book that will help to soothe an aching heart and assure its readers that they’re not alone.

Limitless: The Power of Hope and Resilience to Overcome Circumstance


Mallory Weggemann - 2021
    Less than two years later, Mallory had broken eight world records, and by the 2012 Paralympic Games, she held fifteen world records and thirty-four American records. Two years after that, a devastating fall severely damaged her left arm. But despite all of the hardships that Mallory faced, she was sure about one thing: she refused to give up.After two reconstructive surgeries and extended rehab, she won two gold medals and a silver medal at the 2019 World Para Swimming Championships. And even better, she found confidence, independence, and persevering love. She even walked down the aisle on her wedding day against all odds.Mallory's extraordinary resilience and uncompromising commitment to excellence are rooted in her resolve, her faith, and her sheer grit. In Limitless, Mallory shares the lessons she learned by pushing past every obstacle and expectation that stood in her way, teaching you how to: redefine your limitsremember that healing is not chronologicalbe willing to faillean on your communityembrace your comebackwrite your own endingMallory's story reminds us that we can handle whatever challenges, labels, or difficulties we face in life, and we can do it on our own terms. Because when we refuse to accept every boundary that hems us in--physical, emotional, or societal--we become limitless.

I'll Seize the Day Tomorrow


Jonathan Goldstein - 2012
    Throughout the year, Goldstein asks weighty questions that would stump a person less seasoned. For example: What is it about a McRib that drives people crazy? Can we replace extending an olive leaf with extending an olive jar? How much wisdom can we glean from episodes of Welcome Back, Kotter? His friends and family, many of them known through their appearances on WireTap, weigh in with hilarious results as Goldstein eats, sleeps, and watches bad TV all the way to his date with destiny.

White Dresses: A Memoir of Love and Secrets, Mothers and Daughters


Mary Pflum Peterson - 2015
    It’s a persona at odds with her tortured childhood, where she watched her emotionally vulnerable mother fill their house with teetering piles of assorted “treasures.” But one thing has always united mother and daughter—their love of white dresses. From the dress worn by Mary’s mother when she became a nun and married Jesus, to the wedding gown she donned years later, to the special nightshirts she gifted Mary after the birth of her children, to graduation dresses and christening gowns, these white dresses embodied hope and new beginnings.After her mother’s sudden death in 2010, Mary digs deep to understand the events that led to Anne’s unraveling. At twenty-one, Anne entered a convent, committed to a life of prayer and helping others. But lengthy periods of enforced fasting, isolation from her beloved students, and constant humiliation eventually drove her to flee the convent almost a decade later. Hoping to find new purpose as a wife and mother, Anne instead married an abusive, closeted gay man—their eventual divorce another sign of her failure.Anne retreats into chaos. By the time Mary is ten, their house is cluttered with broken appliances and stacks of unopened mail. Anne promises but fails to clean up for Mary’s high school graduation party, where Mary is being honored as her school’s valedictorian, causing her perfectionist daughter’s fear and shame to grow in tandem with the heaps upon heaps of junk. In spite of everything, their bond endures. Through the white dresses, pivotal events in their lives are celebrated, even as Mary tries in vain to save Anne from herself. Unflinchingly honest, insightful, and compelling, White Dresses is a beautiful, powerful story—and a reminder of the unbreakable bonds between mothers and daughters.

Lucky Man


Michael J. Fox - 2002
    Fox stunned the world by announcing he had been diagnosed with Parkinson's disease -- a degenerative neurological condition. In fact, he had been secretly fighting it for seven years. The worldwide response was staggering. Fortunately, he had accepted the diagnosis, and by the time the public started grieving for him, he had stopped grieving for himself. Now, with the same passion, humor, and energy, that Fox has invested in his dozens of performances over the last 18 years, he tells the story of his life, his career, and his campaign, to find a cure for Parkinson's.Combining his trademark ironic sensibility, and keen sense of the absurd, he recounts his life -- from his childhood in a small town in western Canada, to his meteoric rise in film and television which made him a worldwide celebrity. Most importantly however, he writes of the last 10 years, during which -- with the unswerving support of his wife, family, and friends -- he has dealt with his illness. He talks about what Parkinson's has given him: the chance to appreciate a wonderful life and career, and the opportunity to help search for a cure, and spread public awareness of the disease. He is a very lucky man, indeed.

What We Carry: A Memoir


Maya Shanbhag Lang - 2020
    She had always been a source of support--until Maya became a mother herself. Then, the parent who had once been so capable and attentive turned unavailable and distant. Struggling to understand this abrupt change while raising her own young child, Maya searches for answers and soon learns that her mother is living with Alzheimer'sWhen Maya steps in to care for her, she comes to realize that despite their closeness, she never really knew her mother. Were her cherished stories--about life in India, about what it means to be an immigrant, about motherhood itself--even true? Affecting, raw, and poetic, What We Carry is the story of a daughter and her mother, of lies and truths, of receiving and giving care--and how we cannot grow up until we fully understand the people who raised us.Advance praise for What We Carry"A dazzling, courageous memoir about the weight we carry as women, daughters, and mothers--and what happens when we let go. Lang takes us deep into the heart of her relationship with her mother, a brilliant psychiatrist and Indian immigrant with long-buried secrets. After a health crisis brings mother and daughter under the same roof for the first time since childhood, Lang grapples with new information about the parent she'd idolized, and realizes it's time to tell the story of her own life. What We Carry is a love letter to everyone who has swum through turbulent water before reaching the shores of selfhood."--Chloe Benjamin, New York Times bestselling author of The Immortalists

The Puma Years: A Memoir of Love and Transformation in the Bolivian Jungle


Laura Coleman - 2021
    Fate landed her at a wildlife sanctuary on the edge of the Amazon jungle where she was assigned to a beautiful and complex puma named Wayra. Wide-eyed, inexperienced, and comically terrified, Laura made the scrappy, make-do camp her home. And in Wayra, she made a friend for life.They weren’t alone, not with over a hundred quirky animals to care for, each lost and hurt in its own way: a pair of suicidal, bra-stealing monkeys, a frustrated parrot desperate to fly, and a pig with a wicked sense of humor. The humans, too, were cause for laughter and tears. There were animal whisperers, committed staff, wildly devoted volunteers, handsome heartbreakers, and a machete-wielding prom queen who carried Laura through. Most of all, there were the jungle—lyrical and alive—and Wayra, who would ultimately teach Laura so much about love, healing, and the person she was capable of becoming.Set against a turbulent and poignant backdrop of deforestation, the illegal pet trade, and forest fires, The Puma Years explores what happens when two desperate creatures in need of rescue find one another.

Hello I Want to Die Please Fix Me: Depression in the First Person


Anna Mehler Paperny - 2019
    Illuminating, completely engaging—it's essential reading for all since we all know someone whose life, family or friends are touched by the disease that directly afflicts a fifth of Canadians. In her early twenties, while outwardly thriving in her dream job and enjoying warm familial support and a strong social network, award-winning journalist Anna Mehler Paperny found herself trapped by feelings of failure and despair. Her first suicide attempt—ingesting a deadly mix of sleeping pills and antifreeze—landed her in the ICU, followed by weeks of enforced detention that ran the gamut of horrifying, boring, hilarious, and absurd. This was Anna's entry into the labyrinthine psychiatric care system responsible for providing care to millions of Canadians.As she struggled to survive the psych ward and as an outpatient—enduring the "survivor's" shame of facing concerned family, friends, and co-workers; finding (or not) the right therapist, the right meds; staying healthy, insured, and employed—Anna could not help but turn her demanding journalist's eye on her condition and on the system in which she found herself. She set off on a quest to "know her enemy," interviewing leading practitioners in the field across Canada and the US—from psychiatrists to neurological experts, brain-mapping pioneers to heroic family practitioners, and others dabbling in novel hypotheses. She reveals in courageously frank detail her own experiences with the pharmacological pitfalls and side effects of long-term treatment, and offers moving case studies of conversations with others, opening wide a window into how we treat (and fail to treat) the disease that accounts for more years swallowed up by disability than any other in the world.

Beyond the Trees: A Journey Alone Across Canada's Arctic


Adam Shoalts - 2019
    A place where, in our increasingly interconnected, digital world, it's still possible to wander for months without crossing a single road, or even see another human being.Between his starting point in Eagle Plains, Yukon Territory, to his destination in Baker Lake, Nunavut, lies a maze of obstacles: shifting ice floes, swollen rivers, fog-bound lakes, and gale-force storms. And Shoalts must time his departure by the breakup of the spring ice, then sprint across nearly 4,000 kilometers of rugged, wild terrain to arrive before winter closes in.He travels alone up raging rivers that only the most expert white-water canoeists dare travel even downstream. He must portage across fields of jagged rocks that stretch to the horizon, and navigate labyrinths of swamps, tormented by clouds of mosquitoes every step of the way. And the race against the calendar means that he cannot afford the luxuries of rest, or of making mistakes. Shoalts must trek tirelessly, well into the endless Arctic summer nights, at times not even pausing to eat.But his reward is the adventure of a lifetime.Heart-stopping, wonder-filled, and attentive to the majesty of the natural world, Beyond the Trees captures the ache for adventure that afflicts us all.

The Violet Hour: Great Writers at the End


Katie Roiphe - 2016
      In The Violet Hour, Katie Roiphe takes an unexpected and liberating approach to the most unavoidable of subjects. She investigates the last days of five great thinkers, writers, and artists as they come to terms with the reality of approaching death, or what T. S. Eliot called “the evening hour that strives Homeward, and brings the sailor home from sea.”   Roiphe draws on her own extraordinary research and access to the family, friends, and caretakers of her subjects. Here is Susan Sontag, the consummate public intellectual, who finds her commitment to rational thinking tested during her third bout with cancer. Roiphe takes us to the hospital room where, after receiving the worst possible diagnosis, seventy-six-year-old John Updike begins writing a poem. She vividly re-creates the fortnight of almost suicidal excess that culminated in Dylan Thomas’s fatal collapse on the floor of a Greenwich Village tavern. She gives us a bracing portrait of Sigmund Freud fleeing Nazi-occupied Vienna only to continue in his London exile the compulsive cigar smoking that he knows will hasten his decline. And she shows us how Maurice Sendak’s beloved books for children are infused with his lifelong obsession with death, if you know where to look.  The Violet Hour is a book filled with intimate and surprising revelations. In the final acts of each of these creative geniuses are examples of courage, passion, self-delusion, pointless suffering, and superb devotion. There are also moments of sublime insight and understanding where the mind creates its own comfort. As the author writes, “If it’s nearly impossible to capture the approach of death in words, who would have the most hope of doing it?” By bringing these great writers’ final days to urgent, unsentimental life, Katie Roiphe helps us to look boldly in the face of death and be less afraid.

Changing My Mind: A Memoir


Margaret Trudeau - 2010
    Pierre Trudeau served from 1968 to 1979 during a critical time in Canadian and international politics and during her term as First Lady, Margaret travelled internationally on government business and met closely with U.S. Presidents Richard Nixon, Gerald Ford, and Jimmy Carter. Stunningly beautiful, Margaret immediately became the focus of attention in any room she entered. Just as Princess Diana refused to submit to traditional expectations to the irritation of Prince Charles and to the criticism of the media, Margaret also remained true to her independent beliefs, which often clashed with the demands of her public role, and the press flocked to her, much to Pierre Trudeau’s chagrin. In her first book in almost thirty years, Margaret looks back on a controversial life and examines the consequences of her lifelong struggle with mental illness. From flower child to self-described “hippie mother,” unpredictable Margaret Trudeau became synonymous with scandal and intrigue internationally. She was criticized for wearing an inappropriately short dress to an official White House Dinner. She acted as Fidel Castro’s photographer for a day. She burst into song at a state dinner for the President of Venezuela. And rather than celebrate her sixth wedding anniversary with her husband, she spent a legendary weekend with the Rolling Stones, leading to worldwide rumours of trysts with Mick Jagger and Ron Wood. But happiness was short-lived for Margaret, who suffered a series of tragic losses: divorce from Pierre Trudeau; the death of her youngest son in a skiing accident; and divorce from her second husband, real estate mogul Fried Kemper. Margaret spiraled through suicidal depression and undiagnosed mania. She self-medicated with marijuana and alcohol, starved herself, and engaged in manic spending sprees that left her penniless until she was finally diagnosed and treated for bipolar disorder. Under intense international scrutiny, Margaret Trudeau has lived a life full of highs and lows, but has worked to regain control of her life. She is currently a national mental health advocate who has been awarded the Society of Biological Psychiatry Humanitarian Award for her efforts to help and inspire people suffering from mental illness. In this poignant memoir, Margaret Trudeau reveals her courageous lifetime struggle with mental illness and her journey of recovery, acceptance, and hope.