My Glory Was I Had Such Friends


Amy Silverstein - 2017
    If she wanted to live, she had to take on the grueling quest for a new heart—immediately.A shot at survival meant uprooting her life and moving across the country to California. When her friends heard of her plans, there was only one reaction: “I’m there.” Nine remarkable women—Joy, Jill, Leja, Jody, Lauren, Robin, Valerie, Ann, and Jane—put demanding jobs and pressing family obligations on hold to fly across the country and be by Amy’s side. Creating a calendar spreadsheet, the women—some of them strangers to one another—passed the baton of friendship, one to the next, and headed straight and strong into the battle to help save Amy’s life.Empowered by the kind of empathy that can only grow with age, these women, each knowing Amy from different stages of her life, banded together to provide her with something that medicine alone could not.  Sleeping on a cot beside her bed, they rubbed her back and feet when the pain was unbearable, adorned her room with death-distracting decorations, and engaged in their “best talks ever.”  They saw the true measure of their friend’s strength, and they each responded in kind.My Glory Was I Had Such Friends is a tribute to these women and the intense hours they spent together—hours of heightened emotion and self-awareness, where everything was laid bare. Candid and heartrending, this once-in-a-lifetime story of connection and empathy is a powerful reminder of the ultimate importance of “showing up” for those we love.

A World of Hurt: Fixing Pain Medicine's Greatest Mistake


Barry Meier - 2013
    

Trapped: My Life with Cerebral Palsy


Fran Macilvey - 2014
    However, right after she gave birth in the hospital, she felt strange. Unbeknownst to anyone, another daughter was on the way, but before anybody responded, an hour had passed. Because of the delay, Fran was born with cerebral palsy.Growing up with her siblings in Africa, Fran always felt different. When everyone else was playing and having fun, she would watch and wish she could join in. After the family moved to Scotland and Fran grew older, her hurt turned into anger, self-hatred, and suicidal depression. Then one day, someone looked at her and saw a woman to love, and that was the start of her journey to self-acceptance.Fran has written the painful truth about her life to help readers understand how disabled adults really feel. In her revealing account, she shows just how hard it is to maintain the appearance of a “normal” life. More importantly, out of her million and one mistakes have come lessons in real acceptance, peace, and joy, which she would like to share with her readers.

My Life In His Paws: The Incredible Story of Ted and How He Saved Me


Wendy Hilling - 2016
    Wendy Hilling has a rare skin condition which means her skin is very delicate. Every moment is difficult and causes pain. It affects the body inside and out: her throat is very narrow and she can stop breathing at any time. But eight years ago Wendy's life changed forever. She met Ted, the Golden Retriever, and he became her full-time carer. He has saved her life more times than she can remember, always watching and listening, and Wendy is now entirely reliant on him. This is the story of Wendy and her incredible bravery living with a disability and battling against the odds. It's also the story of Ted, the extraordinary assistance dog, and the unique relationship between a human and animal and the extraordinary things animals are capable of.

Life, In Spite of Me: Extraordinary Hope After a Fatal Choice


Kristen Jane Anderson - 2010
    God had other plans.Why does my life have to be so painful?What’s wrong with me?It’s not going to get better.It could all be over soon, and then I won’t hurt anymore. Kristen Anderson thought she had the picture-perfect life until strokes of gray dimmed her outlook: three friends and her grandmother died within two years. Still reeling from these losses, she was raped by a friend she thought she could trust. She soon spiraled into a seemingly bottomless depression. One January night, the seventeen-year-old decided she no longer wanted to deal with the emotional pain that smothered her. She lay down on a set of cold railroad tracks and waited for a freight train to send her to heaven…and peace. But Kristen's story doesn’t end there.  In Life, In Spite of Me this remarkably joyful young woman shares the miracle of her survival, the agonizing aftermath of her failed suicide attempt, and the hope that has completely transformed her life, giving her a powerful purpose for living. Her gripping story of finding joy against all odds provides a vivid and unforgettable reminder that life is a gift to be treasured.   Includes notes of encouragement Kristen wishes she had received when she was struggling most.

Too Loud, Too Bright, Too Fast, Too Tight: What to Do If You Are Sensory Defensive in an Overstimulating World


Sharon Heller - 2002
    But millions of people suffer from Sensory Defensive Disorder (SD), a common affliction in which people react to harmless stimuli not just as a distracting hindrance, but a potentially dangerous threat. Sharon Heller, Ph.D. is not only a trained psychologist, she is sensory defensive herself. Bringing both personal and professional perspectives, Dr. Heller is the ideal person to tell the world about this problem that will only increase as technology and processed environments take over our lives. In addition to heightening public awareness of this prevalent issue, Dr. Heller provides tools and therapies for alleviating and, in some cases, even eliminating defensiveness altogether.Until now, the treatment for sensory defensiveness has been successfully implemented in Learning Disabled children in whom defensiveness tends to be extreme. However, the disorder has generally been unidentified in adults who think they are either overstimulated, stressed, weird, or crazy. These sensory defensive sufferers live out their lives stressed and unhappy, never knowing why or what they can do about it. Now, with Too Loud, Too Bright, Too Fast, Too Tight, they have a compassionate spokesperson and a solution–oriented book of advice.

Already Toast: Caregiving and Burnout in America


Kate Washington - 2021
    When Kate Washington and her husband, Brad, learned that he had cancer, they were a young couple: professionals with ascending careers, parents to two small children. Brad's diagnosis stripped those identities away: he became a patient and she his caregiver.Brad's cancer quickly turned aggressive, necessitating a stem-cell transplant that triggered a massive infection, robbing him of his eyesight and nearly of his life. Kate acted as his full-time aide to keep him alive, coordinating his treatments, making doctors' appointments, calling insurance companies, filling dozens of prescriptions, cleaning commodes, administering IV drugs. She became so burned out that, when she took an online quiz on caregiver self-care, her result cheerily declared: "You're already toast!"Through it all, she felt profoundly alone, but, as she later learned, she was in fact one of millions: an invisible army of family caregivers working every day in America, their unpaid labor keeping our troubled healthcare system afloat. Because our culture both romanticizes and erases the realities of care work, few caregivers have shared their stories publicly.As the baby-boom generation ages, the number of family caregivers will continue to grow. Readable, relatable, timely, and often raw, Already Toast--with its clear call for paying and supporting family caregivers--is a crucial intervention in that conversation, bringing together personal experience with deep research to give voice to those tasked with the overlooked, vital work of caring for the seriously ill.

Don't Worry, He Won't Get Far on Foot


John Callahan - 1989
    O’RourkeIn 1972, at the age of 21, John Callahan was involved in a car crash that severed his spine and made him a quadriplegic. A heavy drinker since the age of 12 (alcohol had played a role in his crash), the accident could have been the beginning of a downward spiral. Instead, it sparked a personal transformation. After extensive physical therapy, he was eventually able to grasp a pen in his right hand and make rudimentary drawings. By 1978, Callahan had sworn off drinking for good, and begun to draw cartoons.Over the next three decades, until his death in 2010, Callahan would become one of the nation’s most beloved—and at times polarizing—cartoonists. His work, which shows off a wacky and sometimes warped sense of humor, pokes fun at social conventions and pushes boundaries. One cartoon features Christ at the cross with a thought bubble reading “TGIF” In another, three sheriffs on horseback approach an empty wheelchair in the desert. “Don’t worry,” one sheriff says to another, “He won’t get far on foot.”Don’t Worry, He Won’t Get Far on Foot recounts Callahan’s life story, from the harrowing to the hilarious. Featuring more than 60 of Callahan’s cartoons, it’s a compelling look at art, addiction, disability, and fame. A film adaptation scheduled for 2018, starring Joaquin Phoenix as John Callahan, will bring fresh attention to this underappreciated classic.

One in a Hundred Thousand


Linni Ingemundsen - 2021
    But Sander has a rare medical condition that affects one in a hundred thousand people. It means his growth is stunted, and it seems the biggest, strongest and loudest guys get all the attention. But Sander notices the little things other people miss, and he’s about to make a big impact...

12 Principles for Raising a Child with ADHD


Russell A. Barkley - 2020
    Barkley has become a leading authority on attention-deficit/hyperactivity disorder (ADHD) in kids and teens. He has learned what a huge difference parents can make in supporting their children's success--as well as how overwhelming it can be. This concise guide presents 12 key parenting principles for dealing with common behavioral, emotional, and school challenges. By cultivating a mindset of acceptance and compassion--together with an understanding of the executive function deficits of ADHD--you can strengthen your loving connection with your child and help your whole family thrive. Filled with practical suggestions and quick-reference lists and tips, this is the perfect book to read cover to cover or pick up any time you need extra support.

Babies with Down Syndrome: A New Parents' Guide


Susan Skallerup - 2008
    Covering the best practices for raising and caring for children with Down syndrome through age five, this book is invaluable to new parents who have welcomed a baby with Down syndrome into their lives. This new edition incorporates the latest scientific, medical, educational research, and practical information available, as well as parents' suggestions and feedback. Existing chapters have been revised, some completely rewritten by new authors, and in keeping with its parent-friendly reputation, most of the book's contributors are parents of children with Down syndrome Chapters cover: - What Is Down Syndrome?: A primer on the causes, characteristics, and diagnosis, including the latest information on genetics and prenatal testing;- Adjusting to Your Baby: Advice from an experienced mother on coping with common emotions and announcing the news to friends and family;- Medical Concerns & Treatments: An overview of possible health issues including celiac disease, sleep apnea, diabetes, reflux, and skin problems, with an emphasis on detecting signs early for needed treatment;- Daily Care: The gamut of care from feeding to bathing, with expanded information about toilet training;- Family Life: The impact on siblings and couples, discipline issues, and new material to help everyone understand that a child's behavior is a form of communication;- Development & Learning: Expectations about development plus new material on variability in development, learning styles, using reading todevelop language, memory strengths and weaknesses, and using play to encourage learning;- Early Intervention: An overview of services and therapies for babies & toddlers with new information on the transdisciplinary approach, providing services in the natural environment, transitioning preschool, and common questions & answers;- Legal Rights & Financial Issues: Explains your child's educational and legal rights, and financial information, including the latest on federal education and civil rights laws, sources of financial assistance, health insurance, trusts, and guardianship.Full of new photos, parent statements, updated and expanded resources and reading lists, this build everything parents need to build a bright and healthy future for their child with Down syndrome.

Miracle Boy Grows Up: How the Disability Rights Revolution Saved My Sanity


Ben Mattlin - 2012
    But that didn’t stop him.Ben Mattlin lives a normal, independent life. Why is that interesting? Because Mattlin was born with spinal muscular atrophy, a congenital weakness from which he was expected to die in childhood. Not only did Mattlin live through childhood, he became one of the first students in a wheelchair to attend Harvard, from which he graduated and became a professional writer. His advantage? Mattlin’s life happened to parallel the growth of the disability rights movement, so that in many ways he did not feel that he was disadvantaged at all, merely different. Miracle Boy Grows Up is a witty, unsentimental memoir that you won’t forget, told with engrossing intelligence and a unique perspective on living with a disability in the United States.

See Me


H.L. Muller - 2021
    The king of one night stands. That’s all they see me as. And to be fair, I’m not exactly a saint, but no one sees through the reputation to the real me.No one until Cecilia.Suddenly the only one I want is her, and she has me in knots. One problem: She has no idea who I am, and I’m afraid that telling her will ruin everything.CeciliaMy vision impairment has defined my entire life. I’ve been mistreated and underestimated, and I cope by surrounding myself with music. Studying to become a producer, I was content with my life until Maverick comes crashing into it. Literally.Maverick sees me for me, treats me like an equal, and shows me the one thing my life was missing—romance. I’m terrified he’ll leave like everyone else because I’m starting to fall for him for real.**See Me is a sweet and steamy 40K romance, filled with 18+ content, great music, and first experiences on their way to a HEA. This is the first book in the Fly By Boys series, the series will be in chronological order but can be read as a stand alone novels.

Jabberwocky: Lessons of Love from a Boy Who Never Spoke


Steven Gardner - 2021
    “Graham’s story is a tribute to the human spirit and the invisible bonds which connect us to each other” (Ken Burns).

Still Standing: What I've learnt from a life lived differently


Jessica Quinn - 2021
    Her body has been completely restructured so that she could survive an aggressive cancer.Jess's leg was amputated just before her ninth birthday, and she has had to adapt to living with a prosthetic leg. The challenges Jess has faced ever since have given her a unique outlook. Growing up, she felt alone in her difference, but she has learnt that the one thing people have in common is that we are all different.She is on a mission to normalise 'different', speaking out on social media, creating diversity through her work as a model and helping people see we have a choice over how we respond to hardship.This is a story of body acceptance, finding ways to live through life's adversities, and perseverance.Jess's inspirational 'you've got this' attitude has seen her through every struggle she's faced. Her philosophy embraces the fact that none of us gets to keep the body we were born in; we all bear scars that become part of our stories. She's learnt to change the narrative and be grateful for what she can do, rather than focusing on the things she can't.