Book picks similar to
Navigating the Space Between Brilliance and Madness: A Reader & Roadmap of Bipolar Worlds by Icarus Project
mental-health
disability
things-that-help-recs
volunteers-disabilities
Disability Visibility: First-Person Stories from the Twenty-first Century
Alice WongChristie Thompson - 2020
Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Now, just in time for the thirtieth anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.
Mad Like Me: Travels in Bipolar Country
Merryl Hammond - 2018
In 2008, Hammond was struck with bipolar disorder at age 51. Just imagine: almost overnight, she flipped from being a researcher and public health consultant to a locked-ward patient. She shares everything she learned along the way about how to reclaim your own mental health and maintain stability, and does so in an accessible, readable, often humorous way.Her fearless honesty in vividly retelling events helps to demystify this much-misunderstood mental illness, and to humanize the people it affects. The book is proof that hope and recovery are possible, and a poignant salute to her family who stood by her through the pain and triumph of their shared saga. This is an essential resourcefor patients working towards recovery, for families who need insight into what it is truly like to have bipolar disorder, and for therapists, nurses, and psychiatrists. Readers and reviewers have raved: mesmerizing, captivating, riveting, compelling, elucidating, enlightening, inspiring, remarkable, deeply personal, stunningly sincere, a must-read, beautifully written, powerfully honest, a bullseye. For videos, photos and media links about the author, her family and the book, please visit www.merrylhammond.com.If you enjoyed Kay Jamison's classic 1996 memoir, "An Unquiet Mind" or Marya Hornbacher's 2009 triumph, "Madness: A Bipolar Life," you're going to devour this latest bipolar memoir! Hammond says her mission is now to fight the stigma against all forms of mental illness, in all age groups. She hopes that you'll join that undertaking once you've read her book.
The Other End of the Stethoscope - 33 Insights for Excellent Patient Care
Marcus Engel - 2006
Constantly changing policies. Increasing bureaucratic regulations. These are just a few of the challenges health care providers face every day; challenges that limit the ability to provide excellent patient care. Marcus' insights will give health care providers new and essential strategies to rediscover the magic and compassion between caregiver and patient.
How to Heal a Broken Heart: From Rock Bottom to Reinvention (via ugly crying on the bathroom floor)
Rosie Green - 2021
A Quick & Easy Guide to Sex & Disability
A. Andrews - 2020
As explained by disabled cartoonist A. Andrews, this easy-to-read guide covers the basics of disability sexuality, common myths about disabled bodies, communication tips, and practical suggestions for having the best sexual experience possible. Whether you yourself are disabled, you love someone who is, or you just want to know more, consider this your handy starter kit to understanding disability sexuality, and your path to achieving accessible (and fulfilling) sex. Part of the bestselling and critically acclaimed A Quick & Easy Guide series from Limerence Press, an imprint of Oni Press.
Being Heumann: An Unrepentant Memoir of a Disability Rights Activist
Judith Heumann - 2020
From fighting to attend grade school after being described as a "fire hazard" to later winning a lawsuit against the New York City school system for denying her a teacher's license because of her paralysis, Judy's actions set a precedent that fundamentally improved rights for disabled people.As a young woman, Judy rolled her wheelchair through the doors of the US Department of Health, Education, and Welfare in San Francisco as a leader of the Section 504 Sit-In, the longest takeover of a governmental building in US history. Working with a community of over 150 disabled activists and allies, Judy successfully pressured the Carter administration to implement protections for disabled peoples' rights, sparking a national movement and leading to the creation of the Americans with Disabilities Act.Candid, intimate, and irreverent, Judy Heumann's memoir about resistance to exclusion invites readers to imagine and make real a world in which we all belong.
Kick Her Again; She's Irish
Mary O'Reiley - 2008
Her husband has left her, a schizophrenic alcoholic, to raise their youngest four children without his help. Her children watch through the living room window as the police come and arrest her for disturbing the peace, leaving them alone in the house. Thus begins the astonishing story of a family always living on the brink of disaster. The story unfolds, told through the eyes of Marie's children. Not only are they impoverished, but they are dealing with Marie's erratic and often bizarre behavior. Through it all shines Marie's sense of humor and her unconventional ways of dealing with her difficult situation. How they manage to not only survive, but to grow into well-adjusted adults is a true story that shows how the miracle of love can overcome all obstacles.
Far from the Tree: Parents, Children, and the Search for Identity
Andrew Solomon - 2012
He writes about families coping with deafness, dwarfism, Down's syndrome, autism, schizophrenia, or multiple severe disabilities; with children who are prodigies, who are conceived in rape, who become criminals, who are transgender. While each of these characteristics is potentially isolating, the experience of difference within families is universal, and Solomon documents triumphs of love over prejudice in every chapter.All parenting turns on a crucial question: to what extent should parents accept their children for who they are, and to what extent they should help them become their best selves. Drawing on ten years of research and interviews with more than three hundred families, Solomon mines the eloquence of ordinary people facing extreme challenges.Elegantly reported by a spectacularly original and compassionate thinker, Far from the Tree explores how people who love each other must struggle to accept each other—a theme in every family’s life.
Boy: One Child's Fight to Survive in the Brutal British Care System
Nigel Cooper - 2015
After eighteen months of trying, my mother eventually conceived and nine months later I was born. My birth was a difficult one. It was like I was never meant to be in this world.” Boy is Nigel Cooper’s memoir from the age of five to sixteen. It tells the shocking, brutal, disturbing, emotional story of his childhood spent in and out of various care homes and institutions during the 1970s and 1980s. When Nigel was just seven years old, after the untimely death of his sister and father, his mother asked social services to take him away – and then his nightmare began. For the next nine years of his life, Nigel was repeatedly rejected by his mother and spent his childhood among bullies, abusers, psychopaths and criminals. He spent time in a children’s psychiatric hospital, where they carried out unimaginable tests, pumped him full of drugs and physically abused him; care homes, where he would come face to face with rough estate kids who would beat him up, force him to steal for them and threaten his life; and barbaric assessment centres for disturbed and delinquent children, where the staff were, at times, sicker than the children.The system tried to break Nigel and it was a miracle that he survived. The British care system robbed him of his childhood. His story is truly extraordinary and will do a lot more than shed light on what it was like growing up during the Jimmy Savile years.Boy is powerfully written, edgy, gripping and beautifully crafted.
Some Kind of Crazy: An Unforgettable Story of Profound Brokenness and Breathtaking Grace
Terry Wardle - 2019
Terry Wardle grew up in the Appalachian coalfields of southwestern Pennsylvania, part of a hardscrabble family of coal miners whose cast of characters included a hot-tempered grandfather with a predilection for blowing up houses, a distant and disapproving father, and a mother who disciplined him with harsh words and threats of hellfire.After enduring a crazy childhood, Terry graduated to a troubled adolescence, and then on to what seemed like a successful transition into adulthood, earning multiple degrees and founding one of the country's fastest growing churches. But all was not well.All his life, he felt he was never enough. Plagued by a truckload of fear no matter what he accomplished, he fell down the ladder of success into the deepest ditch of his life--ending up in a psychiatric hospital. Fortunately, that's when he discovered that Jesus has no fear of ditches.In fact, Jesus does some of his best work with people who find themselves there. In sharing his remarkable journey, Terry offers hope that healing and wholeness are possible no matter how broken a life may be. His larger-than-life story will help you move forward along your own healing path.
The Hidden Plague: A Field Guide For Surviving and Overcoming Hidradenitis Suppurativa
Tara Grant - 2013
Only a small fraction of those affected have been properly diagnosed, leaving many others to suffer in silence or pursue ill-advised conventional treatment methods that fail to address the cause of this painful condition. Tara Grant, a twenty-year sufferer of HS, has become an underground legend to her Internet community of HS victims by presenting a methodical, self-tested action plan to heal naturally. The centerpiece of her holistic approach rests on the understanding that HS is an autoimmune disorder caused by leaky gut syndrome. With a few simple dietary changes that eliminate certain “trigger” foods, you can heal your gut, restore your skin, reclaim your health, and rid yourself of HS symptoms forever. That’s it—no antibiotics, no experimental surgeries, and no more pain, suffering, or confusion.Q&A with Tara1. What was it about the subject you chose to write about in your book that made you feel so passionate about spreading the word and getting your book published? My motivation for writing this book was the overwhelming response I received from people on the Internet when I originally posted about it in March of 2012. It turns out it’s a pretty common condition, but many people (and doctors) don’t know what it is. It’s pretty standard to visit various doctors, and be told that you have “acne,” or to be subjected to butchering surgeries. There is no treatment for HS, according to the doctors. People with it suffer immensely—in fact, HS is acknowledged to be one of most painful conditions in the world. I’ve even received letters from doctors and nurses who suffer from HS, thanking me for telling them what it is that they have—and for offering them hope. The primary motivating factor for writing this book, however, was an email I received from a 12-year old girl, who said she was going to kill herself because of the pain she was in. I immediately wrote her back, but I never heard back from her. I am desperate to know that she’s okay. I don’t want anyone else to go through what I did as a teenager—I myself thought about suicide on more than one occasion. I’ve had many letters from people who say they want to kill themselves since.2. HS is hard to diagnose, and many doctors aren’t even aware of its existence. How did you get a diagnosis? I’ve had HS since I was thirteen years old, but wasn’t diagnosed until I was in my mid-30s. Up until then, I saw over forty doctors from four different countries - none of whom could tell me what was wrong with me. I eventually found the name “Hidradenitis suppurativa” in a book about PCOS (also known as polycystic ovarian syndrome, which I also had) and could finally put a name to the horrible condition I had suffered from for so long. I took that information to a dermatologist. That’s when I finally got a diagnosis—over twenty years later. At that time, I had already changed to a Primal diet and my HS was drastically better, so I declined the antibiotics and Accutane the doctor prescribed. I also refused to believe what she said: “You have to live with this for the rest of your life.” I knew, as a longtime sufferer of HS, that the doctors I had seen had no clue what they were talking about. My journey was extremely frustrating, and I went through it completely alone. Over the years, I was told I had “adult acne,” and also told that they didn’t know what was wrong with me. I was also told that I was overreacting, not keeping clean enough, and told to lose weight. Not a single doctor showed any compassion, or was willing to look into the matter further. I eventually stopped going to the doctors, and didn’t return until I had already made changes and knew I was on the right track. I knew that if I wanted answers, I had to do the research and experimentation myself. I wasn't interested in how I reacted to different drug, I was interested in healing myself naturally. I knew that I was on the right track with diet, so I started investigating Robb Wolf’s Autoimmune Paleo Protocol, and made specific tweaks for skin conditions. Results I had seen from others (Dr. Terry Wahls, for example) who had healed themselves from crippling autoimmune conditions were the only motivation I needed. When I started treating HS like an autoimmune condition, it went into remission. There are literally thousands of cases of this happening with different autoimmune conditions all over the world. I was also able to induce flare-ups with specific experimentation. This completely checks with autoimmunity. There isn’t a cure—you will always have the predisposition for autoimmunity—but you CAN go into remission. 3. Do you have any relatives or close friends that became diagnosed after you? There is no one else in my family with this condition. There is a mistaken belief that HS is hereditary. It is not. However, some families have more than one member affected by it. The reason for this is that HS is autoimmune. In order to get an autoimmune condition, you need to have the gene for autoimmunity. The fact that the autoimmune gene manifests as HS in more than one family member is complete coincidence. If you’re suffering from HS, you more than likely have other autoimmune conditions - and so does your family. Family trees littered with Crohn’s, rheumatoid arthritis, multiple sclerosis, restless legs syndrome, diabetes, Lupus, endometriosis, eczema, psoriasis, HS, and more—all of which are autoimmune—are very common. If you have HS, you have the autoimmune gene, which you did inherit. If your gut becomes leaky, then you will eventually develop an autoimmune condition.4. Do you have advice for anyone seeking medical help for this condition? Read my book first. The Western medical community is still under the mistaken belief that HS is caused by bacteria, hence the prescriptions for antibiotics. They will not be able to help you, and will suggest butchering surgeries and heavy hitting drugs, which often make matters worse. You can’t “cut HS out,” like you do with a cancerous tumor. When you remove an organ or tissue that is being ravaged by an autoimmune response, you open up all your other organs and tissues to attack. That’s why there’s over an 80% chance of reoccurrence of HS after surgery, and people will often start flaring-up in areas that had been clear before. Sometimes, they even develop brand new autoimmune conditions. Luckily, you actually hold the key to healing in your hands. You can heal yourself. If you can avoid infection, then you don’t need doctors—or drugs— to help you go into remission.5. What is the one thing you would stress most to anyone unable to get a copy of your book at this time? Many people with HS are on disability and don’t have a lot of disposable income, or they have been taken advantage of in the past. If this is you, go to your local library and ask them to carry the book. Then, you can borrow it for free. How much does a 1-oz jar of EmuAid cost? Turmeric capsules? Surgery? Doctor visits and prescriptions? We’ve all fallen for so much. I bet if you sat down and tallied up how much you’ve spent on Band-Aids alone for your HS over the years, $26 would be a drop in the bucket. The great thing about this book is that if you are not satisfied, you can request your money back. If you get this 300-page manual and find that there is nothing in it that is of any help, you can ask for a refund from the publisher. Try asking for a refund for EmuAid when it doesn’t work. That being said, I would challenge anyone with HS to read this book and find nothing in it that’s helpful.6. Your book is a very important first step in making the public aware of this illness. Besides the book, how do you plan to raise awareness of HS?My goal is to get on the Dr. Oz show. I figure that will give us the biggest bang for the buck. Many people have HS, but are unaware of what it’s called. They’re too embarrassed to go to the doctor about it. I would encourage all of you to write to the Dr. Oz show and ask them to feature me, and ask your local library to carry the book. The only way we’re going to raise awareness is to GO BIG.
F Stands For Success : Untold Secrets About Failures
Rakhi Kapoor - 2021
The Ghost in the House: Motherhood, Raising Children, and Struggling with Depression
Tracy Thompson - 2006
This event, the culmination of more than twenty years of silent suffering, became the point of departure for an in-depth, groundbreaking book on depression and her struggle with the disease. The Beast shattered stereotypes and inspired countless readers to confront their own battles with mental illness. Having written that book, and having found the security of a happy marriage, Thompson assumed that she had learned to manage her illness. But when she took on one of the most emotionally demanding jobs of all—being a mother—depression returned with fresh vengeance.Very quickly Thompson realized that virtually everything she had learned up to then about dealing with depression was now either inadequate or useless. In fact, maternal depression was a different beast altogether. She tackled her problem head-on, meticulously investigating the latest scientific research and collecting the stories of nearly 400 mothers with depression. What she found was startling: a problem more widespread than she or any other mother struggling alone with this affliction could have imagined. Women make up nearly 12 million of the 19 million Americans affected by depression every year, experiencing episodes at nearly twice the rate that men do. Women suffer most frequently between the ages of twenty-five and forty-four—not coincidentally, the primary childbearing years.The Ghost in the House, the result of Thompson's extensive studies, is the first book to address maternal depression as a lifelong illness that can have profound ramifications for mother and child. A striking blend of memoir and journalism, here is an invaluable resource for the millions of women who are white-knuckling their way through what should be the most satisfying years of their lives. Thompson offers her readers a concise summary of the cutting-edge research in this field, deftly written prose, and, above all, hope.
An Impossible Life: The Inspiring True Story of a Woman's Struggle from Within
Rachael Siddoway - 2019
Wife of a CEO, mother of three, living in a beautiful suburb, Sonja’s life appears ideal. How did she get here?In a gripping and breathtaking narrative that makes the reader feel as though they are listening in on a private conversation, Sonja tells the compelling real account of her struggle with marriage, motherhood, and mental illness.An Impossible Life is an unforgettable true story of perseverance when all hope seems lost. Intriguing and heartfelt, Sonja’s personal account of her mental health journey shines a beacon of hope to all who feel overwhelmed by the specter of mental illness.