Book picks similar to
The Spectrum Girl’s Survival Guide by Siena Castellon
autism
non-fiction
nonfiction
neurodiversity
The Explosive Child: A New Approach for Understanding and Parenting Easily Frustrated, Chronically Inflexible Children
Ross W. Greene - 1998
An experienced therapist offers groundbreaking and compassionate techniques for helping chronically inflexible children, who suffer from excessively immoderate tempers, showing how brain-based deficits contribute to these problems and offering positive and constructive ways to calm things down.
The Pattern Seekers: How Autism Drives Human Invention
Simon Baron-Cohen - 2020
Indeed, Baron-Cohen argues that autistic people have played a key role in human progress for seventy thousand years, from the first tools to the digital revolution.How? Because the same genes that cause autism enable the pattern seeking that is essential to our species's inventiveness. However, these abilities exact a great cost on autistic people, including social and often medical challenges, so Baron-Cohen calls on us to support and celebrate autistic people in both their disabilities and their triumphs. Ultimately, The Pattern Seekers isn't just a new theory of human civilization, but asks people to consider anew how society treats those who think differently.
Ido in Autismland: Climbing Out of Autism's Silent Prison
Ido Kedar - 2012
In his pithy essays, author Ido Kedar, a brilliant sixteen year old with autism, challenges what he believes are misconceptions in many theories that dominate autism treatment today while he simultaneously chronicles his personal growth in his struggles to overcome his limitations.Ido spent the first half of his life locked internally, in silence, trapped in a remedial educational system that presumed he lacked the most basic comprehension, and unable to show the world that he understood everything. But at the age of seven, Ido was finally able to show that he had an intact mind and could understand. This led to the quest to find a system of communication that he could use despite his impaired motor control. Through the use of a letter board, and now an iPad, Ido has triumphed communicatively, enabling him to flourish in a regular high school in all general education classes.But Ido has a larger goal. He does not want to be seen as an isolated autistic exception with miraculously advanced cognitive and communication abilities. He wants people to see that thousands of other severely autistic individuals have the same capacity, but remain trapped and locked-in, as he was, unable to show their true capacities. These individuals desperately need new theories and new methods to help them break free too. Of importance to neuro-researchers, educators, psychologists, doctors, parents, friends, family and people with autism, Ido in Autismland will change our collective understanding of severe autism.PRAISE FOR Ido in Autismland "There are doubtless many Idos in this world, unable to speak, yet possessing good intellectual ability and, most certainly, a rich emotional life. And yet, precisely because they cannot communicate, nonverbal individuals with autism are nearly always consigned to the junk heap of mental deficiency, branded as incapable of understanding language or even having feelings... We need to help change things for this terribly neglected group... Reading Ido's book is a good beginning." - Portia Iversen, Co-founder, Cure Autism Now and the Autism Genetic Resource Exchange Gene Bank. Author of Strange Son"Ido is a brilliant communicator. His words bring us inside the world of autism. His gift of writing enlightens, inspires, educates. Every person who loves or works with someone with autism - educator, therapist, karent, grandparent, neighbor - should read Ido in Autismland." - Elaine Hall, Author of Now I See the Moon, co-author of Seven Keys to Unlock Autism. Featured in Autism: The Musical"Ido's book touches any heart, not only because it is well written, but because it reveals a mind that has learned how to speak to the world through spelling every word on a letter board and keyboard. His book is indeed a great gift to the world. Thank you, Ido." - Soma Mukhopadhyay, Executive Director of Education, HALO, Author of Understanding Autism through Rapid Prompting Method
Shut Up About...Your Perfect Kid!
Gina Gallagher - 2007
Narrated by two "imperfect" sisters with "special" children, the book features a collection of entertaining and heartwarming stories from parents of children with a wide range of disabilities. It will have any parent laughing out loud and viewing the positive side of raising an "imperfect" child with humorous chapters like:
Us vs. Them battle: "It's hard to hear about how good their kid is on the baseball field, when yours would rather catch real flies."
Medication: "We've met parents who feel guilty for putting their kids on meds for not putting their kids on meds even for taking their kids' meds. ("That Ritalin really helped; you should have seen me organize those closets.")
Food: "Yes, my daughter would like a Happy Meal. Just hold the meal and she'll be happy."
Marriage: "You can remember the name of Beaver Cleaver's first grade teacher, but you can't remember the name of your child's disability?"
Sports: "Do we have to follow the ball Mom? It's more fun following a bee!"
Everyday life: "Sorry I missed the bus Mom; I was practicing funny faces in the mirror."
A Face for Picasso: Coming of Age with Crouzon Syndrome
Ariel Henley - 2021
There's a mathematical equation to prove it.At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome -- a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease.Growing up, Ariel and her sister endured numerous appearance-altering procedures. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement.Ariel explores beauty and identity in her young-adult memoir about resilience, sisterhood, and the strength it takes to put your life, and yourself, back together time and time again.
Touched with Fire: Manic-Depressive Illness and the Artistic Temperament
Kay Redfield Jamison - 1996
The anguished and volatile intensity associated with the artistic temperament was once thought to be a symptom of genius or eccentricity peculiar to artists, writers, and musicians. Her work, based on her study as a clinical psychologist and researcher in mood disorders, reveals that many artists subject to exalted highs and despairing lows were in fact engaged in a struggle with clinically identifiable manic-depressive illness. Jamison presents proof of the biological foundations of this disease and applies what is known about the illness to the lives and works of some of the world's greatest artists including Lord Byron, Vincent Van Gogh, and Virginia Woolf.
A Real Boy: A True Story of Autism, Early Intervention, and Recovery
Christina Adams - 2005
Just a few years later, a doctor refused to believe such a diagnosis could ever have been given to this healthy, happy boy. This is the true story of how Jonah's mother, Christina, seized his limited window of opportunity for recovery. Detailing how she utilized a combination of a special diet and one-on-one tutoring with speech therapists and behavioral psychologists, Christina shares the entire journey she undertook to give her child a second chance at a full life.
Atypical: Life with Asperger's in 20 1/3 Chapters
Jesse A. Saperstein - 2010
Please be forewarned that you are about to read the observations and life lessons of someone who entertains himself by farting in public and conversing in gibberish with his cats. Thus begins the charming, insightful, and memorable story of Jesse Saperstein. Diagnosed with Asperger's Syndrome, a mild form of autism, Jesse has struggled since childhood with many of the hallmark challenges of his condition-from social awkwardness and self-doubt to extreme difficulty with change and managing his emotions.He has also worked hard to understand and make the most of his AS- developing his keen curiosity and sense of humor, closely observing the world around him, and most of all, helping others with AS to better cope and even thrive. Told with endearing and unflinching honesty, Jesse brings his unique perspective to the circumstances of his life and his condition.
Driven to Distraction: Recognizing and Coping with Attention Deficit Disorder from Childhood Through Adulthood
Edward M. Hallowell - 1992
Discusses the causes, symptoms, and treatment of attention-deficit Disorder (ADD).
Keep Clear: my adventures with Asperger’s
Tom Cutler - 2019
The final realisation that he has Asperger’s allows a light to dawn on the riddles of his life: his accidental rudeness, maladroitness, Pan Am smile, and other social impediments. But, like many with Asperger’s, Tom possesses great facility with words, and this shines through this exceptionally warm, bright, and moving memoir, which is alternately strikingly revealing, laugh-out-loud funny, and achingly sad.Tom explores his eccentric behaviour from boyhood to manhood, examines the role of autism in his strange family, and investigates the scientific explanations for the condition. He recounts his anxiety and bewilderment in social situations, his sensory overload, his strange way of dressing, and his particular trouble with girls. He shares his autistic adventures in offices, toyshops, backstage in theatres, and in book and magazine publishing houses, as well as on — or more often off — roads.
Unwell Women: Misdiagnosis and Myth in a Man-Made World
Elinor Cleghorn - 2021
Elinor Cleghorn became an unwell woman ten years ago. She was diagnosed with an autoimmune disease after a long period of being told her symptoms were anything from psychosomatic to a possible pregnancy. As Elinor learned to live with her unpredictable disease she turned to history for answers, and found an enraging legacy of suffering, mystification, and misdiagnosis.In Unwell Women, Elinor Cleghorn traces the almost unbelievable history of how medicine has failed women by treating their bodies as alien and other, often to perilous effect. The result is an authoritative and groundbreaking exploration of the relationship between women and medical practice, from the wandering womb of Ancient Greece to the rise of witch trials across Europe, and from the dawn of hysteria as a catchall for difficult-to-diagnose disorders to the first forays into autoimmunity and the shifting understanding of hormones, menstruation, menopause, and conditions like endometriosis.Packed with character studies and case histories of women who have suffered, challenged, and rewritten medical orthodoxy--and the men who controlled their fate--this is a revolutionary examination of the relationship between women, illness, and medicine. With these case histories, Elinor pays homage to the women who suffered so strides could be made, and shows how being unwell has become normalized in society and culture, where women have long been distrusted as reliable narrators of their own bodies and pain. But the time for real change is long overdue: answers reside in the body, in the testimonies of unwell women--and their lives depend on medicine learning to listen.
Laughing at My Nightmare
Shane Burcaw - 2014
From awkward handshakes to having a girlfriend and everything in between, Shane handles his situation with humor and a "you-only-live-once" perspective on life. While he does talk about everyday issues that are relatable to teens, he also offers an eye-opening perspective on what it is like to have a life threatening disease.
Asperger Syndrome and Long-Term Relationships
Ashley Stanford - 2002
She explains how behaviours that may have appeared odd - or even downright irritating - are the manifestation of AS, and shows how understanding can lead to greater tolerance, or to change. Stanford provides a wealth of strategies for living successfully with the more uncompromising aspects of AS, pointing out that AS also brings enormous strengths to a relationship, and emphasizing the value of understanding. Including many quotes from people in long-term AS relationships, the book describes many positive solutions that have worked for other couples.
Drama Queen: One Autistic Woman and a Life of Unhelpful Labels
Sara Gibbs - 2021
It's just the blueprint for who I am. There is no cure, but that's absolutely fine by me. To cure me of my autism would be to cure me of myself.'During the first thirty years of her life, comedy script writer Sara Gibbs had been labelled a lot of things - a cry baby, a scaredy cat, a spoiled brat, a weirdo, a show off - but more than anything else, she'd been called a Drama Queen. No one understood her behaviour, her meltdowns or her intense emotions. She felt like everyone else knew a social secret that she hadn't been let in on; as if life was a party she hadn't been invited to. Why was everything so damn hard? Little did Sara know that, at the age of thirty, she would be given one more label that would change her life's trajectory forever. That one day, sitting next to her husband in a clinical psychologist's office, she would learn that she had never been a drama queen, or a weirdo, or a cry baby, but she had always been autistic.Drama Queen is both a tour inside one autistic brain and a declaration that a diagnosis on the spectrum, with the right support, accommodations and understanding, doesn't have to be a barrier to life full of love, laughter and success. It is the story of one woman trying to fit into a world that has often tried to reject her and, most importantly, it's about a life of labels, and the joy of ripping them off one by one
Because We Are Bad: OCD and a Girl Lost in Thought
Lily Bailey - 2016
She had killed someone with a thought, spread untold disease, and ogled the bodies of other children. Only by performing an exhausting series of secret routines could she make up for what she’d done. But no matter how intricate or repetitive, no act of penance was ever enough.Beautifully written and astonishingly intimate, Because We Are Bad recounts a childhood consumed by obsessive compulsive disorder. As a child, Bailey created a second personality inside herself—"I" became "we"—to help manifest compulsions that drove every minute of every day of her young life. Now she writes about the forces beneath her skin, and how they ordered, organized, and urged her forward. Lily charts her journey, from checking on her younger sister dozens of times a night, to "normalizing" herself at school among new friends as she grew older, and finally to her young adult years, learning—indeed, breaking through—to make a way for herself in a big, wide world that refuses to stay in check.Charming and raw, harrowing and redemptive, Because We Are Bad is an illuminating and uplifting look into the mind and soul of an extraordinary young woman, and a startling portrait of OCD that allows us to see and understand this condition as never before.