What Doesn't Kill You: A Life with Chronic Illness - Lessons from a Body in Revolt


Tessa Miller - 2021
    At first, she toughed it out through searing pain, taking sick days from work, unable to leave the bathroom or her bed. But when it became undeniable that something was seriously wrong, Miller gave in to family pressure and went to the hospital—beginning a yearslong nightmare of procedures, misdiagnoses, and life-threatening infections. Once she was finally correctly diagnosed with Crohn’s disease, Miller faced another battle: accepting that she will never get better.Today, an astonishing three in five adults in the United States suffer from a chronic disease—a percentage expected to rise post-Covid. Whether the illness is arthritis, asthma, Crohn's, diabetes, endometriosis, multiple sclerosis, ulcerative colitis, or any other incurable illness, and whether the sufferer is a colleague, a loved one, or you, these diseases have an impact on just about every one of us. Yet there remains an air of shame and isolation about the topic of chronic sickness. Millions must endure these disorders not only physically but also emotionally, balancing the stress of relationships and work amid the ever-present threat of health complications.Miller segues seamlessly from her dramatic personal experiences into a frank look at the cultural realities (medical, occupational, social) inherent in receiving a lifetime diagnosis. She offers hard-earned wisdom, solidarity, and an ultimately surprising promise of joy for those trying to make sense of it all.

Crip Theory: Cultural Signs of Queerness and Disability


Robert McRuer - 2006
    Both disability studies and queer theory are centrally concerned with how bodies, pleasures, and identities are represented as "normal" or as abject, but Crip Theory is the first book to analyze thoroughly the ways in which these interdisciplinary fields inform each other.Drawing on feminist theory, African American and Latino/a cultural theories, composition studies, film and television studies, and theories of globalization and counter-globalization, Robert McRuer articulates the central concerns of crip theory and considers how such a critical perspective might impact cultural and historical inquiry in the humanities. Crip Theory puts forward readings of the Sharon Kowalski story, the performance art of Bob Flanagan, and the journals of Gary Fisher, as well as critiques of the domesticated queerness and disability marketed by the Millennium March, or Bravo TV's Queer Eye for the Straight Guy. McRuer examines how dominant and marginal bodily and sexual identities are composed, and considers the vibrant ways that disability and queerness unsettle and re-write those identities in order to insist that another world is possible.

Things That Make White People Uncomfortable


Michael Bennett - 2018
    He's also one of the most scathingly humorous athletes on the planet, and he wants to make you uncomfortable.Bennett adds his unmistakable voice to discussions of racism and police violence, Black athletes and their relationship to powerful institutions like the NCAA and the NFL, the role of protest in history, and the responsibilities of athletes as role models to speak out against injustice. Following in the footsteps of activist-athletes from Muhammad Ali to Colin Kaepernick, Bennett demonstrates his outspoken leadership both on and off the field.Written with award-winning sportswriter and author Dave Zirin, Things that Make White People Uncomfortable is a sports book for our turbulent times, a memoir, and a manifesto as hilarious and engaging as it is illuminating.

Nothing About Us Without Us: Disability Oppression and Empowerment


James I. Charlton - 1998
    Nothing About Us Without Us is the first book in the literature on disability to provide a theoretical overview of disability oppression that shows its similarities to, and differences from, racism, sexism, and colonialism. Charlton's analysis is illuminated by interviews he conducted over a ten-year period with disability rights activists throughout the Third World, Europe, and the United States. Charlton finds an antidote for dependency and powerlessness in the resistance to disability oppression that is emerging worldwide. His interviews contain striking stories of self-reliance and empowerment evoking the new consciousness of disability rights activists. As a latecomer among the world's liberation movements, the disability rights movement will gain visibility and momentum from Charlton's elucidation of its history and its political philosophy of self-determination, which is captured in the title of his book. Nothing About Us Without Us expresses the conviction of people with disabilities that they know what is best for them. Charlton's combination of personal involvement and theoretical awareness assures greater understanding of the disability rights movement.

In the Body of the World


Eve Ensler - 2013
    Yet she spent much of her life disassociated from her own body—a disconnection brought on by her father’s sexual abuse and her mother’s remoteness. “Because I did not, could not inhabit my body or the Earth,” she writes, “I could not feel or know their pain.”But Ensler is shocked out of her distance. While working in the Congo, she is shattered to encounter the horrific rape and violence inflicted on the women there. Soon after, she is diagnosed with uterine cancer, and through months of harrowing treatment, she is forced to become first and foremost a body—pricked, punctured, cut, scanned. It is then that all distance is erased. As she connects her own illness to the devastation of the earth, her life force to the resilience of humanity, she is finally, fully—and gratefully—joined to the body of the world.Unflinching, generous, and inspiring, Ensler calls on us all to embody our connection to and responsibility for the world.http://us.macmillan.com/inthebodyofth...

A Mind Spread Out on the Ground


Alicia Elliott - 2019
    She engages with such wide-ranging topics as race, parenthood, love, mental illness, poverty, sexual assault, gentrifcation, writing and representation, and in the process makes connections both large and small between the past and present, the personal and political--from overcoming a years-long battle with head lice to the way Native writers are treated within the Canadian literary industry; her unplanned teenage pregnancy to the history of dark matter and how it relates to racism in the court system; her childhood diet of Kraft Dinner to how systemic oppression is directly linked to health problems in Native communities.With deep consideration and searing prose, Elliott provides a candid look at our past, an illuminating portrait of our present and a powerful tool for a better future.

The Truth Will Set You Free, But First It Will Piss You Off!: Thoughts on Life, Love, and Rebellion


Gloria Steinem - 2019
    From her early days as a journalist and feminist activist, Steinem's words have helped generations to empower themselves and work together.Covering topics from relationships ("Many are looking for the right person. Too few are trying to be the right person.") to the patriarchy ("Men are liked better when they win. Women are liked better when they lose. This is how the patriarchy is enforced every day.") and activism ("Revolutions, like trees, grow from the bottom up."), this is the definitive collection of Steinem's words on what matters most. Steinem sees quotes as "the poetry of everyday life," so she also has included a few favorites from friends, including bell hooks, Flo Kennedy, and Michelle Obama, in this book that will make you want to laugh, march, and create some quotes of your own. In fact, at the end of the book, there's a special space for readers to add their own quotes and others they've found inspiring. The Truth Will Set You Free, But First It Will Piss You Off! is both timeless and timely. It is a gift of hope from Steinem to readers, and a book to share with friends.

This Fight Is Our Fight: The Battle to Save America's Middle Class


Elizabeth Warren - 2017
    Senator from Massachusetts and bestselling author offers a passionate, inspiring book about why our middle class is under siege and how we can win the fight to save it Senator Elizabeth Warren has long been an outspoken champion of America’s middle class, and by the time the people of Massachusetts elected her in 2012, she had become one of the country’s leading progressive voices. Now, at a perilous moment for our nation, she has written a book that is at once an illuminating account of how we built the strongest middle class in history, a scathing indictment of those who have spent the past thirty-five years undermining working families, and a rousing call to action. Warren grew up in Oklahoma, and she’s never forgotten how difficult it was for her mother and father to hold on at the ragged edge of the middle class. An educational system that offered opportunities for all made it possible for her to achieve her dream of going to college, becoming a teacher, and, later, attending law school. But now, for many, these kinds of opportunities are gone, and a government that once looked out for working families is instead captive to the rich and powerful. Seventy-five years ago, President Franklin Roosevelt and his New Deal ushered in an age of widespread prosperity; in the 1980s, President Ronald Reagan reversed course and sold the country on the disastrous fiction called trickle-down economics. Now, with the election of Donald Trump—a con artist who promised to drain the swamp of special interests and then surrounded himself with billionaires and lobbyists—the middle class is being pushed ever closer to collapse.Written in the candid, high-spirited voice that is Warren’s trademark, This Fight Is Our Fight tells eye-opening stories about her battles in the Senate and vividly describes the experiences of hard-working Americans who have too often been given the short end of the stick. Elizabeth Warren has had enough of phony promises and a government that no longer serves its people—she won’t sit down, she won’t be silenced, and she will fight back.

Covering: The Hidden Assault on Our Civil Rights


Kenji Yoshino - 2006
    To cover is to downplay a disfavored trait so as to blend into the mainstream. Because all of us possess stigmatized attributes, we all encounter pressure to cover in our daily lives. Given its pervasiveness, we may experience this pressure to be a simple fact of social life.Against conventional understanding, Kenji Yoshino argues that the demand to cover can pose a hidden threat to our civil rights. Though we have come to some consensus against penalizing people for differences based on race, sex, sexual orientation, religion, and disability, we still routinely deny equal treatment to people who refuse to downplay differences along these lines. Racial minorities are pressed to “act white” by changing their names, languages, or cultural practices. Women are told to “play like men” at work. Gays are asked not to engage in public displays of same-sex affection. The devout are instructed to minimize expressions of faith, and individuals with disabilities are urged to conceal the paraphernalia that permit them to function. In a wide-ranging analysis, Yoshino demonstrates that American civil rights law has generally ignored the threat posed by these covering demands. With passion and rigor, he shows that the work of civil rights will not be complete until it attends to the harms of coerced conformity. At the same time, Yoshino is responsive to the American exasperation with identity politics, which often seems like an endless parade of groups asking for state and social solicitude. He observes that the ubiquity of the covering demand provides an opportunity to lift civil rights into a higher, more universal register. Since we all experience the covering demand, we can all make common cause around a new civil rights paradigm based on our desire for authenticity–a desire that brings us together rather than driving us apart. Yoshino’s argument draws deeply on his personal experiences as a gay Asian American. He follows the Romantics in his belief that if a human life is described with enough particularity, the universal will speak through it. The result is a work that combines one of the most moving memoirs written in years with a landmark manifesto on the civil rights of the future. “This brilliantly argued and engaging book does two things at once, and it does them both astonishingly well. First, it's a finely grained memoir of young man’s struggles to come to terms with his sexuality, and second, it's a powerful argument for a whole new way of thinking about civil rights and how our society deals with difference. This book challenges us all to confront our own unacknowledged biases, and it demands that we take seriously the idea that there are many different ways to be human. Kenji Yoshino is the face and the voice of the new civil rights.” -Barbara Ehrenreich, author of Nickel and Dimed“Kenji Yoshino has not only given us an important, compelling new way to understand civil rights law, a major accomplishment in itself, but with great bravery and honesty, he has forged his argument from the cauldron of his own experience. In clear, lyrical prose, Covering quite literally brings the law to life. The result is a book about our public and private selves as convincing to the spirit as it is to the mind.” -Adam Haslett, author of You Are Not A Stranger Here“Kenji Yoshino's work is often moving and always clarifying. Covering elaborates an original, arresting account of identity and authenticity in American culture.”-Anthony Appiah, author of The Ethics of Identity and Laurance S. Rockefeller University Professor Of Philosophy at Princeton University“This stunning book introduces three faces of the remarkable Kenji Yoshino: a writer of poetic beauty; a soul of rare reflectivity and decency; and a brilliant lawyer and scholar, passionately committed to uncovering human rights. Like W.E.B. DuBois's The Souls of Black Folk and Betty Friedan's The Feminine Mystique, this book fearlessly blends gripping narrative with insightful analysis to further the cause of human emancipation. And like those classics, it should explode into America's consciousness.”-Harold Hongju Koh Dean, Yale Law School and former Assistant Secretary of State for Human Rights“Covering is a magnificent work - so eloquently and powerfully written I literally could not put it down. Sweeping in breadth, brilliantly argued, and filled with insight, humor, and erudition, it offers a fundamentally new perspective on civil rights and discrimination law. This extraordinary book is many things at once: an intensely moving personal memoir; a breathtaking historical and cultural synthesis of assimilation and American equality law; an explosive new paradigm for transcending the morass of identity politics; and in parts, pure poetry. No one interested in civil rights, sexuality, discrimination - or simply human flourishing - can afford to miss it.” -Amy Chua, author of World on Fire“In this stunning, original book, Kenji Yoshino demonstrates that the struggle for gay rights is not only a struggle to liberate gays---it is a struggle to free all of us, straight and gay, male and female, white and black, from the pressures and temptations to cover vital aspects of ourselves and deprive ourselves and others of our full humanity. Yoshino is both poet and lawyer, and by joining an exquisitely observed personal memoir with a historical analysis of civil rights, he shows why gay rights is so controversial at present, why “covering” is the issue of contention, and why the “covering demand,” universal in application, is the civil rights issue of our time. This is a beautifully written, brilliant and hopeful book, offering a new understanding of what is at stake in our fight for human rights.” -Carol Gilligan, author of In a Different Voice

Capitalism and Disability: Essays by Marta Russell


Marta Russell - 2019
    In this volume, Russell’s various essays are brought together in one place in order to provide a useful and expansive resource to those interested in better understanding the ways in which the modern phenomenon of disability is shaped by capitalist economic and social relations. The essays range in analysis from the theoretical to the topical, including but not limited to: the emergence of disability as a “human category” rooted in the rise of industrial capitalism and the transformation of the conditions of work, family, and society corresponding thereto; a critique of the shortcomings of a purely “civil rights approach” to addressing the persistence of disability oppression in the economic sphere, with a particular focus on the legacy of the Americans with Disabilities Act of 1990; an examination of the changing position of disabled people within the overall system of capitalist production utilizing the Marxist economic concepts of the reserve army of the unemployed, the labor theory of value, and the exploitation of wage-labor; the effects of neoliberal capitalist policies on the living conditions and social position of disabled people as it pertains to welfare, income assistance, health care, and other social security programs; imperialism and war as a factor in the further oppression and immiseration of disabled people within the United States and globally; and the need to build unity against the divisive tendencies which hide the common economic interest shared between disabled people and the often highly-exploited direct care workers who provide services to the former.

A Great and Glorious Game: Baseball Writings of A. Bartlett Giamatti


A. Bartlett Giamatti - 1998
    He spoke out against player trading. He banned Pete Rose from baseball for gambling. He even asked sports fans to clean up their acts. Bart Giamatti was baseball's Renaissance man and its commissioner. In A GREAT AND GLORIOUS GAME, a collection of spirited, incisive essays, Giamatti reflects on the meaning of the game. Baseball, for him, was a metaphor for life. He artfully argues that baseball is much more than an American "pastime." "Baseball is about going home," he wrote, "and how hard it is to get there and how driven is our need." And in his powerful 1989 decision to ban Pete Rose from baseball, Giamatti states that no individual is superior to the game itself, just as no individual is superior to our democracy. A GREAT AND GLORIOUS GAME is a thoughtful meditation on baseball, character, and values by one of the most eloquent men in the world of sport.

The Witches Are Coming


Lindy West - 2019
    From the moment powerful men started falling to the #MeToo movement, the lamentations began: this is feminism gone too far, this is injustice, this is a witch hunt. In The Witches Are Coming, firebrand author of the New York Times bestselling memoir and now critically acclaimed Hulu TV series Shrill, Lindy West, turns that refrain on its head. You think this is a witch hunt? Fine. You’ve got one.In a laugh-out-loud, incisive cultural critique, West extolls the world-changing magic of truth, urging readers to reckon with dark lies in the heart of the American mythos, and unpacking the complicated, and sometimes tragic, politics of not being a white man in the twenty-first century. She tracks the misogyny and propaganda hidden (or not so hidden) in the media she and her peers devoured growing up, a buffet of distortions, delusions, prejudice, and outright bullsh*t that has allowed white male mediocrity to maintain a death grip on American culture and politics-and that delivered us to this precarious, disorienting moment in history.West writes, “We were just a hair’s breadth from electing America’s first female president to succeed America’s first black president. We weren’t done, but we were doing it. And then, true to form—like the Balrog’s whip catching Gandalf by his little gray bootie, like the husband in a Lifetime movie hissing, ‘If I can’t have you, no one can’—white American voters shoved an incompetent, racist con man into the White House.”We cannot understand how we got here-how the land of the free became Trump’s America—without examining the chasm between who we are and who we think we are, without fact—checking the stories we tell ourselves about ourselves and each other. The truth can transform us; there is witchcraft in it. Lindy West turns on the light.

Resistance and Hope: Essays by Disabled People


Alice Wong - 2018
    This is crip wisdom for the people. Edited by Alice Wong, founder of the Disability Visibility Project, Resistance and Hope will transform the way you think about activism, leadership and social justice. How do we fight back in an era of uncertainty, institutionalized cruelty, and widespread tolerance for ableism and hate? Written in 2017, the authors explore resistance, hope, self care, disability rights and justice, and the politics of Trump in a series of provocative, challenging essays. They bring the power of intersectional cross-platform organizing and the strength found through mutual accountability to words that will help you define the resistance you want to fight for, not just the harm you want to react against. Dare to dream bigger and create space for all with this visionary essay anthology from multiply marginalized disabled people redefining an inclusive climate of resistance. The time is NOW! "Get this book right now! Resistance and Hope is the disability justice Bible you've been waiting for. If you want to read a book chock full of disabled Black, brown, queer, trans genius, real talk and vision, this book will give you comrades reassurances that we are brilliant revolutionaries and a plethora of tools and visions for how we make the road by limping, crutching, rolling, signing and stimming. I am so grateful for Alice Wong for doing the cultural work of putting this together and for every single writer in this book." — Leah Piepzna-Samarasinha, performer, community organizer, and author of Care Work: Dreaming Disability Justice (Arsenal Pulp Press, October 1, 2018) “Until our movements are fully intersectional, we will not make the progress necessary to build the equitable society we all deserve. Resistance and Hope is a necessary manual for all of us as we learn how to build movements that are as inclusive as the world we hope to see.” — Brittany Packnett, activist, educator, writer, Co-Founder of Campaign Zero and Co-Host of Pod Save the People “Resistance and Hope: Essays by Disabled People is a timely and must-read collection of essays by some of the most cutting edge leaders in the Disability Rights Movement. If you are interested in learning more about disability rights and justice, activism, and current times we are living in today take the time to read and may these pieces evoke discussions in your communities as we fight for justice and equity.” — Judy Heumann, Disability Activist “It is so necessary for people who have been historically marginalized to tell their own stories. I am proud to know Alice Wong, who is someone dedicated to telling these stories with authenticity and integrity.” — Blair Imani, Author of Modern HERstory and Founder of Equality for HER ANTHOLOGY CONTRIBUTORS Lydia X. Z. Brown Anita Cameron Cyree Jarelle Johnson DJ Kuttin Kandi Mari Kurisato Talila A. Lewis Noemi Martinez Stacey Milbern Mia Mingus Lev Mirov Leroy Moore Shain M. Neumeier Naomi Ortiz Victoria Rodríguez-Roldán Vilissa K. Thompson Aleksei Valentín Maysoon Zayid Editorial Assistant: Robin M.

No One Is Too Small to Make a Difference


Greta Thunberg - 2019
    Her actions sparked a global movement, inspiring millions of students to go on strike for our planet, forcing governments to listen, and earning her a Nobel Peace Prize nomination.No One Is Too Small to Make A Difference brings you Greta in her own words, for the first time. Collecting her speeches that have made history across the globe, from the United Nations to Capitol Hill and mass street protests, her book is a rallying cry for why we must all wake up and fight to protect the living planet, no matter how powerless we feel. Our future depends upon it.

Loud Hands: Autistic People, Speaking


Julia Bascom - 2012
    Loud Hands: Autistic People, Speaking is a collection of essays written by and for Autistic people. Spanning from the dawn of the Neurodiversity movement to the blog posts of today, Loud Hands: Autistic People, Speaking catalogues the experiences and ethos of the Autistic community and preserves both diverse personal experiences and the community’s foundational documents together side by side.-from ASAN