A Face for Picasso: Coming of Age with Crouzon Syndrome


Ariel Henley - 2021
    There's a mathematical equation to prove it.At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome -- a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease.Growing up, Ariel and her sister endured numerous appearance-altering procedures. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement.Ariel explores beauty and identity in her young-adult memoir about resilience, sisterhood, and the strength it takes to put your life, and yourself, back together time and time again.

Girl in the Dark


Anna Lyndsey - 2015
    She was ambitious and worked hard; she had just bought an apartment; she was falling in love. But then she started to develop worrying symptoms: her face felt like it was burning whenever she was in front of the computer. Soon this progressed to an intolerance of fluorescent light, then of sunlight itself. The reaction soon spread to her entire body. Now, when her symptoms are at their worst, she must spend months on end in a blacked-out room, losing herself in audio books and elaborate word games in an attempt to ward off despair. It was during this period she began to write this book.

My Leaky Body: Tales from the Gurney


Julie Devaney - 2012
    Julie Devaney takes us on a journey through the health care system as she is diagnosed and treated for ulcerative colitis. In and out of emergency rooms in Vancouver and Toronto, she’s poked, prodded, and abandoned to a closet at one point, bearing the helplessness and indignities of a system that at best confuses a patient into silence.Raw, harrowing, and darkly funny, Julie Devaney argues convincingly for fixes to the system and better training for all medical personnel. As she recovers, she sets out to do just that: setting up a gurney on stage at workshops and conferences across the country to teach Bedside Manners 101 and to advocate for repairs to the system.Part memoir, part love story, part revolutionary manifesto, My Leaky Body is politically astute, gooey like cake batter, and raw like ulcerated bowels. Devaney writes the book that will heal her aching heart and relax her strictured rectum as she weaves stories from professional and public interactions with tales from her gurney.

Strung Out: One Last Hit and Other Lies That Nearly Killed Me


Erin Khar - 2020
    A deeply moving and emotional read, STRUNG OUT challenges our preconceived ideas of what addiction looks like.”—Stephanie Land, New York Times bestselling author of MaidIn this deeply personal and illuminating memoir about her fifteen-year struggle with heroin, Khar sheds profound light on the opioid crisis and gives a voice to the over two million people in America currently battling with this addiction.Growing up in LA, Erin Khar hid behind a picture-perfect childhood filled with excellent grades, a popular group of friends and horseback riding. After first experimenting with her grandmother’s expired painkillers, Khar started using heroin when she was thirteen. The drug allowed her to escape from pressures to be perfect and suppress all the heavy feelings she couldn’t understand.This fiercely honest memoir explores how heroin shaped every aspect of her life for the next fifteen years and details the various lies she told herself, and others, about her drug use. With enormous heart and wisdom, she shows how the shame and stigma surrounding addiction, which fuels denial and deceit, is so often what keeps addicts from getting help. There is no one path to recovery, and for Khar, it was in motherhood that she found the inner strength and self-forgiveness to quit heroin and fight for her life.Strung Out is a life-affirming story of resilience while also a gripping investigation into the psychology of addiction and why people turn to opioids in the first place.

A Mind Spread Out on the Ground


Alicia Elliott - 2019
    She engages with such wide-ranging topics as race, parenthood, love, mental illness, poverty, sexual assault, gentrifcation, writing and representation, and in the process makes connections both large and small between the past and present, the personal and political--from overcoming a years-long battle with head lice to the way Native writers are treated within the Canadian literary industry; her unplanned teenage pregnancy to the history of dark matter and how it relates to racism in the court system; her childhood diet of Kraft Dinner to how systemic oppression is directly linked to health problems in Native communities.With deep consideration and searing prose, Elliott provides a candid look at our past, an illuminating portrait of our present and a powerful tool for a better future.

It's Always Something


Gilda Radner - 1989
    I wanted a perfect ending. Now I've learned the hard way that some poems don't rhyme, and some stories don't have a clear beginning, middle, and end."The world fondly remembers the many faces of Gilda Radner: the adamant but misinformed Emily Litella; the hyperkinetic Girl Scout Judy Miller; the irrepressibly nerdy Lisa Loopner; the gross-out queen of local network news, Rosanne Rosannadanna. A supremely funny performer, Gilda lost a long and painful struggle in May 1989 to "the most unfunny thing in the world"--cancer. But the face she showed the world during this dark time was one of great courage and hope. "It's Always Something is the story of her struggle told in Gilda's own remarkable words--a personal chronicle of strength and indomitable spirit and love undiminished by the cruel ravages of disease.This is Gilda, with whom we laughed on Saturday Night Live: warm, big-hearted, outrageous, and real. This is Gilda's last gift to us: the magnificent final performance of an incomparable entertainer whose life, though tragically brief, enriched our own lives beyond measure.

The Valedictorian of Being Dead: The True Story of Dying Ten Times to Live


Heather B. Armstrong - 2019
    Armstrong writes about her experience as one of only a few people to participate in an experimental treatment for depression involving ten rounds of a chemically induced coma approximating brain death.For years, Heather B. Armstrong has alluded to her struggle with depression on her website. But in 2016, Heather found herself in the depths of a depression she just couldn’t shake, an episode darker and longer than anything she had previously experienced. This book recalls the torturous eighteen months of suicidal depression she endured and the month-long experimental study in which doctors used propofol anesthesia to quiet all brain activity for a full fifteen minutes before bringing her back from a flatline. Ten times. The experience wasn’t easy. Not for Heather or her family. But a switch was flipped, and Heather hasn’t experienced a single moment of suicidal depression since. The Valedictorian of Being Dead brings to light a groundbreaking new treatment for depression.

Inferno: A Memoir of Motherhood and Madness


Catherine Cho - 2020
    Before the trip’s end, she develops psychosis. In desperation, her husband admits her to a nearby psychiatric hospital, where she begins the hard work of rebuilding her identity.In this memoir Catherine reconstructs her sense of self, starting with her childhood as the daughter of Korean immigrants, moving through a traumatic past relationship, and on to the early years of her courtship with and marriage to her husband, James. She interweaves these parts of her past with an immediate recounting of the days she spent in the ward.

The Woman They Could Not Silence: One Woman, Her Incredible Fight for Freedom, and the Men Who Tried to Make Her Disappear


Kate Moore - 2021
    The enemy sits across the table and sleeps in the next room. Her husband of twenty-one years is plotting against her because he feels increasingly threatened - by Elizabeth's intellect, independence, and unwillingness to stifle her own thoughts. So Theophilus makes a plan to put his wife back in her place. One summer morning, he has her committed to an insane asylum.The horrific conditions inside the Illinois State Hospital in Jacksonville, Illinois, are overseen by Dr. Andrew McFarland, a man who will prove to be even more dangerous to Elizabeth than her traitorous husband. But most disturbing is that Elizabeth is not the only sane woman confined to the institution. There are many rational women on her ward who tell the same story: they've been committed not because they need medical treatment, but to keep them in line - conveniently labeled "crazy" so their voices are ignored.No one is willing to fight for their freedom and, disenfranchised both by gender and the stigma of their supposed madness, they cannot possibly fight for themselves. But Elizabeth is about to discover that the merit of losing everything is that you then have nothing to lose...

Sounds Like Me: My Life (So Far) in Song


Sara Bareilles - 2015
    In this candid book of essays, Sara pulls back the curtain to expose her songwriting process, revealing all the struggle and joy inherent in creating great work while staying true to yourself.Showcasing her stripped down and confessional writing style, Sara's entertaining and inspirational book tells the inside stories behind her most popular songs and offers insights into finding balance between making art for herself and commercial music for her listeners.

Devil in the Details: Scenes from an Obsessive Girlhood


Jennifer Traig - 2004
    The result is a book so relentlessly funny and frank, it's totally refreshing.

Uncomfortably Numb: a memoir


Meredith O'Brien - 2020
    Then it spreads. Even though an MRI finds a “mass” on her brainstem, it takes two more years for Meredith O’Brien to learn what is causing that numbness. Months after her 65-year-old mother dies from a fast-moving cancer, weeks after her father is hospitalized and she experiences an unexpected job change, she learns she has multiple sclerosis.Suddenly, Meredith, a married mother of three teens, has to figure out how to move forward into a life she no longer recognizes. Reimagining her life as a writer and an educator, as a mother and a spouse, she has to adjust to the restrictions MS imposes on her. It is a life, altered.

I Am, I Am, I Am: Seventeen Brushes with Death


Maggie O'Farrell - 2017
    The childhood illness that left her bedridden for a year, which she was not expected to survive. A teenage yearning to escape that nearly ended in disaster. An encounter with a disturbed man on a remote path. And, most terrifying of all, an ongoing, daily struggle to protect her daughter--for whom this book was written--from a condition that leaves her unimaginably vulnerable to life's myriad dangers.Seventeen discrete encounters with Maggie at different ages, in different locations, reveal a whole life in a series of tense, visceral snapshots. In taut prose that vibrates with electricity and restrained emotion, O'Farrell captures the perils running just beneath the surface, and illuminates the preciousness, beauty, and mysteries of life itself.

Tender Points


Amy Berkowitz - 2015
    Named after the diagnostic criteria for fibromyalgia, the book-length lyric essay explores sexual violence, gendered illness, chronic pain, and patriarchy through the lenses of lived experience and pop culture (Twin Peaks, Teenage Mutant Ninja Turtles, noise music, etc.). Teaching Guide (or Book Club Guide) here: bit.ly/2aqJV2X

Fifty Things That Aren't My Fault: Essays from the Grown-Up Years


Cathy Guisewite - 2019
    Her hilarious and deeply relatable look at the challenges of womanhood in a changing world became a cultural touchstone for women everywhere. Now Guisewite returns with her signature wit and warmth in this debut essay collection about another time of big transition, when everything starts changing and disappearing without permission: aging parents, aging children, aging self stuck in the middle.With her uniquely wry and funny admissions and insights, Guisewite unearths the humor and horror of everything from the mundane (trying to introduce her parents to TiVo and facing four decades' worth of unorganized photos) to the profound (finding a purpose post-retirement, helping parents downsize their lives, and declaring freedrom from all those things that hold us back). No longer confined to the limits of four comic panels, Guisewite holds out her hand in prose form and becomes a reassuring companion for those on the threshold of "what happens next." Heartfelt and humane and always cathartic, Fifty Things That Aren't My Fault is ideal reading for mothers, daughters, and anyone who is caught somewhere in between.