Book picks similar to
Brilliant Imperfection: Grappling with Cure by Eli Clare
disability
non-fiction
nonfiction
disability-studies
Fearing the Black Body: The Racial Origins of Fat Phobia
Sabrina Strings - 2019
of California, Irvine) explores the historical development of prothin, antifat ideologies deployed in support of Western, patriarchal white supremacy. Beginning in the aesthetic ideals circulated by Renaissance thinkers and artists and bringing her narrative up into the 1990s, Strings charts how white Europeans and Anglo-Americans developed ideals of race and beauty that both explicitly and figuratively juxtaposed slim, desirable white women against corpulent, seemingly monstrous black women. The work is divided into three sections. The two chapters in the first part consider how Renaissance white women and women of color were depicted as plump and feminine, separated by class, yet belonging to the same gender. The second part of the work charts the rise of modern racial ideologies that yoked feminine beauty to Protestant, Anglo-Saxon whiteness. Later chapters and the epilogue consider how Americans normalized the "scientific management" of white women's bodies for the purpose of racial uplift, a project that continued to situate black women as the embodied Other. The author does not address fat from the angle of health or previous attitudes white Europeans held towards corpulence.
The Wounded Storyteller: Body, Illness, and Ethics
Arthur W. Frank - 1995
That book ended by describing the existence of a "remission society," whose members all live with some form of illness or disability. The Wounded Storyteller is their collective portrait.Ill people are more than victims of disease or patients of medicine; they are wounded storytellers. People tell stories to make sense of their suffering; when they turn their diseases into stories, they find healing.Drawing on the work of authors such as Oliver Sacks, Anatole Broyard, Norman Cousins, and Audre Lorde, as well as from people he met during the years he spent among different illness groups, Frank recounts a stirring collection of illness stories, ranging from the well-known—Gilda Radner's battle with ovarian cancer—to the private testimonials of people with cancer, chronic fatigue syndrome, and disabilties. Their stories are more than accounts of personal suffering: they abound with moral choices and point to a social ethic.Frank identifies three basic narratives of illness in restitution, chaos, and quest. Restitution narratives anticipate getting well again and give prominence to the technology of cure. In chaos narratives, illness seems to stretch on forever, with no respite or redeeming insights. Quest narratives are about finding that insight as illness is transformed into a means for the ill person to become someone new.
Crippled: Austerity and the Demonization of Disabled People
Frances Ryan - 2019
In the age of austerity, it's disabled people who are hardest hit, affecting over 3.7 million people. This is in addition to a situation in which half of those in poverty are either disabled or living with a disabled person.In Crippled, leading commentator Frances Ryan tells the story of those most affected by this devastating regime, people who have been too often been silenced. This includes the tetraplegic living in a first floor flat forced to crawl down flights of stairs because the council doesn't provide accessible housing; the young girl forced to sleep in her wheelchair and admitted to hospital with malnutrition because cuts mean she no longer had a carer to help her get to bed or cook; or the Londoner with schizophrenia found 'fit for work', and with nothing to live on was found dead at home three months later.Through these personal stories the book shows the scale of the crisis, while also showing how the disabled community is fighting back. It is a passionate demand for the recognition of disability rights and a call for an end to austerity policies that disproportionately affect those most in need.
I'm Afraid of Men
Vivek Shraya - 2018
Throughout her life she's endured acts of cruelty and aggression for being too feminine as a boy and not feminine enough as a girl. In order to survive childhood, she had to learn to convincingly perform masculinity. As an adult, she makes daily compromises to steel herself against everything from verbal attacks to heartbreak.With raw honesty, Shraya delivers an important record of the cumulative damage caused by misogyny, homophobia, and transphobia, releasing trauma from a body that has always refused to assimilate. I'm Afraid of Men is a journey from camouflage to a riot of color and a blueprint for how we might cherish all that makes us different and conquer all that makes us afraid.
This Common Secret: My Journey as an Abortion Doctor
Susan Wicklund - 2007
Susan Wicklund chronicles her emotional and dramatic twenty-year career on the front lines of the abortion war. Growing up in working class, rural Wisconsin, Wicklund had her own painful abortion at a young age. It was not until she became a doctor that she realized how many women shared her ordeal of an unwanted pregnancy—and how hidden this common experience remains. This is the story of Susan's love for a profession that means listening to women and helping them through one of the most pivotal and controversial events in their lives. Hers is also a calling that means sleeping on planes and commuting between clinics in different states—and that requires her to wear a bulletproof vest and to carry a .38 caliber revolver. This is also the story of the women whom Susan serves, women whose options are increasingly limited.Through these intimate, complicated, and inspiring accounts, Wicklund reveals the truth about the women's clinics that anti-abortion activists portray as little more than slaughterhouses for the unborn. As we enter the most fevered political fight over abortion America has ever seen, this raw and powerful memoir shows us what is at stake.
Pain and Prejudice: A Call to Arms for Women and Their Bodies
Gabrielle Jackson - 2019
And many are so, so tired … But women's pain is all too often dismissed, their illnesses misdiagnosed or ignored. In medicine, man is the default human being. Any deviation is atypical, abnormal, deficient.'Fourteen years after being diagnosed with endometriosis, Gabrielle Jackson couldn't believe how little had changed in the treatment and knowledge of the disease. In 2015, her personal story kick-started a worldwide investigation into the disease by The Guardian; thousands of women got in touch to tell their own stories and many more read and shared the material. What began as one issue led Jackson to explore how women - historically and through to the present day - are under-served by the systems that should keep them happy, healthy and informed about their bodies.Pain and Prejudice is a vital testament to how social taboos and medical ignorance keep women sick and in anguish. The stark reality is that women's pain is not taken as seriously as men's. Women are more likely to be disbelieved and denied treatment than men, even though women are far more likely to be suffering from chronic pain.In a potent blend of personal memoir and polemic, Jackson confronts the private concerns and questions women face regarding their health and medical treatment. Pain and Prejudice, finally, explains how we got here, and where we need to go next.
Cruel Optimism
Lauren Berlant - 2011
Offering bold new ways of conceiving the present, Lauren Berlant describes the cruel optimism that has prevailed since the 1980s, as the social-democratic promise of the postwar period in the United States and Europe has retracted. People have remained attached to unachievable fantasies of the good life—with its promises of upward mobility, job security, political and social equality, and durable intimacy—despite evidence that liberal-capitalist societies can no longer be counted on to provide opportunities for individuals to make their lives “add up to something.”Arguing that the historical present is perceived affectively before it is understood in any other way, Berlant traces affective and aesthetic responses to the dramas of adjustment that unfold amid talk of precarity, contingency, and crisis. She suggests that our stretched-out present is characterized by new modes of temporality, and she explains why trauma theory—with its focus on reactions to the exceptional event that shatters the ordinary—is not useful for understanding the ways that people adjust over time, once crisis itself has become ordinary. Cruel Optimism is a remarkable affective history of the present.
Body Talk: 37 Voices Explore Our Radical Anatomy
Kelly Jensen - 2020
Just as every person has a unique personality, every person has a unique body, and every body tells its own story. In Body Talk, thirty-seven writers, models, actors, musicians, and artists share essays, lists, comics, and illustrations—about everything from size and shape to scoliosis, from eating disorders to cancer, from sexuality and gender identity to the use of makeup as armor. Together, they contribute a broad variety of perspectives on what it’s like to live in their particular bodies—and how their bodies have helped to inform who they are and how they move through the world. Come on in, turn the pages, and join the celebration of our diverse, miraculous, beautiful bodies!
Appetites: Why Women Want
Caroline Knapp - 2003
Caroline Knapp addresses the following question: How does a woman know, and then honour, what it is she wants in a culture bent on shaping, defining and controlling women and their desires? She uses her own experiences as a powerful exploration of this issue.
The Last Time I Wore a Dress
Daphne Scholinski - 1997
Dylan's story—which is, sadly, not that unusual—has already received attention from such shows as 20/20, Dateline, Today, and Leeza. But his memoir, bound to become a classic, tells the story in a funny, ironic, unforgettable voice that "isn't all grim; Scholinski tells [his] story in beautifully evocative prose and mines [his] experiences for every last drop of ironic humor, determined to have the last laugh." (Time Out New York)
The Story of Jane: The Legendary Underground Feminist Abortion Service
Laura Kaplan - 1996
Wade decision, most women determined to get abortions had to subject themselves to the power of illegal, unregulated abortionists...But a Chicago woman who happened to stumble across a secret organization code-named 'Jane' had an alternative. Laura Kaplan, who joined Jane in 1971, has pieced together the histories of the anonymous (here identified only by pseudonyms), average-sounding women who transformed themselves into outlaws."—Cleveland Plain Dealer"The Story of Jane is a piece of women's history in step with feminist theory demanding that women tell their own stories. It serves to remind people of an important and often overlooked moment in the women's rights movement."—Seattle Weekly"Laura Kaplan's The Story of Jane is the first book to chronicle this controversial sliver of history, and it is a fascinating, if partisan, close-up of the group."—Newsday"[Kaplan] draws on her personal recollections and interviews with Jane members and clients and the doctors who performed the abortions to provide a well-written, detailed history of this radical group."—Publisher's Weekly"Weaving together the voices and memories of her former co-workers, Kaplan recounts how the group initially focused on counseling women and helping them find reliable, reasonably priced doctors....Kaplan's account of this remarkable story recaptures the political idealism of the early '70s...23 years after Roe vs. Wade, the issues and memories raised by the books are close and all too relevant."—K Kaufmann, San Francisco Chronicle"Laura Kaplan's The Story of Jane is the first book to chronicle this controversial sliver of history, and it is a fascinating, if partisan, close-up of the group....The Story of Jane succeeds on the steam of Kaplan's gripping subject and her moving belief in the power of small-scale change."—Cynthia Leive, New York Newsday"During the four years before the Supreme Court's Roe v. Wade decision legalized abortion in 1973, the 100 members of Jane helped some 11,000 women end their pregnancies....There is more in this remarkable book that will further raise eyebrows....Kaplan's engrossing tales of the quiet courage of the women who risked their reputations and freedom to help others may remind many readers of other kinds of outlaws who have resisted tyranny throughout history."—Chicago Sun-Times
Masculinities
Raewyn W. Connell - 1999
Exploring themes such as global gender relations and the practical uses of masculinity research, this text looks at the implications for the field, particularly with regard to understanding current world issues.
Asylums: Essays on the Social Situation of Mental Patients and Other Inmates
Erving Goffman - 1961
It focuses on the relationship between the inmate and the institution, how the setting affects the person and how the person can deal with life on the inside.
Cynical Theories: How Activist Scholarship Made Everything about Race, Gender, and Identity—and Why This Harms Everybody
Helen Pluckrose - 2020
As Pluckrose and Lindsay warn, the unchecked proliferation of these anti-Enlightenment beliefs present a threat not only to liberal democracy but also to modernity itself. While acknowledging the need to challenge the complacency of those who think a just society has been fully achieved, Pluckrose and Lindsay break down how this often-radical activist scholarship does far more harm than good, not least to those marginalized communities it claims to champion. They also detail its alarmingly inconsistent and illiberal ethics. Only through a proper understanding of the evolution of these ideas, they conclude, can those who value science, reason, and consistently liberal ethics successfully challenge this harmful and authoritarian orthodoxy—in the academy, in culture, and beyond.
The Feminist Porn Book: The Politics of Producing Pleasure
Tristan Taormino - 2012
This book investigates not only how feminists understand pornography, but also how feminists do porn—that is, direct, act in, produce, and consume one of the world's most lucrative and growing industries. With original contributions by Susie Bright, Candida Royalle, Betty Dodson, Nina Hartley, Buck Angel, and more, The Feminist Porn Book updates the debates of the porn wars of the 1980s, which sharply divided the women's movement, and identifies pornography as a form of expression and labor in which women and other minorities produce power and pleasure.Tristan Taormino is an award-winning author, columnist, editor, sex educator, and feminist pornographer. She is the author of seven books including The Ultimate Guide to Anal Sex for Women and Opening Up. She runs the adult film production company Smart Ass Productions and is an exclusive director for Vivid Entertainment.Celine Parreñas Shimizu is an associate professor of film and performance studies at the University of California, Santa Barbara, and founding editor of Camera Obscura. She is the author of Straitjacket Sexualities and the 2009 Cultural Studies Book Award winning, The Hypersexuality of Race.Mireille Miller-Young is assistant professor of feminist studies at the University of California, Santa Barbara. Her forthcoming book, A Taste for Brown Sugar: Black Women, Sex Work, and Pornography (Duke University Press) examines African American women’s sex work in the porn industry.