Book picks similar to
Life As We Know It: A Father, a Family, and an Exceptional Child by Michael Bérubé
memoir
disability
nonfiction
non-fiction
The Undertaking: Life Studies from the Dismal Trade
Thomas Lynch - 1997
So opens the singular testimony of the poet Thomas Lynch who like many poets is inspired by death, but unlike the others, he is also hired to bury the dead or to cremate them and to tend to their families in a small Michigan town where he serves as the funeral director. In the conduct of these duties he has kept his eyes open, his ears tuned to the indispensable vernaculars of love and grief. Here is the voice of both witness and functionary. Lynch stands between the living and the living who have died with outrage and amazement, awe and calm, straining for the brief glimpse we all get of what mortality means to a vital species.
Beyond the Pale: Folklore, Family and the Mystery of Our Hidden Genes
Emily Urquhart - 2015
Stephen's Day, 2010, in St. John's, Newfoundland, when the author gives birth to a baby girl named Sadie Jane who has a shock of snow-white hair. News of the child's icy locks travels across the hospital, and physicians and nurses from all wards visit the unusually beautiful newborn as she lies sleeping in her plastic bassinet. The maternity-floor janitor, however, feels something is amiss. Her eyes wide, incredulous and panicky, the janitor asks, "Is she an albino?" The idea is immediately dismissed, but after three months of medical testing, Sadie is diagnosed with albinism, a rare genetic condition where pigment fails to form in the skin, hair and eyes. She is visually impaired and faces a lifetime avoiding the sun. She will always have the otherworldly appearance that drew the awestruck hospital staff to her side.A journalist and folklore scholar accustomed to processing the world through other people's stories, Emily is drawn to understanding her child's difference by researching the cultural beliefs associated with albinism worldwide. What she finds on her journey vacillates between beauty and darkness. She discovers that Noah's birth story is believed to be the first record of a baby born with albinism, and that the Kuna people in Panama revere members of their society with albinism, seeing them as defenders of the moon in the night sky. She attends a gathering of people with albinism in St. Louis and interviews geneticists, social scientists, novelists and folklorists in Canada, England and the US. But when she uncovers information about gruesome attacks on people with albinism in Tanzania, rooted in witchcraft, she feels compelled to travel to East Africa, her sun-shy toddler in tow, in an effort to understand these human-rights violations. Upon her return to Canada she discovers a family photograph from the past that might illuminate her daughter’s present. While navigating new territory as a first-time parent of a child with a disability, Emily embarks on a three-year journey across North America and Africa to discover how we explain human differences, not through scientific facts or statistics but through a system of cultural beliefs. Part parenting memoir, part cultural critique and part travelogue, Beyond the Pale, as the title suggests, takes the reader into dark and unknown territory in the search for enlightenment.
The Language of Kindness: A Nurse's Story
Christie Watson - 2018
She takes us by her side down hospital corridors to visit the wards and meet her unforgettable patients.In the neonatal unit, premature babies fight for their lives, hovering at the very edge of survival, like tiny Emmanuel, wrapped up in a sandwich bag. On the cancer wards, the nurses administer chemotherapy and, long after the medicine stops working, something more important--which Watson learns to recognize when her own father is dying of cancer. In the pediatric intensive care unit, the nurses wash the hair of a little girl to remove the smell of smoke from the house fire. The emergency room is overcrowded as ever, with waves of alcohol and drug addicted patients as well as patients like Betty, a widow suffering chest pain, frail and alone. And the stories of the geriatric ward--Gladys and older patients like her--show the plight of the most vulnerable members of our society.
The Audacity of Hope: Thoughts on Reclaiming the American Dream
Barack Obama - 2006
Lucid in his vision of America's place in the world, refreshingly candid about his family life and his time in the Senate, Obama here sets out his political convictions and inspires us to trust in the dogged optimism that has long defined us and that is our best hope going forward.
Death Be Not Proud
John Gunther - 1949
The book opens with his father's fond, vivid portrait of his son - a young man of extraordinary intellectual promise, who excelled at physics, math, and chess, but was also an active, good-hearted, and fun-loving kid. But the heart of the book is a description of the agonized months during which Gunther and his former wife Frances try everything in their power to halt the spread of Johnny's cancer and to make him as happy and comfortable as possible. In the last months of his life, Johnny strove hard to complete his high school studies. The scene of his graduation ceremony from Deerfield Academy is one of the most powerful - and heartbreaking - in the entire book. Johnny maintained his courage, wit and quiet friendliness up to the end of his life. He died on June 30, 1947, less than a month after graduating from Deerfield.
Mom's Marijuana: Life, Love, and Beating the Odds
Dan Shapiro - 2000
In this hilarious, high-spirited, sometimes harrowing memoir, Shapiro invites us into his battle with cancer, his romance with an oncology nurse, his journey through graduate school, and his most important life lessons. He tells his story with wit and grace and indomitable spirit, showing us that only when the rhythm of life is stirred violently are able to discover its full beauty.
The Only Woman in the Room: Why Science Is Still a Boys' Club
Eileen Pollack - 2015
In the 1970s, Pollack had excelled as one of Yale’s first two women to earn a bachelor of science degree in physics. But, isolated, lacking in confidence, and starved for encouragement, she abandoned her lifelong dream of becoming a theoretical physicist. Years later, she thought back on her experiences and wondered what had changed in the intervening decades, and what challenges remained. Based on six years of interviewing dozens of teachers and students and reviewing studies on gender bias, The Only Woman in the Room is an illuminating exploration of the cultural, social, psychological, and institutional barriers confronting women in the STEM disciplines. Pollack brings to light the struggles that women in the sciences are often hesitant to admit and provides hope that changing attitudes and behaviors can bring more women into fields in which they remain, to this day, seriously underrepresented.Eileen Pollack is the author of the novels Breaking and Entering (a New York Times Editor’s Choice selection) and Paradise, New York, as well as two collections of short fiction, an award-winning book of nonfiction, and two creative-nonfiction textbooks. Her work has appeared in Best American Essays and Best American Short Stories. She is a professor on the faculty of the Helen Zell MFA Program in Creative Writing at the University of Michigan. She divides her time between Manhattan and Ann Arbor, Michigan.
Front of the Class: How Tourette Syndrome Made Me the Teacher I Never Had
Brad Cohen - 2005
This story of unwavering determination proves anyone can make their dreams come true. Ends with 20+ motivational tips on living with a disability.
Letters to a Young Scientist
Edward O. Wilson - 2013
Wilson has distilled sixty years of teaching into a book for students, young and old. Reflecting on his coming-of-age in the South as a Boy Scout and a lover of ants and butterflies, Wilson threads these twenty-one letters, each richly illustrated, with autobiographical anecdotes that illuminate his career--both his successes and his failures--and his motivations for becoming a biologist. At a time in human history when our survival is more than ever linked to our understanding of science, Wilson insists that success in the sciences does not depend on mathematical skill, but rather a passion for finding a problem and solving it. From the collapse of stars to the exploration of rain forests and the oceans' depths, Wilson instills a love of the innate creativity of science and a respect for the human being's modest place in the planet's ecosystem in his readers.
No Impact Man
Colin Beavan - 2009
And that’s just the beginning. Bill McKibben meets Bill Bryson in this seriously engaging look at one man’s decision to put his money where his mouth is and go off the grid for one year—while still living in New York City—to see if it’s possible to make no net impact on the environment. In other words, no trash, no toxins in the water, no elevators, no subway, no products in packaging, no air-conditioning, no television . . .What would it be like to try to live a no-impact lifestyle? Is it possible? Could it catch on? Is living this way more satisfying or less satisfying? Harder or easier? Is it worthwhile or senseless? Are we all doomed or can our culture reduce the barriers to sustainable living so it becomes as easy as falling off a log? These are the questions at the heart of this whole mad endeavor, via which Colin Beavan hopes to explain to the rest of us how we can realistically live a more “eco-effective” and by turns more content life in an age of inconvenient truths.
Whip Smart: A Memoir
Melissa Febos - 2010
In poetic, nuanced prose she charts how unchecked risk-taking eventually gave way to a course of self-destruction. But as she recounts crossing over the very boundaries that she set for her own safety, she never plays the victim. In fact, the glory of this memoir is Melissa’s ability to illuminate the strange and powerful truths that she learned as she found her way out of a hell of her own making. Rest assured; the reader will emerge from the journey more or less unscathed.
War Doctor: Surgery on the Front Line
David Nott - 2019
From Sarajevo under siege in 1993 to clandestine hospitals in rebel-held eastern Aleppo, he has carried out lifesaving operations in the most challenging conditions, and with none of the resources of a major metropolitan hospital. He is now widely acknowledged as the most experienced trauma surgeon in the world.War Doctor is his extraordinary story, encompassing his surgeries in nearly every major conflict zone since the end of the Cold War, as well as his struggles to return to a “normal” life and routine after each trip. Culminating in his recent trips to war-torn Syria—and the untold story of his efforts to help secure a humanitarian corridor out of besieged Aleppo to evacuate some 50,000 people—War Doctor is a blend of medical memoir, personal journey, and nonfiction thriller that provides unforgettable, at times raw, insight into the human toll of war.
A House in the Sky
Amanda Lindhout - 2013
At the age of nineteen, working as a cocktail waitress in Calgary, Alberta, she began saving her tips so she could travel the globe. Aspiring to understand the world and live a significant life, she backpacked through Latin America, Laos, Bangladesh, and India, and emboldened by each adventure, went on to Sudan, Syria, and Pakistan. In war-ridden Afghanistan and Iraq she carved out a fledgling career as a television reporter. And then, in August 2008, she traveled to Somalia—“the most dangerous place on earth.” On her fourth day, she was abducted by a group of masked men along a dusty road.Held hostage for 460 days, Amanda converts to Islam as a survival tactic, receives “wife lessons” from one of her captors, and risks a daring escape. Moved between a series of abandoned houses in the desert, she survives on memory—every lush detail of the world she experienced in her life before captivity—and on strategy, fortitude, and hope. When she is most desperate, she visits a house in the sky, high above the woman kept in chains, in the dark, being tortured.Vivid and suspenseful, as artfully written as the finest novel, A House in the Sky is the searingly intimate story of an intrepid young woman and her search for compassion in the face of unimaginable adversity.
Hallelujah Anyway: Rediscovering Mercy
Anne Lamott - 2017
It's the permission you give others--and yourself--to forgive a debt, to absolve the unabsolvable, to let go of the judgment and pain that make life so difficult.In Hallelujah Anyway: Rediscovering Mercy Lamott ventures to explore where to find meaning in life. We should begin, she suggests, by-facing a great big mess, especially the great big mess of ourselves. It's up to each of us to recognize the presence and importance of mercy everywhere-within us and outside us, all around us-and to use it to forge a deeper understanding of ourselves and more honest connections with each other. While that can be difficult to do, Lamott argues that it's crucial, as kindness towards others, beginning with myself, buys us a shot at a warm and generous heart, the greatest prize of all.Full of Lamott's trademark honesty, humor, and forthrightness, Hallelujah Anyway is profound and caring, funny and wise--a hopeful book of hands-on spirituality.
Rising Out of Hatred: The Awakening of a Former White Nationalist
Eli Saslow - 2018
This is a book to help us understand the American moment and to help us better understand one another.Derek Black grew up at the epicenter of white nationalism. His father founded Stormfront, the largest racist community on the Internet. His godfather, David Duke, was a KKK Grand Wizard. By the time Derek turned nineteen, he had become an elected politician with his own daily radio show—already regarded as the "the leading light" of the burgeoning white nationalist movement. "We can infiltrate," Derek once told a crowd of white nationalists. "We can take the country back."Then he went to college. At New College of Florida, he continued to broadcast his radio show in secret each morning, living a double life until a classmate uncovered his identity and sent an email to the entire school. "Derek Black ... white supremacist, radio host ... New College student???" The ensuing uproar overtook one of the most liberal colleges in the country. Some students protested Derek's presence on campus, forcing him to reconcile for the first time with the ugliness of his beliefs. Other students found the courage to reach out to him, including an Orthodox Jew who invited Derek to attend weekly Shabbat dinners. It was because of those dinners—and the wide-ranging relationships formed at that table—that Derek started to question the science, history, and prejudices behind his worldview. As white nationalism infiltrated the political mainstream, Derek decided to confront the damage he had done.Rising Out of Hatred tells the story of how white-supremacist ideas migrated from the far-right fringe to the White House through the intensely personal saga of one man who eventually disavowed everything he was taught to believe, at tremendous personal cost. With great empathy and narrative verve, Eli Saslow asks what Derek Black's story can tell us about America's increasingly divided nature.