The Collected Schizophrenias: Essays


Esmé Weijun Wang - 2019
    Schizophrenia is not a single unifying diagnosis, and Esme Weijun Wang writes not just to her fellow members of the "collected schizophrenias" but to those who wish to understand it as well. Opening with the journey toward her diagnosis of schizoaffective disorder, Wang discusses the medical community's own disagreement about labels and procedures for diagnosing those with mental illness, and then follows an arc that examines the manifestations of schizophrenia in her life. In essays that range from using fashion to present as high-functioning to the depths of a rare form of psychosis, and from the failures of the higher education system and the dangers of institutionalisation to the complexity of compounding factors such as PTSD and Lyme disease, Wang's analytical eye, honed as a former lab researcher at Stanford, allows her to balance research with personal narrative. An essay collection of undeniable power, The Collected Schizophrenias dispels misconceptions and provides insight into a condition long misunderstood.

Everything Happens for a Reason: And Other Lies I've Loved


Kate Bowler - 2018
    She lost thirty pounds, chugged antacid, and visited doctors for three months before she was finally diagnosed with Stage IV colon cancer.As she navigates the aftermath of her diagnosis, Kate pulls the reader deeply into her life, which is populated with a colorful, often hilarious collection of friends, pastors, parents, and doctors, and shares her laser-sharp reflections on faith, friendship, love, and death. She wonders why suffering makes her feel like a loser and explores the burden of positivity. Trying to relish the time she still has with her son and husband, she realizes she must change her habit of skipping to the end and planning the next move. A historian of the "American prosperity gospel"--the creed of the mega-churches that promises believers a cure for tragedy, if they just want it badly enough--Bowler finds that, in the wake of her diagnosis, she craves these same "outrageous certainties." She wants to know why it's so hard to surrender control over that which you have no control. She contends with the terrifying fact that, even for her husband and child, she is not the lynchpin of existence, and that even without her, life will go on.On the page, Kate Bowler is warm, witty, and ruthless, and, like Paul Kalanithi, one of the talented, courageous few who can articulate the grief she feels as she contemplates her own mortality.

Crashing Through: A True Story of Risk, Adventure, and the Man Who Dared to See


Robert Kurson - 2006
    The bestselling author of Shadow Divers returns with a riveting story of exploration, mystery, and the discovery of an unknown world--this time about one man's incredible odyssey from blindness into sight.

Reasons to Stay Alive


Matt Haig - 2015
    Reasons to Stay Alive is Matt’s inspiring account of how, minute by minute and day by day, he overcame the disease with the help of reading, writing, and the love of his parents and his girlfriend (and now-wife), Andrea. And eventually, he learned to appreciate life all the more for it. Everyone’s lives are touched by mental illness: if we do not suffer from it ourselves, then we have a friend or loved one who does. Matt’s frankness about his experiences is both inspiring to those who feel daunted by depression and illuminating to those who are mystified by it. Above all, his humor and encouragement never let us lose sight of hope. Speaking as his present self to his former self in the depths of depression, Matt is adamant that the oldest cliché is the truest—there is light at the end of the tunnel. He teaches us to celebrate the small joys and moments of peace that life brings, and reminds us that there are always reasons to stay alive.

Songs of the Gorilla Nation: My Journey Through Autism


Dawn Prince-Hughes - 2004
    Specifically, it is about my autism, which is both like and unlike other people’s autism. But just as much, it is a story about how I emerged from the darkness of it into the beauty of it.”In this elegant and thought-provoking memoir, Dawn Prince-Hughes traces her personal growth from undiagnosed autism to the moment when, as a young woman, she entered the Seattle Zoo and immediately became fascinated with the gorillas.Having suffered from a lifelong inability to relate to people in a meaningful way, Dawn was surprised to find herself irresistibly drawn to these great primates. By observing them and, later, working with them, she was finally able to emerge from her solitude and connect to living beings in a way she had never previously experienced.Songs of the Gorilla Nation is more than a story of autism, it is a paean to all that is important in life. Dawn Prince-Hughes’s evocative story will undoubtedly have a lasting impact, forcing us, like the author herself, to rediscover and assess our own understanding of human emotion.

Crazy: A Father's Search Through America's Mental Health Madness


Pete Earley - 2006
    But it was only when his own son-in the throes of a manic episode-broke into a neighbor's house that he learned what happens to mentally ill people who break a law. This is the Earley family's compelling story, a troubling look at bureaucratic apathy and the countless thousands who suffer confinement instead of care, brutal conditions instead of treatment, in the "revolving doors" between hospital and jail. With mass deinstitutionalization, large numbers of state mental patients are homeless or in jail-an experience little better than the horrors of a century ago. Earley takes us directly into that experience-and into that of a father and award-winning journalist trying to fight for a better way.

Bloom: Finding Beauty in the Unexpected--A Memoir


Kelle Hampton - 2012
    The author of the popular blog Enjoying the Small Things—named The Bump’s Best Special Needs Blog and The Blog You’ve Learned the Most From in the 2010 BlogLuxe Awards—Kelle Hampton interweaves lyrical prose and stunning four-color photography as she recounts the unforgettable story of the first year in the life of her daughter Nella, who has Down syndrome. Poignant, eye-opening, and heart-soaring, Hampton’s Bloom is ultimately about embracing life and really living it.

The Boy in the Moon: A Father's Journey to Understand His Extraordinary Son


Ian Brown - 2009
    At age thirteen, he is mentally and developmentally between one and three years old and will need constant care for the rest of his life. Brown travels the globe, meeting with genetic scientists and neurologists as well as parents, to solve the questions Walker’s doctors can’t answer. In his journey, he offers an insightful critique of society’s assumptions about the disabled, and he discovers a connected community of families living with this illness. As Brown gradually lets go of his self-blame and hope for a cure, he learns to accept the Walker he loves, just as he is. Honest, intelligent, and deeply moving, The Boy in the Moon explores the value of a single human life.

In an Instant: A Family's Journey of Love and Healing


Lee WoodruffLee Woodruff - 2007
    Lee was a public relations executive and Bob had just been named co-anchor of ABC’s World News Tonight. Then, while Bob was embedded with the military in Iraq, an improvised explosive device went off near the tank he was riding in. He and his cameraman, Doug Vogt, were hit, and Bob suffered a traumatic brain injury that nearly killed him.In an Instant is the frank and compelling account of how Bob and Lee’s lives came together, were blown apart, and then were miraculously put together again–and how they persevered, with grit but also with humor, through intense trauma and fear. Here are Lee’s heartfelt memories of their courtship, their travels as Bob left a law practice behind and pursued his news career and Lee her freelance business, the glorious births of her children and the challenges of motherhood.Bob in turn recalls the moment he caught the journalism “bug” while covering Tiananmen Square for CBS News, his love of overseas assignments and his guilt about long separations from his family, and his pride at attaining the brass ring of television news–being chosen to fill the seat of the late Peter Jennings.And, for the first time, the Woodruffs reveal the agonizing details of Bob’s terrible injuries and his remarkable recovery. We learn that Bob’s return home was not an end to the journey but the first step into a future they have learned not to fear but to be grateful for.In an Instant is much more than the dual memoir of love and courage. It is an important, wise, and inspiring guide to coping with tragedy–and an extraordinary drama of marriage, family, war, and nation.A percentage of the proceeds from this book will be donated to the Bob Woodruff Family Fund for Traumatic Brain Injury.From the Hardcover edition.

Ask Me Why I Hurt: The Kids Nobody Wants and the Doctor Who Heals Them


Randy Christensen - 2011
    Randy Christensen. Trained as a pediatrician, he works not in a typical hospital setting but, rather, in a 38-foot Winnebago that has been refitted as a doctor’s office on wheels. His patients are the city’s homeless adolescents and children. In the shadow of one affluent American city, Dr. Christensen has dedicated his life to caring for society's throwaway kids—the often-abused, unloved children who live on the streets without access to proper health care, all the while fending off constant threats from thugs, gangs, pimps, and other predators. With the Winnebago as his moveable medical center, Christensen and his team travel around the outskirts of Phoenix, attending to the children and teens who need him most. With tenderness and humor, Dr. Christensen chronicles everything from the struggles of the van’s early beginnings, to the support system it became for the kids, and the ultimate recognition it has achieved over the years. Along with his immense professional challenges, he also describes the trials and joys he faces while raising a growing family with his wife Amy. By turns poignant, heartbreaking, and charming, Dr. Christensen's story is a gripping and rich memoir of his work and family, one of those rare books that stays with you long after you’ve turned the last page.

Just Don't Fall: How I Grew Up, Conquered Illness, and Made It Down the Mountain


Josh Sundquist - 2009
    One moment Josh Sundquist was your typical energetic and inquisitive nine year- old boy. The next, his entire life changed when he was diagnosed with Ewing's Sarcoma, a particularly virulent cancer strain that would eventually claim Josh's left leg. Told in a wide-eyed, winning, heartbreaking voice, Just Don't Fall is the story of the boy Josh was and of the young man he became. His story begins in a small, close-knit Southern town, where his father-an aspiring pastor questioning his faith, and his mother-- homeschooling an ever- growing brood of children-struggle to make ends meet. Josh journeys through a dizzying array of hospitals and eventually lands at a pivotal place: the nearby mountain, where he makes his first attempt to ski. It is on the slopes, and later, on the race course, that Josh's world bursts wide open in a way no one could have ever anticipated. The inspiration to ski, however, and to become a champion, is not all that Josh has to contend with- there is adolescence to navigate, the transition from homeschool to public high school, and girls. There is an increasingly turbulent and difficult home life, with another cancer scare, a wayward brother, and dwindling finances to pay for training. Finally, there is the wild, bumpy road to the Paralympics in Turin, with a misanthropic coach, training in the Rockies, and a timeless friendship with a charismatic, imposing Brooklyn homeboy named Ralph. Through it all, Josh is forced to question his abilities, his sanity, his will, his faith in himself, and his faith in God. Because of, not despite, these myriad obstacles in his path, Josh is able to achieve a genuine grace: the grace to risk failure and to succeed. It is the grace of a young boy becoming a man and of a champion realizing his greatest dream. Josh Sundquist shows us with charm, humility and remarkable strength that even if we fall, this inner grace can lift us up and carry us over the many mountains we all must face.

Lovey: A Very Special Child


Mary MacCracken - 1976
    Everyone agreed on that - public school authorities, psychiatrists, even the mother who loved her but could not reach her. Everyone, except one remarkable teacher who understood what it was like to be eight years old and hurt and angry and confused. A teacher who saw Hannah as she could be rather than what she seemed to be.One child. One teacher. Just enough to add up to a very human miracle..."-from the back cover-

Expecting Adam: A True Story of Birth, Rebirth, and Everyday Magic


Martha N. Beck - 1999
    This "rueful, riveting, piercingly funny" (Julia Cameron) book is written by a Harvard graduate--but it tells a story in which hearts trump brains every time. It's a tale about mothering a Down syndrome child that opts for sass over sap, and it's a book of heavenly visions and inexplicable phenomena that's as down-to-earth as anyone could ask for. This small masterpiece is Martha Beck's own story--of leaving behind the life of a stressed-out superachiever, opening herself to things she'd never dared consider, meeting her son for (maybe) the first time...and "unlearn[ing] virtually everything Harvard taught [her] about what is precious and what is garbage.""Beck [is] very funny, particularly about the most serious possible subjects--childbirth, angels and surviving at Harvard." --New York Times Book Review"Immensely appealing...hooked me on the first page and propelled me right through visions and out-of-body experiences I would normally scoff at." --Detroit Free Press"I challenge any reader not to be moved by it." --Newsday"Brilliant." --Minneapolis Star-Tribune

Because We Are Bad: OCD and a Girl Lost in Thought


Lily Bailey - 2016
    She had killed someone with a thought, spread untold disease, and ogled the bodies of other children. Only by performing an exhausting series of secret routines could she make up for what she’d done. But no matter how intricate or repetitive, no act of penance was ever enough.Beautifully written and astonishingly intimate, Because We Are Bad recounts a childhood consumed by obsessive compulsive disorder. As a child, Bailey created a second personality inside herself—"I" became "we"—to help manifest compulsions that drove every minute of every day of her young life. Now she writes about the forces beneath her skin, and how they ordered, organized, and urged her forward. Lily charts her journey, from checking on her younger sister dozens of times a night, to "normalizing" herself at school among new friends as she grew older, and finally to her young adult years, learning—indeed, breaking through—to make a way for herself in a big, wide world that refuses to stay in check.Charming and raw, harrowing and redemptive, Because We Are Bad is an illuminating and uplifting look into the mind and soul of an extraordinary young woman, and a startling portrait of OCD that allows us to see and understand this condition as never before.

Poster Child: A Memoir


Emily Rapp - 2006
    By the time she was eight she'd had dozens of operations and her entire leg below the knee had been amputated. She had also become the smiling, always perky, indefatigable poster child for the March of Dimes, and spent much of her childhood traveling around the Midwest making appearances and giving pep talks. All the while she was learning to live with what she called my grievous, irrevocable flaw, and the paradox that being extraordinary was the only way to be ordinary.Poster Child is Rapp's unflinching, brutally honest and often darkly humorous account of wrestling with the tyranny of self-image as a teenager and then ultimately coming to terms with her own body as a young woman. It's about what it's like to live inside a broken body in a society that values beauty above almost everything else.