My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome


Amy Silverman - 2016
    And that is the case with My Heart Can't Even Believe It, by journalist, blogger, and NPR contributor Amy Silverman. Amy bravely looks at her life, before and after her daughter Sophie was born, and reflects on her transformation from "a spoiled, self-centered brat," who used words like retard and switched lines at the Safeway to avoid a bagger with special needs, into the mother of a kid with Down syndrome and all that her new identity entails. She describes her evolution as gradual, one built by processing her fears and facing questions both big and small about Sophie, Down syndrome, and her place in the world. Funny, touching, and honest, this wonderful book looks at a daughter and her power to change minds and fill hearts with love so deep.

The Spark: A Mother's Story of Nurturing Genius


Kristine Barnett - 2013
    At nine he started working on an original theory in astrophysics that experts believe may someday put him in line for a Nobel Prize, and at age twelve he became a paid researcher in quantum physics. But the story of Kristine’s journey with Jake is all the more remarkable because his extraordinary mind was almost lost to autism. At age two, when Jake was diagnosed, Kristine was told he might never be able to tie his own shoes. The Spark is a remarkable memoir of mother and son. Surrounded by “experts” at home and in special ed who tried to focus on Jake’s most basic skills and curtail his distracting interests—moving shadows on the wall, stars, plaid patterns on sofa fabric—Jake made no progress, withdrew more and more into his own world, and eventually stopped talking completely. Kristine knew in her heart that she had to make a change. Against the advice of her husband, Michael, and the developmental specialists, Kristine followed her instincts, pulled Jake out of special ed, and began preparing him for mainstream kindergarten on her own. Relying on the insights she developed at the daycare center she runs out of the garage in her home, Kristine resolved to follow Jacob’s “spark”—his passionate interests. Why concentrate on what he couldn’t do? Why not focus on what he could? This basic philosophy, along with her belief in the power of ordinary childhood experiences (softball, picnics, s’mores around the campfire) and the importance of play, helped Kristine overcome huge odds. The Barnetts were not wealthy people, and in addition to financial hardship, Kristine herself faced serious health issues. But through hard work and determination on behalf of Jake and his two younger brothers, as well as an undying faith in their community, friends, and family, Kristine and Michael prevailed. The results were beyond anything anyone could have imagined. Dramatic, inspiring, and transformative, The Spark is about the power of love and courage in the face of overwhelming obstacles, and the dazzling possibilities that can occur when we learn how to tap the true potential that lies within every child, and in all of us.

Pretending to Be Normal: Living with Asperger's Syndrome


Liane Holliday Willey - 1999
    Chronicling her life from her earliest memories through her life as a university lecturer, writer, wife and mother, Liane Holliday Willey shares, with insight and warmth, the daily struggles and challenges that face many of those who have Asperger's Syndrome. Pretending to be Normal invites its readers to welcome the Asperger community with open acceptance, for it makes it clear that, more often than not, they are capable, viable, interesting and kind people who simply find unique ways to exhibit those qualities.The last part of the book consists of a series of substantial appendices which provide helpful coping strategies and guidance, based on the author's own experience, for a range of situations. This positive and humane book will provide not only insight into the Asperger world which will prove invaluable for the professionals who work with people with Asperger's Syndrome, but also hope and encouragement for other people with Asperger's Syndrome, their families, and their friends.

Born on a Blue Day: Inside the Extraordinary Mind of an Autistic Savant


Daniel Tammet - 2006
    Tammet's ability to think abstractly, deviate from routine, and empathize, interact and communicate with others is impaired, yet he's capable of incredible feats of memorization and mental calculation. Besides being able to effortlessly multiply and divide huge sums in his head with the speed and accuracy of a computer, Tammet, the subject of the 2005 documentary Brainman, learned Icelandic in a single week and recited the number pi up to the 22,514th digit, breaking the European record. He also experiences synesthesia, an unusual neurological syndrome that enables him to experience numbers and words as "shapes, colors, textures and motions." Tammet traces his life from a frustrating, withdrawn childhood and adolescence to his adult achievements, which include teaching in Lithuania, achieving financial independence with an educational Web site and sustaining a long-term romantic relationship. As one of only about 50 people living today with synesthesia and autism, Tammet's condition is intriguing to researchers; his ability to express himself clearly and with a surprisingly engaging tone (given his symptoms) makes for an account that will intrigue others as well.

Damaged: The Heartbreaking True Story of a Forgotten Child


Cathy Glass - 2007
    Her last hope is Cathy Glass. At the Social Services office, Cathy (an experienced foster carer) is pressured into taking Jodie as a new placement. Jodie's challenging behaviour has seen off five carers in four months. Despite her reservations, Cathy decides to accept Jodie to protect her from being placed in an institution. Jodie arrives, and her first act is to soil herself, and then wipe it on her face, grinning wickedly. Jodie meets Cathy's teenage children, and greets them with a sharp kick to the shins. That night, Cathy finds Jodie covered in blood, having cut her own wrist, and smeared the blood over her face. As Jodie begins to trust Cathy her behaviour improves. Over time, with childish honesty, she reveals details of her abuse at the hands of her parents and others. It becomes clear that Jodie's parents were involved in a sickening paedophile ring, with neighbours and Social Services not seeing what should have been obvious signs. Unfortunately Jodie becomes increasingly withdrawn, and it's clear she needs psychiatric therapy. Cathy urges the Social Services to provide funding, but instead they decide to take Jodie away from her, and place her in a residential unit. Although the paedophile ring is investigated and brought to justice, Jodie's future is still up in the air. Cathy promises that she will stand by her no matter what -- her love for the abandoned Jodie is unbreakable.

The Bad Room: Held Captive and Abused by My Evil Carer. A True Story of Survival.


Jade Kelly - 2020
    She was wrong … this is her staggering true story.‘This must be what prison is like,’ I thought as another hour crawled by. In fact, prison would be better … at least you knew your sentence. You could tick off the days until you got out. In the Bad Room we had no idea how long we’d serve.After years of constant abuse, Jade thought her foster mother Carol Docherty would be the answer to her prayers. Loving and nurturing, she offered ten-year-old Jade a life free of fear.But once the regular social-worker checks stopped, Carol turned and over the next six years Jade and three other girls were kept prisoner in a bedroom they called the ‘bad room’.Shut away for 16 hours at a time, they were starved, violently beaten, forbidden from speaking or using the toilet and routinely humiliated. Jade was left feeling broken and suicidal.This is the powerful true story of how one woman banished the ghosts of her past by taking dramatic action to protect the life of every vulnerable child in care.

Front of the Class: How Tourette Syndrome Made Me the Teacher I Never Had


Brad Cohen - 2005
    This story of unwavering determination proves anyone can make their dreams come true. Ends with 20+ motivational tips on living with a disability.

Now I See the Moon: A Mother, a Son, a Miracle


Elaine Hall - 2010
    In the process, she founded The Miracle Project, a groundbreaking organization that uses the performing arts to connect with children with autism. Both controversial and unorthodox, Hall's innovative approach has been praised by leaders in the field of autism, including Temple Grandin, Barry Prizant, and Dr. Stanley Greenspan. She was also the subject of the Emmy Award-winning documentary Autism: The Musical. Hall now speaks around the country sharing her wisdom. Now I See the Moon is a story of hope, faith, and miracles; it is a story only a mother could tell.

Nerdy, Shy, and Socially Inappropriate: A User Guide to an Asperger Life


Cynthia Kim - 2014
    Her own life presents many rich examples. From being labelled nerdy and shy as an undiagnosed child to redefining herself when diagnosed with Asperger Syndrome as an adult, she describes how her perspective shifted to understanding a previously confusing world and combines this with the results of extensive research to explore the 'why' of ASD traits. She explains how they impact on everything from self-care to holding down a job and offers typically practical and creative strategies to help manage them, including a section on the vestibular, sensory and social benefits of martial arts for people with autism.Well known in the autism community and beyond for her popular blog, Musings of an Aspie, Cynthia Kim's book is rich with personal anecdotes and useful advice. This intelligent insider guide will help adults with ASDs and their partners, family members, friends, and colleagues, but it also provides a fresh and witty window onto a different worldview.

The Boy In 7 Billion: A True Story of Love, Courage and Hope


Callie Blackwell - 2017
     A powerful true story revealing a remarkable relationship between a dying son - and a mother that refuses to let him go. At the age of 10, Deryn was diagnosed with Leukaemia. Then 18 months later he developed another rare form of cancer called Langerhan’s cell sarcoma. Only five other people in the world have it. He is the youngest of them all and the only person in the world known to be fighting it alongside another cancer, making him one in seven billion. Told there was no hope of survival, after four years of intensive treatment, exhausted by his fight and with just days left to live, Deryn planned his own funeral. But, Deryn’s desperate mother, Callie would not let him give in. Battling medical errors, impossible odds and years of hardship as the cancer consumed his body and their world, they looked for more answers. After making some startling discoveries and taking massive chances - something began to change… Would their lives as a family ever be the same again?

Still Waters


Jennifer Lauck - 2002
    She survived the stunning traumas of a lost childhood, but survival may not be a way of life. Now the secrets, lies and loneliness that once imprisoned her are brought into sharp focus, where an adult Jenny can make her peace at last. But one more mystery demands her attention: the quiet troubled soul of Bryan, who, lacking the inner strength of the survivor, chooses a sad and sorrowful destiny. And Jenny must dig deep to find the one bond that held them through the years, and the one reason any of us have for enduring: love.

Activity Schedules for Children with Autism: Teaching Independent Behavior


Lynn E. McClannahan - 1998
    Once they are mastered, these skills allow reduced adult supervision.

Supporting Positive Behavior in Children and Teens with Down Syndrome: The Respond But Don't React Method


David Stein - 2016
    Another bolts across a busy parking lot, turns and smiles at his mom. An eighteen-year-old student bursts into tears when asked to change activities at school. Sound familiar? These and other common behavior issues in children with Down syndrome can quickly become engrained and may even persist into adulthood. No parent wants that to happen, and thankfully, help is available! Dr. David Stein, a psychologist and Co-Director of the Down Syndrome Program at Boston Children's Hospital, shares his approach to behavior management in this new book for parents. Supporting Positive Behavior in Children and Teens with Down Syndrome examines how the brain of a person with Down syndrome works, how those differences impact behavior, and why bad behavior should not be viewed as a willful act. Governed by this new awareness, parents are in a better position to change and manage their child's behavior using these guiding principles: [[Be proactive, not reactive [[Be consistent [[Use visual schedules & Social Stories to direct behavior [[Develop a token reward chart [[Keep gut reactions in check [[Teach siblings to ignore bad behavior [[Learn effective disciplinary techniques [[Know when professional help is needed Some of these parenting concepts are intuitive, others are not, but when they are followed consistently, children and teens with Down syndrome do their best behaviorally and the parent-child relationship remains as positive and loving as it should be.

The Mislabeled Child: How Understanding Your Child's Unique Learning Style Can Open the Door to Success


Brock L. Eide - 2006
    In The Mislabeled Child, the authors describe how a proper understanding of a childs unique brain-based strengths can be used to overcome many different obstacles to learning. They show how children are often mislabeled with diagnoses that are too broad (ADHD, for instance) or are simply inaccurate. They also explain why medications are often not the best ways to help children who are struggling to learn. The authors guide readers through the morass of commonly used labels and treatments, offering specific suggestions that can be used to help children at school and at home. This book offers extremely empowering information for parents and professionals alike. The Mislabeled Child examines a full spectrum of learning disorders, from dyslexia to giftedness, clarifying the diagnoses and providing resources to help. The Eides explain how a learning disability encompasses more than a behavioral problem; it is also a brain dysfunction that should be treated differently.

Intelligence for Your Life: Powerful Lessons for Personal Growth


John Tesh - 2008
    As one major city newspaper referred to him, "He's like Oprah, but without the edge." With his staff of 10 full-time researchers, Tesh has uncovered a wealth of practical information and life-changing choices. He now combines that knowledge with some incredible personal experiences for this first book in what promises to be a successful ongoing series. In addition to a wide range of helpful tips, this book reveals what has guided him spiritually and professionally to act out his passions.Street date coincides with PBS Special in March, 2008.