Devoted: The Story of a Father's Love for His Son


Dick Hoyt - 2010
    Born a spastic quadraplegic, Rick Hoyt was written off by numerous doctors. They advised his parents, Dick and Judy, to put their firstborn son in an institution. But Rick’s parents refused. Determined to give their son every opportunity that “normal” kids had, they made sure to include Rick in everything they did, especially with their other two sons, Rob and Russ. But home was one thing, the world at large, another. Repeatedly rebuffed by school administrators who resisted their attempts to enroll Rick in school, Rick’s mother worked tirelessly to help pass a landmark bill, Chapter 766, the first special-education reform law in the country. As a result, Rick and other physically disabled kids were able to attend public school in Massachusetts. But how would Rick communicate when he couldn’t talk? To overcome this daunting obstacle, Dick and Judy worked with Dr. William Crochetiere, then chairman of the engineering department at Tufts University, and several enterprising graduate students, including Rick Foulds, to create the Tufts Interactive Communication device (TCI). In the Hoyt household, it became known as the “Hope machine,” as it enabled Rick to create sentences by pressing his head against a metal bar. For the first time ever, Rick was able to communicate. Then one day Rick asked his dad to enter a charity race, but there was a twist. Rick wanted to run too. Dick had never run a race before, but more challenging still, he would have to push his son’s wheelchair at the same time. But once again, the Hoyts were determined to overcome whatever obstacle was put in their way. Now, over one thousand races later, including numerous marathons and triathlons, Dick Hoyt continues to push Rick’s wheelchair. Affectionately known worldwide as Team Hoyt, they are as devoted as ever, continuing to inspire millions and embodying their trademark motto of “Yes, you can.”

Schuyler's Monster: A Father's Journey with His Wordless Daughter


Robert Rummel-Hudson - 2008
    Once they knew why she couldn’t speak, they needed to determine how to help her learn. They didn’t know that Schuyler was going to teach them a thing or two about fearlessness, tenacity, and joy.Schuyler’s Monster is more than the memoir of a parent dealing with a child’s disability. It is the story of the relationship between a unique and ethereal little girl floating through the world without words, and her earthbound father who struggles with whether or not he is the right dad for the job. It is the story of a family seeking answers to a child’s dilemma, but it is also a chronicle of their unique relationships, formed without traditional language against the expectations of a doubting world. It is a story that has equal measure of laughter and tears. Ultimately, it is the tale of a little girl who silently teaches a man filled with self-doubt how to be the father she needs. Schuyler can now communicate through assistive technology, and continues to be the source of her father's inspiration, literary and otherwise.

My Stroke of Insight: A Brain Scientist's Personal Journey


Jill Bolte Taylor - 2006
    Through the eyes of a curious scientist, she watched her mind deteriorate whereby she could not walk, talk, read, write, or recall any of her life. Because of her understanding of the brain, her respect for the cells in her body, and an amazing mother, Jill completely recovered. In My Stroke of Insight, she shares her recommendations for recovery and the insight she gained into the unique functions of the two halves of her brain. When she lost the skills of her left brain, her consciousness shifted away from normal reality where she felt "at one with the universe." Taylor helps others not only rebuild their brains from trauma, but helps those of us with normal brains better understand how we can consciously influence the neural circuitry underlying what we think, how we feel and how we react to life's circumstances.

Over My Head: A Doctor's Own Story of Head Injury from the Inside Looking Out


Claudia L. Osborn - 1997
    Over My Head is an inspiring story of how one woman comes to terms with the loss of her identity and the courageous steps (and hilarious missteps) she takes while learning to rebuild her life. The author, a 45-year-old doctor and clinical professor of medicine, describes the aftermath of a brain injury eleven years ago which stripped her of her beloved profession. For years she was deprived of her intellectual companionship and the ability to handle the simplest undertakings like shopping for groceries or sorting the mail. Her progression from confusion, dysfunction, and alienation to a full, happy life is told with restraint, great style, and considerable humor.

I'll Carry the Fork!: Recovering a Life After Brain Injury


Kara L. Swanson - 1999
    Kara Swanson's journey is one to learn from, to cheer and, even, to laugh with along the way. Her honesty and willingness to share her struggles and triumphs have been changing the lives of survivors and their loved ones for more than 20 years. This book has been named a suggested and must-read resource for survivors and professionals in every rehab and neurological field, and even in college TBI-related studies. It has been translated into Japanese and Kara has made her book available on Kindle and in an audio format. Her accompanying speeches and award-winning blog have circled the globe. This book enlightens with vital information from TBI professionals in medical, rehab and legal arenas. Kara's book is a wonderful inspiration and, with each edition, she has continued to mold it to help those in the TBI community. This new edition is brighter and cleaner. Kara has inserted more blank pages for notes and she has reduced the price so that more survivors can obtain all of the wonderful input from professionals throughout the book. The audio version of this book was completed by the author in order to offer a pace and cadence for those survivors struggling with audio processing speed and/or challenged by the written word.

Beautiful Child


Torey L. Hayden - 2002
    Yet an accidental playground “bump” would release a rage frightening to behold. The school year that followed would be one of the most trying, perplexing, and ultimately rewarding of Torey Hayden’s career, as she struggled to reach a silent child in obvious pain. It would be a strenuous journey beset by seemingly insurmountable obstacles and darkened by truly terrible revelations—yet encouraged by sometimes small, sometimes dazzling breakthroughs—as a dedicated teacher remained committed to helping a “hopeless” girl, and patiently and lovingly leading her toward the light of a new day.

Carly's Voice: Breaking Through Autism


Arthur Fleischmann - 2012
    Doctors predicted that she would never intellectually develop beyond the abilities of a small child. Although she made some progress after years of intensive behavioral and communication therapy, Carly remained largely unreachable. Then, at the age of ten, she had a breakthrough. While working with her devoted therapists Howie and Barb, Carly reached over to their laptop and typed in "HELP TEETH HURT," much to everyone's astonishment. This was the beginning of Carly's journey toward self-realization. Although Carly still struggles with all the symptoms of autism, which she describes with uncanny accuracy and detail, she now has regular, witty, and profound conversations on the computer with her family, her therapists, and the many thousands of people who follow her via her blog, Facebook, and Twitter. In Carly's Voice, her father, Arthur Fleischmann, blends Carly's own words with his story of getting to know his remarkable daughter. One of the first books to explore firsthand the challenges of living with autism, it brings readers inside a once-secret world and in the company of an inspiring young woman who has found her voice and her mission.

Laughing at My Nightmare


Shane Burcaw - 2014
    From awkward handshakes to having a girlfriend and everything in between, Shane handles his situation with humor and a "you-only-live-once" perspective on life. While he does talk about everyday issues that are relatable to teens, he also offers an eye-opening perspective on what it is like to have a life threatening disease.

Expecting Adam: A True Story of Birth, Rebirth, and Everyday Magic


Martha N. Beck - 1999
    This "rueful, riveting, piercingly funny" (Julia Cameron) book is written by a Harvard graduate--but it tells a story in which hearts trump brains every time. It's a tale about mothering a Down syndrome child that opts for sass over sap, and it's a book of heavenly visions and inexplicable phenomena that's as down-to-earth as anyone could ask for. This small masterpiece is Martha Beck's own story--of leaving behind the life of a stressed-out superachiever, opening herself to things she'd never dared consider, meeting her son for (maybe) the first time...and "unlearn[ing] virtually everything Harvard taught [her] about what is precious and what is garbage.""Beck [is] very funny, particularly about the most serious possible subjects--childbirth, angels and surviving at Harvard." --New York Times Book Review"Immensely appealing...hooked me on the first page and propelled me right through visions and out-of-body experiences I would normally scoff at." --Detroit Free Press"I challenge any reader not to be moved by it." --Newsday"Brilliant." --Minneapolis Star-Tribune

Sitting Pretty: The View from My Ordinary Resilient Disabled Body


Rebekah Taussig - 2020
    None of this felt right; and as she got older, she longed for more stories that allowed disability to be complex and ordinary, uncomfortable and fine, painful and fulfilling.Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life.Disability affects all of us, directly or indirectly, at one point or another. By exploring this truth in poignant and lyrical essays, Taussig illustrates the need for more stories and more voices to understand the diversity of humanity. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write an entirely different story.

Where Is the Mango Princess?: A Journey Back from Brain Injury


Cathy Crimmins - 2000
    No longer the man who loved obscure Japanese cinema and wry humor, Crimmins' husband has emerged from the accident a childlike and unpredictable replica of his former self with a short attention span and a penchant for inane cartoons. Where Is the Mango Princess? is a breathtaking account that explores the very nature of personality-and the complexities of the heart.

Hurry Down Sunshine


Michael Greenberg - 2008
    It begins with Sally’s visionary crack-up on the streets of Greenwich Village, and continues, among other places, in the out-of-time world of a Manhattan psychiatric ward during the city’s most sweltering months. “I feel like I’m traveling and traveling with nowhere to go back to,” Sally says in a burst of lucidity while hurtling away toward some place her father could not dream of or imagine. Hurry Down Sunshine is the chronicle of that journey, and its effect on Sally and those closest to her–her brother and grandmother, her mother and stepmother, and, not least of all, the author himself. Among Greenberg’s unforgettable gallery of characters are an unconventional psychiatrist, an Orthodox Jewish patient, a manic Classics professor, a movie producer, and a landlord with literary dreams. Unsentimental, nuanced, and deeply humane, Hurry Down Sunshine holds the reader in a mesmerizing state of suspension between the mundane and the transcendent.

The Sound of a Wild Snail Eating


Elisabeth Tova Bailey - 2010
    While an illness keeps her bedridden, Bailey watches a wild snail that has taken up residence on her nightstand. As a result, she discovers the solace and sense of wonder that this mysterious creature brings and comes to a greater understanding of her own confined place in the world. Intrigued by the snail’s molluscan anatomy, cryptic defenses, clear decision making, hydraulic locomotion, and mysterious courtship activities, Bailey becomes an astute and amused observer, providing a candid and engaging look into the curious life of this underappreciated small animal.  Told with wit and grace, The Sound of a Wild Snail Eating is a remarkable journey of survival and resilience, showing us how a small part of the natural world illuminates our own human existence and provides an appreciation of what it means to be fully alive.

Front of the Class: How Tourette Syndrome Made Me the Teacher I Never Had


Brad Cohen - 2005
    This story of unwavering determination proves anyone can make their dreams come true. Ends with 20+ motivational tips on living with a disability.

Breathing for a Living: A Memoir


Laura Rothenberg - 2003
    Twenty-one-year-old Laura Rothenberg has always tried to live a normal life--even with lungs that betray her, and a sober awareness that she may not live to see her next birthday. Like most people born with cystic fibrosis, the chronic disease that affects lungs and other organs, Rothenberg struggles to come to grips with a life that has already been compromised in many ways. Sometimes healthy and able to go to school, other times hospitalized for months on end, Rothenberg finds solace in keeping a diary. In her writing, she can be open, honest, and irreverent, like the young person she is. Yet mixed in with this voice is an incredible maturity about her mortality. The memoir opens with Rothenberg's decision to accept a lung transplant. From the waiting--and all it implies to the surgery, recovery, and her new life, Rothenberg muses on mortality in journal entries and poetry. Through it all, she reveals a will and temperament that is strong and wise despite her years. Laura Rothenberg's story, recorded and shared on NPR's Radio Diaries, was awarded the prestigious Third Coast Audio Festival Award, it also received an unprecedented listener response and generated more e-mail than any other story the producers could recall. Rothenberg's story was also featured in the New York Times and U.S. News & World Report.