Book picks similar to
Shouting Won't Help: Why I--and 50 Million Other Americans--Can't Hear You by Katherine Bouton
non-fiction
nonfiction
memoir
disability
As Nature Made Him: The Boy Who Was Raised as a Girl
John Colapinto - 2000
The case would become one of the most famous in modern medicine—and a total failure. As Nature Made Him tells the extraordinary story of David Reimer, who, when finally informed of his medical history, made the decision to live as a male. A macabre tale of medical arrogance, it is first and foremost a human drama of one man's—and one family's—amazing survival in the face of terrible odds.
Mean Little Deaf Queer: A Memoir
Terry Galloway - 2009
No one yet knew that an experimental antibiotic given to her mother had wreaked havoc on her fetal nervous system, eventually causing her to go deaf. As a self-proclaimed "child freak," she acted out her fury with her boxy hearing aids and Coke-bottle glasses by faking her own drowning at a camp for crippled children. Ever since that first real-life performance, Galloway has used theater, whether onstage or off, to defy and transcend her reality. With disarming candor, she writes about her mental breakdowns, her queer identity, and living in a silent, quirky world populated by unforgettable characters. What could have been a bitter litany of complaint is instead an unexpectedly hilarious and affecting take on life.From the Trade Paperback edition.
I Am, I Am, I Am: Seventeen Brushes with Death
Maggie O'Farrell - 2017
The childhood illness that left her bedridden for a year, which she was not expected to survive. A teenage yearning to escape that nearly ended in disaster. An encounter with a disturbed man on a remote path. And, most terrifying of all, an ongoing, daily struggle to protect her daughter--for whom this book was written--from a condition that leaves her unimaginably vulnerable to life's myriad dangers.Seventeen discrete encounters with Maggie at different ages, in different locations, reveal a whole life in a series of tense, visceral snapshots. In taut prose that vibrates with electricity and restrained emotion, O'Farrell captures the perils running just beneath the surface, and illuminates the preciousness, beauty, and mysteries of life itself.
When Life Gives You Pears: The Healing Power of Family, Faith, and Funny People
Jeannie Gaffigan - 2019
As the mother of 5 kids -- 6 if you include her husband -- sat in the neurosurgery department in star-covered sweats too whimsical for the seriousness of the situation, all she could think was "Am I going to die?"Thankfully, Jeannie and her family were able to survive their time of crisis, and now she is sharing her deeply personal journey through this miraculous story: the challenging conversations she had with her children; how she came to terms with feeling powerless and ferociously crabby while bedridden and unable to eat for a month; and how she ultimately learned, re-learned and re re-learned to be more present in life.With sincerity and hilarity, Jeannie invites you into her heart (and brain) during this trying time, emphasizing the importance of family, faith and humor as keys to her recovery and leading a more fulfilling life.
That Good Night: Life and Medicine in the Eleventh Hour
Sunita Puri - 2019
Sunita Puri knew from a young age that the gulf between her parents' experiences and her own was impossible to bridge, save for two elements: medicine and spirituality. Between days spent waiting for her mother, an anesthesiologist, to exit the OR, and evenings spent in conversation with her parents about their faith, Puri witnessed the tension between medicine's impulse to preserve life at all costs and a spiritual embrace of life's temporality. And it was that tension that eventually drew Puri, a passionate but unsatisfied medical student, to palliative medicine--a new specialty attempting to translate the border between medical intervention and quality-of-life care.Interweaving evocative stories of Puri's family and the patients she cares for, That Good Night is a stunning meditation on impermanence and the role of medicine in helping us to live and die well, arming readers with information that will transform how we communicate with our doctors about what matters most to us.
Detour from Normal
Ken Dickson - 2013
What happens next is downright frightening.Surgery saves Ken’s life but improper care sends him spiraling into madness. Unable to fend for himself, his wife Beth takes charge. She does her best to save him but the unyielding stigma of mental illness hampers his recovery at every turn until he is beyond hope.Desperate to get Ken the help that he needs, Beth makes a heartbreaking decision: she brands the man she loves a “danger to himself and others” and commits him to psychiatric treatment. A police SUV then delivers him to a high-security facility where the real nightmare begins. Plagued by the pitfalls of contemporary psych wards, Ken struggles through living hell. Nevertheless, as the days stretch to weeks, he finds solace by befriending the lost and forgotten and helping patients with worse problems than his.Featured in Amazon Prime Reading and spotlighted as Great on Kindle, Detour from Normal will touch your heart in ways that you never imagined and make you question your faith in our medical and mental health systems.What readers are saying:“A massive amount of emotion rolled into a page-turner.”“An enlightening and dare I say frightening glimpse into the world of mental health care.”“This is a story you will want to share with the people you know and love.”“Scary, life-changing and inspiring!”“Powerful and gripping.”“A psychological thriller, medical mystery, and compelling drama—made all the more vivid because it actually happened.”
Circles Around The Sun: In Search Of A Lost Brother
Molly McCloskey - 2011
By the time Molly was old enough to begin to know him, he was frequently delusional, heavily medicated, living in hospitals or care homes or on the road. This title tells her story.
Odd Girl Out: An Autistic Woman in a Neurotypical World
Laura James - 2017
A successful journalist and mother to four children, she had spent her whole life feeling as if she were running a different operating system to those around her. This book charts a year in her life and offers a unique insight into the autistic mind and the journey from diagnosis to acceptance. Drawing on personal experience, research and conversations with experts, she learns how 'different' doesn't need to mean 'less' and how it's never too late for any of us to find our place in the world. Laura explores how and why female autism is so under-diagnosed and very different to that seen in men and boys and explores difficulties and benefits neurodiversity can bring.
Twelve Patients: Life and Death at Bellevue Hospital
Eric Manheimer - 2012
Dr. Manheimer describes the plights of twelve very different patients--from dignitaries at the nearby UN, to supermax prisoners at Riker's Island, to illegal immigrants, and Wall Street tycoons.Manheimer was not only the medical director of the country's oldest public hospital for over 13 years, but he was also a patient. As the book unfolds, the narrator is diagnosed with cancer, and he is forced to wrestle with the end of his own life even as he struggles to save the lives of others.
The Beauty of Dusk: On Vision Lost and Found
Frank Bruni - 2022
He wondered at first if some goo or gunk had worked its way into his right eye. But this was no fleeting annoyance, no fixable inconvenience. Overnight, a rare stroke had cut off blood to one of his optic nerves, rendering him functionally blind in that eye—forever. And he soon learned from doctors that the same disorder could ravage his left eye, too. He could lose his sight altogether. In The Beauty of Dusk, Bruni hauntingly recounts his adjustment to this daunting reality, a medical and spiritual odyssey that involved not only reappraising his own priorities but also reaching out to, and gathering wisdom from, longtime friends and new acquaintances who had navigated their own traumas and afflictions. The result is a poignant, probing, and ultimately uplifting examination of the limits that all of us inevitably encounter, the lenses through which we choose to evaluate them and the tools we have for perseverance. Bruni’s world blurred in one sense, as he experienced his first real inklings that the day isn’t forever and that light inexorably fades, but sharpened in another. Confronting unexpected hardship, he felt more blessed than ever before. There was vision lost. There was also vision found.
Dwarf: A Memoir of How One Woman Fought for a Body-and a Life-She Was Never Supposed to Have
Tiffanie DiDonato - 2012
But I hope that you'll take away much more--about adapting to the world when it won't adapt to you."--from Dwarf A memoir of grit and transformation for anyone who has been told something was impossible and then went on to do it anyway.Tiffanie DiDonato was born with dwarfism. Her limbs were so short that she was not able to reach her own ears. She was also born with a serious case of optimism. She decided to undergo a series of painful bone-lengthening surgeries that gave her an unprecedented 14 inches of height--and the independence she never thought she'd have.After her surgeries, Tiffanie was able to learn to drive, to live in the dorms during college, and to lead a normal life. She even made time to volunteer, writing to troops stationed abroad, and one of those Marine pen pals ultimately became her husband.Dwarf is a moving and, at times, funny testament to the power of sheer determination, and has been compared to Andrew Solomon's Far From the Tree.Watch her Good Morning America segment: https: //abcnews.go.com/Nightline/dwarf-womans...
Counting Backwards: A Doctor's Notes on Anesthesia
Henry Jay Przybylo - 2017
In Counting Backwards, pediatric anesthesiologist Dr. Henry Jay Przybylo delivers an unforgettable account of the procedure’s daily dramas and fundamental mysteries. Przybylo has administered anesthesia more than 30,000 times over his thirty-year career: on newborn babies, screaming toddlers, sullen teenagers, even a gorilla. Filled with intense moments of near-disaster, life-saving successes, and simple grace, Counting Backwards is for anyone curious about what happens after we lose consciousness.
Breathing for a Living: A Memoir
Laura Rothenberg - 2003
Twenty-one-year-old Laura Rothenberg has always tried to live a normal life--even with lungs that betray her, and a sober awareness that she may not live to see her next birthday. Like most people born with cystic fibrosis, the chronic disease that affects lungs and other organs, Rothenberg struggles to come to grips with a life that has already been compromised in many ways. Sometimes healthy and able to go to school, other times hospitalized for months on end, Rothenberg finds solace in keeping a diary. In her writing, she can be open, honest, and irreverent, like the young person she is. Yet mixed in with this voice is an incredible maturity about her mortality. The memoir opens with Rothenberg's decision to accept a lung transplant. From the waiting--and all it implies to the surgery, recovery, and her new life, Rothenberg muses on mortality in journal entries and poetry. Through it all, she reveals a will and temperament that is strong and wise despite her years. Laura Rothenberg's story, recorded and shared on NPR's Radio Diaries, was awarded the prestigious Third Coast Audio Festival Award, it also received an unprecedented listener response and generated more e-mail than any other story the producers could recall. Rothenberg's story was also featured in the New York Times and U.S. News & World Report.
On Being German: A Personal Journey Into the German Experience
Doris Pena-Cruz - 2021
In my younger years I avoided that subject, be it in literature or in entertainment, whenever I possibly could. That was not easy. Television was full of programs in which Germans looked stupid and heinous. My own children watched these things with glee; I fled into another room. Since I have always read a lot, I was at least aware of the avalanche of books that were published about the Holocaust. Still, I kept my blinkers on. I firmly told myself that it was not my business, since I was just a child during that time. Sooner or later such an attitude will have to come to an end. It did for me after I fled a difficult marriage and finally began to examine my life. This was a slow process, aided by a patient psychiatrist. Now, years later, I want to write about my life and about the conflicted feelings such a search will cause in a woman of German nationality.
The Truth Will Set You Free, But First It Will Piss You Off!: Thoughts on Life, Love, and Rebellion
Gloria Steinem - 2019
From her early days as a journalist and feminist activist, Steinem's words have helped generations to empower themselves and work together.Covering topics from relationships ("Many are looking for the right person. Too few are trying to be the right person.") to the patriarchy ("Men are liked better when they win. Women are liked better when they lose. This is how the patriarchy is enforced every day.") and activism ("Revolutions, like trees, grow from the bottom up."), this is the definitive collection of Steinem's words on what matters most. Steinem sees quotes as "the poetry of everyday life," so she also has included a few favorites from friends, including bell hooks, Flo Kennedy, and Michelle Obama, in this book that will make you want to laugh, march, and create some quotes of your own. In fact, at the end of the book, there's a special space for readers to add their own quotes and others they've found inspiring. The Truth Will Set You Free, But First It Will Piss You Off! is both timeless and timely. It is a gift of hope from Steinem to readers, and a book to share with friends.