Patient by Patient: Lessons in Love, Loss, Hope, and Healing from a Doctor's Practice


Emily R. Transue - 2008
    Transue began chronicling her experiences in her memoir of residency, On Call, and she continues her education here but the source of her knowledge about love, loss, hope and healing are not medical texts or professors but the patients she treats and gets to know – those she helps to wellness and those she must let go.

The Beauty in Breaking


Michele Harper - 2020
    Brought up in Washington, DC, in an abusive family, she went to Harvard, where she met her husband. They stayed together through medical school until two months before she was scheduled to join the staff of a hospital in central Philadelphia, when he told her he couldn't move with her. Her marriage at an end, Harper began her new life in a new city, in a new job, as a newly single woman.In the ensuing years, as Harper learned to become an effective ER physician, bringing insight and empathy to every patient encounter, she came to understand that each of us is broken—physically, emotionally, psychically. How we recognize those breaks, how we try to mend them, and where we go from there are all crucial parts of the healing process.The Beauty in Breaking is the poignant true story of Harper's journey toward self-healing. Each of the patients Harper writes about taught her something important about recuperation and recovery. How to let go of fear even when the future is murky. How to tell the truth when it's simpler to overlook it. How to understand that compassion isn't the same as justice. As she shines a light on the systemic disenfranchisement of the patients she treats as they struggle to maintain their health and dignity, Harper comes to understand the importance of allowing ourselves to make peace with the past as we draw support from the present. In this hopeful, moving, and beautiful book, she passes along the precious, necessary lessons that she has learned as a daughter, a woman, and a physician.

In the Little World: A True Story of Dwarfs, Love, and Trouble


John H. Richardson - 2001
    Kopits takes me into an examining room and leans against the stainless steel bench and asks me what I'm writing about this time. When I tell him what I saw in Australia, he immediately starts to nod. "This is a great subject," he says. Then he stops, as if caught by the subject himself.I wait.After a moment, he continues. "What you are looking into is the abyss. This takes you to the very heart of a human being, to the deepest aspect of the soul.He gives me one of his solemn looks. "Because the thing is, you have to confront yourself."(from In the Little World) In 1997, almost by accident, John H. Richardson found himself sharing a hotel with more than a thousand dwarfs. Over the course of a single week, he witnessed love and anger, fear and bravery, arrogance and humility, even a bizarre romantic deception -- the entire spectrum of human emotion in one concentrated dose. But at the end of the week, he discovered that leaving the "Little World" wasn't as simple as checking out of a hotel. In fact, his journey would last a full two years.At a time when bigger often seems synonymous with better, and physical beauty serves as currency, the world of dwarfs usually passes beneath our notice. Now, in this groundbreaking work, awardwinning author John H. Richardson brings the Little World into focus.He introduces us to characters like a saintly but obsessed doctor and a mother who sacrifices her family to save her dwarf daughter. He follows two dwarf lovers from first meeting through the struggle to overcome their fear and shame and find the confidence to love each other. He becomes personally involved in a tangled and often confrontational friendship with a female dwarf. Through these stories and musings ranging from classic theories of beauty to the history of the disability movement to postmodern theories of difference, Richardson presents a world that is a skewed reflection of our own -- and offers us a glimpse into the essential human condition.

Patient: The True Story of a Rare Illness


Ben Watt - 1996
    He didn’t leave for two and a half months. Watt had developed a rare life-threatening disease that initially baffled doctors. By the time he was allowed home, his ravaged body was forty-six pounds lighter and he was missing most of his small intestine. Watt injects pathos and humor into his medical nightmare, writing about his childhood, reflecting on his family and on his shared life with band member and partner Tracey Thorn. The result is a provocative and affecting memoir about life, illness, and survival.

Intensive Care: A Doctor's Journey


Danielle Ofri - 2013
    Her vivid prose brings the reader into bustling hospitals, tense exam rooms, and Ofri's own life, giving an up-close look at the fast-paced, life-and-death drama of becoming a doctor. She tells of a young man uncertain of his future who comes into the clinic with a stomach complaint but for whom Dr. Ofri sees that the most useful "treatment" she can offer him is SAT tutoring. She writes of a desperate struggle to communicate with a critically ill patient who only speaks Mandarin, of a doctor whose experience in the NICU leaves her paralyzed with PTSD, and of her own struggles with the fear of making fatal errors, the dangers of overconfidence, and the impossible attempts to balance the empathy necessary for good care with the distance necessary for self-preservation. Through these stories of her patients, colleagues, and her own experiences, Intensive Care offers poignant insight into the medical world, and into the hearts and minds of doctors and their patients. These stories are drawn from the author’s previous books and one is from her forthcoming book, What Doctors Feel: How Emotions Affect the Practice of Medicine.excerpted from Amazon.com Book Description

POTS - Together We Stand: Riding the Waves of Dysautonomia


Jodi Epstein Rhum - 2011
    Initially conceptualized as a survival guide for children, teens, young adults and parents; it quickly transcended into this unprecedented, critical volume. This encompassing work responds to the many desperate and heartbreaking pleas of those affected by dysautonomia; included are clear explanations of medical information, evidenced-based research, best practices for clinical diagnoses and treatment options, alternative/complimentary medicine approaches, non-medical strategies, coping techniques, helpful tips, patient rights and options, and inspiring narrative accounts of people living with the syndrome around the globe. The book contributors and its readers join hand in hand to represent the POTS dysautonomia community's shared struggles and hopes, concerns and endeavors, unequivocally serving as a living testament that "Together We Stand." This is the 3rd Edition!

How to Survive a Plague: The Inside Story of How Citizens and Science Tamed AIDS


David France - 2013
     A riveting, powerful telling of the story of the grassroots movement of activists, many of them in a life-or-death struggle, who seized upon scientific research to help develop the drugs that turned HIV from a mostly fatal infection to a manageable disease. Ignored by public officials, religious leaders, and the nation at large, and confronted with shame and hatred, this small group of men and women chose to fight for their right to live by educating themselves and demanding to become full partners in the race for effective treatments. Around the globe, 16 million people are alive today thanks to their efforts. Not since the publication of Randy Shilts's classic And the Band Played On has a book measured the AIDS plague in such brutally human, intimate, and soaring terms. In dramatic fashion, we witness the founding of ACT UP and TAG (Treatment Action Group), and the rise of an underground drug market in opposition to the prohibitively expensive (and sometimes toxic) AZT. We watch as these activists learn to become their own researchers, lobbyists, drug smugglers, and clinicians, establishing their own newspapers, research journals, and laboratories, and as they go on to force reform in the nation s disease-fighting agencies. With his unparalleled access to this community David France illuminates the lives of extraordinary characters, including the closeted Wall Street trader-turned-activist, the high school dropout who found purpose battling pharmaceutical giants in New York, the South African physician who helped establish the first officially recognized buyers club at the height of the epidemic, and the public relations executive fighting to save his own life for the sake of his young daughter. Expansive yet richly detailed, this is an insider's account of a pivotal moment in the history of American civil rights. Powerful, heart-wrenching, and finally exhilarating, How to Survive a Plague is destined to become an essential part of the literature of AIDS.

Anatomy of an Illness: As Perceived by the Patient


Norman Cousins - 1979
    It started the revolution in patients working with their doctors and using humor to boost their bodies' capacity for healing. When Norman Cousins was diagnosed with a crippling and irreversible disease, he forged an unusual collaboration with his physician, and together they were able to beat the odds. The doctor's genius was in helping his patient to use his own powers: laughter, courage, and tenacity. The patient's talent was in mobilizing his body's own natural resources, proving what an effective healing tool the mind can be. This remarkable story of the triumph of the human spirit is truly inspirational reading.