But for twin girls with the disease, what began as a family’s stubborn determination grew into a miracle.            The tragedy of CF has been touchingly recounted in such books as Frank Deford’s Alex: The Life of a Child, but The Power of Two is the first book to portray the symbiotic relationship between twins who share this life-threatening disease through adulthood. Isabel Stenzel Byrnes and Anabel Stenzel tell of their lifelong struggle to pursue normal lives with cystic fibrosis while grappling with the realization that they will die young. Their story reflects the physical and emotional challenges of a particularly aggressive form of CF and tells how the twins’ bicultural heritage—Japanese and German—influenced the way they coped with these challenges.            Born in 1972, seventeen years before scientists discovered the genetic mutation that causes CF, Isabel and Anabel endured the daily regimen of chest percussion, frequent doctor visits, and lengthy hospitalizations. But they tell how, in the face of innumerable setbacks, their deep-seated dependence on each other allowed them to survive long enough to reap the benefits of the miraculous lung transplants that marked a crossroads in their lives: “We have an old life—one of growing up with chronic illness—and a new life—one of opportunities and gifts we have never imagined before.” In this memoir, they pay tribute to the people who shaped their experience.            The Power of Two is an honest and gripping portrayal of day-to-day health care, the impact of chronic illness on marriage and family, and the importance of a support network to continuing survival. It conveys an important message to both popular and professional readers as it addresses key psychosocial issues in chronic illness throughout the sufferer’s lifespan and illuminates the human side of advances in biotechnology.            Even as gene therapy and stem cell research increase the chances for eradicating CF, this stirring account portrays its effects on one family that refused to give up. These two remarkable sisters have much to teach about the power of perseverance—and about the ultimate power of hope.

    It follows the experiences of the author as she and her friends come to terms with the non-stop hustle and bustle of hospital life. This book treats the reader to a peep behind the scenes as we enter the hospital wards. As well as an insight into nurse training, hurry up nurse provides a glimpse into the social history of life in the 1970's and early 1980's.

    She draws from her own experiences of illness and bodily injury to engage in an exploration that extends far beyond her life, spanning wide-ranging territory—from poverty tourism to phantom diseases, street violence to reality television, illness to incarceration—in its search for a kind of sight shaped by humility and grace.

    But what if the person receiving the diagnosis--young, physically fit, poised for a bright future--is himself a doctor?At thirty-one David biro has just completed his residency and joined his father's successful dermatology practice. Struck with a rare blood disease that eventually necessitates a bone marrow transplant, Biro relates with honesty and courage the story of his most transforming journey. He is forthright about the advantages that his status as a physician may have afforded him; and yet no such advantage can protect him from the anxiety and doubt brought on by his debilitating therapies. The pressures that Biro's wild "one hundred days" brings to bear on his heretofore well-established identity as a caregiver are enormous--as is the power of this riveting story of survival.

    . . the saddest and coldest and most human of cities."

    It's about her childhood in the north-west of England with her beautiful, careworn mother Marcia, Linford (the man formerly known as Dad, 'half-fun, half-frightening') and her little brother Roo, who sees things written in the stars. It's about growing up and discovering the power and fear of her own sexuality, of pitch grey days of pills and powder and encounters. It's about damage and pain, but also joy. Told with raw intensity, shocking honesty and the poetry of the darkest of fairy tales, The Terrible is a memoir of going under, losing yourself, and finding your voice.

    That is what troubles animal-phobic, robotics engineer Smith who just got married. He learns that his bride’s dream is to have a farm where there are lots of animals and she can rescue ex-race horses to retrain and find them new homes. But according to a Meyers-Briggs Personality Test that they took for fun, their marriage is doomed. There is only one problem: the newlyweds took the test after the wedding. Whether Smith is chasing a cow named Pork Chop through the woods with a rope, getting locked in a tack room by the family pony, being snubbed by his wife’s dog, or unsuccessfully trying to modernize their barn using the latest technology, the odds are stacked against him. It seems like everything with four legs is out to get him. Will the animals win, forcing Smith to admit defeat, or will he fight to keep his family and the farm together? Enjoy the true, warm, and frequently hilarious stories of Smith’s journey along the bumpy road from his urban robotics lab to a new life on a rural Virginia farm.

    While she may have left her home in Alabama, married a New Yorker, forgotten how to drive, and abandoned the puffy headbands of her youth, Helen Ellis is clinging to her Southern accent like mayonnaise to white bread, and offering readers a hilarious, completely singular view on womanhood for both sides of the Mason-Dixon.Making a marriage magically tidy --Topeka three-way --How to stay happily married --Free to be...you and me (and childfree) --Room of one's own (that's full of gay men) --Other woman's Burberry coat --Peggy Sue got marijuana --What every girl should learn from ABC's The bachelor --Ghost experience --Party foul --Today was a good day --Straighten up and fly right. --Halloween people --Tonight we're gonna party like it's 1979 --How to be the best guest --When to write a thank-you note --An Emily Post for the apocalypse --How I watch pornography like a lady --Dumb boobs --Young ladies, listen to me --Seven things I'm doing instead of a neck lift --Serious women --That kind of woman

    

    She engages with such wide-ranging topics as race, parenthood, love, mental illness, poverty, sexual assault, gentrifcation, writing and representation, and in the process makes connections both large and small between the past and present, the personal and political--from overcoming a years-long battle with head lice to the way Native writers are treated within the Canadian literary industry; her unplanned teenage pregnancy to the history of dark matter and how it relates to racism in the court system; her childhood diet of Kraft Dinner to how systemic oppression is directly linked to health problems in Native communities.With deep consideration and searing prose, Elliott provides a candid look at our past, an illuminating portrait of our present and a powerful tool for a better future.

    Now, I am sleeping in kickers and a vest under a fan. Let the mosquitos bite me. They can have me ... Can we live here? ... If I don't become roadkill in the next few days, I'll let you know my thoughts. In 2009, Sarah and John Alderson quit their full-time jobs in London and headed off, with Alula, their three-year-old daughter, on a global adventure to find a new home. For eight months, they travelled through Australia, the US and Asia navigating India with a toddler in a tutu, battling black magic curses in Indonesia and encountering bears in North America asking themselves one defining question: Can We Live Here? Inspirational, hilarious and fascinating this is an unforgettable travel memoir and a unique guide to quitting your job, following your dreams and finding your home in a far-flung paradise

    But it happened.An emotionally honest account, Far Outside the Ordinary chronicles the period in Prissy’s life when, during a routine physical, her fifty-yearold husband is given less than a year to live. Southern black caregivers move into her home and work around the clock to aid her family. Soon, Prissy finds herself a spectator in her own home, observing events far outside the boundaries of her once ordinary life.Far Outside the Ordinary is also a story of happily ever after, a romantic fairy tale. When her high school boyfriend reappears in her life, Prissy learns love has no expiration date. Sometimes a second chance at love can come disguised, and when least expected.

    A moving account of the cruel reality of life inside a home for unmarried mothers in 1950s Catholic Ireland written by a young woman who took up a position of midwife in the home run by the Sacred Heart nuns.

    He was a medical student and she was a nurse. Everything changed the moment the doctor rushed their infant daughter from the room just after her birth, knowing instantly that something was wrong. Sarah had almond-shaped eyes, a single crease across her palm instead of three, and low-set ears all of which suggested that the baby had Down syndrome.Beginning on the day Sarah is born and ending when she is a young adult living in a group home, Beautiful Eyes is the story of a father's journey toward acceptance of a child who is different. In a voice that is unflinchingly honest and unerringly compassionate, Austin chronicles his life with his daughter: watching her learn to walk and talk and form her own opinions, making decisions about her future, and navigating cultural assumptions and prejudices all the while confronting, with poignancy and moving candor, his own limitations as her father.It is Sarah herself, who, in her own coming of age and her own reconciling with her difference, teaches her father to understand her. Time and again, she surprises him: performing Lady Gaga s "Poker Face" at a talent show; explaining how the word "retarded" is hurtful; reacting to the events of her life with a mixture of love, pain, and humor; and insisting on her own humanity in a world that questions it. As Sarah begins to blossom into herself, her father learns to look past his daughter's disability and see her as the spirited, warmhearted, and uniquely wise person she is.

    He was given four years to live. In 2010, in a state of lung-function collapse, Simon knew with crystal clarity that now was not his time to die. Against all prevailing medical opinion, he chose to ventilate in order to stay alive.Here, the young filmmaker, a husband and father of five small children draws us deeply into his inner world. Told in simply expressed and beautifully stark prose - in the vein of such memoirs as Jean-Dominique Bauby's The Diving Bell and the Butterfly - the result is an astonishing journey into a life which, though brutally compromised, is lived more fully and in the moment than most, revealing at its core the power of love its most potent.Written using an eye-gaze computer, It's Not Yet Dark is an unforgettable book about relationships and family, about what connects and separates us as people and, ultimately, about what it means to be alive.