This Red Line Goes Straight to Your Heart: A Memoir in Halves


Madhur Anand - 2020
    We meet his future wife, chanting Hai Rams for Gandhiji and choosing education over marriage. On one side of the line divides this book, we follow them as their homeland splits in two and they are drawn together, moving to Canada and raising their children in mining towns and in crowded city apartments. And when we turn the book over, we find the daughter's tale—we see how the rupture of Partition, the asymmetry of a father's leg, the virus of a mother's rage, makes its way to the next generation.Told through the lenses of biology, physics, history and poetry, this is a memoir that defies form and convention to immerse the reader in the feeling of what remains when we've heard as much of the truth as our families will allow, and we're left to search for ourselves among the pieces they've carried with them.

Hello I Want to Die Please Fix Me: Depression in the First Person


Anna Mehler Paperny - 2019
    Illuminating, completely engaging—it's essential reading for all since we all know someone whose life, family or friends are touched by the disease that directly afflicts a fifth of Canadians. In her early twenties, while outwardly thriving in her dream job and enjoying warm familial support and a strong social network, award-winning journalist Anna Mehler Paperny found herself trapped by feelings of failure and despair. Her first suicide attempt—ingesting a deadly mix of sleeping pills and antifreeze—landed her in the ICU, followed by weeks of enforced detention that ran the gamut of horrifying, boring, hilarious, and absurd. This was Anna's entry into the labyrinthine psychiatric care system responsible for providing care to millions of Canadians.As she struggled to survive the psych ward and as an outpatient—enduring the "survivor's" shame of facing concerned family, friends, and co-workers; finding (or not) the right therapist, the right meds; staying healthy, insured, and employed—Anna could not help but turn her demanding journalist's eye on her condition and on the system in which she found herself. She set off on a quest to "know her enemy," interviewing leading practitioners in the field across Canada and the US—from psychiatrists to neurological experts, brain-mapping pioneers to heroic family practitioners, and others dabbling in novel hypotheses. She reveals in courageously frank detail her own experiences with the pharmacological pitfalls and side effects of long-term treatment, and offers moving case studies of conversations with others, opening wide a window into how we treat (and fail to treat) the disease that accounts for more years swallowed up by disability than any other in the world.

Being Mortal: Medicine and What Matters in the End


Atul Gawande - 2014
    But in the inevitable condition of aging and death, the goals of medicine seem too frequently to run counter to the interest of the human spirit. Nursing homes, preoccupied with safety, pin patients into railed beds and wheelchairs. Hospitals isolate the dying, checking for vital signs long after the goals of cure have become moot. Doctors, committed to extending life, continue to carry out devastating procedures that in the end extend suffering.Gawande, a practicing surgeon, addresses his profession's ultimate limitation, arguing that quality of life is the desired goal for patients and families. Gawande offers examples of freer, more socially fulfilling models for assisting the infirm and dependent elderly, and he explores the varieties of hospice care to demonstrate that a person's last weeks or months may be rich and dignified.

Astra


Cedar Bowers - 2021
    As her path intersects with others--often only briefly, but always intensely--she will encounter people who, by turns, want to rescue, control, become, change, and escape her, revealing difficult yet shining truths about who they are and what they yearn for. There is the childhood playmate who comes to fear Astra's unpredictable ways; the stranger who rescues her from homelessness and then has to wrestle with his own demons; the mother who hires Astra as a nanny even as her own marriage goes off the rails; the man who takes a leap of faith and marries her. Even as Astra herself remains the elusive yet compelling axis around which these narratives turn, her story reminds us of the profound impact that an individual can have on those around her, and the power struggles at play in all our relationships, no matter how intimate. A beautifully constructed and revelatory novel, Astra explores what we're willing to give and receive from others, and how well we ever really know the people we love the most.

In the Realm of Hungry Ghosts: Close Encounters with Addiction


Gabor Maté - 2007
    Diligently treating the drug addicts of Vancouver's notorious Downtown Eastside with sympathy in his heart and legislative reform in mind can't be easy. But Maté never judges. His book is a powerful call-to-arms, both for the decriminalization of drugs and for a more sympathetic and informed view of addiction. As Maté observes, "Those whom we dismiss as 'junkies' are not creatures from a different world, only men and women mired at the extreme end of a continuum on which, here or there, all of us might well locate ourselves." In the Realm of Hungry Ghosts begins by introducing us to many of Dr. Maté's most dire patients who steal, cheat, sell sex, and otherwise harm themselves for their next hit. Maté looks to the root causes of addiction, applying a clinical and psychological view to the physical manifestation and offering some enlightening answers for why people inflict such catastrophe on themselves.Finally, he takes aim at the hugely ineffectual, largely U.S.-led War on Drugs (and its worldwide followers), challenging the wisdom of fighting drugs instead of aiding the addicts, and showing how controversial measures such as safe injection sites are measurably more successful at reducing drug-related crime and the spread of disease than anything most major governments have going. It's not easy reading, but we ignore his arguments at our peril. When it comes to combating the drug trade and the ravages of addiction, society can use all the help it can get. --Kim Hughes

Fevers, Feuds, and Diamonds: Ebola and the Ravages of History


Paul Farmer - 2020
    . . If what we want in this moment is insight from this brilliant doctor about pandemics, he wants us to see that they do not occur in isolation. --Carolyn Kellogg, The Boston GlobeIn 2014, Sierra Leone, Liberia, and Guinea suffered the worst epidemic of Ebola in history. The brutal virus spread rapidly through a clinical desert where basic health-care facilities were few and far between. Causing severe loss of life and economic disruption, the Ebola crisis was a major tragedy of modern medicine. But why did it happen, and what can we learn from it?Paul Farmer, the internationally renowned doctor and anthropologist, experienced the Ebola outbreak firsthand--Partners in Health, the organization he founded, was among the international responders. In Fevers, Feuds, and Diamonds, he offers the first substantive account of this frightening, fast-moving episode and its implications. In vibrant prose, Farmer tells the harrowing stories of Ebola victims while showing why the medical response was slow and insufficient. Rebutting misleading claims about the origins of Ebola and why it spread so rapidly, he traces West Africa's chronic health failures back to centuries of exploitation and injustice. Under formal colonial rule, disease containment was a priority but care was not - and the region's health care woes worsened, with devastating consequences that Farmer traces up to the present.This thorough and hopeful narrative is a definitive work of reportage, history, and advocacy, and a crucial intervention in public-health discussions around the world.

Through the Garden: A Love Story (with Cats)


Lorna Crozier - 2020
    I was so happy for him, and I've continued to be every time an honour comes his way, but I knew if I didn't grow, if I remained merely someone who showed potential, we wouldn't last. I swore I wouldn't play the dutiful wife, cheerleader, and muse of the great male writer, and he didn't envision a partner like that. We aspired to flourish together and thrive in words and books and gardens.When Lorna Crozier and Patrick Lane met at a poetry workshop in 1976, they had no idea that they would go on to write more than forty books between them, balancing their careers with their devotion to each other, and to their beloved cats, for decades. Then, in January 2017, their life together changed unexpectedly when Patrick became seriously ill. Despite tests and the opinions of many specialists, doctors remained baffled. There was no diagnosis and no effective treatment plan. The illness devastated them both.During this time, Lorna turned to her writing as a way of making sense of her grief and for consolation. She revisited her poems, tracing her own path as a poet along with the evolution of her relationship with Patrick. The result is an intimate and intensely moving memoir about the difficulties and joys of creating a life with someone and the risks and immense rewards of partnership. At once a spirited account of the past and a poignant reckoning with the present, it is, above all, an extraordinary and unforgettable love story.Told with unflinching honesty and fierce tenderness, Through the Garden is a candid, clear-eyed portrait of a long partnership and an acknowledgement, a tribute, and a gift.

America's Bitter Pill: Money, Politics, Backroom Deals, and the Fight to Fix Our Broken Healthcare System


Steven Brill - 2015
    It’s a fly-on-the-wall account of the titanic fight to pass a 961-page law aimed at fixing America’s largest, most dysfunctional industry. It’s a penetrating chronicle of how the profiteering that Brill first identified in his trailblazing Time magazine cover story continues, despite Obamacare. And it is the first complete, inside account of how President Obama persevered to push through the law, but then failed to deal with the staff incompetence and turf wars that crippled its implementation.   But by chance America’s Bitter Pill ends up being much more—because as Brill was completing this book, he had to undergo urgent open-heart surgery. Thus, this also becomes the story of how one patient who thinks he knows everything about healthcare “policy” rethinks it from a hospital gurney—and combines that insight with his brilliant reporting. The result: a surprising new vision of how we can fix American healthcare so that it stops draining the bank accounts of our families and our businesses, and the federal treasury. Praise for America’s Bitter Pill   “A tour de force . . . a comprehensive and suitably furious guide to the political landscape of American healthcare . . . persuasive, shocking.”—The New York Times   “An energetic, picaresque, narrative explanation of much of what has happened in the last seven years of health policy . . . [Brill] has pulled off something extraordinary.” —The New York Times Book Review   “A thunderous indictment of what Brill refers to as the ‘toxicity of our profiteer-dominated healthcare system.’ ”—Los Angeles Times  “A sweeping and spirited new book [that] chronicles the surprisingly juicy tale of reform.”—The Daily Beast  “One of the most important books of our time.”—Walter Isaacson   “Superb . . . Brill has achieved the seemingly impossible—written an exciting book about the American health system.”—The New York Review of Books

28: Stories of AIDS in Africa


Stephanie Nolen - 2007
    It is essential reading for our times.In 28, Stephanie Nolen, the Globe and Mail’s Africa Bureau Chief, puts a human face to the crisis created by HIV-AIDS in Africa. She has achieved, in this amazing book, something extraordinary: she writes with a power, understanding and simplicity that makes us listen, makes us understand and care. Through riveting anecdotal stories – one for each of the million people living with HIV-AIDS in Africa – Nolen explores the effects of an epidemic that well exceeds the Black Plague in magnitude. It is a calamity that is unfolding just a 747-flight away, and one that will take the lives of these 28 million without the help of massive, immediate intervention on an unprecedented scale. 28 is a timely, transformative, thoroughly accessible book that shows us definitively why we continue to ignore the growth of HIV-AIDS in Africa only at our peril and at an intolerable moral cost.28’s stories are much more than a record of the suffering and loss in 28 emblematic lives. Here we meet women and men fighting vigorously on the frontlines of disease: Tigist Haile Michael, a smart, shy 14-year-old Ethiopian orphan fending for herself and her baby brother on the slum streets of Addis Ababa; Alice Kadzanja, an HIV-positive nurse in Malawi, where one in six adults has the virus, and where the average adult’s life expectancy is 36; and Zackie Achmat, the hero of South Africa’s politically fragmented battle against HIV-AIDS. 28 also tells us how the virus works, spreads and, ultimately, kills. It explains the connection of HIV-AIDS to conflict, famine and the collapse of states; shows us how easily treatment works for those lucky enough to get it and details the struggles of those who fight to stay alive with little support. It makes vivid the strong, desperate people doing all they can, and maintaining courage, dignity and hope against insurmountable odds. It is – in its humanity, beauty and sorrow – a call to action for all who read it.

An American Sickness: How Healthcare Became Big Business and How You Can Take It Back


Elisabeth Rosenthal - 2017
    In only a few decades, the medical system has been overrun by organizations seeking to exploit for profit the trust that vulnerable and sick Americans place in their healthcare. Our politicians have proven themselves either unwilling or incapable of reining in the increasingly outrageous costs faced by patients, and market-based solutions only seem to funnel larger and larger sums of our money into the hands of corporations. Impossibly high insurance premiums and inexplicably large bills have become facts of life; fatalism has set in. Very quickly Americans have been made to accept paying more for less. How did things get so bad so fast?Breaking down this monolithic business into the individual industries--the hospitals, doctors, insurance companies, and drug manufacturers--that together constitute our healthcare system, Rosenthal exposes the recent evolution of American medicine as never before. How did healthcare, the caring endeavor, become healthcare, the highly profitable industry? Hospital systems, which are managed by business executives, behave like predatory lenders, hounding patients and seizing their homes. Research charities are in bed with big pharmaceutical companies, which surreptitiously profit from the donations made by working people. Patients receive bills in code, from entrepreneurial doctors they never even saw.The system is in tatters, but we can fight back. Dr. Elisabeth Rosenthal doesn't just explain the symptoms, she diagnoses and treats the disease itself. In clear and practical terms, she spells out exactly how to decode medical doublespeak, avoid the pitfalls of the pharmaceuticals racket, and get the care you and your family deserve. She takes you inside the doctor-patient relationship and to hospital C-suites, explaining step-by-step the workings of a system badly lacking transparency. This is about what we can do, as individual patients, both to navigate the maze that is American healthcare and also to demand far-reaching reform. An American Sickness is the frontline defense against a healthcare system that no longer has our well-being at heart.

The Inconvenient Indian: A Curious Account of Native People in North America


Thomas King - 2012
    In the process, King refashions old stories about historical events and figures, takes a sideways look at film and pop culture, relates his own complex experiences with activism, and articulates a deep and revolutionary understanding of the cumulative effects of ever-shifting laws and treaties on Native peoples and lands.This is a book both timeless and timely, burnished with anger but tempered by wit, and ultimately a hard-won offering of hope—a sometimes inconvenient, but nonetheless indispensable account for all of us, Indian and non-Indian alike, seeking to understand how we might tell a new story for the future.

How to Survive a Plague: The Inside Story of How Citizens and Science Tamed AIDS


David France - 2013
     A riveting, powerful telling of the story of the grassroots movement of activists, many of them in a life-or-death struggle, who seized upon scientific research to help develop the drugs that turned HIV from a mostly fatal infection to a manageable disease. Ignored by public officials, religious leaders, and the nation at large, and confronted with shame and hatred, this small group of men and women chose to fight for their right to live by educating themselves and demanding to become full partners in the race for effective treatments. Around the globe, 16 million people are alive today thanks to their efforts. Not since the publication of Randy Shilts's classic And the Band Played On has a book measured the AIDS plague in such brutally human, intimate, and soaring terms. In dramatic fashion, we witness the founding of ACT UP and TAG (Treatment Action Group), and the rise of an underground drug market in opposition to the prohibitively expensive (and sometimes toxic) AZT. We watch as these activists learn to become their own researchers, lobbyists, drug smugglers, and clinicians, establishing their own newspapers, research journals, and laboratories, and as they go on to force reform in the nation s disease-fighting agencies. With his unparalleled access to this community David France illuminates the lives of extraordinary characters, including the closeted Wall Street trader-turned-activist, the high school dropout who found purpose battling pharmaceutical giants in New York, the South African physician who helped establish the first officially recognized buyers club at the height of the epidemic, and the public relations executive fighting to save his own life for the sake of his young daughter. Expansive yet richly detailed, this is an insider's account of a pivotal moment in the history of American civil rights. Powerful, heart-wrenching, and finally exhilarating, How to Survive a Plague is destined to become an essential part of the literature of AIDS.

Missing from the Village: The Story of Serial Killer Bruce McArthur, the Search for Justice, and the System That Failed Toronto's Queer Community


Justin Ling - 2020
    On paper, an investigation continued for a year, but remained "open but suspended." By 2015, investigative journalist Justin Ling had begun to put in multiple requests to speak to the investigators on the case. Meanwhile, more men would go missing, and police would continue to deny that there might be a serial killer. On January 18, 2018, Bruce McArthur, a landscaper, would be charged with three counts of first-degree murder. In February 2019, he was convicted of eight counts of first-degree murder.This extraordinary book tells the complete story of the McArthur murders. Based on more than five years of in-depth reporting, this is also a story of police failure, of how the gay community failed its own, and the story of the eight men who went missing and the lives they left behind. In telling that story, Justin Ling uncovers the latent homophobia and racism that kept this case unsolved and unseen. This gripping book reveals how police agencies across the country fail to treat missing persons cases seriously, and how policies and laws, written at every level of government, pushed McArthur's victims out of the light and into the shadows.

Bad Faith: When Religious Belief Undermines Modern Medicine


Paul A. Offit - 2015
    Although America is the most medically advanced place in the world, many people disregard modern medicine in favor of using their faith to fight life threatening illnesses. Christian Scientists pray for healing instead of going to the doctor, Jehovah's Witnesses refuse blood transfusions, and ultra-Orthodox Jewish mohels spread herpes by using a primitive ritual to clean the wound. Tragically, children suffer and die every year from treatable diseases, and in most states it is legal for parents to deny their children care for religious reasons. In twenty-first century America, how could this be happening? In Bad Faith, acclaimed physician and author Dr. Paul Offit gives readers a never-before-seen look into the minds of those who choose to medically martyr themselves, or their children, in the name of religion. Offit chronicles the stories of these faithful and their children, whose devastating experiences highlight the tangled relationship between religion and medicine in America. Religious or not, this issue reaches everyone -- whether you are seeking treatment at a Catholic hospital or trying to keep your kids safe from diseases spread by their unvaccinated peers. Replete with vivid storytelling and complex, compelling characters, Bad Faith makes a strenuous case that denying medicine to children in the name of religion isn't't just unwise and immoral, but a rejection of the very best aspects of what belief itself has to offer.

Poor Economics: A Radical Rethinking of the Way to Fight Global Poverty


Abhijit V. Banerjee - 2011
    But much of their work is based on assumptions that are untested generalizations at best, harmful misperceptions at worst.Abhijit Banerjee and Esther Duflo have pioneered the use of randomized control trials in development economics. Work based on these principles, supervised by the Poverty Action Lab, is being carried out in dozens of countries. Drawing on this and their 15 years of research from Chile to India, Kenya to Indonesia, they have identified wholly new aspects of the behavior of poor people, their needs, and the way that aid or financial investment can affect their lives. Their work defies certain presumptions: that microfinance is a cure-all, that schooling equals learning, that poverty at the level of 99 cents a day is just a more extreme version of the experience any of us have when our income falls uncomfortably low.This important book illuminates how the poor live, and offers all of us an opportunity to think of a world beyond poverty.Learn more at www.pooreconomics.com