Book picks similar to
The Power of Two: A Twin Triumph Over Cystic Fibrosis by Isabel Stenzel Byrnes
memoir
chronic-illness
disability
memoirs
Between Two Kingdoms: A Memoir of a Life Interrupted
Suleika Jaouad - 2021
She had fallen in love and moved to Paris to pursue her dream of becoming a war correspondent. The real world she found, however, would take her into a very different kind of conflict zone.It started with an itch—first on her feet, then up her legs, like a thousand invisible mosquito bites. Next came the exhaustion, and the six-hour naps that only deepened her fatigue. Then a trip to the doctor and, a few weeks shy of her twenty-third birthday, a diagnosis: leukemia, with a 35 percent chance of survival. Just like that, the life she had imagined for herself had gone up in flames. By the time Jaouad flew home to New York, she had lost her job, her apartment, and her independence. She would spend much of the next four years in a hospital bed, fighting for her life and chronicling the saga in a column for The New York Times.When Jaouad finally walked out of the cancer ward—after three and a half years of chemo, a clinical trial, and a bone marrow transplant—she was, according to the doctors, cured. But as she would soon learn, a cure is not where the work of healing ends; it’s where it begins. She had spent the past 1,500 days in desperate pursuit of one goal—to survive. And now that she’d done so, she realized that she had no idea how to live.How would she reenter the world and live again? How could she reclaim what had been lost? Jaouad embarked—with her new best friend, Oscar, a scruffy terrier mutt—on a 100-day, 15,000-mile road trip across the country. She set out to meet some of the strangers who had written to her during her years in the hospital: a teenage girl in Florida also recovering from cancer; a teacher in California grieving the death of her son; a death-row inmate in Texas who’d spent his own years confined to a room. What she learned on this trip is that the divide between sick and well is porous, that the vast majority of us will travel back and forth between these realms throughout our lives. Between Two Kingdoms is a profound chronicle of survivorship and a fierce, tender, and inspiring exploration of what it means to begin again.
Please Stay: A Brain Bleed, A Life In The Balance, A Love Story
Greg Payan - 2018
Diagnosed with a ruptured brain aneurysm and Grade IV hemorrhage, the 39-year old college professor soon finds herself fighting for her life as her heart and lungs fail en route to emergency treatment.As family and friends rush to be by her side, former students and close friends from around the country write memories to be read at her bedside, detailing a life and legacy that has influenced so many.Experience what loved ones did in real-time as texts and e-mails sent during the medical crisis form the narrative for this compelling journey through the eyes of Holly and her boyfriend who kept vigil through it all. A book that will challenge and compel you to reflect not just on love and death, but also the hundred micro-reflections nestled in between as you ponder what constitutes a life well lived, and how one impacts others along the way.EDITORIAL REVIEWS: “Unforgettable. Readers not only receive insights into their (own) lives and connections to it; but on the medical challenges of aneurysms and the recovery process and prognosis. A(n) invigorating celebration of life unexpected in a memoir that depicts a close encounter with death: one which pulls heartstrings, educates about aneurysm and disability, and is replete with emails, text messages, and a peppering of black and white photos throughout. Readers who seek uplifting stories of recovery and life challenges will relish the tone, presentation, and surprisingly multifaceted story of Holly and Greg's journey from the brink in a saga that proves hard to put down.” (D. Donovan, Senior Reviewer, Midwest Book Review)"The book is touching and engrossing, and much more than a memoir of an illness, telling a timeless story of a devotion among family and friends. The story becomes less about one couple than a universal story of endurance and love, which is at once harrowing and inspiring. Please Stay is a powerful message of love in the face of tragedy and how in times of hardship, people can rally around each other to reveal a deeper humanity." (Self-Publishing Review)“As anyone who has suffered the shocking loss or illness of a loved one will tell you, time is precious. This is a lovely meditation on that theme, a way to try and get to the bottom of that most complex idea - the "accident", the bolt out of the blue, the unforeseen event. Like grief, like asking why, like losing people - sometimes we can't understand things, we just have to learn to live with them. Life just is.” (James Hartley Books 5*) “Please Stay is a smoothly written memoir about what it’s like to live through a health crisis— a worthy, sometimes tear-inducing, and highly inspiring read.” (BlueInk Review)“Heartbreaking and heart-lifting.” (Reader Views)
Heart Matters: A Memoir of a Female Heart Surgeon
Kathy Magliato - 2010
Kathy Magliato is one of the few female heart surgeons practicing in the world today. She is also a member of an even more exclusive group—those surgeons specially trained to perform heart transplants. Heart Matters is the story of the making of a surgeon who is also a wife and mother. In this powerful and moving memoir, which inspired the NBC series Heart Beat, Dr. Magliato takes us into her highly demanding, physically intense, male-dominated world and shows us how she masterfully works to save patients' lives every day, while also maintaining balance at home. Heart Matters is also a wake-up call to all women about their number one killer - heart disease - and explains how to avoid becoming a victim. Magliato offers a vivid behind-the-scenes view of what really goes on in an operating room and the real-life drama that occurs there. She shows the passion and commitment between patient and doctor, revealing that, at the end of a long day, it's our hearts that matter most.
Me and the Ugly C
Becky Dennington - 2011
Breast cancer. In an instant, her life changed all because of a single word she couldn’t even bring herself to say out loud. The ugly C word.Share in the journey of one young woman’s fight against breast cancer, the sacrifices a family makes, the heartbreak cancer leaves in its path, and the joy found along the way.
The Moth
The Moth Radio Hour
Fifty true stories told on The Moth Radio Hour.
Just Don't Fall: How I Grew Up, Conquered Illness, and Made It Down the Mountain
Josh Sundquist - 2009
One moment Josh Sundquist was your typical energetic and inquisitive nine year- old boy. The next, his entire life changed when he was diagnosed with Ewing's Sarcoma, a particularly virulent cancer strain that would eventually claim Josh's left leg. Told in a wide-eyed, winning, heartbreaking voice, Just Don't Fall is the story of the boy Josh was and of the young man he became. His story begins in a small, close-knit Southern town, where his father-an aspiring pastor questioning his faith, and his mother-- homeschooling an ever- growing brood of children-struggle to make ends meet. Josh journeys through a dizzying array of hospitals and eventually lands at a pivotal place: the nearby mountain, where he makes his first attempt to ski. It is on the slopes, and later, on the race course, that Josh's world bursts wide open in a way no one could have ever anticipated. The inspiration to ski, however, and to become a champion, is not all that Josh has to contend with- there is adolescence to navigate, the transition from homeschool to public high school, and girls. There is an increasingly turbulent and difficult home life, with another cancer scare, a wayward brother, and dwindling finances to pay for training. Finally, there is the wild, bumpy road to the Paralympics in Turin, with a misanthropic coach, training in the Rockies, and a timeless friendship with a charismatic, imposing Brooklyn homeboy named Ralph. Through it all, Josh is forced to question his abilities, his sanity, his will, his faith in himself, and his faith in God. Because of, not despite, these myriad obstacles in his path, Josh is able to achieve a genuine grace: the grace to risk failure and to succeed. It is the grace of a young boy becoming a man and of a champion realizing his greatest dream. Josh Sundquist shows us with charm, humility and remarkable strength that even if we fall, this inner grace can lift us up and carry us over the many mountains we all must face.
The Nurses: A Year of Secrets, Drama, and Miracles with the Heroes of the Hospital
Alexandra Robbins - 2015
Lara, a superstar nurse who tries to battle her way back from a near-ruinous prescription-drug addiction. The outspoken but compassionate Juliette, a fierce advocate for her patients. And Sam, a first-year nurse, struggling to find her way in a gossipy mean-girl climate she likens to “high school, except for the dying people.”The result is a riveting page-turner, insightful and thought-provoking, that will leave readers feeling smarter about their healthcare and undeniably appreciative of the incredible nurses who provide it.
The Bar Mitzvah and the Beast: One Family's Cross-Country Ride of Passage by Bike
Matt Biers-Ariel - 2012
But then his hard-to-impress teenage son, Yonah, refused to have a Bar Mitzvah as he approached age thirteen. No dancing with grandma or chanting traditional prayers? Something had to be done to celebrate this rite of passage. So Matt, his wife Djina, Yonah, and little brother Solomon decided to saddle up for a physical ride of passage -- one that would take them 3,804 miles by bicycle from the waters of the Pacific Ocean, across the Rockies, through Midwest small towns, and all the way to Washington D.C. Armed with ibuprofen, several gallons of Gatorade, and one unpredictable tandem bike (the "Beast"), the Biers-Ariel family pedaled across the middle of America, chatting with locals along the way, roasting marshmallows at campgrounds, and quarrelling over the state of climate change, religious identity, and several flat tires. They also collected thousands of signatures on a self-made global-warming petition calling for the United States to undergo its own rite of passage -- one of energy conservation.The Bar Mitzvah and The Beast is a funny, thoughtful memoir of one ordinary American family's extraordinary journey by bicycle, and an enlightening, warm exploration of the bond between a spiritual, nature-loving father and his ambivalent, computer game-loving son.
If You Build It ...
Dwier Brown - 2014
is a funny and moving memoir about Fathers, Fate and Field of Dreams. Dwier Brown played Kevin Costner's father for five minutes at the end of the movie Field of Dreams. Despite being an actor for 35 years and performing in hundreds of other films, plays and television shows, it was those five minutes that changed his life. Since the movie's release in 1989, Brown has been recognized by dozens of fans who have told him poignant stories about their fathers and how watching the film changed their lives. Their touching stories helped Brown put into perspective his own father's unexpected death just a month before he began filming Field of Dreams.
Times Two
Kristen Henderson - 2011
Times Two is about two women meeting, falling madly in love, and realizing that they are so crazy about each other that they want to have a family together. The fact that they both get pregnant at the exact same time is where things start to get interesting. Sarah Kate Ellis, a high-powered magazine executive, and Kristen Henderson, a laid-back rock star, decide it’s time to start their family. After determining that Sarah should get pregnant first while Kristen works on her band’s new CD, they head to a fertility doctor to start the process. But after months of drug treatments, miscarriages, and heartbreak, Kristen decides to start trying, too. That’s when the utterly improbable happens: Sarah and Kristen find out that they are both pregnant—and are due three days apart. Overjoyed by the news that they are both expecting, Sarah and Kristen are also overwhelmed by all that lies ahead. Both have successful, demanding careers. Both have large, close-knit families nearby, including two strongly opinionated mothers who immediately want to be involved with everything. And both are completely clueless about the challenges they’re about to face. They soon realize that none of their previous accomplishments has prepared them for the highs and lows of impending motherhood: not Kristen’s stint touring with The Rolling Stones, nor Sarah’s march up the corporate ladder in the world of women’s magazines. They go through everything first-time parents-to-be experience—but twice over. They’re producing double the hormones, double the morning sickness, double the cravings, and have double the ups and downs. From the start, Sarah and Kristen think of their babies as twins, each woman carrying half of a set. But for two women who’ve always finished each other’s sentences, they suddenly find themselves on opposite ends of the mothers-to-be spectrum, with different opinions on almost everything. One wants a drug-free birth, while the other wants an epidural at the first sign of a contraction. One is dying to know the baby’s gender, but the other refuses to find out until she hears the baby’s first cry in the delivery room. The difficulties of having two pregnant women under the same roof are multiplied by the legal and social obstacles of being a gay couple. Told from Kristen and Sarah’s insightful and hilarious she said/she said perspective, this touching, modern family adventure will entertain, enlighten, and resonate with readers of all stripes.
Model Patient: My Life As an Incurable Wise-Ass
Karen Duffy - 2000
Then her whirlwind life of celebrity parties came to an abrupt, grinding halt when she was stricken with a serious illness in one of its rarest forms: sarcoidosis of the central nervous system.Duffy soon realized that the only way for her to survive was not to take the disease too seriously. Instead of hiding from life, she chose to run toward it. She learned to embrace the chaos of a life-threatening disease with a wit and humor that helped her to find the love of her life at a time when things seemed darkest.Model Patient is a gripping, inspiring, and hilarious memoir that recounts the singular triumphs and tragedies of coping with a chronic, life-threatening disease.
EMERGENCY 24/7: NURSES OF THE EMERGENCY ROOM
Echo Heron - 2015
EMERGENCY 24/7: Nurses of the Emergency Room, portrays thirty-one nurses, each with a distinctive voice and unique view of what really goes on behind the closed doors of the secret and chaotic world of the emergency room. Also included are the moment-by-moment chronicles of eleven nurses who worked in New York City and Washington, D.C., on September 11, 2001. These compelling accounts give new perspectives on the horrors and heroics of that tragic day. Ranging from inspiring to heart-rending to outrageously funny, these gripping narratives make EMERGENCY 24/7 a fascinating and provocative book—a fitting tribute to the frontline nurses.
Crossing the Bamboo Bridge: Memoirs of a Bad Luck Girl
Mai Donohue - 2016
Her battle is not against soldiers but against her neighbors and a thousand years of tradition. Born during Ho Chi Minh’s revolution against the French, she was just a baby when his followers in the village, out of spite, came to her home one night and murdered the men in the family, driving her mother mad with fear and rage. She was fourteen when her mother forced her to marry and have a child with a brutal man who beat and tortured her, finally leaving her for dead beside the road. Recovered, she ran away with her infant son, only to discover there was no place for them. To save her baby’s life, she returned home in disgrace, only to face the Viet Cong. In desperation she escaped again, leaving her child in safety, she thought. On Saigon’s deadly streets, with no identity papers, she became an outlaw, hiding from her ex-husband, grieving for her lost child. Homeless, penniless and pursued, only her dream of freedom kept her alive. Then one day she would meet a saintly woman, who gave her hope, and an Irish-American naval officer, who gave her love. Crossing the Bamboo Bridge is a tale of mothers and daughters, and of their children. It is a tale of war, and grief, and a young girl’s dreams. It is a stunning epiphany of hope where there is none, of courage in the face of despair, of love, respect and freedom.
My Stroke of Insight: A Brain Scientist's Personal Journey
Jill Bolte Taylor - 2006
Through the eyes of a curious scientist, she watched her mind deteriorate whereby she could not walk, talk, read, write, or recall any of her life. Because of her understanding of the brain, her respect for the cells in her body, and an amazing mother, Jill completely recovered. In My Stroke of Insight, she shares her recommendations for recovery and the insight she gained into the unique functions of the two halves of her brain. When she lost the skills of her left brain, her consciousness shifted away from normal reality where she felt "at one with the universe." Taylor helps others not only rebuild their brains from trauma, but helps those of us with normal brains better understand how we can consciously influence the neural circuitry underlying what we think, how we feel and how we react to life's circumstances.
No Saints Around Here: A Caregiver's Days
Susan Allen Toth - 2014
Forcing food on an increasingly recalcitrant spouse. Brushing his teeth. Watching someone you love more than ever slip away day by day. As her husband James’s Parkinson’s disease with eventual dementia began to progress, writer Susan Allen Toth decides she intensely wants to keep her husband at home—the home he designed and loved and lived in for a quarter century—until the end.No saint, as she often reminds the reader, Toth found solace in documenting her days as a caregiver. The result, written in brief, episodic bursts during the final eighteen months of James’s life, has a rare and poignant immediacy. Wrenching, occasionally peevish, at times darkly funny, and always deeply felt, Toth’s intimate, unsparing account reflects the realities of seeing a loved one out of life: the critical support of some friends and the disappearance of others; the elasticity of time, infinitely slow and yet in such short supply; the sheer physicality of James’s decline and the author’s own loneliness; the practical challenges—the right food, the right wheelchair, the right hospital bed—all intricately interlocking parts of the act of loving and caring for someone who in so many ways is fading away.“We all need someone to hear us,” Toth says of the millions who devote their days to the care of a loved one. Her memoir is at once an eloquent expression of that need and an opening for others. No Saints around Here is the beginning of a conversation in which so many of us may someday find our voices.