Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier. Drawing on her own medical experiences as well as a decade of interviews with doctors, patients, researchers, and public health experts, O’Rourke traces the history of Western definitions of illness, and reveals how inherited ideas of cause, diagnosis, and treatment have led us to ignore a host of hard-to-understand medical conditions, ones that resist easy description or simple cures. And as America faces this health crisis of extraordinary proportions, the populations most likely to be neglected by our institutions include women, the working class, and people of color. Blending lyricism and erudition, candor and empathy, O’Rourke brings together her deep and disparate talents and roles as critic, journalist, poet, teacher, and patient, synthesizing the personal and universal into one monumental project arguing for a seismic shift in our approach to disease. The Invisible Kingdom offers hope for the sick, solace and insight for their loved ones, and a radical new understanding of our bodies and our health.

    The cold winter air triggered a coughing fit, and she began to choke. She was choking on a lot that day. A sick child. A pending divorce. The guilt of failing as a partner and as a mother. When the coughing finally stopped, she thought it was over. She could not have been more wrong.When she coughed that morning, a small tear ripped through her dura mater, the membrane covering the brain and spinal cord. But she didn’t know that yet. Instead, Andrea went on with her day, unaware that her cerebrospinal fluid was already beginning to leak out of that tiny opening.What followed was nine months of pain and confusion as her brain, no longer cushioned by a healthy waterbed of fluid, sank in her skull. At a time in her life when she needed to be as clear-thinking as possible?as a writer, as a mother, as a woman attempting to strike out on her own after two decades of marriage?she was plagued by cognitive impairment and constant pain, trapped by her own brain—all while mystifying doctors and pushing the limits of medical understanding.In this luminous and moving narrative, Andrea reveals the astonishing story of this tumultuous year—her fraught search for treatment; how patients, especially women, fight to be seen as reliable narrators of their own experiences; and how her life-altering recovery process affected both her and her family.The mind-brain connection is one of the greatest mysteries of the human condition. In some folklore, the cerebrospinal fluid around the brain is thought to be the place where consciousness actually begins. Here, in the pages of The Beginning of Everything, Andrea seeks to understand: Where was “I” when I wasn’t there?

    Anyone will tell you that! But for all the rosy sentiments surrounding friendship, most people don’t talk much about what it really takes to stay close for the long haul.Now two friends, Aminatou Sow and Ann Friedman, tell the story of their equally messy and life-affirming Big Friendship in this honest and hilarious book that chronicles their first decade in one another’s lives. As the hosts of the hit podcast Call Your Girlfriend, they’ve become known for frank and intimate conversations. In this book, they bring that energy to their own friendship—its joys and its pitfalls. An inspiring and entertaining testament to the power of society’s most underappreciated relationship, Big Friendship will invite you to think about how your own bonds are formed, challenged, and preserved. It is a call to value your friendships in all of their complexity. Actively choose them. And, sometimes, fight for them.

    From awkward handshakes to having a girlfriend and everything in between, Shane handles his situation with humor and a "you-only-live-once" perspective on life. While he does talk about everyday issues that are relatable to teens, he also offers an eye-opening perspective on what it is like to have a life threatening disease.

    She tried everything to appease her wakefulness: from medication to therapy, changes in her diet to changes in her living arrangements. Nothing seemed to help.The Shapeless Unease is Harvey's darkly funny and deeply intelligent anatomy of her insomnia, an immersive interior monologue of a year without one of the most basic human needs. Original and profound, and narrated with a lucid breathlessness, this is a startlingly insightful exploration of memory, writing and influence, death and the will to survive, from "this generation's Virginia Woolf" (Telegraph).

    In 1887, 23-year-old reporter Nellie Bly had herself committed to a New York City asylum for 10 days to expose the horrific conditions for 19th-century century mental patients.

    In her new book, Rosenberg addresses the overlooked and offbeat issues of mental illness, shedding light on topics that are off-limits, uncomfortable, or just downright embarrassing. This book details every challenging and awkward stage of Amanda’s journey with mental illness and how she manages what she calls her, “garden variety crazy.” These pages are a look at the everyday realities of mental illness - the particular kind of torture that is finding a good therapist, the challenges of figuring out the elusive correct mix of medications, and the appropriate responses with how to deal with the friend who insists ‘but you don’t look depressed’.

    She witnesses nurses drawing straws to see who would tend to the patient inside, all of them reluctant to enter the room. Out of impulse, Ruth herself enters the quarantined space and immediately begins to care for the young man who cries for his mother in the last moments of his life. Before she can even process what she's done, word spreads in the community that Ruth is the only person willing to help these young men afflicted by AIDS, and is called upon to nurse them. As she forges deep friendships with the men she helps, she works tirelessly to find them housing and jobs, even searching for funeral homes willing to take their bodies - often in the middle of the night. She cooks meals for tens of people out of discarded food found in the dumpsters behind supermarkets, stores rare medications for her most urgent patients, teaches sex-ed to drag queens after hours at secret bars, and becomes a beacon of hope to an otherwise spurned group of ailing gay men on the fringes of a deeply conservative state.Throughout the years, Ruth defies local pastors and nurses to help the men she cares for: Paul and Billy, Angel, Chip, Todd and Luke. Emboldened by the weight of their collective pain, she fervently advocates for their safety and visibility, ultimately advising Governor Bill Clinton on the national HIV-AIDS crisis.This deeply moving and elegiac memoir honors the extraordinary life of Ruth Coker Burks and the beloved men who fought valiantly for their lives with AIDS during a most hostile and misinformed time in America.

    This is the true story of an indomitable spirit afflicted with unimaginable physical and psychological challenges. Paul Alexander's life is a saga that started in 1946 and has been profoundly shaped by the Polio epidemic of the early 1950's. Survivors of the 1950's Polio Epidemic in America are rare. Polio victims, like Paul Alexander, who require the assistance of an "Iron Lung" respirator for their life's breath are even rarer. Paul Alexander has crafted his life against all odds and has a courageous and compelling story to share with us all. Victims of Polio, their families, friends and communities are struggling to cope with this obscure but still dangerous infectious disease. This book is a testimony to the strength of the human spirit and an affirmation of the need to continue efforts to eradicate the pestilence of Polio from the planet.

    While she cannot see well enough to operate without a guide dog or cane, she can see enough to know when someone is reacting to the visible signs of her blindness and can hear when they’re whispering behind her back. And she certainly knows how wrong our one-size-fits-all definitions of disability can be. As a media studies professor, she’s also seen the full range of blind and deaf portrayals on film, and here she deconstructs their impact, following common tropes through horror, romance, and everything in between. Part memoir, part cultural criticism, part history of the Deafblind experience, Being Seen explores how our cultural concept of disability is more myth than fact, and the damage it does to us all.

    Her episodic "missives" cover territory from the chaos of a frenetic childhood to love affairs, failed and otherwise, to the Chernobyl nuclear accident, to an ocean-crossing search for her Eastern European roots. In confident, lyrical prose, Kupperman leads the reader through a winding gallery--a collection of still lifes and portraits, landscapes of loneliness and love.

    It’s an experience we remember vividly; a time of food fights and cabin raids, first kisses and bittersweet heartbreaks, endless days of sun and fun away from parents. But there’s one person who has a take on camp unlike anyone else: the camp nurse.Camp Nurse reveals what it’s like to be the person kids turn to for help, comfort, and advice. Throughout nurse Tilda Shalof’s six summers at camp, kids troop through the infirmary with a variety of ordinary—as well as some extraordinary—complaints, questions, and ailments, including the symptom endemic to every summer camp: homesickness. Along the way she discovers it’s often the emotional boo-boos that need more attention than the bug bites, poison ivy, and scrapes and scratches that come with the territory.Camp Nurse is funny, entertaining, insightful, and above all heartwarming. It’s filled with all the twinges of nostalgia one expects to get when remembering long-ago summers at camp.Praise for Tilda Shalof’s other books: “A cracking good read.” – Quill & Quire “The best-seller no one can put down.” – Montreal Gazette

    Then her whirlwind life of celebrity parties came to an abrupt, grinding halt when she was stricken with a serious illness in one of its rarest forms: sarcoidosis of the central nervous system.Duffy soon realized that the only way for her to survive was not to take the disease too seriously. Instead of hiding from life, she chose to run toward it. She learned to embrace the chaos of a life-threatening disease with a wit and humor that helped her to find the love of her life at a time when things seemed darkest.Model Patient is a gripping, inspiring, and hilarious memoir that recounts the singular triumphs and tragedies of coping with a chronic, life-threatening disease.

    Meredith Norton chronicles every step of her experience, starting with her bizarre symptoms while living in Paris to moving back home to California and living with her compulsive parents and their five television sets. Irreverent and incredibly funny, Norton rails against self-pity and victimhood and rants about the innumerable copies of Lance Armstrong’s cancer survival book pressed on her by well-meaning family and friends. Alongside the harrowing portrait of her treatments, Norton offers equally amusing memories from her offbeat life. We see her childhood time during a somewhat racist ski trip, a family reunion at a Florida alligator farm, and her life in a tree house with a neighbor, who, despite being vegan, hates mice enough to taxidermy them into miniature versions of racecar drivers, Jesus, a UPS delivery man, and Sally Jesse Raphael. Like David Sedaris and Augusten Burroughs, Norton’s razor-sharp wit is at once riotous and excruciating. Lopsided is the remarkable debut of a masterful humorist.

    These essays include fights and failures and the uncovering of and documentation of these lives. Michelle Tea reveals herself through these stories.