Book picks similar to
Growing Up with Joey by Sandy Papazian


developmental-disorders
disability
special-education
speech-language-pathology

Scoot Over and Make Some Room: Creating a Space Where Everyone Belongs


Heather Avis - 2019
    Mama to three adopted kids--two with Down Syndrome--Heather encourages us all to take a breath, whisper a prayer, laugh a little, and make room for the wildflowers.In a world of divisions and margins, those who act, look, and grow a little differently are all too often shoved aside. Scoot Over and Make Some Room is part inspiring narrative and part encouraging challenge for us all to listen and learn from those we're prone to ignore.Heather tells hilarious stories of her growing kids, spontaneous dance parties, forgotten pants, and navigating the challenges and joys of parenthood. She shares heartbreaking moments when her kids were denied a place at the table and when she had to fight for their voices to be heard. With beautiful wisdom and profound convictions, this manifesto will empower you to notice who's missing in the spaces you live in, to make room for your own kids and for those others who need you and your open heart.This is your invitation to a table where space is unlimited and every voice can be heard. Because when you open your life to the wild beauty of every unique individual, you'll discover your own colorful soul and the extraordinary, abundant heart of God.

All I Can Handle: I'm No Mother Teresa: A Life Raising Three Daughters with Autism


Kim Stagliano - 2010
    Spock? Check. Penelope Ann Leach (remember her?)? Check. What to Expect When You’re Expecting? Check. I had a seven hundred dollar Bellini crib for God’s sake! I was perfect. And so was Mia when she was born . . ." ...and so begins Kim Stagliano’s electrifying and hilarious memoir of her family’s journey raising three daughters with autism. In these stories, Stagliano has joined the ranks of David Sedaris and Augusten Burroughs with her amazing ability to lay everything on the table—from family, friends, and enemies to basement floods to birthdays to (possible) heroin addictions—eviscerating and celebrating the absurd. From her love of Howard Stern to her increasing activism in the autism community and exhaustive search for treatments that will help her daughters, she covers it all. Always outspoken, often touching, and sometimes heartbreaking, Kim Stagliano is a powerful new voice in comedic writing—her “Kimoir” (as she calls it) will be a must-read within the autism community and the literary world at large.

12 Principles for Raising a Child with ADHD


Russell A. Barkley - 2020
    Barkley has become a leading authority on attention-deficit/hyperactivity disorder (ADHD) in kids and teens. He has learned what a huge difference parents can make in supporting their children's success--as well as how overwhelming it can be. This concise guide presents 12 key parenting principles for dealing with common behavioral, emotional, and school challenges. By cultivating a mindset of acceptance and compassion--together with an understanding of the executive function deficits of ADHD--you can strengthen your loving connection with your child and help your whole family thrive. Filled with practical suggestions and quick-reference lists and tips, this is the perfect book to read cover to cover or pick up any time you need extra support.

Carly's Voice: Breaking Through Autism


Arthur Fleischmann - 2012
    Doctors predicted that she would never intellectually develop beyond the abilities of a small child. Although she made some progress after years of intensive behavioral and communication therapy, Carly remained largely unreachable. Then, at the age of ten, she had a breakthrough. While working with her devoted therapists Howie and Barb, Carly reached over to their laptop and typed in "HELP TEETH HURT," much to everyone's astonishment. This was the beginning of Carly's journey toward self-realization. Although Carly still struggles with all the symptoms of autism, which she describes with uncanny accuracy and detail, she now has regular, witty, and profound conversations on the computer with her family, her therapists, and the many thousands of people who follow her via her blog, Facebook, and Twitter. In Carly's Voice, her father, Arthur Fleischmann, blends Carly's own words with his story of getting to know his remarkable daughter. One of the first books to explore firsthand the challenges of living with autism, it brings readers inside a once-secret world and in the company of an inspiring young woman who has found her voice and her mission.

Drawing Autism


Jill Mullin - 2009
    Add Drawing Autism to your wish list, tell your friends about it, and show it to your kids on the spectrum."-- Autism/Asperger's Digest "Mullin, a behavior analyst, brings together fascinating works by 40 artists on the spectrum with their answers to her questions about their process."-- The Boston Globe "Editor Jill Mullin has collected artwork from a host of painters and other graphic artists who are all somewhere on the spectrum. The fascinating and often lovely reprints in Drawing Autism help provide another perspective on the capabilities of people with autism."-- Time Out New York "Mullin's clinical background in Applied Behavior Analysis, combined with more than a decade helping individuals with ASD, serve her well as the book’s curator."-- The Portland Phoenix "[Editor Jill Mullin] has put together a beautiful and stimulating exhibition-in-a-book."--Story Circle Book Reviews"Drawing Autism is absolutely wonderful in its entirety."--Brain Pickings"Jill Mullin embraces the full range and spectrum of autism and artistic expression...Rich and varied images."--BookTrib"This book is like a key to opening doors across educational and medical landscapes. But perhaps even more importantly, the fact that many of the artists are able to explain what they were feeling at the time of their drawings will surely help this book find solid footing among parents, caregivers, and extended family members who have, up to this point, struggled to understand the inner workings of their precious loved one’s autistic mind."--New York Journal of Books"A book of astonishing beauty."-- BOOKS (France)"What is the actual experience of living with autism in a deep-felt sense, beyond the social stereotypes and headline-worthy superskills? Drawing Autism, a celebration of the artistry and self-expression found in artwork by people diagnosed with autism, explores just that. The stunning volume features works by more fifty international contributors, from children to established artists, that illustrate the rich multiplicity of the condition."-- The Atlantic Over the last decade autism spectrum disorder (ASD) has become an international topic of conversation, knowing no racial, ethnic, or social barriers. Behavior analyst and educator Jill Mullin has assembled a staggering array of work from established artists like Gregory Blackstock and Jessica Park to the unknown but no less talented. Their creations, coupled with artist interviews, comprise a fascinating and compelling book that serves to educate and inspire anyone who knows someone diagnosed with ASD. Mullin's introduction and the foreword by best-selling author Temple Grandin provide an overview of autism and advocate for nurturing the talents, artistic and otherwise, of autistic individuals.

Babies with Down Syndrome: A New Parents' Guide


Susan Skallerup - 2008
    Covering the best practices for raising and caring for children with Down syndrome through age five, this book is invaluable to new parents who have welcomed a baby with Down syndrome into their lives. This new edition incorporates the latest scientific, medical, educational research, and practical information available, as well as parents' suggestions and feedback. Existing chapters have been revised, some completely rewritten by new authors, and in keeping with its parent-friendly reputation, most of the book's contributors are parents of children with Down syndrome Chapters cover: - What Is Down Syndrome?: A primer on the causes, characteristics, and diagnosis, including the latest information on genetics and prenatal testing;- Adjusting to Your Baby: Advice from an experienced mother on coping with common emotions and announcing the news to friends and family;- Medical Concerns & Treatments: An overview of possible health issues including celiac disease, sleep apnea, diabetes, reflux, and skin problems, with an emphasis on detecting signs early for needed treatment;- Daily Care: The gamut of care from feeding to bathing, with expanded information about toilet training;- Family Life: The impact on siblings and couples, discipline issues, and new material to help everyone understand that a child's behavior is a form of communication;- Development & Learning: Expectations about development plus new material on variability in development, learning styles, using reading todevelop language, memory strengths and weaknesses, and using play to encourage learning;- Early Intervention: An overview of services and therapies for babies & toddlers with new information on the transdisciplinary approach, providing services in the natural environment, transitioning preschool, and common questions & answers;- Legal Rights & Financial Issues: Explains your child's educational and legal rights, and financial information, including the latest on federal education and civil rights laws, sources of financial assistance, health insurance, trusts, and guardianship.Full of new photos, parent statements, updated and expanded resources and reading lists, this build everything parents need to build a bright and healthy future for their child with Down syndrome.

The Verbal Behavior Approach: How to Teach Children with Autism and Related Disorders


Mary Barbera - 2007
    Skinner's analysis of verbal behavior and works particularly well with children with minimal or no speech abilities. In this book Dr. Mary Lynch Barbera draws on her own experiences as a Board Certified Behavior Analyst and also as a parent of a child with autism to explain VB and how to use it.This step-by-step guide provides an abundance of information about how to help children develop better language and speaking skills, and also explains how to teach non-vocal children to use sign language. An entire chapter focuses on ways to reduce problem behavior, and there is also useful information on teaching toileting and other important self-help skills, that would benefit any child.This book will enable parents and professionals unfamiliar with the principles of ABA and VB to get started immediately using the Verbal Behavior approach to teach children with autism and related disorders.

Finding Ben: A Mother's Journey Through the Maze of Asperger's


Barbara LaSalle - 1999
    Yet, lurking beneath this boy genius's amazing, albeit useless, gifts for facts were an extraordinary fear of change and social aloofness. Unknown to his mother, Barbara, until much later, Ben suffered from Asperger's syndrome--the "little grown-up" disorder--a neurobiological disease similar to autism. Frank, honest, and beautifully written, Finding Ben is a remarkably moving account of Barbara LaSalle's struggles to understand--and overcome--the guilt she feels for not fully loving her son.Burdened with the belief that the world would look at her son and somehow see her own failure, Finding Ben is a powerfully honest narrative account of how a mother's love can turn over time into resentment for having to raise a special-needs child.It is through LaSalle's special friendship with Jack, a man full of wisdom despite his debilitating brain aneurysm, that LaSalle is finally able to love her son--and herself--again. With two stories to tell, Finding Ben is both a fascinating look at a mercurial disease and a powerful story of one mother's personal journey from frustration and resentment to love and acceptance.

The Elephant in the Playroom: Ordinary Parents Write Intimately and Honestly about the Extraordinary Highs and Heartbreaking Lows of Raising Kids with Special Needs


Denise Brodey - 2007
    As she struggled to make sense of her new, often chaotic, often lonely world, what she found comforted her "most" was talking with other harried, hopeful, and insightful parents of kids with special needs, learning how they coped with the feelings they encountered throughout the day.In "The Elephant in the Playroom," moms and dads write intimately and honestly about the joyful highs and disordered lows of raising children who are ?not quite normal.? Laying bare the emotional, medical, and social challenges they face, their stories address issues ranging from if and when to medicate a child, to how to get a child who is overly sensitive to the texture of food to eat lunch. Eloquent and honest, the voices in this collection will provide solace and support for the millions of parents whose kids struggle with #ADHD, #sensory disorders, childhood #depression, Asperger's syndrome, and autism?as well as the many kids who fall between diagnoses.Offering readers comfort, community, and much-needed perspective, "The Elephant in the Playroom" has become essential reading for parents of special needs kids.

Where Is the Mango Princess?: A Journey Back from Brain Injury


Cathy Crimmins - 2000
    No longer the man who loved obscure Japanese cinema and wry humor, Crimmins' husband has emerged from the accident a childlike and unpredictable replica of his former self with a short attention span and a penchant for inane cartoons. Where Is the Mango Princess? is a breathtaking account that explores the very nature of personality-and the complexities of the heart.

Helen and Teacher: The Story of Helen Keller and Anne Sullivan Macy


Joseph P. Lash - 1980
    Joseph P. Lash, author of Eleanor and Franklin, follows this gifted, passionate, and humanly flawed pair for 100 years, from Annie's childhood in an almshouse in the 1860s, through decades of international fame, to Helen's death in 1968. Among the vivid characters associated with their lives are Alexander Graham Bell, Mark Twain, Andrew Carnegie, Charlie Chaplin, and Eleanor and Franklin Roosevelt.

Trapped: My Life with Cerebral Palsy


Fran Macilvey - 2014
    However, right after she gave birth in the hospital, she felt strange. Unbeknownst to anyone, another daughter was on the way, but before anybody responded, an hour had passed. Because of the delay, Fran was born with cerebral palsy.Growing up with her siblings in Africa, Fran always felt different. When everyone else was playing and having fun, she would watch and wish she could join in. After the family moved to Scotland and Fran grew older, her hurt turned into anger, self-hatred, and suicidal depression. Then one day, someone looked at her and saw a woman to love, and that was the start of her journey to self-acceptance.Fran has written the painful truth about her life to help readers understand how disabled adults really feel. In her revealing account, she shows just how hard it is to maintain the appearance of a “normal” life. More importantly, out of her million and one mistakes have come lessons in real acceptance, peace, and joy, which she would like to share with her readers.

101 Games and Activities for Children with Autism, Asperger's and Sensory Processing Disorders


Tara Delaney - 2009
    Children improve their motor skills, language skills, and social skills by moving their bodies and interacting with their environment. Yet the biggest challenges parents, teachers, and loved ones face with children on the autism spectrum or with sensory processing disorders is how to successfully engage them in play.Pediatric occupational therapist Tara Delaney provides the answer. In 101 Games and Activities for Children with Autism, Asperger's, and Sensory Processing Disorders, she shows you how to teach your children by moving their bodies through play. These interactive games are quick to learn but will provide hours of fun and learning for your child. And many of the games can be played indoors or outdoors, so your child can enjoy them at home, outside, or on field trips.More than one hundred games that help your child:make eye-contact, stay focused, and strengthen his or her motor skillsassociate words with objects and improve language and numerical skillslearn how to interact with others, how to take turns, and other social skills needed for attending preschool and school

The Way I See It: A Personal Look at Autism & Asperger's


Temple Grandin - 2008
    Temple Grandin's voice of experience is back to give parents and teachers specific, practical advice on helping young people on the autism spectrum. This collection of articles, written from 2000-present as an exclusive column in the national award-winning magazine, Autism Aspergers Digest, offers Temples invaluable personal and professional insights, from inside the world of autism, about autism. Temple voices her views on a wide variety of topics ranging from the nonverbal child to social functioning, early intervention to adult issues. The articles have been updated and Temple has added fresh commentary on the topics.

Changing the Course of Autism: A Scientific Approach for Parents and Physicians


Bryan Jepson - 2007
    Most books on this subject describe educational and behavioural therapies, but autism is a medical disease, not a psychological disorder. This groundbreaking books shows that the disease can be treated by reducing the neurological inflammation that is part of the disease process, rather than simply masking the symptoms with drugs like Ritalin and Prozac. The authors have seen autistic behaviours improve dramatically or disappear completely with appropriate medical treatment. The book reviews the medical literature regarding the biological nature of the disease, including the potential connection between vaccines and autism. angry at the rise in this disease and the way it is treated. It is the only book on this subject written by an MD who is also the parent of an autistic child. In 2001, the second son of Jepson was diagnosed with autism. treatment options and found that the medical community knew very little about the cause, the treatment, or the prognosis of this disease. After a year of research, the couple established the non-profit Children's Biomedical Center of Utah. There autistic children could receive the most up-to-date care available. From 2002-2005, Dr Jepson treated hundreds of children on the autism spectrum and the clinic raised awareness throughout the intermountain West concerning issues related to autism and other childhood developmental disorders. join the team at Thoughtful House Center for Children, a multidisciplinary clinic dedicated to caring for children with autism and related conditions. The Thoughtful House is designed to integrate biomedical, gastrointestinal, and educational intervention into a coordinated effort, and to use this model to perform clinical research. It officially opened January 1st, 2006, and Dr Jepson is now its Medical Director.