Sincerely, Your Autistic Child: What People on the Autism Spectrum Wish Their Parents Knew About Growing Up, Acceptance, and Identity


Sharon daVanportMallory Cruz - 2021
    Furthermore, it is widely believed that many autistic girls and women are underdiagnosed, which has further limited the information available regarding the unique needs of girls and nonbinary people with autism.Sincerely, Your Autistic Child represents an authentic resource for parents and others who care about autism written by people who understand this experience most, autistic people themselves. From childhood and education to culture, gender identity, and sexuality, this anthology of autistic contributors tackles the everyday challenges of growing up while honestly addressing the emotional needs, sensitivity, and vibrancy of the autistic community with a special focus on autistic girls and nonbinary people. Written like letters to parents, the contributors reflect on what they have learned while growing up with autism and how parents can avoid common mistakes and overcome challenges while raising their child.Sincerely, Your Autistic Child calls parents to action by raising awareness and redefining "normal" in order to help parents make their child feel truly accepted, valued, and celebrated for who they are.Contributors: B. Martin Allen, B. Rankowski, K. Asasumasu, M. Baggs, L. Wiley-Mydske, H. Moss, L. XZ Brown, K. Rodriguez, A. Schaber, J. St. Jude, M. Sparrow, M. Cruz, A. Sequenzia, K. Lean, L. Soraya, K. Smith, A. Forshaw, H. Wangelin/HW, V.M. Rodríguez-Roldán, J. Strauss, O.M. Robinson, K. Levin, J. Winegardner, D. Lyubovskaya, E.P. Ballou, S. daVanport, and M. Giwa Onaiwu. Foreword and Afterword by J. Wilson and B. Ryan.

Little Panic: Dispatches from an Anxious Life


Amanda Stern - 2018
    Plagued with fear that her friends and family will be taken from her if she's not watching--that her mother will die, or forget she has children and just move away--Stern treats every parting as her last. Shuttled between a barefoot bohemian life with her mother in Greenwich Village, and a sanitized, stricter world of affluence uptown with her father, Stern has little she can depend on. And when Etan Patz disappears down the block from their MacDougal Street home, she can't help but believe that all her worst fears are about to come true. Tenderly delivered and expertly structured, Stern's memoir is a document of the transformation of New York City and a deep, personal, and comedic account of the trials and errors of seeing life through a very unusual lens.

The Out-of-Sync Child: Recognizing and Coping with Sensory Processing Disorder


Carol Stock Kranowitz - 1998
    This newly revised edition features additional information from recent research on vision and hearing deficits, motor skill problems, nutrition and picky eaters, ADHA, autism, and other related disorders.

The Last Asylum: A Memoir of Madness in our Times


Barbara Taylor - 2014
    Her journey there began when, overwhelmed by anxiety as she completed her doctoral studies in London, England, she found relief by dosing herself with alcohol and tranquillizers. She then embarked on what would turn out to be a decades- long psychoanalysis.The analysis dredged up acutely painful memories of an unhappy and confusing childhood back in Saskatoon. As Taylor struggled to cope with these, she would twice be re-admitted to Friern. She took refuge in day-care institutions and a psychiatric hostel, all the while continuing her therapy, which eventually put her on the road to recovery.This searingly honest, beautifully written memoir is the narrative of the author’s madness years, set inside the wider story of our treatment of psychiatric illness: from the great age of asylums to the current era of community care, ‘Big Pharma’, and quick fixes. It is a meditation on her own experience as well as that of millions of others – both in Europe and in North America – who have suffered, are suffering, and will suffer from mental illness.

Strange Son: Two Mothers, Two Sons, and the Quest to Unlock the Hidden World of Autism


Portia Iversen - 2006
    Tito Mukhopadhyay, an autistic boy from India who spends most of his time flapping his fingers in front of his eyes, has an IQ of 185. He favors the writings of Wordsworth and Ibsen. He loves philosophy, reads "People," and worries about conflict in the Middle East. He also writes beautiful poetry. That Tito can communicate at all is due to his mother, Soma, who single-handedly developed a revolutionary method of teaching him in their one-room apartment in Bangalore, a "classroom" that lacked even running water. Portia Iversen, an Emmy-winning art director whose life was turned upside down when her own son Dov was diagnosed with autism, heard of Soma's miraculous story in the course of her own desperate search for a cure. Under the auspices of Cure Autism Now, the foundation she started with her husband that is now one of the largest funds for autism research in the world, Portia brought Soma and Tito to America to help researchers understand how Soma accomplished this amazing feat and to determine what can be learned from their success. Together, Soma and Portia have made remarkable progress in teaching their sons how to break through the walls of autism. And, in the process, they have assisted scientists in making astonishing discoveries about the nature of autism itself. "Strange Son" is the extraordinary account of two families who redefined how autism-and autistic people-should be treated, all the while helping to answer some of autism's most baffling questions and prompting new research. Iversen weaves the twin stories of Soma and Tito (and how Soma's methods mystified experts) together with her own story of how she and her family came to understand Dov. The result is a book suffused with uplifting human drama.

Sickened: The Memoir of a Munchausen by Proxy Childhood


Julie Gregory - 2003
    Just twelve, she’s tall, skinny, and weak. It’s four o’clock, and she hasn’t been allowed to eat anything all day. Her mother, on the other hand, seems curiously excited. She's about to suggest open-heart surgery on her child to "get to the bottom of this." She checks her teeth for lipstick and, as the doctor enters, shoots the girl a warning glance. This child will not ruin her plans.SickenedFrom early childhood, Julie Gregory was continually X-rayed, medicated, and operated on—in the vain pursuit of an illness that was created in her mother’s mind. Munchausen by proxy (MBP) is the world’s most hidden and dangerous form of child abuse, in which the caretaker—almost always the mother—invents or induces symptoms in her child because she craves the attention of medical professionals. Many MBP children die, but Julie Gregory not only survived, she escaped the powerful orbit of her mother's madness and rebuilt her identity as a vibrant, healthy young woman.Sickened is a remarkable memoir that speaks in an original and distinctive Midwestern voice, rising to indelible scenes in prose of scathing beauty and fierce humor. Punctuated with Julie's actual medical records, it re-creates the bizarre cocoon of her family's isolated double-wide trailer, their wild shopping sprees and gun-waving confrontations, the astonishing naïveté of medical professionals and social workers. It also exposes the twisted bonds of terror and love that roped Julie's family together—including the love that made a child willing to sacrifice herself to win her mother's happiness. The realization that the sickness lay in her mother, not in herself, would not come to Julie until adulthood. But when it did, it would strike like lightning. Through her painful metamorphosis, she discovered the courage to save her own life—and, ultimately, the life of the girl her mother had found to replace her. Sickened takes us to new places in the human heart and spirit. It is an unforgettable story, unforgettably told.

Life, Animated: A Story of Sidekicks, Heroes, and Autism


Ron Suskind - 2014
    It is the saga of Owen Suskind, who happens to be the son of one of America's most noted writers, the Pulitzer Prize-winning journalist and author Ron Suskind. He's also autistic. The twisting, 20-year journey of this boy and his family will change that way you see autism, old Disney movies, and the power of imagination to heal a shattered, upside-down world.

We're Not Broken: Changing the Autism Conversation


Eric Garcia - 2021
    It’s also my love letter to autistic people. For too long, we have been forced to navigate a world where all the road signs are written in another language.”With a reporter’s eye and an insider’s perspective, Eric Garcia shows what it’s like to be autistic across America.Garcia began writing about autism because he was frustrated by the media’s coverage of it; the myths that the disorder is caused by vaccines, the narrow portrayals of autistic people as white men working in Silicon Valley. His own life as an autistic person didn’t look anything like that. He is Latino, a graduate of the University of North Carolina, and works as a journalist covering politics in Washington D.C. Garcia realized he needed to put into writing what so many autistic people have been saying for years; autism is a part of their identity, they don’t need to be fixed. In We’re Not Broken, Garcia uses his own life as a springboard to discuss the social and policy gaps that exist in supporting those on the spectrum. From education to healthcare, he explores how autistic people wrestle with systems that were not built with them in mind. At the same time, he shares the experiences of all types of autistic people, from those with higher support needs, to autistic people of color, to those in the LGBTQ community. In doing so, Garcia gives his community a platform to articulate their own needs, rather than having others speak for them, which has been the standard for far too long.

Sick: A Memoir


Porochista Khakpour - 2018
    For most of that time, she didn't know why. All of her trips to the ER and her daily anguish, pain, and lethargy only ever resulted in one question: How could any one person be this sick? Several drug addictions, three major hospitalizations, and over $100,000 later, she finally had a diagnosis: late-stage Lyme disease. Sick is Khakpour's arduous, emotional journey—as a woman, a writer, and a lifelong sufferer of undiagnosed health problems—through the chronic illness that perpetually left her a victim of anxiety, living a life stymied by an unknown condition.Divided by settings, Khakpour guides the reader through her illness by way of the locations that changed her course—New York, LA, New Mexico, and Germany—as she meditates on both the physical and psychological impacts of uncertainty, and the eventual challenge of accepting the diagnosis she had searched for over the course of her adult life. With candor and grace, she examines her subsequent struggles with mental illness, her addiction to the benzodiazepines prescribed by her psychiatrists, and her ever-deteriorating physical health. A story about survival, pain, and transformation, Sick is a candid, illuminating narrative of hope and uncertainty, boldly examining the deep impact of illness on one woman's life.

The Deepest Well: Healing the Long-Term Effects of Childhood Adversity


Nadine Burke Harris - 2018
    Nadine Burke Harris was already known as a crusading physician delivering targeted care to vulnerable children. But it was Diego — a boy who had stopped growing after a sexual assault — who galvanized her journey to uncover the connections between toxic stress and lifelong illnesses.The news of Burke Harris’s research is just how deeply our bodies can be imprinted by ACEs—adverse childhood experiences like abuse, neglect, parental addiction, mental illness, and divorce. Childhood adversity changes our biological systems, and lasts a lifetime.  For anyone who has faced a difficult childhood, or who cares about the millions of children who do, the scientific insight and innovative, acclaimed health interventions in The Deepest Well represent hope for preventing lifelong illness for those we love and for generations to come​.

Different Minds: Gifted Children with AD/HD, Asperger Syndrome, and Other Learning Deficits


Deirdre V. Lovecky - 2003
    Explaining why certain children are gifted and how giftedness is manifested, each chapter on a specific topic addresses the relevance for children with AD/HD and Asperger Syndrome. Lovecky guides parents and professionals through methods of diagnosis and advises on how best to nurture individual needs, positive behavior and relationships at home and at school.Lovecky explores concepts such as asynchrony and the effects of such `uneven' development on children, using case studies to illustrate emotional, intellectual, creative and social development. She also highlights the inadequate measures currently in place to assist parents and teachers and goes on to clearly define what is required to understand and help these children so that their needs can be met more positively in the future. Different Minds, with its wealth of practical and background information, is essential reading for all those who live or work with gifted children with attention difficulties.

Weekends at Bellevue: Nine Years on the Night Shift at the Psych E.R.


Julie Holland - 2009
    Recounts stories from her vast case files that are alternately terrifying, tragically comic, and profoundly moving, all while she deals with her best friend and fellow doctor's fight with cancer.

Driven to Distraction: Recognizing and Coping with Attention Deficit Disorder from Childhood Through Adulthood


Edward M. Hallowell - 1992
    Discusses the causes, symptoms, and treatment of attention-deficit Disorder (ADD).

My Age of Anxiety: Fear, Hope, Dread, and the Search for Peace of Mind


Scott Stossel - 2014
    Today, it is the most common form of officially classified mental illness. Scott Stossel gracefully guides us across the terrain of an affliction that is pervasive yet too often misunderstood. Drawing on his own long-standing battle with anxiety, Stossel presents an astonishing history, at once intimate and authoritative, of the efforts to understand the condition from medical, cultural, philosophical, and experiential perspectives. He ranges from the earliest medical reports of Galen and Hippocrates, through later observations by Robert Burton and Søren Kierkegaard, to the investigations by great nineteenth-century scientists, such as Charles Darwin, William James, and Sigmund Freud, as they began to explore its sources and causes, to the latest research by neuroscientists and geneticists. Stossel reports on famous individuals who struggled with anxiety, as well as on the afflicted generations of his own family. His portrait of anxiety reveals not only the emotion’s myriad manifestations and the anguish anxiety produces but also the countless psychotherapies, medications, and other (often outlandish) treatments that have been developed to counteract it. Stossel vividly depicts anxiety’s human toll—its crippling impact, its devastating power to paralyze—while at the same time exploring how those who suffer from it find ways to manage and control it. My Age of Anxiety is learned and empathetic, humorous and inspirational, offering the reader great insight into the biological, cultural, and environmental factors that contribute to the affliction.

Well Enough Alone


Jennifer Traig - 2008
    She discovers that she does not have SUDS, the mysterious disorder that claims healthy young Asian men in their sleep, nor does she have Foreign Accent Syndrome, the bizarre but real neurological condition that transforms native West Virginians into Eliza Doolittle overnight. What she does have is hypochondria. Jenny Traig's inquiry into her ailment is not only an uproariously funny account but also a literary tour of hypochondria, past and present: the implied hypochondria of the Talmud, the flatulence-obsessed eighteenth century, and the malady's current unfortunate lack of a celebrity spokesperson. At the same time, Traig provides an intimate look at the complement of minor conditions that have concealed her essential health and driven her persistent self-diagnosis: the eczema, the shaky hands, and, worst of all, the bad hair. To her surprise, she ends her journey more knowledgeable than she was when she started out, a little less neurotic, and one might say healthier. Well Enough Alone is the definitive book on being worried well, in all of its gruesome and hysterical detail, from one of our funniest and most distinctive literary voices.